Calling all TNs

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Comments

  • Hope60
    Hope60 Member Posts: 223
    edited June 2012

    Annie  - I just read your post about the old fellar's "brazils."  Well, I was drinking a glass of water, and I ended up spitting it all over my computer monitor....you are just so hilarious!!!!  I always look forward to seeing what you will say next!  Thanks for the laugh.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    CS - I have just reread your post again... no wonder TifJ splurted water all over the comp.  Your talents are wasted CS typing up med. reports.   I am so glad you are here and keep us smiling and laughing.

  • mags20487
    mags20487 Member Posts: 1,591
    edited June 2012

    Cocker...I had to go to  physical therapy with a lymphedema specialist to get my cords to break.  stretching does help for sure with range of motion.  She also had me doing some exercises to help to get the arms back after my surgery last year.  you can also do a technique called MLD.  I am just learning how to do it on my own as I must do it now at least 2 x a day to try to control the LE.  I think there are videos on youtube on how to do the MLD.  I did have a cord in my hand pop today when I was applying lotion before putting on my sleeve.  It is a weird sensation when it does it.  kinda gross really.  With 11 nodes out you may want to see if there is an LE therapist in your area to get tips to prevent it and also measure you for a sleeve for when you fly or exercise.  I only just understood that I should have been wearing it daily.  Are you getting RADS too?  If so get fitted and wear it everday for that too.  Every little bit of prevention helps for sure.  Wish I would have paid more attention to the risks but I got complacent and just thought it would not happen to me--derp I never thought cancer would happen to  me either and yet here we are---keep smiling!

    Maggie

  • Titan
    Titan Member Posts: 2,956
    edited June 2012

    Hey..I live near Westlake, Ohio!

    Cocker...ha ha...I know where you are coming from..you can talk to the old fellar about stuff and then they hear it from someone else and all of a sudden it is the thing to do...happens with kids too..it's like..I have said this all along and they look at you like you are a zombie or something..so freaking frustrating.

    Remember I told you guys about my friends daughter with TN..she is back in the hospital with pneumonia....prayers and/or good thoughts are welcome....

    and for our Jenn too

  • kathyrnn
    kathyrnn Member Posts: 393
    edited June 2012

    Mags - really great information about lymphadema, thank you.



    LuvRV - the blog was wonderful. As I was reading it, the Mayor of London was on Letterman, and one of the things he mentioned was the HOHO's



    Hope - please pass the paper towels so I can clean up the mess here *big grin*



    Cocker - apparently we have to use the word "nuts" to get a man's attention, heheheheh (don't know if it's the same over there but "nuts" is slang for testicles over here)



    Titan - prayers for Jenn and your friend's daughter.



    Now looking for Clowngirl, hope you're doing well.



    Just came home from taking my friend out for her birthday surprise. Went to see Il Divo. If you've never heard of them the only way I can describe them is that I hope that they are what "a chorus of heavenly angels" sounds like.

  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited June 2012

    Good Evening Ladies. Hope you had a good day. 

    Hope60 - Hope you didn't do any damage to your PC with all that water lol. 

    Lisa - hope you are doing ok today and are not too sore.  Thinking of you and sending warm hugs.

    Fighter34 - don't feel guilty about not seeing your BS so much. This only means you are more confident about moving on now and leaving BC behind to start a normal life Woo hoo.  (Just don't leave the thread). I am nowhere near out of the woods yet so I am still happy to  see mine and like Tifj I have put my confidence in them and they tell me what to do.  But I hope we are not too far away from beginning to feel like you do and we too will be ready to move on back into normal life when the time comes 

    Njprn - That interview was on our TV with full coverage.  It was very interesting.  Would have recorded it if I had been quick enough but wasn't expecting it. 

    Mags - you have been a great help with the cord and lymphoedema. I will ring the hospital tomorrow in Taupo because I know they do the sleaves as I am having rads.  I think they might also do the physiotherapy as well or if not they will have an idea on the correct exercises.  So thanks that was really helpful to me.     

    Tifj and Titan - Many many hugs for your cousin, friend and Jenn3 who are having a rough time.  Many many prayers also. My heart goes out to them all.  Your cousin is lucky that she has you to hold her hand Tifj because you know what she is going through.  Such a horrible time for them.  Cancer Sux.  Just be sure when you are looking after your cousin you have a bit of rest time as well as it might be very stressful for you.   

    Titan - ok fess up.  Is that you parading as that cleaner or do you have her to clean yours. Wish she would do mine.  completely knackered me last week cleaning all those bloody windows but I'm glad I did them.  It was almost like a spring clean at the beginning of winter.

