The Glorified Pink Ribbon

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jennyboog
jennyboog Member Posts: 1,322
edited June 2014 in Stage III Breast Cancer

Maybe I shouldn't post this, I truely don't want to offend anyone but something happened today and I've got mixed feelings about it....and I know my girls will get it.  So, I met this lady today and she had a tattoo of a pink survivor ribbon on her arm.  I asked, did you have BC?  She said, "no, I thought I did".  Needless to say, I was very curious at this point, long story short, she goes on to say she had a lumpectomy but it was negative and her breast is mis-shaped now.  When did having a negative lumpectomy mean you're a survivor.  I don't know maybe I'm being to critical but it seems they have glorified this pink campaign so much that everyone is running out and jumping on board.  I just don't get it.  

Comments

  • MaxineO
    MaxineO Member Posts: 555
    edited June 2012

    I don't want to be critical either, but that would have irked me, too. I hate to think of having BC as an exclusive "club", but a negative biopsy is hardly the same thing as a diagnosis.



    That said, if she is raising some awareness as a result of her experience, that's not a bad thing...



    I hear you, Jenny.

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2012

    I don't see the 'pink ribbon' as a sign of 'Survivor' but as a sign of Breast Cancer support. Personally I don't wear pink (except during Oct) and never have since I was old enough to pick out what I wear. Hubby and Son both wear 'Tough Enough To Wear Pink' bracelets all the time and both have several T-shirts with pink ribbons on them and different sayings. Son's GF also has T-shirts with pink ribbons on them.



    As I see it - the pink ribbon is to raise awareness about breast cancer which it does when anyone wears it publicly. There are so many myths and misconceptions about it that any time others can be educated because it attracts attention/comments/questions.



  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited June 2012

    I HATE the pink ribbon, for that matter anything pink really.  Just a matter of preference to me.  Never been a "pink" kind of gal.  I wear black a lot (I work retail ) and drive a black car.  And October drives me NUTS!  Especially when my journey just began.  I was dx in September and had to wait out all of October before my surgery.  Pink EVERYWHERE.  UGHHHH!!!!

    Take care,

    Sharon 

  • thefuzzylemon
    thefuzzylemon Member Posts: 2,630
    edited June 2012

    Oh...I'm with you 100%. A tattoo to just raise awareness? Nah. I'm going to say it....she got freaked out, thrilled with the result and found attention from others that she couldn't let go of. Its totally irritating.

  • Josiekat
    Josiekat Member Posts: 85
    edited June 2012

    That is a cry for attention, not a call for awareness. Awareness, ashmareness....we need less pink ribbons and more curing going on.

  • faithfulheart
    faithfulheart Member Posts: 544
    edited June 2012

    Ok, Really?????  I am just going to say it, THIS IS A EXCLUSIVE CLUB!!!! You are a survivor of breast cancer or you are not!!!  If I were her I would not even want that on my arm, a reminder of what she could actually have to face someday.......If only they new how devistating it really is... I feel like it is trivilized.... I am sorry do what ever you want to your body but,  I would not wish this journey on my worst enemey,  I really don't have a worst enemey but,  if I did......... People have no clue!!  I am sorry, thats how I feel.........

    The only time I wear pink is on my lips!!!!!

    Not big on the pink thing..... Its painful and brings back dx days, I too was dx in sept.  Pink everywhere........It was great at first but, soon you realize its like halloween, a holiday!!!    They love to bring awarness but, then thank God it's us and not them!!!! I know this because I was that person.....You can never truley understand.....unfortunetly,  you have to walk the path to really get it......I guess we can't blame the ignorent....Its bliss............Sorry, little pissed sometimes.....

    love all my warriors out there......!! xo what a ramble, Geez!!!!!!!!!!!!!!!!!!!!!

    steph 

  • Laurie09
    Laurie09 Member Posts: 313
    edited June 2012

    I totally get it.   I do appreciate sincere efforts to promote breast cancer research, but the pink gets a bit overbearing as well asthe degree of drama that is involved in breast cancer.   Sometimes I also call bull$hit on the whole BC awareness thing... I find for some it's a cry for attention.  

    I had a similar experience not too long ago with an aquaintance, and I felt a little guilty having the same thoughts, so I'm glad you posted this! :D

  • kathleen1966
    kathleen1966 Member Posts: 793
    edited June 2012

    I am not offended with your post at all.  In fact, I love it. I plan on watching the documentary on the pink ribbon when it comes to Pittsburgh, PA. I can not tell you how offended I would have felt after hearing that story. Clearly, clearly that woman has fallen to all the gimic's of the pink ribbon.  But really, it is not her fault and we shouldn't hate her for this.

