May 2012 radiation

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  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    etherize...believe me I felt like it...I was too stunned to even say anything...I just shook my head.

    My DH was a witness and he just rolled his eyes. It's funny cause I have met a few on here that have him as a MO and they think he's wonderful. There were other instances as well but it's over now so I am movin' on. Luckily I don't have to see him again until October. The others agree he doesn't seem to like being questioned, and I did ask a few altho I did not make a big deal of them. Maybe I should have!

  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    Jan - very interesting about the boosts!  (I almost called them boobsts)

    SO sorry to hear about how tired some of your wonderful ladies are :(

    I continue to do the baker boob, and my dog continues to think I'm baking him bones or something.  He hasn't cuddled me this much in ages - and he keeps sniffy righty thinking it smells wonderful! 

  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    oh goodness, the dog is cracking me up, maybe that is why my dog is always trying to be near me :) and i like the boobsts!

     this tiredness is kicking my but.  i have processed 5 files today.  on ave i process 10-15/day.  i only have an hour and a half left of work.  i am soooo tired.

    i have a gripe.  i was covering the front desk for someone today, one of the secretaries walks by and starts complaining to me about how tired she is.  it was all i could do not to roll my eyes at her.  she has no kids and is not getting radiation, suck it up!!!!!!!!!!!!!

  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    Conrats Wiskris and Silvia!  Wow, what a great feeling!

    I just finished treatment #11.  I got final date disappointingly to be Monday, July 2nd.  I asked to have a double treatment next week so I could end on Friday, June 29th.  RO said she would do it but has never done it with tissue expanders and I could honestly say she wasn't comfortable with it.  So, I feel like I have to do it her way.  She would hate to have a problem with my skin for reconstruction.  That being said, I will be out of town and I will have to drive 3 hours each way for a 10 minute appointment (and you know it's like less than 2 minutes under the machine).  Oh well, as with this whole process I really don't feel like I can question much.  My gut says go with the expert.  I'm just sad.  I really wanted to be done on the 29th and not go into July.  :( 

    I think the fatigue is starting for me too.  I am still trying to do everything and it's kicking my butt in the evenings.  I just totally zonk out.  Plus when I wake up (5 a.m. for my coffee and morning walk with Reily and DH) I still feel tired.  It's such a weird feeling.  I don't think it helps that my ride there is 45 minutes and the ride home with traffic is close to an hour.  That's a lot of driving 5 days a week!

    Yes, weekends sure do have a brand new meaning McKenna! 

  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    goodie, i am constantly reminded how lucky i am to be able to leave my house 45 minutes before rad appoint and be able to drop my kids off and still make there 10-15 minutes early.  to all who travel for rads, my hat is off to you.  i don't know where you get your rads but if it is a city with some fun stuff to do maybe you and hubby could get a hotel for the last weekend and make a mini vaca out of it?

  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    I absolutely love the facility; everyone there is so nice!  I feel blessed to have my place. I call it the country club.  I've been to their downtown hospital and ugh.  I'm so glad I am where I am.  I could get my rads at my local hospital but that is 20 minutes away so I'd rather go to my "country club" and my doctors & nurses.  I have been doing some errands on the way home and trying new ways to get home; through the city or around the beltway.  It's lonely driving at times but mostly peaceful "ME" time.  I'm thinking about going shopping in-between my rads on the 12th and my oncologist appointment in the afternoon.  My may even treat myself to a new purse or maybe some new earrings or both.  Ha,ha.  It will be my 50% done day!  YOLO - you only live once! :) 

  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    Ya, the place I go to is my local hospital.  It's less than 10 minutes away, but it certainly isn't a country club!  I definitely agree with getting something to celebrate 50% done!  WOO! (Shoot - I might need to tell hubby I need to celebrate 10% ;))

  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    10% at least deserves a nice dinner or a bottle of wine :)

  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    I agree 10% deserves at least a glass of wine!  :)

    Does anyone else recognize your progress?  No one even recognizes mine much.  Not even my family.  It's like I'm not even doing a treatment.  I guess because I had chemo first and then my surgery they are done with it all.  It's much lonlier for me.  So, I will celebrate my milestones myself.

  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    Good idea, ladies!

    Goodie - I didn't go through chemo.  I had a lumpectomy, and now rads, then medication.  My friends were supportive through surgery.  Most of them haven't asked much about radiation.  My hubby is a wonderful support, as is my best friend and my mother, but that's about it for the most part.  One one hand I'm so sick of thinking about cancer and talking about it, but on the other hand I would like for some of them to check every once in a while.  I just don't want to be defined by it. 

  • Dizzy215
    Dizzy215 Member Posts: 74
    edited June 2012

    My facility is 20 miles away but it only takes me 20 mins to get there, as it's mainly parkway. Treatment #17 today. Halfway done....woo hoo....on the downward slide from here! Used cornstarch under my armpit today before my morning walk, as I could see some redness below it and I didn't want it to rub, so I'm officially in the Baker Boob club!



