Protocel 23

Last night, after my 1am dose, I just couldn't get back to sleep.  My ears kept draining and draining....turn the right - drain drain drain...turn to the left - drain drain drain.   So, this morning, I did a little more strenuous yoga, a little longer jumping on the trampoline and then I walked next door to the community center to do a 15 minute sauna.

Now, I know that saunas are contraindicated because of the risk for lymphedema.  I had 19 nodes stripped out from my right axilla and even though I may be at a higher risk, I'm a firm believer in everything in moderation.  So, that being said, I have confidence in my physical condition, my flexibility, my strength and my exercise program to the point where I feel I can effectively ward off lymphedema. (I hope anyway!)

I think that the risk of lymphedema is an important SE to consider if anyone embarks on Protocel.   Because the whole mechanics of the treatment...breaking cells apart, sweeping them along in your lymph system to filter and remove the lysed material, you have to consider your lymph system and if it's strong enough to handle this.   Ever since my BMX and Axillary node dissection 2 years ago, I started wearing Spanx camis in lieu of a bra.  I felt like the Spanx were supportive enough for my reconstruction and the slight compression to my abdomen couldn't hurt either. The bonus is you feel much more tone and fit.  Who knew that 2 years later it would be beneficial for my overall lymph traffic control?

As for the sauna...I feel fabulous right this minute.  I've decided on doing this twice a week because I certainly don't want to over-do...but I also feel like I have some excess lysed material that needs to be forced out every now and then.  Now, I'm going to sit for 10 minutes out in the natural sunlight to finish restoring.   It's a beautiful day today! 

Enjoy!  

It's a great book Liwo...There are so many viable alternative options out there and the book covers about 10 of them that can be tailored to you! 

I'm jealous that you have an Integrative Oncologist!  As soon as I get my next scan in June I'm going to find one.  The Cancer Center I currently go to is the exact opposite of Integrative.

Can I ask what services you get from this office and what's covered by insurance?
Thanks!
Kat

Thanks Ladies...

The good news Maud, is that the dead cancer cells don't really end up in the liver...a few might (and the spleen) but certainly nothing like when you're on chemo and your liver has to go into overdrive of hyper-processing dead cells.  Is it any wonder that there are so many 'mets to the liver' recurrences after chemo?  The liver just can't handle it. 

That's why the Yoga and trampoline are so important to me while I'm on Protocel.  The dead cells come out via the lymph system...my nose, my eyes and my sweat glands.  Get the lymph system moving and sweep up the debris. 

I don't know much about graviola except that it's on the "may take it while on Protocel list."  If my scans are good, I'll probably stay on the Protocel/Paw-Paw regimen...It doesn't hurt to do research though. 

Great day at the Ocologists office today!  She agrees that the main palpable nodule on my back is indeed shrinking and although she didn't say the other two are shrinking as well (*they are*) she did say that whatever I'm doing to keep doing it!  A picture of health!  It continues to be difficult to tell if the nodes on my chest wall are responding, but given the ones we can feel, it only stands to reason that they are doing as well.  My energy level is good, I feel good...my weight is unchanged at 138.  I'm just giddy with excitement today!  My labs for the most part were all within normal range (little high on the Potassium side - concerned with the high concentration of K+ in Protocel and PawPaw) but my tumor markers are only 5.8 today.  (0-37 is normal for this lab.)  My history with CA-27-29 markers have always been on the low side and they've never been higher than 65 at my peak of recurrence...so I"m taking this as a great sign!   I'm keeping my mediport for one more month until my next scan and then, I'm getting de-ported!  Whoohoo!

Speaking of my next scan, she doesn't want to do a PET on me until June 25th which is great...gives me another month to continue on my alternative around-the-clock Protocel/Protocol of killing cancer!  Praise God I have been directed down the path less traveled and thank you Jesus for walking that path with me.  It's all good!

Have a great Memorial Day Weekend!
Kat

Thanks for asking about my diet...My typical day is like this:

7ish:  Bran flakes with 5 (five) blackberries and 2% milk. 
1 cup of black coffee and then no more caffeine after that.

9ish: 1/4 cup of mixed nuts (no Brazil nuts)

Noon:  My favorite lunch is baby spinach (wilted) and feta cheese on Triscuits.  I could eat that all day.  My other favorite is chicken salad (that I make up ahead of time) with chopped up celery/onion on a 100% whole wheat bagel and usually a couple types of raw vegetables on a small plate.  Snap peas or broccoli or carrots.  and an individually wrapped thing of string cheese.  Sometimes I use leftover whole wheat noodles from a dinner (see below:) and make a antipesto salad with black olives, chopped up turkey pepperoni and feta cheese again

Snack around 2pm: Blue corn tortila chips with homemade salsa. (yum)

Dinner:  Usually some type of animal protein.  Chicken breasts usually...sauteed in olive oil or grilled. I make Chicken Parmesean (without the breading) with whole wheat spagetti noodles. Or I'll sautee the chicken breasts and then shread the chicken and make awesome tacos with whole wheat tortialls and black beans.  We do like Laura's lean beef and I can get one steak and slice it real thin and make a nice stir fry with red, yellow and green peppers.  Or again, with Laura's Lean beef cheesburgers on 100% whole wheat buns and grill up some veggies (while the grill is hot!) 

