Calling all TNs
Comments
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Dawn - I went to a mental health therapist last week because I get so down when the pain just won't stop...and she gave me a 'tapping' pressure point routine with dialogue to use to diminish some of the emotional frustration. Its all I have to hang on to, so I'll keep doing it... this is crazy but learning to live with the pain and not just exist or be resentful is the new goal. Nuts. Buddahists say learning to deal with suffering is the path to enlightenment. I clearly have the path laid out !! haha
Love reading thru the posts so... hi newbies and hugs to those still here offering encouragement and support.
I have a question...I never eat soy based products because I don't tolerate it well. I decided to eat some Edamame Friday..maybe 20 of the little soy pods...and yesterday and today my right foob is puffed up like a watermelon ready to burst. Its so sore, but not warm. I know the soy and estrogen are related, but if I don't have any breast tissue left, why am I reacting? I guess it could be an extension of LE that I get time to time in my right arm, but this is armpit to center of cleavage. Any ideas?
Have a healthy week!
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I've been visiting grandbabies out of town for several days and just now read about "breaking cords." I've got cords and massage them nightly, but I this isn't enough. How do you "break" them?
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Annie~ I did Adriamycin and taxotere last round was feb 2011, then lumpectomy march 2011, then a whole lot of rads. I'm on gabapentin, but I don't take as much as they would like....I get a little cloudy when I take during the day, not always a bad thing to be cloudy, but not so much at work.
Being TN I tried a vegan diet for 8 months - also took out sugar, preservatives, processed foods - but I guess I ate too many potatoes since i didn't loose a pound - chemopause, I guess. I've heard so many different "TN diets" like low or no fat, no meat, etc. I'm little confused...
So I'm 42, have one DD away at college, I have a DH - second time around I got it right. Good to meet you all.
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Good morning Ladies
Heather - I also sit on the fence re a psychic. I am just not convinced there is any truth in it and that it is just coincidence that they come up with something that relates to your questions/family.
Kathrynn - I am an over the top person with the loo roll and the old fellar is a 'leave it empty' person, too much trouble to get out a new one unless he needs it.
Karen - I do have a donut but it even hurts to walk. I feel like a duck waddling around. Glad you are feeling better today. I agree with Kathrynn on the pouch plotting revenge, at least mine would!!
I still had joint pains today and was tired so I thought I would take the morning off from typing. Anyway I was sitting at the computer and thought I would go and make a nice cup of coffee. Walked through the kitchen and there was little bits of white paper everywhere and in the lounge and dining. The little shit had completely ripped up a new box of plasters I brought yesterday for my boil and left on the side of the bedside cabinet. So I thought right this time, well she was spinning around and around, just like a kid does when they don't want their rump wacked but I managed to get in a real doozy. So ladies -
Free to good home or any home come to that. One white, small maltese little shit. You don't have to feed her cause she eats everything in sight. I will even deliver it, as far away as possible. Comes complete with half chewed bed, half chewed toys and half chewed leash. Will be a great companion for anyone provided they don't leave her alone, ever.
I'm gonna replace her with six cats like Inmate. They are a lot less of a problem provided they don't sit on my chair.
Off for my onco visit tomorrow so I'll see what she says about these joint pains and numbness. I'm hoping she says I don't have to have any more taxol but that could be wishful thinking.
Well I think I might wobble back and start some work. Have a good day, don't forget to keep smiling if you can. Annie
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Annie - that cracked me up! My Yorkie only eats the back end of guest's pants

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Ok Annie- what are plasters? Are they bandages? All I think of is plaster on the wall!
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Jan69--I was told to only let a professional LE therapist break the cords. Post on the Le thread your question and you should get some responses from some really qualified to answer ladies. I have had some terrible cords in my affected arm and now have crappy LE in it too. It is my least fave SE from all this S**T. I hate the compression day and night and am trying to adjust to it all. End of rant.
maggie
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Tifj - those little waterproof things that come in a box that you stick over cuts etc. or in my case a boil. You can get tweety bird ones and animal ones for kiddies. They are about 2" long and about ½ wide but they also come in different sizes and you can get little round ones if its only a small cut. Bandages are bigger and come in all shapes and sizes. You must have something in America for when you cut your finger but I just don't know what they are called. Bandages would be too big for that area!! Here in NZ its plaster of paris that goes on the walls. I think this is why I never understand the abbreviations that the girls talk about on here, cause its called something different here. You say MO for what I think is Medical Officer and we say GP for General Pracititioner which is your local all round doctor, not a specalist. If you got a little cut on your finger what would you put on and what is it called. Not that the boil feels small, it feels like a bloody great boulder but in essence it is only a small area.