    Yep men are funny about their bits aye.  My god we go through periods, period pain, childbirth, hysterectomy's, cancer and every other darn thing.  They get two fingers up their botts, told to cough and its all over.  Bloody typical. 

    Kathrynn - yep testicles are called nuts here too. In fact men say nuts more than testicles. Its almost like they are fearful of  saying  the correct word.  Sookie babies.    

    Did anyone see my post on whether they would like to be told by a psychic about their future.  Part of me would like to now I have BC.  I think I would want to cram everything in,  in that time just in case rather than say I will do it next year and don't.  I would want to do something completely outrageous like do a bungy jump, get two red rose tattoo's,  one on each buttock, strip naked and run down the lake front shouting Jeronimo, and singing catch me if you caaaan just to see if I could evade prison or even so they would have something to say about me at my funeral (mind you I bet they could dig up something now lol).  Just a thought ladies, don't answer if it makes you uncomfortable.  

    Have a great evening and keep free of pain.  Laugh like there is no tomorrow its good for you providing you are not sitting at the computer.  Love to you all. Annie               

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited June 2012

    Annie - you are so very funny!  Now, since I know I have MBC (and don't need a psychic to tell me), I intend to make a list of a few things I've wanted to do.  One of them is to make it to Australia and New Zealand, so maybe I'll come and find you one of these day!

    Thanks, Kathyrnn - I'm hoping to write about our day at Le Louvre sometime today.  I need to get all my thoughts out before they're vaporized by Xeloda!!!

  • Hope60
    Hope60 Member Posts: 223
    edited June 2012

    Annie - My computer is fine, thanks.  But I think I'll have to stop drinking and reading.  Just in case you happen to post :)

  • dworley
    dworley Member Posts: 1
    edited June 2012

    gTitan, I just joined and wanted to document my "situation!"  I was diagnosed in Dec. of 2010 with adenocarcinoma in the right axillary lymph nodes.  My official diagnosis is occult primary breast cancer that is triple negative.  I don't follow the demographics for tn at all...I was 60 when diagnosed and post-menopausal. 

    I had 3 mos., once a week, of Taxol, then 3 mos, once every 3 weeks of FAC.  I had surgery Aug. 2011 and only one lymph node of 31 had residual disease and it was only .7 mm.  At surgery, the plastic surgeon removed the old breast implant and replaced it with a tissue expander.

    I had 5 weeks of radiation and find that it truly is "the gift that keeps on giving.."  I still have sharp little pangs...electric jolts, I call them. 

    My reconstructive surgery was Feb. 20, 2012 and at that time, the tissue expander was removed and replaced with a permanent implant.  The old implant was removed from the left breast and both breasts received a mastopexy (lift).

     I was hospitalized for 3 days due to a staph infection afterwards, but after a month of antibiotics, all is now good.

     My radiated breast definitely doesn't "match" the other one, but my surgeon thinks he can improve things in about 6 months.  We'll see...not so sure I want to go through anymore surgery that isn't absolutely necessary!

     I have an ultrasound scheduled for Monday am due to a couple of little pea sized nodules on the main scar under my arm.  There is also a pretty tender spot they are going to check, as well.  I've had several similar scares...LFT's (liver enzyme) numbers are elevated and they did an ultrasound to see if they could see anything in my liver...came back clean as a whistle!  I've had two bone scans since Jan. 2012 and both have been clean. 

     I've read that tn most often returns in soft tissue in distant organs rather than in the bones, as it often does in regular breast cancer. 

     Wish me luck Monday!

  • TifJ
    TifJ Member Posts: 1,568
    edited June 2012

    Tazzy- it was Hope who spit on her computer! Good thing I didn't have a mouthful of anything or I would have too!!

    Luv- Love the new picture!!

    Shiny- thanks for info on Blondelawyers blog. She posted an entry today.

    Bernie- keep the jokes coming- even my husband is enjoying them!

    Cocker- I don't think I would want to know. If my expiration date was in the near future, I think it would be stressful trying to cram everything I've ever wanted to do in that short time frame! The tatoos on the rear sound like a good idea, but if I ran around naked I run the risk of killing someone else by heart attack from looking at my rose covered, lumpy butt!!