    She has no idea of the real horror, pain and sadness that having breast cancer and being treated for Breast cancer brings to not only us but our families, our relationships, our children, etc...etc....And to be on here and see women every single day progressing to an incurable stage and what they go through. And then to see that ribbon everywhere in October, and women smiling and dancing, with their hands in the air! Urghhhhhhh...I used to love Fall...

    And those pink glove dances, where everyone is happy. I have thought of making my own video of a pink glove dance.  I would have images of mothers portraits held by the children they left behind, and then I would have a tunnel of these children wearing pink gloves, and then someone running through the tunnel and painting black on all these pink gloves and then throwing them in a pile to represent all the lives lost to breast cancer.

    And to see thousands upon thousands of women and families walking in the Komen Race, and all the sponsors taking advantage of the numbers to sell their product and still NO CURE!!!!

    Honestly, I think Komen does a lot for breast cancer.  But they could do SOOOO much more.  Last year, I walked.  I bought into the pink thing.  I got a pink boa, hats, etc....I made it fun.  But guess what?  When I got there, when I walked in the survivor parade..suddenly, there was nothing fun about it.  I had to try with all my strength to not start sobbing, to hold it together so my small kids wouldn't see me in that state. This surprised me.  I felt alone.  I felt devastated.  I came back after the walk and every one of the sponsors were packing up and leaving. Where was the celebration? Shouldn't I have been offered fresh fruit in the survivor tent and not doughnuts and other food loaded with high fructose corn syrup and preservatives?  

    Because of what I was wearing, I got an interview for TV.  And what I said reflected my mood, it was not happy.  It was sad.  And they put the uplifting story on the news, not my sad story. 

    I stayed home this year. I decided I was not going to waste my day feeling sad for all of us who have this in their history. So getting a ribbon when you've never even had cancer is...well....sorry......but in all honesty it is just sad.  I hope that this woman will never know why it is sad that she has that pink ribbon tattoo...

    I remember there was a story of a woman with metastatic breast cancer who wanted to be buried in a pink coffin. They showed her standing next to the coffin, all painted nicely.  This made her very happy. 

    I suppose it is really to each his own. This is just MY feeling on the pink ribbon and the color pink in regards to breast cancer. 

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited June 2012

    Dang. Pink was always my favorite color. I look really good in it; I have outfits, accessories, purses, and even pink glasses.

    Then came the BC dx.

    Like pupfoster1, I was dx'd in September, and in October (pre-BMX)  a BC-survivor friend invited me to the big Komen Race For The Cure/Survivor Celebration in town.

    I felt like a fraud because I hadn't "survived" anything yet (but later found out it was a matter of semantics).

    However, instead of being "inspired" by the "sea of pink", I found myself horrified. So many teams were dressed in wild costumes, acting happy and giddy and as if they were in the biggest party of the year. I asked some of them - quite a few groups had no one who was a BC survivor ...they were just there for "the cause."

    So - were they really raising awareness? It made the 6:00 news, but did it make a difference? Or did it make them feel better about themselves?

    Some of the groups WERE comprised of survivors. Many of the women were in active treatment, and the walk was a strain for them. It was wonderful to see the support along the way. If anyone hesitated or faltered, there were always many helping hands to assist.

    Because I was wearing a Survivor Tshirt, everywhere I went, I was treated like Queen for a Day. I was handed tchotchkes and all manner of branded items, most of them straight from Oriental Trading Company. I got tote bags galore. I thought "What am I going to do with all this crap?"

    Nothing about it seemed related to breast cancer, except for the monumental opportunity to advertise, capitalizing on Pinktober.

    I'm going to have to do a lot of educating of family and friends before next October rolls around. They've bought into the whole Pinktober myth, and as much as I treasure their friendship and support, one more pink ribbon is not going to help me, with my small cancer, or the thousands of other women who really, really need a cure - NOW.

    jennygboog - I totally get where you're coming from. It's like someone proudly wearing their Purple Heart medal, only to find out they were never in the military.

  • caaclark
    caaclark Member Posts: 936
    edited June 2012

    I get what you mean.  It feels like it minimizes what we have gone through.  Since being diagnosed I had a friend who had a "scare".  For a whole hour she sat waiting for results of a mammogram and for a whole hour she thought she MIGHT have breast cancer.  She called me later after finding out things were ok and said, "Now I know how you felt when you had chemo."  REALLY???!!!! 

    People just don't undersand unless they have been through treatment.  It's not their fault, they just don't have the experience that we have had.  It still irritates me, though. 