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Those "plasters" are bandaids over here.
Doreen
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Thanks for the explanation! We call them Band-aids which is a brand name, but other companies make them too. Some people also call them bandages even though they are small. I have to admit I always giggle when you mention a fag! Definitely not the same meaning here!!
I've never had a boil and I certainly would not want one where you have it- my heart goes out to you!!
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mags Thanks for your info. I see my GP this week and will ask for a referral to therapist.
Best thing today: Watching mom and dad quail care for their babies outside my kitchen window. Dad sits on tree stump or picnic bench and mom and kids scratch the ground for seeds or ? We also have a family of chimpmunks with 3 very tiny babies. Cute. The wild turkeys, young and old are fascinating to watch, but a menace to anything I plant.I could go on about the deer, fox, mountain lion, coyote. They were here first, so I leave them in peace. But I paid big money to live here. With all that wildlife outside, Cocker I think I'll pass on the offer of your in door wild maltese.
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Tifj - not thinking, chemo brain. Of course they are called band-aids here too. Stupid me. Plasters are just the old name for them. Yep they are band aids. Yes a fag, NavyMom PM'd me about that and laughingly told me what that meant. We call them Dykes or Lezzo's, ie lesbian. I can understand the lezzo's but god knows what Dykes has got to do with it. My old fellar calls then "lezby friends" ie lets be friends. I hope nobody on here will be offended cause I know some extremely nice lesbians that are really great gals.
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Jan69 - bloody typical aye, dad sits on his arse and mum forages for the food!! I would actually love to live there with all those animals around me (honest I didn't smack the little rat hard, I really do like animals! just not her at times) she probably barely felt it and will be into something else tomorrow. But the quail, mountain lion and coyote would be wonderful to see and live near.
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Luigi and Virginia both aged 72, were married.
After returning from his honeymoon in Florida with his new bride, Virginia, Luigi stopped by his old barbershop in Cleveland to say hello to his friends.
Giovanni said, "Hey, Luigi, how wasa da treepa?"
Luigi said, "Everytinga wasa perfecto except for the traina ride down."
"Whata you nean, Luigi?"
"Well, we boarda da train at Grana Central Station. My beautiful Virginia, she pack a biga basket a food. She brought vina, some nice cigars for me, and we were lookin a forward to da trip. Everything wasa Okey Dokey until we gotta hungry and open upa da luncha basket.
The conductore come a by, waga hisa finger at us anda say, 'no eat in disa car. Musta use a dining car."
"So me and my beautiful Virginia, we go to dining car, eat a biga luncha and start to open a bottle of nice a vino!
Conductore walka by again, waga hisa finger and say, 'No drinka in disa car. Musta use a club a car."
"So, we go to club car, While drinkina vino, I start to lighta my biga cigar, The conductore, he waga his finger again and say, 'No smokina disa car. Must go to smokina car."
"We go to smokina car and I smoke a my biga cigar. Then my beautiful Virginia and I, we go to sleeper car anda go to bed. We just about to go aboomada boomada and the conductore, he walka through da hall shouting at da top of hisa voice, 'Nofolka, Virginia! Nofolka, Virginia!"
"Next time, I'ma gonna take a da bus!"
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Karen - I have a suggestion. We swap doggies. Your little one looks lovely. Actually when we breed our Bichon's my Sophie was a tiny little thing and we also made steps for her to get onto the bed. The things you do for dogs. My Chloe's expression said she was 'sorry' tonight. Until tomorrow !!!
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CS - I used to work with a guy from England, loved him, had the greatest, dryest sense of humor. Not sure how the subject ever came up but one day I must have used the word fanny to describe someones rear end. He was so shocked I said that, apparently fanny in England slang for a woman's girly parts. I think we both giggled over that at least once everyday after that.
