April/May 2012 Chemo hang out

Options
18485878990170

Comments

  • mary71145329
    mary71145329 Member Posts: 133
    edited June 2012

    Thanks Velutha! Always helpful to hear a boost from you!

    Chapter4-glad your treatment went well yesterday. Hope you are able to enjoy your vaca!

    Fairweather--GL in the chair. You CAN do this!

    Sandik--glad everything is ok. Figured the wedding had been keeping you busy!

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    Lisa2012 - I think I'm going to keep Purell in business!  I need to get an economy size refill at Sam's but I haven't felt up to going there.  I especially use it running in and out of Walmart - so mad because they haven't had the cart wipes there in 3 weeks.  My house could be cleaner - I live with guys who never seem to remember to "put the lid down..." and so I slam it down (it hasn't helped DH figure it out yet, but it allows me to vent my annoyance) and then wash my hands or squirt on the Purell!  As for hand lotion, I live in one of the most arid places there are (except for the real desert), and I have always been good about moisturizing my face, but get lazy about the other parts.  Now that I have no hair to get in the way of lotion, I'm smearing it on wet out of the shower, just like you are supposed to. 

    I feel for you - watching somebody drill for a vein is no fun. I hope next time is better. 

     

  • nofear2012
    nofear2012 Member Posts: 160
    edited June 2012

    Day 2 of my first taxol infusion and so far so good. My stomach as come back to me and I feel hungry and have an appetite. No more for now anyways, forcing food down my throat to eat. I am holding out hope that my se are not too bad, I will see in a few days. I am just real tired and flushed from the steriods. I have 3 more to go and I am done with chemo, then on to radiation. My mood is better due to feeling better, I do not have that chemo fog that I had with AC, but again it has only been day 2. I'll keep in touch with everyone as it goes. Hope everyone else this week has/had a good week with se, just remember you are one more closer to being done.

    As good as it feels now, I am still overwhlemed with emotions from this whole experience/journey. For so long I have been going to appt, researching, getting treatment, fighting/managing side effects that I really have not had any time or energy to process all this. At time a glimpse of what I have been thru, currently going thru and still have to go thru and I just wonder how am I going to get thru this all. My life will never be the same as far as having the security I had before my diagnosis. I guess at this point that is what I am grieving the most. I keep telling myself that this is part of the healing/process and that although this feeling will most likely always be with me that it affect will lesson and life will take back over. At least that what I hear from other women who have diagnosed and are many years past treatment.

  • mistym
    mistym Member Posts: 58
    edited June 2012

    Hi,

    I just took a claritin 24 hour non-drowsy.  I hope this is the right one for the bone pain.

    The pain started at 4 a.m. this morning.  I tried two extra strenght tylenol which did nothing then two Tylenol #3 which did nothing.  Please work claritin.  I have never felt this kind of pain ever in my life.....through childbirth, migraines or surgeries.  I had seven neupogen shots with the last one yesterday.  Today is the first day that I have felt this pain.  It is all the way from my lower back down my legs.  Does anyone know how long I can expect this pain to last?

    Hugs

  • lsharvey822
    lsharvey822 Member Posts: 257
    edited June 2012

    ugggh Mistym!  Hope it helps.  That's the one I'm taking and it definitely seemed to help.  I ached but nothing like a lot of people describe. 

  • mistym
    mistym Member Posts: 58
    edited June 2012
    Isharvey....should I take one each day until the pain is gone and for how many days did you take.  Or was the key to take one each day I have an injection and perhaps it's too late?  The pain is so bad that I cannot sit or walk....so far no releif from the claritan. Cry
  • lsharvey822
    lsharvey822 Member Posts: 257
    edited June 2012

    Ideally you want to take it the day before, day of and 7 days after but it can't hurt to try to see if it helps.  I ran out of the house without taking one yesterday (5 days out from the shot) and definitely felt more achey especially my back so I jumped back on it today.  Do you have anything stronger to take for the pain?  If not, it might be worth a call to your MO just to get something sent to the pharmacy in case the pain doesn't subside.

  • lsharvey822
    lsharvey822 Member Posts: 257
    edited June 2012

    Mistym - I just scrolled back and see you did the Neupogen.  I haven't heard of severe pain from that (tho I'm a newbie).  If I was you I'd call the doc.

  • SadeSurvivor25
    SadeSurvivor25 Member Posts: 119
    edited June 2012

    Hope all is well you ladies!!!

    Just got home from my last A/C treatment. I have the nicest infusion nurse, she's such a sweetheart. I talked to my oncologist about my 7 days of nausea following treatment and he brought up the medical cannabis again...this time I accepted it. He gave me a prescription for Marinol (sp?) it's a cannabinoid pill. I pray it works.



    Praying for minimal SE for us all!!!!