    After my treatment today, I went to a Feel Good, Look Better group. They gave us all samples of make up and demonstrated how to apply it. A lot of the women there had undergone chemo and felt comfortable taking off their wigs. I had to smile when some of the women began comparing their mastectomy chests, reconstructed boobs and tissue expanders. It's like someone posted earlier that we almost have an impulse to lift our shirts and ask if anyone else wants a look!! I did feel a bit of a fraud though, just 'getting away' with rads, but it also made me full of admiration for those women who have needed chemo and made me realize that it's totally doable.

  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    Neeners - I'm sick of thinking about cancer and talking about it too but like you I would like for some to check in on me.  I don't really have much support at home either though.  I guess since I don't work outside the home it is like my job to leave at 7 a.m. and be gone for 2+ hours or more if I go on errands.  Plus it's every day.  I think people don't think that radiation is that hard.  I think it is very emotionally hard.  Whatever.  I will get through this too.  I don't want to be defined by it either.  It's kind of hard though when I barely have any hair yet.  Ugh.  I know a year from now it will be more normal for us.  Right?

  • JNS
    JNS Member Posts: 24
    edited June 2012

    Goodie, your comment above about not being recognized for progress through radiation is exactly how I feel these days...but only from my husband (my family and friends are great).  I called him on it last night, and he admitted that since I got through chemo and surgery, to him, consciously or sub-consciously, I was done.

    In the same way that we're entitled to feel the way we feel, though, I do feel that caregivers/spouses/etc. are also entitled to feel the way they do.  There's some onus on us to let them know how we're feeling, so I tried to be understanding with him when we talked about it (even though I was pretty hurt).  I wish he could give me the exact support that I need, but in the end, he can't, and that's why these boards are such a support and source of comfort.

    You won't be celebrating your milestones by yourself--you'll be celebrating them here with us!  Yesterday I finished 50%!  Yes! 

  • mckenna
    mckenna Member Posts: 413
    edited June 2012

    Congrats on on being 50% done!!!!



    My mom texts me everyday to see if treatment was quick after I answer she texts me back with the count down. My aunt and a friend email me each week to see how I am doing it is very nice. Most other don't ask and if they do I think they just want me to say I am fine because they don't know how to respond if I'm not.



    You all are great cheer leaders.

  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    JNS - my husband is the same way.  I think he thinks radiation is a walk in the park and if he doesn't recognize it as being hard on me then he doesn't have to deal with it either.  Communication isn't great right now obviously.  I am very hurt too.  I know it's been very emotional for our whole family and I've tried hard to keep everyone's lives as normal as possible.  Maybe I've done too good of a job? 

    Yes, these boards are wonderful especially this radiation one!  This is the most I've ever posted but I've been reading these boards since I was diagnosed last fall!  Thank you all for all of your support!

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2012

    Just got home from work--a long day of travel and meetings. I usually have radiation at 3:00 so I can leave work a little early and get the zaps done on my way home from work, and that turned out to be a good idea. I can come home a crash. Today, though, I needed to chair a meeting at 3:00 and got my appointment moved to 9:45. I was exhausted all day!



    I'm sorry that there are husbys who don't understand this leg of the journey is, in its own way, as tough as any of the others--surgery, chemo, etc. I'm finding it very challenging to lie perfectly still for fifteen minutes as my arms go numb, knowing the beams are destroying not only cancer cells but any healthy lymph nodes left in my armpit. And praying they're not frying my heart or lung!



    I'm glad I was alone in the room today. The tears dripping down sideways filled up my ears and I couldn't move to dry them. Fortunately I pulled it together before the end of treatment.



    One more this week and then we get a break. Yay.

  • Goodie
    Goodie Member Posts: 244
    edited June 2012

    sbelizabeth - It is very challenging laying there knowing what those beams are going into us.  I try to breath out the time it buzzes.  Trying to minimize exposure to my lungs.  I get my treatments at 8 a.m. (or around that time) and I just try to keep moving but I am finding that I am getting tired more easily.  I can't imagine how I will feel towards the end.  Sorry you had tears during treatment today. 

    Yay to just one more for the week!!!!!!!!!!!! 

  • Spokanellie
    Spokanellie Member Posts: 46
    edited June 2012

    silviazara and wiskris - Checking in with a glass of red in hand. Yay to you two, and all others who finish this week. Today was Rads Hump Day for me and for dizzy. I followed the suggestion of others here and brought the techs a plate of brownies to celebrate. Truth was, I was craving a brownie and didn't dare have a whole plate in the apartment. So I was able to kill two birds with one stone and seem like a really nice person all at the same time. Innocent

  • Jan24
    Jan24 Member Posts: 64
    edited June 2012

    Who's all here to toast our forum friends for finishing rads:  Silvia, WisKris & Joanne_53

     I'm here with a little cheese and a glass of wine.