The dinners have varied somewhat since it's gotten warmer.  I use my oven a lot to roast things when it's cooler out.  If we go out to dinner, I usually stick with grilled chicken salads or pizza with a thin thin crust. (I love pizza)

I don't eat much past 6:00pm and I do like to have a water beer (Miller 64) while I'm cooking (and maybe one when I eat)

And that's it! (I wish there was more fruit, but it is what it is)  Lots of water throughout the day.   I love to cook and especially I love to cook for the extended family and get a lot of ideas from Bon Appetite magazine.  I find it especially relaxing and I feel like I'm making things my husband and daughter (home from college) can eat that are healthy and not just specialized for me.   

I remember when I first received my scan report at the end of December and was very surprised to learn that I had a nodule in my right upper buttock and that it was as big as it was. To think that cancer had been raging on...on my butt no less and I had no idea until I went searching for it by following the anatomical map the scan laid out for me.

Well, last week, I was doing some Yoga and we had to interlace our fingers across our chest and I found another small firm something on my left upper chest.  You know that visceral reaction (or maybe you don't) you get when you find a "new" something?

Before panicking, I referenced the scan report from 3/1/12 that was a comparison from the scan 12/20/2011 and it states:  "A new lesion has developed in the left anterior chest wall with SUV max of 2 on image 110 series 3 just superficial to the medial aspect of the pectoralis major muscle intercostal." 

So, my fingers did the walking and now I can palpate this one. This is exactly the location where this is.  Intercostal
(between the ribs)  It is very small...smaller than the other 3 I can feel and it feels like the head of pin, but flatter.  Remember that commercial with Diane Carroll who puts the big pillow over the pin and and says 'feel anything?'  It's kind of like that but without the pillow. 

I have difficulty understanding the SUV unit of measurement...I know it measures the metabolic activity of radioactive uptake, but I wish it clearer to me in regards to physical size.  So, as the only reference I can make is if this were a '2' and the back nodule had an SUV of 8.8 (on March 1) and the right breast prosthesis also had an SUV of 8 it is all relative.  If I had a scan today I would think the changes would reflect the decrease in sizes to at least a 4 and 6 respectively. 

As a further comparison, in regards to the buttock nodule, "The large metastatic lesion in the subcutaneous fat of the right buttock has an SUV max of 13.2 improved from 17.1  The only thing that makes sense (if cancer ever makes sense) is that this ‘new' development is not a new development at all, I just didn't realize it was there.

In any event, I now have 4 palpable nodules that I can evaluate and 6 that I can't...so, with that being said:  Today's measurements are:

Left Mid Back Nodule: 0.5cm x 0.4cm down 0.1cm from last week! (this is also the 'shortest' it's been since the start)

Palpated measurement of R medial reconstructed breast: Still very round. Still firm - No change from last week.

Palpated measurement of R upper buttock Node: Less firm and more disc shaped!

Left anterior upper chest intercostal: Feels as big and firm as a pin head.  

Nothing else new to report except that I golfed 18 holes yesterday and shot a 98. (YaY) and I still look and feel better than I would if I were taking a different form of caustic treatment.   My new favorite saying is: (borrowed from the Princess Bride) I just don't want to be "mostly-dead" while I'm alive.

Hope everyone is having a great holiday weekend!
Kat

Hi Purple...Thanks and welcome to the Protocel Protocol.

I hope you'll continue to read and post on this thread...not just the first page or so...we've come a long way baby!  I wish that I had been introduced to this when I first started this journey two and half years ago. 

Thanks for your good thoughts...I do appreciate them!
Kat

Sometimes I wonder if this is the right platform for my Protocel journey.  I guess I could assume that the 100+ readers to each post should be an indication to me that it is but I continue to feel like I'm on an alternative island. 

But since there are 100+ readers to this thread, it makes me wonder why no one is clammering to start Protocel?  This is so remarkable that I am in a constant state of gratitude for finding it.  I really want to shout it out from the roof tops and my wish is that more and more people will hear me.  I'm contemplating starting an official blog in the next month and hopefully take awareness a step further.  The significance of this cure (and I don't use the word lightly) should not be overlooked.   

Today I am reporting that the nodule to my left mid back has all but disappeared.  Well, not disappeared exactly but it's now rendered immeasurable.  If it was 0.4x0.4 last week, it has to be 0.2x0.2 today.  I can hardly even find it and my husband can't get to it with the little compass thing without pricking me with the sharp points.

And it's not just about the shrinking of all my palpable tumors.  Since I've been on Protocel 23 I have no pain and I'm not bombarded with 27 different medications daily.  I take exactly three things.  Protocel, Paw Paw and Ativan.  That's it.  I have not caught a cold or been sick at all...and my scars from my port insertion and oophorectomy are so faded they are almost nonexistent.  Isn't that amazing?  The antioxidant properties of Protocel are keeping me in a bubble...healthy and energized.

The only thing that is causing me any grief at all is my port.  With all of my Yoga and golf, it seems to have shifted and a membrane has grown over it so that they can't use it for blood draws anymore.  I want it out in the worst way but timing is everything.  I want to continue golfing the summer but I also want it out for my daughter's wedding in October. I'll probably schedule something after I see the Onc the first week of July. 

For the doubters out there, I am not out of touch with reality...quite the contrary.  Protocel is providing real results and convincing me and my family that cancer is not going to win. 

It's all good!

Thanks Vicki!  Welcome to my island  

I wish I wish I would have found out about Protocel when I was first diagnosed at stage IIb.  I know in my heart that this would never have accelerated to stage IV had I started on it immediately!