considering no reconstruction and no prosthesis

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2012

    "As I get used to my new shape, I work to allow the looks without interpreting their meaning."

    MT1, this is so true when one elects to not wear forms after a mastectomy. I experienced implant recon and know what it is like to walk around after mastectomy and "pass" as having breasts. Unfortunately, my recon went awry and I decided to have it undone, remove implants and go flat. Because I have truncal lymphedema, I wear a simple compression tank/shapewear garment that helps minimize some of the concavity and lumps and bumps caused by implants and recon. Sometimes I wear clothes that try to fool the eye about my flatness, and other times I wear formfitting garments and it is pretty clear I have no breasts.

    I experienced a look of shock or horror three weeks after deconstructing when I was at my most vulnerable, still mourning my loss and getting used to my new body. I saw a woman looking directly at my chest and I just observed her, and when she looked up she realized I had seen her. I just smiled, acknowledging her gaze, but she looked away. I could have gone to town with that in my mind. I am pretty sure she knew what she was seeing, and at first I thought she was aghast that I wasn't wearing prosthetics. The more I thought about it, I realized there were a million reasons for her expression - she, a relative or friend had just been diagnosed with BC, or she or someone she knew had experienced some sort of BC surgery. Who knows? Anyway, I had to admit to myself there was no way to know what she was thinking. Even if she was horrified over no prosthetics, I felt okay, because I have been through so much in the past four years. I am who I am, and at this point I feel fortunate that I can finally move on from BC and recon. Maybe this is why I have somewhat of a "screw you" attitude. If I hadn't experienced chronic pain and a failed recon and gone directly to mastectomy and no recon, I'm sure the healing process would have been different. I would have more slowly gained the feeling of pride and confidence in the new me. Don't get me wrong, even now I still have pangs of sadness at times when I come face to face with my body and think about what used to be. But that's more about my feelings of loss, not how others are evaluating my body.

    I didn't require chemo so I didn't lose my hair, and while I used to keep it shorter before, I have let it grow and it is now below my shoulders. I like the feeling of feminity this gives me. For clothing, I was ruthless and went through my closet and removed every article of clothing that didn't work without a bra. This caused considerable distress, losing favorite dresses and tops I used to wear and feel so pretty (pre-BC or those I had purchased after recon), but it was so much better not to not see them when I opened my closet.

    I continue to experiment with clothing that looks nice on a flat and somewhat concave chest. Finding clothes that make you look and feel attractive this way can be done!! Takes some trial and error. I had numerous meltdowns in dressing rooms until I learned to tell myself: just because the clothes don't fit or look attractive doesn't mean it's an evaluation of the condition of my body. If something doesn't work, I move on. I recommend going dressed as much like you normally would if you were looking for new tops or dresses - wear attractive jeans or slacks or take proper shoes and wear nice undies and a tank/cami. If you are going to go braless, purchasing a couple of shapewear tops or camis might be your first stop. You will have a better idea whether a garment is flattering when you wear the kind of clothes you want to coordinate it with. For example, I have learned that shopping in workout clothes isn't very helpful - sneakers with white socks, stretchy shorts, etc. do nothing for evaluating the attractiveness of the blouse or dress unless you have a great imagination! 

  • BikerLee
    BikerLee Member Posts: 355
    edited June 2012

    I'm soooooo happy to be flat.  I too felt like my breasts "got in the way"...  I do, however, miss my nipples a great deal.  Alas.

    After my scars begin to fade, I plan to do 3D nipples...  Plus a whole lot of other tattoos.  I love tattoo, and I'm excited about having some serious artwork on my body - a bit of reclaiming, if you will.

    I also need to have a small revision just to either side of my sternum - I have a hershey's kiss on the left and a mini hershey's kiss on the right.  Gots to go.

    I don't like the scars... but I sure love the feeling of going braless... of going shirtless (only at home)...  of riding my bike and feeling the wind go down my jersey....  of NO BOUNCE when running, walking, and even cycling....

    I do wear a very light weight microfiber bra while at work.  I guess it somehow just makes me feel a little less vulnerable.  I'm not exactly in touch with why I feel that way - maybe it's just over 30 years of wearing bras that makes me feel a little exposed when I don't?

    I'm also rather thin and very athletic.  I don't think most people notice that I have no breasts.  I have had a few mistake me for a dude, but I also tend to dress quite androgenously about half the time... and I think that I just don't look one way or another when I dress that way.  That's fine with me.  It does not bug me at all.  I have had kids just out and ask, which is also fine with me.  I asked one child if it mattered... and he said, you know what?  What- I said...  It doesn't!  And he gave me a huge smile and continued to play play play....  