  • DorMac
    DorMac Member Posts: 155
    edited June 2012

    Cocker - I saw your post about the psychic and was going to respond then but figured I should give it a bit of thought first - luckily, I had lots of time to ponder it while sitting on the can all night (D train)!
    I am a very logical and practical person so I don't think anyone could ever convince me that a true psychic existed who could foretell the future - so, putting that aside, if I had the option of knowing the future, would I want to? Absolutely and without any hesitation! That would let me make the most of what time I had left and not waste that precious commodity on people or things that were unimportant to me. Perhaps I feel this way because of my age (61) but I have heard of way too many people who put things off and never got there - my younger sister being the most emotional example for me. Also, last year, 6 months before he was due to retire, my DH (of 38 years) had a heart attack - although he had 100% blockage of an artery, they were able to do stents immediately and he is fine today but I could have lost him that day! As soon as he got his 1 year "all clear", I received my diagnosis. When I am finished with my treatments, I have a "bucket list" I'm going to start checking off - it doesn't involve anything too outlandish but visiting some different places, etc.

    Doreen 

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    TifJ... blaming that on chemo brain too (like everything else I get mixed up with).

    Cocker.... I have also learnt not to drink/have a mouthful of liquid whilst reading your posts... you should definitely write an article on 'life with DH' 'Or Your daily life' or something along those lines.  Way too funny.

    Oh! and I wouldn't want to know my expiry date.   Apart from the fact that if I knew I think it would put me into such a tailspin I'd be running around like a blue arsed fly not actually doing anything on my Bucket List.   Nope, live each day as if it were your last, one day you'll be right !!  Would be nice to actually have the time and money to be able to do that.

    Dworley.. thoughts and hugs with you for Monday.

  • inmate4232010
    inmate4232010 Member Posts: 310
    edited June 2012

    Good morning Ladies,

    Tifj and Titan.....my thoughts go out to your loved ones.  I know that you both are a great support.

    CS....you absolutely crack me up.  I do so wish that we could all meet in person.  What a loud laughing group we would be.

    Well, tomorrow is my last chemo and guess what?  I am losing my hair!  Yep.  Just as I near the end of my 2 + year journey I get the summer reminder of being bald.  Oh for f**k sake!  Thank goodness I didn't make that hair appointment to get my new style.  What a waste of time and money that would be.

    The best thing that happened to me today:  I had someone ask to look at one of my pieces of jewelry.  Yeah!  Especially since it happens to be a lovely necklace with a tahitian pearl and rough grey diamonds.  I am very excited to start concentrating on something other than my next chemo appointment.  New normal, here I come!

    Have a wonderful day!  Love to you all! 

  • njprn
    njprn Member Posts: 39
    edited June 2012

    Hi all, Sorry I jumped onto the board without introducing myself. My name is Nance and I will be 54 the 21st. I was dx in Jan with TNBC and was scheduled for a lx in Feb. Before doing that I contacted Dana Faber and landed up in a neoadjuvent  clinical trial which included Taxol, Cisplatin and RAD001 (+/-placebo). I finished that 3 weeks ago and feel good (surprising how good you feel when you stop pumping yourself with chemo!!) I will have my lx next Tues 6/12 and A/C in July. Path report will confirm rads but so far it's on the to do list. Asking for positive energy as I enter the next phase.... Glad to have found this source of info and support!! Best to each and every one of you !!!!

  • Luah
    Luah Member Posts: 1,541
    edited June 2012

    Dworley, welcome, and hope all goes well for you. 

    Inmate: You sound great! Here's to your new normal. 

  • kathyrnn
    kathyrnn Member Posts: 393
    edited June 2012

    dworley - welcome to the group, it is a wonderful place here.



    Inmate - so sorry you have to go thru the hair thing, especially in the summer. I remember last year I caught a glorious day at the beach in Sept. I was bald as a cue ball, so I stuck a hat on my head, but there is no swimming in surf with a hat. Diving in bald didn't bother me in the slightest, but the "poor thing" looks from people that actually took the "normal" away from the day. Your necklace sounds lovely.



    Dormac - you go girl, grab some lovely trip outta the bucket.



    Njprn - Hi neighbor. I'm also at DF.



    Cocker - I've wanted to know my expiration date long before I had this disease, and it's selfishness. Hate the idea of working and saving for a retirement I may not have. I actually wrote a bucket list about 6 years ago. I've already done a lot of the crazy ones during my life. (if I can ever get on a real puter, I'll post the picture of the Trapeze Swing I did to celebrate the end of chemo. I'm pretty sure I scarred two 5 y.o.'s, psyche's, when they turned around to see an old, fat, bald woman standing in line behind them. I gave each of them a free swing so it should be all good). Most of the rest of my list involves travel, but I'm not free to do that because of my Mom right now. Once Mom is now longer with me, my bags will be packed in a flash!' (not to soon God, please)

  • kathyrnn
    kathyrnn Member Posts: 393
    edited June 2012

    Oops- forgot. Got a lovely note from the Moderators. They will try

    to repost that information on the Advocacy thread. I will make a point to check it often and bring back any important news I see. Thank you Moderators!