  • lintrollerderby
    lintrollerderby Member Posts: 483
    edited June 2012

    It's disgusting and it's a direct result of the pink ribbon and breast cancer being seen as this abstract cause that people feel good about contributing to rather than as a REAL disease with real consequences and real deaths. TheFuzzyLemon said it perfectly upthread. She had a scare and loved the attention it brought her. Now she wants to hang on to that. If it were about her having a scare and then wanting to be involved in the world of breast cancer, her tattoo wouldn't have labeled her a "Survivor". She should be ashamed of herself. There would've been a time when I would've kept my contempt for her to myself if I had been face-to-face, but those days are gone. I would've had a few choice words for her. To me, it almost smacks of Münchausen Syndrome.

  • jennyboog
    jennyboog Member Posts: 1,322
    edited June 2012
    Thanks everyone...I knew ya'll would understand.  I thought the same thing about her liking the attention, I mean seriously why else would you do that...arghhhh!  I've not done any kind of walk, Komen or Relay for Life...don't know if I'm ready or if I believe it's really for "us".  What does it accomplish really, it raises money and makes people feel good about what they did.  I don't think I like the way they make it seem like a celebration/party, maybe I'm looking at it the wrong way.  Don't get me wrong, I privately celebrate everyday that I survived.  Maybe I'm just scared of the emotions it would bring up that I've kept pushed down for a while.  In her defense it was probably a dramatic experience and the worst thing ever for her but it dang sure don't make her a survivor.  About a year before my dx a lady I worked with was dx, someone thought her first day back to work we should all be wearing a bandana just like she was due to her chemo.  Well, we did it and she seemed to really appreciate the gesture.  I've been there and understand, you want to do something, we did what we thought was supportive for her.  Never in a million years did I think I'd be in her shoes a year later.  Thanks again for making me feel normal Laughing   
  • cookiegal
    cookiegal Member Posts: 3,296
    edited June 2012

    Listen I know a lot of ladies who hate the pink, and I know people, even people with mets who love it. I fall somwhere inbetween.

    I have enjoyed the walks, I feel encouraged by them, but I would never force them on someone who found them upsetting.

    In a smaller community it can be a nice way to meet other survivors in your similar age range.

    I do know people who got the tatoos to support a family member. I can't ever imagine doing it myself, but to each their own.

    I don't mind some of the sassier slogans and t-shirts, but again some women hate them.

    We all parse this experience in our own ways.

  • Kicks
    Kicks Member Posts: 4,131
    edited June 2012

    Jennyboog - ALL do not agree with you - I don't and said so.



    I hate the color pink and have since a small child (quit wearing anything pink as soon as I could have a say about what I wore).



    This is the first time/place I've seen someone say that they thought only BC Survivors could show their support with a 'pink ribbon'. So sad.



    Hubby and Son did not experience what I did through all TXs, by the same token I can't begin to comprehend what they did seeing me go through what I did. I firmly believe it was easier on me than them.



    Some of the slogans on t-shirt/bumper stickers I'm not wild about but we are all different. As I said before, Hubby and Son have tees and wrist bands and I totally support them in wearing them. In a way, they are just as much Inflammatory Breast Cancer survivors as I am - different ways - it hit my body but they had to see what it did to me. I'd do it all again in a heartbeat rather than having to see either of them go through something similar.



    How I feel.

  • Chickadee
    Chickadee Member Posts: 4,467
    edited June 2012

    Kicks there is a vast difference between the support your family is showing you and someone who fortunately found she does not have BC getting a tattoo of a pink ribbon.



    I'm thinking of wandering down into Austin this year for the ridiculous Komen hoopla but I need something not pink that roars about the lack of a cure or much if any money going to research for metastatic breastcancer.


    Jennyboog, love your avatar. I've had a kitchen magnet of that for something like 30 years.

  • katyand4
    katyand4 Member Posts: 171
    edited June 2012

    I wish they had a like/dislike button on this forum it would make it alot easier.....I have no problem with color pink but those commercials radio and tv....round about end of Oct I've had enough...change the channel or whatever because I'm just so sick of hearing it.

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited June 2012

    Just a little more pink....Wink

  • lintrollerderby
    lintrollerderby Member Posts: 483
    edited June 2012

    No one said that those who haven't been diagnosed can't be supportive, can't wear a ribbon, or can't wear pink. Of course I consider my family co-survivors.



    What we said was there's something not right about someone who went through a scare who is thankfully ok and then labeling herself a survivor. That's not ok. Supporter, sure. Advocate, yes. Survivor, no.

  • cookiegal
    cookiegal Member Posts: 3,296
    edited June 2012

    It's interesting, I just had a friend get called back for an ultrasound after a mammo, then got the all clear.

    In our world that's a cakewalk, but to her it was a big deal. It took her to the scary place. And because it was not urgent she waited for a month.