  • Spokanellie
    Spokanellie Member Posts: 46
    edited June 2012
    Ooh, Jan24, cheese sounds good. Hold on... okay, I have some too. It might just be us Left Coast folks who are still up.
  • Jan24
    Jan24 Member Posts: 64
    edited June 2012
    Spokanellie we must have been posting at the same time Sealed
  • silviazara
    silviazara Member Posts: 111
    edited June 2012

    Champagne time!!! My hubby is popping it right now. Cheers to all of us! I am sending lots of love to each of you, you have a special place in my heart. Even though I get lots of support from my family and friends, only you are the people who truly understand all the fear we have to live with and all those hidden tears. This is sooo difficult but we will make it through!

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited June 2012

    Congrats silviazara - enjoy the champagne .... it is well deserved.

  • Jan24
    Jan24 Member Posts: 64
    edited June 2012

    I'm on the phone with my sweetie as he is in Minnetonka, MN and he called me 'Little Red Robin' since I was referring to my red breast. 

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited June 2012

    Cheers Silvia, WisCris, and Joanne!!,,





    hugs sbelizabeth...

  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    I will say that even though my hubby has been a great support, there was a moment before rads where I cried and said 'I'm still scared, ya know?', and I think it drove it home to him that I still need support from him.  He's extremely laid back and acts like everything is no big deal which, usually works to our benefit because I'm the opposite and we balance each other out.  He's come with me every morning (we live near NYC so don't have a car and have to get a cab and he rides with me to the hospital and back).  Next week he'll be out of town for work, so I'll be on my own.  I think I will be fine, but about 8 months before all the cancer crap (cc) started, I had trouble with anxiety/panic attacks.  Just as I got over one, then I got the cc.  I'm trying not to regress back to the anxiety/panic and to use my tools that I learned that helped me initially.  Most times it helps, but there is still fear there a lot of times.

    sbelizabeth - I seriously try not to think a thing about the frying.  Sometimes it's easier than others.  I'm sorry yesterday was rough for you :(.  This is all such a roller coaster (at least for me).  Hugs.  I am finding that I get really tired about 2-4 hours after my rads treatment (treatments are around 8:10 ish), then I get a second wind, then I get really tired again about 10:00 p.m.  I haven't done any naps or anything, but I could see wanting to in my future.  It looks like you're about a week ahead of me.  How much sleep do you get each night?

    Jan - red robin!  That's cute Wink.

    Silvia - ahhh champs!  CONGRATS again!  How wonderful :)  The last time hubby and I celebrated was when I got my clear margins and b9 news after my lumpectomy.  My friend bought me dinner last night and we toasted to my 10%.  Maybe I can get the silver lining from this and celebrate 25, 50, 75 and 100!

    Spok - I am a *horrid* cook.  If I made my ladies brownies, god only knows what I'd be in for after!  Hahaha.  Very nice of you, though.  Can you send me one? Wink

    McKenna - I'm impressed with your mom!  My mom can't even figure out texts!  I wish she would, because she calls pretty often and I am so not a phone person normally, and then to be on the phone talking about treatments - eh.  It all comes from a good place, though, of course.

  • wiskris
    wiskris Member Posts: 93
    edited June 2012

    Sorry i could not check in last night for wine and champagne for finishing rads yesterday. I was so flippin tired that I went to bed at 6pm. I am still tired today so I took a sanity/recovery/celebration  day today from work. I will probably sleep all day!! It sure feels good to finish! My techs all gave me a hug and I shed a tear or 2. I brought them Kringle's to eat today along with a nice personal card for the main 2 that were with me the whole time.

    I asked my ro about being cancer free and he said "you were before you started rads" Well why the heck did I do  weeks of rads then?? I know that it kills any leftover cancer cells if any! I am just telling people I am officially cancer free today. I am doing part of  the relay for life walk next week and also the survivor opening ceremony walk. It will sure be emotional!!!

    Thanks for all the support and love here. It sure feels good to have people care!!

    Kristi

  • jittersmom
    jittersmom Member Posts: 165
    edited June 2012

    hello everyone...congrats to all who finished...I only have 3 left...can't wait..I heard from my son in the navy and he is coming home on deployment leave tonight, so 2 days off this weekend and 2 more zaps then a nice visit with my son.......now if I could just not have this stupid herceptin thing lol

    Have a good weekend everyone

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    congrats to all that are done...or ALMOST done!

  • Neeners815
    Neeners815 Member Posts: 358
    edited June 2012

    Wis - you poor thing - pooped right out!  I think taking a sleep day sounds like a great idea.  And just think, you are on the road now to getting your energy back - woo hoo!  Congrats on being done, done, done!  I can't wait until it's me :D

    Today I am 13 1/3% done.  It's helping me to look at the percentages, because once you get to double digits it seems like it adds up quickly.  Whatever works, right?  I'm really hoping to sleep in tomorrow.  I've been getting up at 6 (I am SO not a morning person) and starting to work.  We're on summer hours now, which means I work 10 hour days and get one day off every other week.  I might need to change that toward the end.  We'll see.  Before I was really not happy about the 4th of July messing up my treatment schedule, but now I think it's going to be good timing to give me a mid-week break!

    It's beautiful weather today in Jersey, and I hope to walk in the park later on.  I've been getting a walk (either outside or doing my DVD tape) in every day.  

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