Suspiciousbone spots/lesions on CT scan

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Hi ladies,
I hope everyone is doing good, all things considered anyways... (this is my 1st post here, I hope im doing this right!)

I have a question I'd like to put out there. I recently finished chemo. Afterwards, my oncologist ordered a CT scan and bone scan. The bone scan was clear but the CT scan showed suspicious spots on my right hip and spine areas. She said they were tiny, 1mm spots, lots of them. The spots are too small to biopsy or show up on any other type scans at this point (per the dr anyways). She said sometimes chemo can cause bone marrow changes and that may be what is showing up on the CT.... said it can happen but it's not common. Or the other option is stage 4 mets to my bones. (please dear lord don't let this be the case!!!!).

My oncologist said bone scans usually show bone cancer before CT scans, and my radiation oncologist told me it would be very unlikely I'd have bone mets already, especially after just finishing chemo on April 3rd. My scans were April 25th. The plan is to wait 2 months and do new scans (well, a month from now at this point) and if the spots have grown it's most likely cancer. I guess if they have grown, we'll be able to biopsy them or do an MRI?

Does anyone know anything about all this?About how bone cancer shows up? Anyone had spots on CT scan turn out to be nothing? Anyone had bone mets show up on CT before bone scan?

I seriously had a week of complete freaking out, and I mean emotional-break-down type crying every day for a while. I am better now, and trying to stay positive and just enjoy each day as it comes, but I just wanted to put this out there and see what everyone thinks.

Thank ya!

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited June 2012

    Hi Elisha, and welcome to BCO.

    Until other community members post with their experiences, you'll find a wealth of information at the main Breastcancer.org site.  We're so sorry you're facing this worry!

  • LRM216
    LRM216 Member Posts: 2,115
    edited June 2012

    Welcome Elisha, and sorry for the anxiety and confusion you are feeling, as I know it well myself.

    Don't know whether or not my posting will help, but I am 3 yrs. 4 mos. out from diagnose and triple neg as well.  Last January I had an abdominal/pelvic CT for non-cancer reason, and my report read that incidental to what they were doing the scan for, a small sclerotic lesion was found on the right pedicle of my T12 vertebrae, and due to my BC history, could not rule out a met to the spine without further bone scan.  I was bouncing off the walls over this report, but both the doctor (gyno) who ordered it, and my oncologist were not worried in the least, felt it was not cancer, but wear and tear due to my age.  Prior to this test, never anything out of the norm, even all blood work, tumor markers, etc - always excellent (not that it always matters).  So - went ahead and had the bone scan and sweated out the waiting for results.  Nothing whatsoever showed up on the bone scan and it was also compared to my bone scan done at onset of treatment, with no change whatsoever.  So, I was happy with the results, and got the usual, "I told you it would be fine" from both drs, but 5 months later I still sit here sometimes wondering - you know???  Just never feel comfortable when one test shows one thing and another doesn't show it at all.  I occasionally have some lower backpain, but always have - it hasn't changed at all, so that makes me feel more secure.  I would think that if it were cancer and the bone scan just couldn't find it - that I'd have seen some change fro the worse by now, at least I hope that would be the case.

    While I certainly haven't cleared anything up for you, I did want you to know that you're not alone - and that sometimes even testing can still be done and you're still left with some questions.  I wish you the best and that this will be nothing cancer-related.  Keep me posted, I care.

    Linda 

  • rianne2580
    rianne2580 Member Posts: 191
    edited June 2012

    Hi Elisha,

    I had a MRI report that said "highly suspicious metastisis on sternum and liver." Bone scan, 3 CT scans later, nothing. I had the UMX but realized how much radiation I was getting from those CT scans. I had another CT scan from a burst appendix, so I must glow in the dark. All this in less than a year. I say this to ease your worries, beware of these tests. They are not always accurate. I do believe biopsies are, but my BS had me thinking I had massive amounts of cancer in my breast. The final pathology showed 1-4 mm of IDC and a small amount of DCIS. My Oncotype Dx came back at 15. I chose not to have chemo or radiation. It does seem they want to biopsy everything or "watch" spots, but those spots may not be anything, I think we all have spots. Go forward with the treatment, get second opinions and try not to worry. My oncologist wanted me to have another CT scan, but I said "no." I'll be getting cancer from those darn CT scans, rather that avoiding it!

    By the way, how is it you have 12 nodes positive with DCIS? I thought DCIS by definition is "insitu" so it has not broken through. I don't see invasive on your DX.

    Stay intune with our blog. Everyone here wants to help and give the best information.