  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited June 2012
    Debbie visited a psychic of some local repute. In a dark and gloomy room, gazing at the tarot cards laid out before her, the tarot reader delivered the bad news:

    "There's no easy way to say this, so I'll just be blunt - prepare yourself to be a widow. Your husband will die a violent and horrible death this year."

    Visibly shaken, Jennifer stared at the woman's lined face, then at the single flickering candle, then down at her hands. She took a few deep breaths to compose herself.

    She simply had to know. She met the tarot reader's gaze, steadied her voice, and asked:

    "Will I get away with it?"

  • kathyrnn
    kathyrnn Member Posts: 393
    edited June 2012
  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited June 2012

    A man and a woman are sitting beside each other in the first class section of the plane. The woman sneezes, takes a tissue, gently wipes her nose, and shudders quite violently in her seat. The man isn't sure why she is shuddering and goes back to reading. A few minutes pass. The woman sneezes again. She takes a tissue, gently wipes her nose and shudders quite violently in her seat. The man is becoming more and more curious about the shuddering. A few more minutes pass. The woman sneezes yet again. She takes a tissue, gently wipes her nose and shudders violently again. The man has finally had all he can handle. He turns to the woman and says, "Three times you've sneezed and three times you've taken a tissue and wiped your nose then shuddered violently! Are you sending me signals, or are you going crazy?" The woman replies, "I'm sorry if I disturbed you. I have a rare condition and when I sneeze, I have an orgasm." The man, now feeling a little embarrassed but even more curious says, "I've never heard of that before. What are you taking for it?" The woman looks at him and says, "Pepper."

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Bernie...lmfao - at both of them.   Pepper... ha ha ha ha ha ha !!

  • TifJ
    TifJ Member Posts: 1,568
    edited June 2012

    Tazzy- I am 17+months PFC and I still blame everything on chemo brain. I will use this excuse as long as I can (beats saying I am getting old!)

    Inmate-Happy to hear you have only one treatment left!! I am raising my drink (ok, it's only water) to "normalcy"!!

    Bernie- good thing I don't have the problem of peeing when I laugh- I would be a wet mess otherwise!!

  • NavyMom
    NavyMom Member Posts: 1,099
    edited June 2012

    I am getting on an airplane tomorrow(going to see Navyson, YEA!!)......hope I don't start sneezing, cus I know I'll be laughing and then have to explain it all to DH!

    Welcome to the new gals.  Always sad to see new names but glad that you found us.

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    NavyMom, safe journey and have a wonderful visit with your son.  How exciting for you.

    Inmate... raising my glass to you with TifJ (water also) to 'normalcy'.   The necklace you describe sounds gorgeous... do you make jewellery?

    Anyone... I am still learning most of the BC lingo... what does PFC stand for  (I am sure it is not what I thought... Post F*&#@ing Chemo ??)

  • TifJ
    TifJ Member Posts: 1,568
    edited June 2012

    Sorry Tazzy- It stands for Post Final Chemo, but I like your interpretation better!!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012
    Thank you.... I was close and PFC could be either or Laughing
  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited June 2012

    Inmate - I'm raising my glass, too.  But it's not water, it's a nice French red Rhone!!! 

    BernieEllen - too funny!!!  Thanks for making me laugh!

  • mags20487
    mags20487 Member Posts: 1,591
    edited June 2012

    thanks Bernie for the chuckles!

    maggie

  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited June 2012

    Hello Ladies,

    So much to catch up on!!  Hope everyone is doing well.  Very glad to hear from you Inmate and welcome to all the new ladies.  Well, my new job certainly is quite busy.  I really like it alot, my boss, however is a workaholic and never looks at the clock.  I've worked late everyday.  Even missed my Zumba class tonight.  Think I'm just going to relax and read for the night instead.  Once I'm trained and have a routine it will be much better but I do like working again!

    CS - you are just so funny, I really wish we could all meet, it would be so fun. 

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited June 2012

    Heather - somewhere along the way (and maybe when I was in Paris) I missed that you got a job...congrats!  It's not easy to do that in a short timeframe, especially in this economy.  Your move back to PA is working out, so woohoo!

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