    I don't plan to grow my hair long again...  So I rather expect I'll have a lifetime of gender bender experiences!  

    At the end of the day, I think we simply have to do what we can to be true to our own selves.  This is hard, because the treatment for this random and cruel disease is so brutal.  But, now that I'm healing and feeling my energy and balance return, I am once again feeling like myself.  What a relief!

    Happy to discuss more, if you wish!  

  • BikerLee
    BikerLee Member Posts: 355
    edited June 2012

    PS - there are, in my opinion, several wonderful things about neoadjubant therapy.  one of those wonderful things is the TIME you get in making this tremendously personal decision.  when people have surgery first, they are making this decision so quickly!!!!  for me, i found myself never wavering from the desire to do the bmx as opposed to a possible unilateral mastectomy or even a lumpectomy.  my boobies were always bumpy, and i didn't want to end up with endless biopsies everytime my lumpiness changed, which was frequent!  i had fibrocystic breasts, which was confirmed upon the pathology....  also, i did not want to do radiation unless it was absolutely necessary!

  • Erica3681
    Erica3681 Member Posts: 1,916
    edited June 2012

    Hi Tina,

    Your experience with seeing a woman looking at your chest reminds me of an experience I had a couple of years ago. I'd already had a BMX with no recon but was wearing breast forms while at the market one day. I noticed a woman near me who was wearing a pretty tank top and nice slacks. She appeared totally flat. I realized I was staring and I believe she saw me staring, but the reason I'd been looking at her so intently was really that I felt solidarity with her and wanted her to somehow know that. Of course, all she probably saw was a woman who appeared to have breasts, so she may have thought I was shocked, horrified, etc. I now realize I shouldn't have stared that way since it may have upset her. But really I thought she looked great flat and wished I could tell her that.

    Barbara

  • Momine
    Momine Member Posts: 7,859
    edited June 2012

    Bikerlee, gotta love kids. My thoughts about the BMX were very similar to yours and I also had neo-chemo. I was sure about the BMX from day one, but the neo-chemo gave me time to think over the whole recon business. Then my surgeon told me that he didn't want me to have immediate recon, so that took any remaining pressure off. But I had already decided against at that point.

  • lilylady
    lilylady Member Posts: 1,079
    edited June 2012

    eNews@curetoday.com

    Hoping this is the link to the latest edition of Cure magazine. They are doing artiles on reconstruction this month. it is a great magazine-covers all ancers not just breast but plenty of good info

  • riley702
    riley702 Member Posts: 1,600
    edited June 2012

    lilylady, I love J.Jill, too! I've also been looking for tunics lately to help disguise my belly, and they look feminine enough that most folks don't look further. I found some cute ones in Sundance catalog, and also Peruvian Connection (both online). PC has some very pricey, classy items that I indulge in from time to time, but they also have tons of basics - tops, tanks, camis, skirts, etc. in soft pima cotton and a multitude of colors (like j.jill and similarly priced) for mixing and matching. J.Jill and Peruvian Connection have become my go-to places for the basics of my wardrobe.

  • LawGen
    LawGen Member Posts: 3
    edited June 2012

    This is a very personal decision that you have to make and hopefully you will make the decision that you will be happy and comfortable with.  I had a double mast. 4 years ago and chose not to have reconstruction nor do I wear a prosthesis.  I feel very comfortable with my decision.  I have just started a relationship with a man who I have known for close to 20 years, so he certainly knows about the mastectomy,  treatments and my decision and my flatness does not bother him.  He said what is important is that I am here to share time with him.  All the best!

  • Momine
    Momine Member Posts: 7,859
    edited June 2012

    LawGen, that is nice to hear. It reminds me of an old friend of mine who always says that we never know how much time we have, so we should enjoy each other meanwhile. I think it is a good way to look at it.

  • Sarann
    Sarann Member Posts: 10
    edited June 2012

    Hi KristenMarie

    I am so sorry, you have been through an awful lot and it is still early days.  I did not feel okay again until two months had passed - and I had not even had any cancer treatment apart from the BMX (a year and a half ago) as my cancer was non invasive. But I remember sitting on the hospital bed in week one, thinking I am never going to feel normal again. I didn't even look at my chest for two months (and then only through half closed eyes).  I think your reaction is totally understandable and normal after what you have had.  Be kind to yourself and try to be patient because you WILL get through it And I agree that physical therapy and people who will listen will help you.  Gradually you will feel stronger. I ended up with very small implants about the size of my originals and they look fine. I think that no breasts or small ones are great you can wear some very cute clothes and will always be comfortable.

