My pity party...

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Usually, I am a pretty positive person, but lately I can only dwell on the negative. I am so anxiety-ridden, so confused, and it seems like all my post-cancer symptoms are magnified lately.  I hurt all the time (thanks, Femara), I am suffering from severe fatigue and nausea, my memory/attention/problem-solving is so bad that my family calls me "Dorie..."

About the nausea, I have this wonderful dachshund that I love, but for some reason his smell lately has made me so sick that I am considering if I can keep him or not. That makes me feel horrible because when I was my sickest, he was such a comfort. I cant keep bathing him daily, his hair is gonna fall out... 

I divorced my husband of 25 years in January. It was horrible, and still is, and I am having to take him back to court soon for contempt, because he will not follow through on the divorce agreement. We have 6 children, 2 of whom are still in elementary school, and it is killing me because he goes out for most of his visitation weekend, leaving them with his mom.  It breaks their hearts and he can't see it.  So they have the dad who is never there, and the mom who feels bad much of the time.  

I have had to move out of our home this week - I was supposed to get to live here for several more years, but he is making life so difficult, I am moving far enough away that he cant just drive by or drop in at his convenience. So I have had to --- for the first time ever --- be responsible for finding a home, moving us, getting all those arrangements made. What a mess, what an expense!

Also, I am up for my disability review, and I have to go see this doctor for assessment on Tuesday. I work in healthcare, and I have worked only a few hours a month since October of 2008.  If I lose my disability, I have no idea if I can even find a job, much less hold one down.  I have changed so much since my illness, I am constantly losing things, very disorganized, I buy datebooks and notebooks and lose them. I write myself notes on the computer and on sticky pads, then I cant even remember what the notes mean. I found one today that has an address and says, "leave tree alone," what could that possibly mean? Then I obsess about what the notes could mean...I am a nutcase! I am incapable of making a quick decision, I spent ten minutes today on a one-line note to a doctor, trying to remember a word and to phrase it just right so I wouldnt look stupid, or he wouldnt have to ask me any questions about it...

I have trouble managing money, which is not good when you are on a very tight, very fixed income. I have all these time perception problems -- does anyone else have this since chemo? -- where it seems to me like its only been 20 minutes, but actually almost 2 hours has passed, and I cant even tell you what I did for those 2 hours.

I had 2 children graduate high school this year, and my oldest son moved out and is now Mr. Independent (thank God!), but all I can think of is, my daughter who is 17 has helped me sooo much, she reminds me to take my meds, she reminds me of dr appointments, she goes to the bank for me, etc etc. She is moving to an apartment and going to college! Who is going to keep me in line?  My 11-yr-old? Who is the better parent, the "I am NOT an alcoholic" no-show dad, or Dorie-the-fish with the rotten life expectancy? 

I still get this rotten case of mouth ulcers every three weeks, just like I was still on chemo. And my left shoulder has been in a spasm all month, I had radiation to the chest wall AND shoulder because I had all those rotten lymph nodes scattered around. I also had a bugger of a UTI last week. 

Where is my self-confidence? Where is my joie de vivre? Where is my Effexor and clonopin?  

On a more positive note, I had a PET scan last month, with "NO significant findings."   

Will at least one person respond to this, so I dont feel like no one gets it? 

Comments

  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    Kim - I'm sorry you are going through so much.  I think many, many of us get what you are going through.  BC puts everything in a new perspective.  I like coming to the boards because I don't have to be my happy, positive person everyone thinks and wants me to be.  But I also think trying to be the happy, positive person helps me from going deep in a depression hole.  I take most things on a daily basis and go from there.  It sounds like you are doing the right thing moving and your younger kids will also help being your rock in other ways.  That's great news about your PET scan too!  :) 

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Hi Kim, that's horrible that you have to go through so much.   Lola is right - the weekends are always slower on the boards.  Goodie I agree about coming to the boards - we dont have to be the positive upbeat women that some expect us to be.  Although when I feel like that I do try and smile (even to myself)... I mean smiling is infectious eh? 

    By you moving and organizing it all is a positive for you.. may feel like a mess at the moment, but you have taken control and that is a good thing.  Just try and look for the smallest of positives and build on that.

    As for chemo brain... I hear ya.   I am still in chemo, but my brain feels like swiss cheese most days.   As for writing notes on post its or in books.... keep them in the same place and make them more comprehensive so when you go back ot them you may have more of an idea.  Worth a try anyway.

    Is there anyone out there you can share this with... another family member, close friend, support group.   If not, we are here - so pity party ahead.  

    Take care and hugs to you xxxxxxxxx

  • Kimwith6
    Kimwith6 Member Posts: 9
    edited June 2012

    Thank you, Lolahasit, Goody and Tazzie, for your support! Tazzie, yes, I have 2 wonderful sisters, and many great friends, but they worry so much about me that sometimes I cant share the worst days, you know?

    People who know me well have commented on how upbeat and good-humored I have been over the past few years, through all the treatments, surgeries, the divorce, etc. And why not? What good does it do me to be negative, especially with my children? But sometimes things pile up and I have to vent with someone who gets it, like you all. Thanks so much. Today is another day. I have hair, eyelashes and toenails again.  I am not burned from radiation, or incapable of taking care of my own hygiene, and I am getting to keep my sweet, sweet grandbaby for the next 2 days.  Even on its worst day, life is better than the alternative.

    My son has a friend whose dad committed suicide about4 years ago, and we of course discussed it at length as a family. I told my children, yes, life can get so so difficult. But if it does, have the courage and hope to face it.  Because it always turns around, always. I truly believe that life is wonderful, a blessing from God every day, plus I am too nosy about how other people (my own kids) will turn out, to want to give in! 

     Blessings to you all.... 

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    A problem shared is a problem halved.... does help to just get off our chests eh?   So glad you are feeling better Kim.  and I couldn't agree more with what you said about even on its worst day, life is better than the alternative.

    So I ended up having my own little pity party yesterday afternoon.  Really unlike me, but 9 days after chemo and I was beginning to feel pretty low - aches and pains really prominent... just sick and tired of being sick and tired.. you girls know how it is.  

    Received 2 phone calls - first one from a pretty close work colleague, but he asked how I was (which was fine) but then when I said I had had better days he actually asked why as I had been OK a week or so after chemo?   So in great detail I went onto tell him.   We had a chuckle about it after, and he apologised for asking stupid questions.  Alls well that ends well.

    2nd phone call from SIL in the UK.   DH was in the garden so I picked the call up.   She asked how I was and I said I had been better.  She then asked "Oh! really, why what is the matter?"  "What is the matter?"  Oh! I told her in no uncertain terms.... I said that maybe having cancer and chemo and not feeling well for the past six months was taking its toll.  Maybe the fact that because of the SE's I feel as though i am walking on broken glass at times, that every bone in my body feels like its being crushed... that I feel as though I have just shut my fingers in a door they are so tender....on and on I went.  I am sure she will never ask that question again.   I know people are well intentioned...but perlease.... "what is the matter"  That really got me.  

    Me and DH had quite a chuckle over that too.  He said his sister was quite surprised at my response and never knew that I was feeling so bad.   I told him that I just didn't have the energy to put on  my public persona. 

    So hope you get a laugh from that..we sure did.  

    Dont forget we are here for each other... cos really, unless you are going through this crap, you have NO IDEA whatsover of how it feels.

     Peace and hugs and have a wonderful day xxx

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