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012
    mistym - hope you feel better soon!!!  There are other causes of pain (electrolyte imbalance, I believe) besides the Neupogen - so please do call your onc!  
  • jjames76
    jjames76 Member Posts: 20
    edited June 2012

    Nofear: i feal exactly how u do....i miss the me before diagnosis, the tx seems never ending, and how long do we worry afterwards? My body is not mine anymore...i was healthly but now im sick all the time and in pain. It is a lot to process and im with you on that.....i guess im just taking this time for only me, im my first priority right now, and i dont feel apologetic about it. Time for the tx process and alot of time to heal....then who knows, who ever really knows...

  • vjm
    vjm Member Posts: 79
    edited June 2012
    mistym - my knee pain was severe +++ after neulasta until I heard about Claritin. I thought it was the worst pain I had ever had and imagined that it was like what bone cancer must feel like. Sleepless with no relief. Dancetrancer shared the Claritin trick with me and it worked like a charm. I took the 12 hour - I have a high tolerance for drugs and wanted to ensure I had a new kick every 12 hours. mm was definitely helpful for easing and resting. vjm
  • Stacie
    Stacie Member Posts: 607
    edited June 2012

    Innocent Some verse that came to me on the plane. 

    In My Own Shoes

    I never really knew

    The texture and feel

    of another's shoes

    Rug from beneath me

    Balance once assumed

    Now uncertain

    Strength once ample

    Now finite

    Faith once abstract

    Now precise

    I never really knew

    The intimacy and brevity of life

    Until it's fragility was exposed

    In my own shoes 

    Stacie

    6-7-12

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012
    Sade, yay for finishing A/C!  I don't remember, do you still have to do more chemo after this?  I will be curious to see if the cannabinoid pill helps you. 
  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012
    Stacie, beautiful and poignant - I'm sure we all relate.  Thanks for putting it into words!  Happy landings to you.
  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012
    Stacie- Well said..... thank you! Hope you get some good rest for tomorrow's treatment.
  • Ashlyn
    Ashlyn Member Posts: 141
    edited June 2012

    nofear: im feeling the same way lately... before I was so go go go with appts after appts, and in survival mode feeling pretty 'uppy' and assertive and positive to get through surgery and IVF and physio and all of the MO and RO visits ... now in this lull of chemo it seems to be all catching up to me also. I long for those days where I was carefree and had a healthy body. I feel all damaged and being in my 20s feel robbed that this has happened to me now at this point in my life. i look at pictures of myself from 9 months ago and think how sad it is that i had no clue what i was about to endure... Anyways, im glad to hear your taxol SE are not bad yet. I agree that there is less of a fog than on the A/C. I feel more myself on Taxol... but that being said, I still had some super hard emo days. I am always really flushed too after tx... I didnt realize that is from the steroid. Makes sense... I always wake up thinking I have a fever and I never do. The flushed face only lasts a few days for me. The worst I have felt are muscle pains at night... still, it's manageable. 

    On the topic of stress... it was interesting to read that a few of you ladies found that your lives were super stressful before diagnosis too. I think there is something to be said for that. Stress totally brings down our immune system and can make for so many health problems. As much as breast cancer is so NOT a stress-free experience... I think the lesson I have learned is that I can now choose which situations I need to actually spend energy on. Before BC I was so caught up with family problems, dramas, work crap, negative ppl and just really was so on edge with things and feeling super high stress. Now, I look at it all and think how ridiculous it was that I wasted so much time and energy worring and stressing about all of it. I think at the time we dont even realize we are doing it too... I like to think that from now on I will handle things differently... especially when it comes to certain relationships... pick and choose which ones are worth the time and really just walk away from the stressful ones. (Easier said then done, I know!)  

  • CityFi
    CityFi Member Posts: 95
    edited June 2012

    Marcia111, same here! I won't be starting chemo until the end of the month. Still I had an opportunity to get a free haircut at a ritzy salon so I jumped on it. I don't regret it. 

    Kath99, welcome and hugs. I'm so sorry that your friend hasn't been as supportive as you like. Some folks -- but not all -- will do that. It's freakin' painful. That said, attending to your own feelings is enough of a task so please don't take on attempting to manage others' emotions about your illness. You feel whatever you feel whenever you feel it, and know you are safe and free to lay it all out here.  

    Everyone, some tools I found to organize folks who want to support you during chemo is carecalendar.org, caringbridge.org, etc. I'm There are others, I'm sure.  

  • Marcia1111
    Marcia1111 Member Posts: 368
    edited June 2012

    Thank you to all of you who helped me get through last night.  It turns out that my DH remembered correctly, but I just had to find out for myself.

    I finished my first treatment a few hours ago and so far, so good.  I'm just a little tired, but I did work 1/2 a day and didn't sleep well last night.

    I so appreciate the information and support I find here.  Thanks again!

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    Marcia1111- Glad we were able to help you last night and get you through your 1st treatment!!!!! YAY!!!! Hope your side effects are minimal!!! HUGS!!!

  • Marcia1111
    Marcia1111 Member Posts: 368
    edited June 2012

    Melrosemelrose - You are amazing!  Thanks again.

  • SadeSurvivor25
    SadeSurvivor25 Member Posts: 119
    edited June 2012

    Stacie, I like that! Very well said.