  • MT1
    MT1 Member Posts: 371
    edited June 2012

    The other thing for me is that, I want to wear whatever I want to wear. When I was 34DD, I was shy about my breasts, I covered them up and often times folks thought I was much heavier than my actual weight because of this. I no longer want to be modest. If my scars peep, so be it. I will not hide. I am not ashamed. I will wear tight fitting clothing when I want to and loose and baggy too. But I won't be covering up my body because of my decisions related to breast cancer. I seek to be athleticly fit and proud in my beautiful body. This body survived treatment, it heals well, it works well. I want to work it to the best of my ability.

  • kestrelgurl
    kestrelgurl Member Posts: 266
    edited June 2012

    I am 7-1/2 months post-BMX with no reconstruction. With a large tumor very close to my chest wall and radiation in my treatment plan, it was never even offered as an option.

    In terms of comfort, I LOVE being flat. I love running without a bra, I like wearing a little camisole around the house in the AZ heat, and I like the ease of just pulling on a tee shirt. That being said, I do struggle sometimes with what to wear to avoid being called sir. I have always been somewhat androgynous and was called sir a time or two BEFORE all this started.

    I am thin and athletic and I think that helps. I was always more comfortable when my body fat was low and my boobs were small. Would never want to be more than a A+/B- and that is not worth surgery......at least not anytime soon. I wear a little girl "bra" or a cami under thinner or drapey tops, but wear nothing under more substantial shirts. In cooler weather, tanks and layers are my friends.

    I was nervous about going out in public for the first time post-surg, but went to Trader Joe's where I knew there would be someone weirder than me. I honestly don't think anyone noticed. Trying to stay relentlessly positive, I have decided that being flat is just providing motivation to keep my tummy toned and avoid the dreaded meno-pot. 

  • Wrongchick
    Wrongchick Member Posts: 36
    edited June 2012

    Pam, 

    Thank you so much for starting this thread.  Reading the wise, candid and thoughtful responses of the women that frequent this subgroup always makes my day a bit brighter--shoulders a bit straighter, you might say.  I was in your shoes this past fall/winter.  I too had my butt kicked by neo-adj  chemo (AC).  It's hard to be brought down by chemo when so many women seem to survive it with relatively mild SEs.  I completely relate to your statement of not caring about seeing your breasts again.  The good news ( and the bad, I guess), is that once the chemo was finally over I started to care again.

     I had a BMX in Feb followed by more fun in the chemo chair (Taxol).  I will be done with radiation by end of June.  Anyway, I decided against reconstruction for some of the reasons folks mentioned above, and I am  grateful for the BC sisters who have helped me see that this is a  reasonable option. I have posted several times asking for help and guidance ( see threads titled Clothing advice for the Flat Chested and Reminder List for the Blue Days)  and have been so touched by the compassionate responses. No doubt about it,  I have struggled with and am grieving the loss of my breasts, but I feel certain that implants were not the right choice for me.  

    Like MT, I am working on being ok with and proud of with my new body. Can I feel attractive, even sexy without breasts?  Can I like my reflection even though I no longer see the shape I formerly  identified as "me?"  I will tell you honestly that I'm not there yet, but gosh darn it, I am doing my best.   I have always considered myself a feminist, even though as a stay-at-home mom of two kids I don't often look the part.  :)   Though she's considered old-school through the eyes of  current feminist theory, the words of Audre Lorde on the subject of post-BC flatness have brought me much comfort. If you are interested, PM me I will try to find a digital copy of her essay. 

    In the meanwhile, I wish to echo the statement already made: whatever option you choose is the right path for you. The fact that we are forced to make these awful decisions makes me so mad I want to throw shoes against the wall.  But you will have the support of good women to help you through it. 

      

  • greenfrog
    greenfrog Member Posts: 269
    edited June 2012

    Hi Pamelahope -

    It is 4 years since my first mx and 3 years since the second. I had the other breast removed because I hated being lopsided. I admit that I have an ambivalent relationship with the breastlessness thing mainly because my prophylactic MX left me with hypertrophic scarring which hurts like hell. Especially when I try to wear prostheses. It also looks as sore and ugly as it feels. My cancer side however is almost scarless (because I had radiotherapy).

    I really don't mind not having breasts as much as I dislike the pain and appearance of being scarred. I am now considering getting a tattoo to disguise it - turn it into something beautiful.  

    I have never much liked wearing a bra and I can't stand the prostheses either - they always make me feel like a transvestite. And so I go flat most of the time. I am not totally confident with it though - I dress to disguise it, even at home. I feel incredibly vulnerable with nothing against my chest but a single layer of fabric. I am uncomfortable hugging people - it even took time for me to allow my young son to nestle against my flat chest.