    Peace,

    Rianne

  • pupmom
    pupmom Member Posts: 5,068
    edited June 2012

    I had a bone scan and CT the same day. Bone scan was perfect. CT showed several anomalies, including something on my forearm bone. My MO said that was undoubtedly nothing since the bone scan was good. Second CT, sure enough, didn't show it again. Also all the other things were not cancer. It's unbelievably nerve wracking to hear these things, but gotta keep the faith when docs are confident it's nothing.

  • Alicethecat
    Alicethecat Member Posts: 535
    edited June 2012

    Hi Yorkiemom

    It could be nothing at all or something that can be explained but is not a progression of the cancer.

    I've had a similar experience except my CT scan showed increased bone turnover on my left fourth rib. Could be from an old injury, infection or cancer. The docs don't know so are repeating the scan in six months.

    Fingers crossed for us both!

    Alice

  • Elisha82
    Elisha82 Member Posts: 15
    edited June 2012

    Thank you all for sharing your stories with me. Rianne... I entered my dx wrong. I did have invasive ductal carcinoma not in situ.

  • pupmom
    pupmom Member Posts: 5,068
    edited June 2012

    Althecat, my follow-up CT showed it was nothing. Wishing you great results also! 

  • Alicethecat
    Alicethecat Member Posts: 535
    edited June 2012

    Yorkiemom

    Wow! Congratulations. I am so happy for you.

    Thanks so much for posting and for your good wishes.

    Appreciate it so much.

    Alice 

  • Robyn_S
    Robyn_S Member Posts: 197
    edited June 2012

    Hi Elisha - I am in the same boat as you- I recently had a CT and bone scan ( 12 months since i started chemo) for a clinical trial I am in and it found a 1.7 cm ground glass opacity in one lung, a silent pulmonary embolism (on tamoxifen and recently had a DIEP reconstruction both risk factors for clots) and an infiltration in my liver that wasn't there last scan. I am presuming that the bone scan is ok and I will see the onco next week ( my GP is managing the blood clot in the meantime )

    Before the CT results I was feeling great as I recovered from the surgery in May! Now there is THAT thought in the back of my mind. I finished chemo last August. the radiologists recommendations are to investigate the liver by US and rescan in 3 months to see if the lung spot is still there. Maybe the onco will have some other ideas.

    Next week I will relax more if the bone scans are clean.

    Here's hoping! Good luck Elisha!

  • Elisha82
    Elisha82 Member Posts: 15
    edited June 2012

    Just wanted to let you ladies know my follow bone scan is next Wed 27th. I have appt on 28th to get the results. Also I got a copy of the Ct scan from the end of April that showed the 'spots' as my oncologist referred to them as. The report called the areas sclerotic bone lesions. What are the chances that those lesions are benign and wont show up on this bone scan next week? I'm getting nervous.

  • LRM216
    LRM216 Member Posts: 2,115
    edited June 2012

    Elisha:

    That's what my one spot on the pedicle of my T12 was called.  Sclerotic is "healing or healed bone."  Mine did not show up on my bone scan at all and it was specifically done to check what the CT showed on a totally unrelated ct of abd/pelvis that I had.  Both my onc and the gyno onc felt it would just be "wear and tear" and not cancer and truly were not concerned that it would be cancer.  Just how in the world they could be so sure is beyond me, and it still creeps up to the active part of my brain from time to time that maybe I was one of those poor women in which the bone scan missed something, even though all my other testing always comes back perfect, lab results, etc.  I think I will always have that lingering doubt and I hate that.  Will be following you and hope you get a non-cancerous result.  I just hope mine stays that way!  Will be holding your hand in cyber-space.

    Linda

  • Elisha82
    Elisha82 Member Posts: 15
    edited June 2012

    Ladies....

    I had my f/up bone scan yesterday. Got results today. No evidence of metastatic disease was found. Scan was perfect.



    I am NED!



    Mo said not sure what the spots were on the Ct scan in April. But not worried about it as its not growing tumor as in not growing cancer tumors.



    I am on top of the world. But still praying for all my sisters still fighting.

  • kathleen1966
    kathleen1966 Member Posts: 793
    edited June 2012

    You should be on the top of the world!  Soo happy for you!

  • weety
    weety Member Posts: 1,163
    edited June 2012

    Congrats on the good news!

  • LRM216
    LRM216 Member Posts: 2,115
    edited June 2012

    Elisha:

    SWEEEEEEEEET!  So glad to hear your news!

    Linda

  • Racy
    Racy Member Posts: 2,651
    edited June 2012

    Thanks for posting your good news. Have a great weekend!

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