    Maybe the tattoo reminds the lady in question to be thankful for escaping the scare, and support others.

    Maybe she felt a sense of community and support when she had the scare.

    Or maybe she is a lost soul that has some sort of Munchhausen..attention seeking issues.

  • jennyboog
    jennyboog Member Posts: 1,322
    edited June 2012

    I don't think I could have said it any more plain or gentle when I said, "I truely don't want to offend anyone & I have mixed feelings about what happened".  But I see I did, which seems to happen from time to time on here.  Well, just as the few of you were offended I was offended by her considering herself a survivor when she survived nothing but a scare.  It was not my intention, I was just curious if I was alone in my feelings or if others had come across something like this before.  By the way....it was not an awarness ribbon, it was a pink ribbon with survivor written across it.

  • lintrollerderby
    lintrollerderby Member Posts: 483
    edited June 2012

    Jennyboog: I'm with you and I am offended by her actions. It's not about awareness; she's claiming to be a "survivor" of a disease and she isn't. Thankfully she never had to experience it.

  • Mardibra
    Mardibra Member Posts: 1,111
    edited June 2012

    Funny thing about pink....would have worn in before BC as a show of support. But since BC? No way! Can't really explain why but just can't. As far as seeing the tattoo on a non survivor, it would have bugged me too.

  • cookiegal
    cookiegal Member Posts: 3,296
    edited June 2012

    jennyboog, I am not at all offended by your OP...I thought it was really interesting!

  • faithfulheart
    faithfulheart Member Posts: 544
    edited June 2012

    Jenny, You can express whatever you need too!!!!  If people disagree, thats ok.....But,  there is no room to respond rude to your post,  they are your feelings and my feelings as well!!!!!  We are a support system for each other , a safe place to talk about our feelings..........I being who I am might have asked the women with the tattoo,  how much chemo she had!!!  Or do you still have your breasts,  do you have kids????......... and are you afraid you might not get to raise them........ You see I am a survivor too.....and I pray everyday that I will live to see my children grow up.............What do you think she would have said to me..............Sometimes its ok to say,  BC is ugly and devestating,   its not wraped in a pink bow!!!!!!  If I have offeneded  anyone, I don't mind if you don't...........xoxoxo

    Love ya jenny.....

     Steph

  • lostinmo
    lostinmo Member Posts: 922
    edited June 2012

    Personally I hope to get to a point in the future where BC isn't constantly on my mind. So WHY would I get a tattoo to keep me from forgetting for even an hour?

  • jennyboog
    jennyboog Member Posts: 1,322
    edited June 2012

    Thanks girls, I'm glad I'm not alone in my feelings.  It's so hard moving on with life after BC, everything changes, everything is different...new emotions, feelings, stress level, etc.  I can't imagine going through this without you all, thanks for being there and making me feel normal. Love ya'll.

  • Wordwrangler
    Wordwrangler Member Posts: 29
    edited June 2012

    I think we are such a diverse group (we can't even say of women) everyone goes on this cancer journey different and at very different levels. Who says the right way or the wrong way someone handles the journey. My husband always says we when he talks of our journey. I hope the women and men that wear the pink ribbon and have never had cancer touch their lives, that's as close as they ever get. That is is my prayer. I tattoed two roses and a pink ribbon over my port scar. I opened the ribbon to symbolize the cancer is gone. I tattoed two roses and my husband's name on my mastectomy scar. It is perfect for me but others won't approve I just didn't ask for any ones approval.

  • vickilind61
    vickilind61 Member Posts: 338
    edited June 2012

    My daughter got a pink ribbon tattoo on her arm; it is so pretty.  She helped design it with her tat artist.  It says nothing, just a ribbon.  When ppl ask her, she tells them it is to support me and her aunt (a three year survivor).  My girl is a tattoo girl and has lots. 

    I will say, to have a "survivor" tattoo when your diagnosis was negative is a bit bothersome.  But, whatever floats her boat.  Glad she was negative, but for those of us who were postive, well, we fight with all we have. 

    Yes, Pinktober is overkill; it is marketing (but I do love the pinkribbon bagels at Panera!) to make companies money and to look better in theeyes of the mass market.  Yet, it does put the word out there.  I go to the Veterans Day parade; I am not a veteran.  I support those who served to maintain my freedom.  I read their stories and sometimes weep.  I would NEVER wear a medal or claim to be a veteran, etc. yet there I am, watching the parade. 

    I walked in the Komen before my sister's diagnosis, I walked During her diagnosis and I will walk as a survivor this year.  It makes the news and if ONE person, male or female, gets a mammo because of all the hullaballoo, then in my never-to-be-humble opinion, it is hype well-spent.

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