    Having said all that I do not regret having the BMX one bit and am pleased to be rid of all that malfunctioning breast tissue. My priority was - and still is - cancer cancer cancer and a BMX was definitely the right course of action for me. 

    Very best of luck with your treatment and your decisions.

  • crystalphm
    crystalphm Member Posts: 1,138
    edited June 2012

    MT, I love your last lines, I am saying something like that to myself every day, My body is strong, it has carried me through treatment, it has not allowed cancer to take me down.  

    Erica, About starring at women with no breasts...or one breast... (I have no breasts) I think it can be a reminder for them to either 1. take care of themselves and get that overdue mammo or 2. Be thankful for all they have. I don't allow myself the third thought and that is :pity. I don't go there. Not yet.

    I had a strange thing happen to me, after my mastectomy, my sister (who i work with) began to show tremendous cleavage. it gutted me, i felt filleted like a fish to have to look at that. I never said a word, and thought about it, and realized she was being grateful for all she had. Nothing wrong about that.

    I love that when  I go out with my family and close friends, no one comments if I am wearing breasts or not. I have good people in my life. (Including all of you reading this!!!!!)

    I am convinced now after wearing breasts and no breasts, that no one really notices other than women who have had these issues. men only notice women who are really stacked, the rest of us just blend together.

  • pamelahope
    pamelahope Member Posts: 534
    edited June 2012

    Thank you all for your kind replies. I wish I could write more but I am absolutely drained. I had chemo on Thursday. Saturday and Sunday were bad but I developed a seroma at the port site. Fluid inflammation. I need rads. I like being natural and I am too exhausted for more surgeries. If I developed a seroma at the port imagine if I had implants!!!!

    I was in Beals yesterday, and I saw cute little sports bras, the same material as those ahh bras. These were in the junior dept. They had padding. They looked comfortable and had spaghetti type straps. I remember thinking why can't I just wear them and almost be like a teenager again! I don't mean look ridiculous at my age but look cute and fashionable. It wasn't a breast form but almost like a training bra.

    Silly question, but after a mastectomy, can I just find a stretchy sports training type bra? Isn't that enough!

    Why not, let the people who walk with me through the next chapter, be extra special. What an opportunity for us to experience people loving us for our essence.

    Am I deluding myself? In seven days the hair you see in my photo will be gone! Four months I will be bald. I will not have my extras to carry me through.

    However, isn't it wonderful to find that people still love you anyway. I hope at least!!!!

    Not everyone gets an opportunity like this. I used to color my hair and be obsessed with my appearance. People were not really getting the real me appearance wise. In a way it is freeing. Of course, I am not bald yet though...

    When I am sick from chemo, I am too tired to even put on the wig!

    Off subject...

    Pam

  • Momine
    Momine Member Posts: 7,859
    edited June 2012

    Pam, sorry for your chemo troubles. Chemo is not fun.

    I dutifully bought a (very expensive) wig because everyone said I would want and need it. I wore it exactly once. I wore scarves, hats, turbans etc. Half the time people didn't realize why.

    Before cancer I had very long and thick hair. I used to get a lot of attention and compliments for it. I expected it to  be hard to lose it, but in the end, for me, it really was freeing rather than sad. It was also good to learn that I could look good and feel good without all that hair.

    It is hard to go through cancer treatment, and there will come a day towards the end of treatment when being bald gets to be really old.  

    But I really do think it can help a huge amount to be open to the experience, sucky as it is, because there will be unexpected positives and interesting twists, as long as you allow yourself to see them. 

  • pamelahope
    pamelahope Member Posts: 534
    edited June 2012

    Momine,

    That is reassuring to hear. Especially, since your long, thick beautiful hair was such an integral part of your existence. I hear a lot of women embracing shorter hair afterwards. What are you deciding?

    Pam

  • Momine
    Momine Member Posts: 7,859
    edited June 2012

    Pam, I have been told by the entire neighborhood and all my friends that I must NOT grow the hair out again, lol, and I am loving having short hair.

    Maybe I will change my mind, but for now I am going to enjoy the short hair thoroughly. 

  • River_Rat
    River_Rat Member Posts: 1,724
    edited June 2012

    Pam, I never would have cut my hair short without chemo.  But like Momine I found that everyone, including me liked my hair short as it grew back in. My biggest issue when I was bald was that my head continually went from hot to cold so I found it necessary to have a hat or scarf nearby at all times, especially needed to have a hat on my nightstand.  