Well, up for my second work week, didn't make my eliptical this morning and have to do food shopping tonight. Have a strange feeling I'm not getting out of work on time tonight so it will be another late night.
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How hard I am laughing at your posts. Yes, our languages (North American & English) are the same but so very, very different. Cocker... the English from England is pretty much the same as yours, but here in Canada... ?
Heather I laughed about the meaning of 'fanny'. I rememeber when I first moved here and saw a "fanny pack" advertised...I thought WTF is that.... turns out we call them 'bum bags'

To all with horrible SE's - hope they are getting more bearable as time goes on.
Enjoy your days.
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Good morning all. Laughing at the fanny pack post. It reminded me of a trip I made to London once... I got into all kinds of trouble with the language....lol.
Ladies, I'm starting to freak out a little bit. I have a check up with my BS later this week, and then next week I'm scheduled for the dreaded 6 month mammo/sonogram. My anxiety is kicking in right on schedule....couldn't sleep last night. Does anyone else go through this?
What scares me is this: I never felt my original lump, nor did my gynocologist. All I had were some strange pains in that breast. Then I had my regular mammo, and there was a 2.3 cm tumor sitting there. So even though I don't feel any lumps now, I do have pains in the bad breast. I've had them ever since my lumpectomy & rads....sometimes a shooting pain, sometimes my breast will feel hot, or heavy. I'm 14 months out of treatment....anyone else still having this stuff? I'm always so worried. Thanks for listening.
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http://www.mediabistro.com/tvnewser/robin-roberts-will-undergo-bone-marrow-transplant_b132160
Just wanted to share this terrible news. My heart goes out to her family. She is a Trineg as well
Waving and saying hello to everyone. I am just loving all the comedy ladies. It really does lighten things up.
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Fighter~ tears, tears, sob, smile, what a beautiful woman Robin is. Thank you for sharing.
Hope~ absolutely on the breast pain! I never had any pain in the breast, not even the day I found what felt like a golf ball in my boob when I was in the shower that day. Now after lumpectomy, chemo, and rads, I HURT. It's been a year this week since I finished treatment. I still can't sleep on the "bad" side, lifting stuff hurts later, bras hurt, skin burns, and for a long while I had terrible "pulling" pains inside the breast. My RO at my six month follow up actually asked me if I was having the pains yet. They used to hurt so bad and were so intense I would have to stop in my tracks.
BernieEllen~laughing out loud! That is a good one!
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Minxie - I wish you could have StarShiny's wish for a crystal ball. It's easier when you get a clear cut, "here's what you need to do" answer. (hug)
McCrimmon - I've been to quite a few psychics over the years, and I can say that I only met 2 that I truely believed had a gift. (fake psychics hate me, because I won't give them clues to read me with). Both of those 2 psychics told me things, that there is no way somebody could have guessed.
Ruth - I don't think 20 soy beans would cause that (I eat them frequently), and I would suggest you give the doc a call to see what they think. As to the path to enlightenment........we must all be fricking shiny geniuses after dealing with this disease!!!! Feel better!!
Mags - I'm so sorry for all of you dealing with LE, I can't begin to imagine what you're all dealing with. Sounds bloody awful!
Cocker - psssst - try shipping Chloe to Karen, with no return address, I think you can suck her into another dog. Feel better Hun. Boils may be the size of a pea, but they feel like Mount Vesuvius!
Jan - rut roh, Chloe pulls another stunt and I fear Cocker may ship her to visit with your wildlife.
Tazzy - thanks for the lesson on "fanny". Not one I knew.
Hope - I'm only 4 mo out of rads, so I can't say what 14 mo should be, but I do have the sharp shooting pains. I wish I could calm your anxiety, but I think it's normal in our situations. (hug). -
a silly story.......just went for my 6 month mammo, I was nervous......you never know. My original lump was not felt but turned up on my yearly mammo. I have all the pics taken and am sitting waiting to be told if the radiologist needs any more pics or if I'm done. The tech comes and tells me the radiologist needs more pics, my anxiety level has just shot up. The tech takes more pics, then she tells me they also want more pics on the other breast.......guess where my anxiety level is now. So, now I am sitting in the waiting room again waiting to see if we're finished. I look down at my feet and for the first time since I got dressed this morning I notice I am wearing two different color flip flops........who knows how many people have noticed this, okay so maybe I was very nervous this morning.