    Indigo, thanks. In 3 weeks I start 12weeks of weekly Taxol and Herceptin then 3 weeks after that treatment I have Herceptin by itself for a year. My oncologist said there's a strong possibility I won't need rads so I'm uber excited about that *keeping fingers crossed*

    As far as the cannibinoid pill, I've taken one 3 hours ago and took a nap. So far I'm still feeling fine just tired which was to be expected. Hopefully it stays this way!

  • chapter4
    chapter4 Member Posts: 155
    edited June 2012

    No fear 2012. We are on the exact same schedule....don't want to speak too soon but it seems taxol will be a lot easier, thankfully!

  • kjiberty
    kjiberty Member Posts: 1,385
    edited June 2012

    Marcia:  Glad you got through your first treatment.  Mine was only supposed to last 1 1/2 hours and I was there from 9-3:30.  They couldn't find a good vein (7 pokes).  If the seventh poke didn't work, they were going to do a port.  I just didn't want that since my last treatment (YEA!) is on the 28th.  Then I had an allergic reaction to the Taxotere, so they had to make adjustments.  Long day. I decided not to work for the rest of the day.  

    AshleyB:  I know what you mean about the stress.  With my son's wedding this September, I have really backed off and not done anything.  My mom stresses me out about it, and I just tell her to take it up with him.  I have been pulling out the BC and chemo card out a lot and it has really helped me to not deal with stressful situations.  Let someone else worry about stuff.  Life is too short.

    Sade:  Congrats on finishing your A/C.  That is so exciting.

    Stacie:  Beautiful!  Thanks for sharing. We can all relate.

    NoFear:  I wish you the best in your treatment.  I know what you mean. I look at women when I am out and they are doing this and that and planning their futures, etc.  We have all had to take a step back and smell the flowers, so to speak.  We do have a better appreciation of life, because we realize how important it is and we need to take one day at a time.  I know for me, I was always operating at 78 RPM.  I am not down to 33 or 45 RPM. My MO just told me today I was doing too much. I think it's because I just have a cheerful disposition.  If I let it get me down, I just will sink further, and I DON'T want to go there!

    MistyM:  I hope you feel better soon. I get the neulasta shot tomorrow.  I am hoping I have the minimal side effects with this round too.   

  • Marcia1111
    Marcia1111 Member Posts: 368
    edited June 2012

    kjiberty, I love your attitude.  I'm trying to stay as positive and close to normal as possible.  I was unloading the dishwasher when I came home today and my husband wanted me to stop.  I know there will be plenty of times that I won't feel up to it, but if I can, I want to.  I'm so sorry to hear that your mom is adding stress to your life.  Definitely use that cancer/chemo card if you have to!

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012

    Stacie - great poem - thanks for sharing!

    Marcia - yay for getting through your first treatment!!!  One step forward!  

    kjiberty - oh goodness you had a rough treatment day.  Ugghh!  Glad it's behind you - just one more left?  AWESOME.   I hope the hives are calming down, too.   

    Hope everyone else is doing well.  I went and had my hearing test today - still no hearing loss from the carbo - YAY!  I still have the ear ringing, but I am getting better and better at blocking it out, thankfully.

    Doc ran basic bloodwork (they always check liver and kidney function) this week in prep for my 4th TCH next week.  Kidney function is down 10 points - scared me, since Carbo can damage your kidneys (and yes I drank TONS of water the week of chemo).  The nurse said it's likely I was just a bit dehydrated on the day of the bloodwork (I had slacked off on water this 3rd week), and that my numbers were not that bad overall.  Still, she is going to leave the doc a note to review it again since I'm worried about it.  I wish I wasn't such a worrier!  Hard to change my stripes, though.   

  • eileenmarie
    eileenmarie Member Posts: 6
    edited June 2012

    Hi all, I'm fairly new to the site and just happened upon this very helpful thread.  I started chemo on May 1 and have had 3 treatments so far.  One more of the AC and then I'll have 4 of the Taxol.

    I've loved reading your posts, although I haven't read them all yet.  It's good to find kindred spirits in the crap we are going through.

    I hope to get to know you all better. 

  • lsharvey822
    lsharvey822 Member Posts: 257
    edited June 2012

    Welcome Eileen!  Nobody understands like people going thru the same crap, huh!?

  • nofear2012
    nofear2012 Member Posts: 160
    edited June 2012

    Chapter4 we are on the same schedule. I hope our se stay minimal. So far so good, I can eat again & have an appetite again & that is huge for me. How are yur.emotions? I am very emotional today, missing my life b4 bc & just feeling sorry for myself. I am hoping this will pass soon.



    Ashleyb - I take comfort in the we are sharing some emotional struggle I hope for both of us as well as anyone else that it will pass. I am sure that it is all apart of the chemo treatment.



    Thanks ladies for all yur input, thoughts & support it sure helps.

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012
    kjiberty- Oh my..... hope you are okay!!!  Get some good rest and feel better soon!

Categories