  • Momine
    Momine Member Posts: 7,859
    edited June 2012

    Pam, this was the hair 25 years ago:

    Long ago

    And this is recently, I repeat I am 25 years older, so don't be scared by how I look here ;)

    Now 

  • kestrelgurl
    kestrelgurl Member Posts: 266
    edited June 2012

    Pamela, do you know what brand those bras were? I don't want to wear forms and don't really have a problem being flat (it's so comfy!) but some tops just need a wee bit of filler to keep things from looking too concave. These sound like they might work.

    Thanks!

  • Momine
    Momine Member Posts: 7,859
    edited June 2012

    Kestrel, I do wear foobs usually, but recently I got some genie bras that come with shields in the pockets. The shields give a tiny curve that really would be fine for a lot of different clothes that need that bit of filler.

  • kestrelgurl
    kestrelgurl Member Posts: 266
    edited June 2012
    Thanks, Momine. That is exactly what I am looking for. I was pretty small before BMX and think a little modesty pad would give just enough to make shirts fit better.Smile
  • Momine
    Momine Member Posts: 7,859
    edited June 2012

    Yes, I think you are right. Experiment a little, but I do get what you mean and have had similar thoughts.

  • pamelahope
    pamelahope Member Posts: 534
    edited June 2012

    Momine,

    You are right. The long hair was gorgeous. Much nicer than the hair I am worry about losing. However, your face is still the same and the short hair is cute! You look pretty both ways. In fact maybe hair isn't the big deal I thought?? I never even had short hair before!

    Kestrelgurl, I do not know the brand. However, any store that has training bras or junior dept might have someone.

    Everyone you will not believe this, I went into a store today to buy headscarves and I met a woman with what I thought had a great figure in a t-shirt. We got to talking and I told her I was considering a mastectomy with no reconstruction. She lifted her shirt and that is what she had!!!!!!! Guess what, it did not look bad at all!!!!! She was flat and had a scar but she did not look fake. She said she doesn't always wear the breast forms. She told me she mows her grass without a shirt!!!!!! I don't feel afraid anymore. It actually looked nice. Just a regular chest without the breasts.

    Pam

  • kestrelgurl
    kestrelgurl Member Posts: 266
    edited June 2012

    Pam,

    I agree 100%. I don't think my chest/scars look bad at all and have no problem with how I look naked. It's how I look in clothes that just doesn't seem to be cutting it. I have always been a T-shirt and jeans type and was never bigger than a B-, but now my lower ribs protude further than my chest and you can pretty much see every rib from top to bottom. Doesn't look so hot in my usual attire unless the shirt is big and baggy. Not to mention I live in the desert where you want to clothing that is light and airy and that just doesn't hang right.

    I suspect I am a work in progress and still getting comfortable with my new shape.....or lack thereof. Smile 

    Gail

  • beacon800
    beacon800 Member Posts: 922
    edited June 2012

    <a href="http://www.flickr.com/photos/8779279@N07/7166912581/&quot; title="P1030428 by beacon_bird, on Flickr"><img src="http://farm9.staticflickr.com/8154/7166912581_129de9a7cc_t.jpg&quot; width="70" height="100" alt="P1030428"></a>

    trying to post a photo here.

  • beacon800
    beacon800 Member Posts: 922
    edited November 2014

    P1030428" mce_I am trying to post a photo but it's not working too well!  Sorry, maybe the technique changed when they modified the board here.  I'll read up and try to post again.

    I think this shows twice.  Sorry about that!  I am not too good with technology.  Anyway, this is me with breast forms.  I was a small A before, quite small.  I think the forms look really good.  This is post BMX.  I want to give hope to others.  Frankly my figure is better now than before.

    Gosh...I just realized the heading of this was for women interested in going without a form.  Maybe I should not have posted this here, my apologies as I don't mean to offend anyone!  Pretty much I am trying to say that we can look how we want post surgery.  I found it quite empowering to have the freedom.  At home i am flat, especially in the evening, when watching TV w/ my DH.  He is fine with it.  Out of the house I wear forms.  I have a bunch of different ones with different looks and materials.  These in the picture are my "big" forms.  Often it's just little foam ones in a stretch bra.  Very good for sports.

  • riverhorse
    riverhorse Member Posts: 126
    edited June 2012

    Just thought I would say:  I had a double mastectomy without reconstruction.  The doctors seem very intent on pushing patients to consider reconstruction and so I did see a PS.  But when he explained the bit about putting something under the pectoral muscle it strengthened my resolve. So I have a bra that you can put a form in -- I wear it under clothes and it looks fine. I do not go completely without anything in public and I too find it a bit unsettling to see myself without clothes.  All in all I am very happy with my decision.  However I am 67 years old and married for 44 years.  I don't know how I would feel if I were younger and single. 

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