And a good ending to the story......the tech comes back, asks me to step out into the hall, then she tells the radiologist says everything looks good and they recommend I come back in a year (of course, I still want 6 month mammos). I actualy had to ask her to repeat herself, thinking I didn't hear right...........
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Fighter - I saw the news about Robin Roberts, very saddened by her news. She is sort of my hero, I admire her and think about her BC experience every time I see her on TV. She looks so healthy and toned. Anyway, in one of the articles, it says that this blood disease she has may have been brought about by chemo she had had for BC. I remember my own very educated Onco. had told me that one in one thousand woman going through chemo can potentially develop leukemia....... apparently what Robin has used to be called pre-leukemia, now it is called MDS or something like that. I can't imagine that she is the one in one thousand. God bless her and give her strength. This is always at the back of my mind, this potential from having had chemo. She was at the 5-year mark, can you believe the disappointment she must be facing. My heart goes out to her. At 5 years, I would feel on top of the world if this thing does not recur. Aren't we all just dying to reach that 5 year mark? Hope everyone is doing fine. For every post that I read on the last few pages, I have something to say (I am a very talktative and opinionated woman), so much to say, but no time ladies, so am just passing by with this one special comment today. Love you all, have a wonderful, bright day, make some vacation plans and just dream away. I am dreaming of a tropical vacation to Fiji Islands coming up in Jan. 2013.
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Diagnosed 5 months before my 52 birthday! Found a lump in Feburary doctor set me up for Mamogram and Ultrasound in March. BS did Bilateral Mastectomy in April, removed 19 lymphnodes 2 were cancerous. Tumor grew unbelieavable quick by the time of surgery it was 6cm. Starting chemo next week dose dense ACT- 14 day cycle for 16 weeks then radiation. We have a family history and I still have to get a Genetic Test done. My mom died from breast cancer in 90, my little sister beat it in 98 and I know I'm going to beat it because there is so much more today then back then.
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My heart goes out to Robin. Thanks for sharing the link Fighter. I just read the article about Robin in Good Housekeeping. She is an inspiration and a fighter.
Her interview about her recent diagnosis reminds me of the love and support that my team has given me throughout my journey. My work team is my second family and they have been so supportive through all my ups and downs. I can also relate to what Robin says about "normalcy". I cannot wait to get back to work and to have my normal life back. I just want that normalcy to return.
Wishing you all a great day. It's sunny and so HOT here today.
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Hi RozieP--thanks for sharing your stats and welcome to the TN group here...such a great blend of women from all over the world!! I had DD taxol 4x then DD A/C-- stats show that taxol first improves survival rate for us TN's so may want to ask if doc will do that first. It is a little easier than the A/C (at least it was for me) and you can get broke into the chemo routine. Ask anything you like here...nothing and I mean nothing is off limits. It is a real personable group and you're family now sista!!
Just made my appt for Wed to have my chemo port removed. Been putting it off since I was given the all clear in April since the Le started in the arm---it is getting annoying for sure -cannot get it controlled. SIGH!! Still excited to get that $^&$^% port out!
Maggie
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Hope 60 - the fear did lessen, over time for me. Kudos for making it to yearly mammos!!! Love the bit about the flip flops

Fighter - what part of VA are you in?
Rozie - so sorry about your mom. I love your spirit. I hope you sail through chemo! Let us know if you have any questions.
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Took my fat butt clothes shopping today. I use to love clothes - now I'm happy if all my bits are covered. Wed. Haircut and eyebrow waxing! I'm going to a Bonnie Raitt concert, that evening. I'm excited - but just thinking about it all makes me very tired.
Question - anyone have easy bruising? I keep finding them - I stopped aspirin 2 weeks ago. -
RozieP - Sure you will beat this, absolutely! What's up with age 51/52. I got diagnosed at 52 as well. It is as if something protects us when we are having our periods, and then soon thereafter, when it stops, comes the BC.
Hope - pain may be from your treatments. I still have pain even though I am two years out. We have absolutely no control over the results, do we? I am trying to tell myself this all the time. Whatever is to happen is going to happen, so why stress, let it go, let it happen, whatever. It is so difficult for me to have positive thoughts, especially after our first shock. Good luck!
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Gota joke, got a joke
A chap gets off the bus from work one night and suddenly realizes its his wife's birthday and he hasn't got a present.
He thinks oh god, what am I going to do. I can't go home on her birthday without a present, she will kill me.
He looks around and the only shop still open is a pet shop. So he think's oh well its better than nothing I'll see if they have anything suitable.
Goes in the shop and he hears a little voice "whatcha mate", "come on in". He takes no notice and continues browsing.
Then he hears the voice again "Hello mate" "come over here and see me" I'm lovely". Still takes no notice.
The pet shop owner comes up to him to see if he can help. So he explains about the wifes birthday present and how he can't go home without one. Then the voice comes again. "Over here mate, come and see me" "Trust me I will solve all your problems". So the chap says to the pet shop owner who is that? and the man said oh thats our little parrott. He's a gorgeous chap. And all the while the little voice is chatting away.
The pet shop owner said why not take him home to your wife she would really like him. He says there is only one problem with him, when I was cleaning out his cage one day the door swung back and cut off his little legs but apart from that he is perfect. So the chap says well how does he hang on the perch. So the pet shop owner says no problem he just curls his little cock around the perch and it keeps him on. So the chap says oh that's no problem I'll buy him.
So off he goes home and the wife is delighted with her birthday present.
He comes home the next night and as soon as he gets in the door the parrott says "blimey mate you should have been here today. She was upstairs with the milk man banging away, shocking". "A little while after that the postman came and she was at it again". "Then the rent man came and they were at it over the kitchen table" God it was awful.
The chap says well don't stop now, what happened next and the parrott said I dunno I got a stiffy and fell off the perch.
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RETIRED HUSBAND
After I retired, my wife insisted that I accompany her on her trips to Target. Unfortunately, like most men, I found shopping boring and preferred to get in and get out. Equally unfortunate, my wife is like most women - she loves to browse.
Yesterday my dear wife received the following letter from the local Target:
Dear Mrs. Harris ,
Over the past six months, your husband has caused quite a commotion in our store. We cannot tolerate this behavior and have been forced to ban both of you from the store. Our complaints against your husband, Mr. Harris , are listed below and are "documented by our video surveillance cameras":
1. June 15: He took 24 boxes of condoms and randomly put them in other people's carts when they weren't looking.
2. July 2: Set all the alarm clocks in Housewares to go off at 5-minute intervals.
3. July 7: He made a trail of tomato juice on the floor leading to the women's restroom.
4. July 19: Walked up to an employee and told her in an official voice, 'Code 3 in Housewares. Get on it right away'. This caused the employee to leave her assigned station and receive a reprimand from her Supervisor that in turn resulted with a union grievance, causing management to lose time and costing the company money.
5. August 4: Went to the Service Desk and tried to put a bag of M&Ms on layaway.
6. August 14: Moved a 'CAUTION - WET FLOOR' sign to a carpeted area.
7. August 15: Set up a tent in the camping department and told the children shoppers they could come in if they would bring pillows and blankets from the bedding department to which twenty children obliged.
8. August 23: When a clerk asked if they could help him he began crying and screamed, 'Why can't you people just leave me alone?' EMTs were called.
9. September 4: Looked right into the security camera and used it as a mirror while he picked his nose.
10. September 10: While handling guns in the hunting department, he asked the clerk where the antidepressants were.
11. October 3: Darted around the Store suspiciously while loudly humming the ' Impossible' theme.
12. October 6: In the auto department, he practiced his 'Madonna look' by using different sizes of funnels.
13. October 18: Hid in a clothing rack and when people browsed through, yelled 'PICK ME! PICK ME!'
14. October 22: When an announcement came over the loud speaker, he assumed the fetal position and screamed 'OHNO! IT'S THOSE VOICES AGAIN!
15. Took a box of condoms to the checkout clerk and asked where is the fitting room?
And last, but not least:
16. October 23: Went into a fitting room, shut the door, waited awhile, and then yelled very loudly, 'Hey! There's no toilet paper in here.' One of the clerks passed out.
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