April/May 2012 Chemo hang out
Comments
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Isharvey- i get benedryl and anything else they want to give me. All of those extra drugs at the infusion just help me get some rest and sleep when I get home after the infusion and also help me sleep through the night after the chemo. Yep.... I'm a little zombie then but I eat, drink a lot of water and go to bed !!!!! Ahh drug induced stupor and legal too!!!!
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Great trip to AK. Depart for Dallas in the AM. Have a great/manageable day tomorrow --all. My 4th of 6 chemos is Friday A.M. so I arrive, sleep, and straight to the big girl chair.
S -
Why do hot flashes seem to occur at night? Sheesh.
Safe travels, Stacie! -
Sorry I've been MIA. My niece had her wedding Saturday. It was beautiful. I did not melt into a puddle of weeping mess. haha Since then, I've been busy editing that along with some other sessions. Had to get done by today. We leave tomorrow morning for Pocono Raceway for the NASCAR race on Sunday. We stay in the infield and camp for 4 days. I won't be drinking, but I never was a big drinker anyway. It will be nice to just hang out with family for a few days. My last round of AC is on Monday! Yay!
There are about 50 pages since I last posted on Friday. I can not even begin to keep up!
My biggest side effects are my watery eyes and my dead taste buds. Nothing tastes right and it sucks. The gel drops are not working for my eyes. Ohyeah, and I've been very grumpy for absolutely no reason.
Hope you all have a good weekend! Keep fighting!
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Hi everyone,
Been trying to keep up and good luck today to those in the big girl chair and hopefully for others your side effects have been manageable.
I am 9 days out from first FEC treatment and just finished a week of daily Neupogen shots.
I woke up this morning at 4 a.m. in extreme pain from what I think are lower back muscle spasms but the spasms are going through my whole body. The pain is so bad it is taking my breath away.
Has anyone else experienced this or heard of this?
Hugs
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morning..I hate steriods..been up about an hour..coffee is sure good tho..I might just have the whole pot before hubby gets up..
reminder to self..do not eat sausage after chemo treatment..due to the steriods( did I mention I don't like them)I was starving and eating everything in sight..this morn lower cramps and heartburn..yuck...
so far ..no nausea..got some meds in drip before the treatment..nausea.steriod.pepcid ? I think and benedrill(ok ..spelling is terrable..ya'll deal with it..it is 4:30 in the morn here..been up about an hour and a half)
Doris
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someone asked about port placement..don't know what I had..but I want some to take home! don't member a thing..even the trip back to room..but daughter said I talked normal..was supposed to be a shot and than local for placement..musta worked..daughter said I sounded "high" but acted normal..I can think of a few times that shot would come in handy..LOL..
first day..arm didn't leave my side..ouchy..but by the next morn..was lots better..started moving arm..found it helped to sleep in the sports bra..breast weight was pulling on port..was very surprized strap did not hurt it..even tho it was directly over the port..is still a wee bit sore..but lots better..
ok..thru writing the books now..ya'll are probly tired of hearing me complain..LOL..Doris
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trying to update and put info on treatments..on the bottom like ya'll do..did I do it?
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Misty, are you taking the clairitin with the shots? Most of us take a clairitin the day of the shot, then. Again for the next 4 or 5 days. It helps the bone pain.
Doris, enjoy that coffee! I haven't been able to drink it. Can't taste it since a week after my first chemo. Boo! I loved me coffee!Try some chamomile tea for the heartburn too. I found that eating smaller, more frequent meals helped with that also. Keep drinking that water too!
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sandik - I am extremely jealous! You guys camp in the infield??? I've always wanted to do that. Our "home" track is Kansas (although it's an hour and a half from us...we live on the MO side of Kansas City) and I've only been there and Texas Motor Speedway, but I'd LOVE to go to Pocono. I've never camped, especially in the infield. What an amazing experience! I hope you get to feel great while you're there.
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Sandik: Glad to see you back. I was getting worried about you. It's good to hear you made it through the wedding.
Doris: I took Claritan after my tx treatment in the afternoon, the day of the neulasta shot and 5 days later. I was very fortunate and had no bone/joint pain. That's not to say this round will be the same. (I can only hope). I don't have a port as I will only be receiving 4 treatments, but it takes forever (at least three attempts by 2-3 different people to get a "nice" vein within it rolling. It is very painful and frustrating and they can only use one arm/hand.
I still have hives and today's my treatment day. I am dreading this. I hope they give me a nice dose of benedryl. I was up all night--I am sure it's the wonderful steriods I took yesterday.
Stacie: Glad you had a wonderful vacation.
Good luck to those undergoing treatment today and tomorrow. I will be thinking of you.
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@Doris - I don't see your bio. there's a place to click save at the bottom of each tab if that helps.
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Hello All,
I hope things are going as expected with your treatments. Thanks for all the advice you have given me thru my first treatment. I had a hospital stay over memorial day weekend 104 fever. They ended up checking to make sure I had no serious infections, started me om antibiotics and gave me neupogen to boost my white blood cells. All in all it was an ok experience I felt like a new person after I got those neupogen shots. My daughter went to her prom on June 1, she was so beautiful. I just had my second treatment yesterday and I'm kind of wiped outbut I have to get ready for my baby girls graduation on Saturday. I will be there no matter how I'm feeling. God bless you all to a quick recovery
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don't tell me the coffee won't taste good!!! I'm a coffeeholic..
I did check the public view..oh well..if it can be messed up..I can do it..
i would have eaten smaller portions..if it wasn't for the steriods..LOL...Doris
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aha!! i did it..only thing wrong is size of tumor..mine was 1.4 cm..but hey..thats close..
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Doris-you are not complaining-just what I like to call venting:) Joined yesterday-but have been reading & getting good vibes from all the lovely ladies here & appreciate it! Felt like it is my time to be heard here as I get my 1st DD AC/CT tx tomorrow. VERY nervous & still REAL sore from Port placement on Tuesday. Felt it & was mostly awake when it happened. Ouch! As they say here-may we all have no SE from tx!
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Yeah--Doris--You Did it
Silkuk52: Good luck tomorrow
Sgtgee 69: Hope you are feeling better. So sorry to hear you were in the hospital. Are you taking B6 for energy? It may help on Saturday. I am sending good vibes your way!
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silkuk52, welcome to the group! Sending good vibes for your first tx tomorrow and of course minimal SE afterwards!!!
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Welcome Newbies!!!! Glad to have you on board on trip through chemoland!!!! You'll find great support and a place to just vent.
Stacie - Hope you had a wonderful trip in Alaska with wonderful memories and pictures with your niece!!!Safe travels home and good luck with #4 in the big girl chair tomorrow!!!
IndigoMont11- What's up with those nighttime chemopause/menopause hot flashes????? I'm getting them and not loving them since once I wake up from one, I find it difficult to get back to sleep even though I'm really sleepy!!! Bummer...... The other thing that has gotten me the last few days are those Decadron steroids I take around treatment time. It will be nap time for me today ( with my boots on, of course!!!)
Sandik - Twin.... you have been one busy gal!!!! Sorry you can't drink the coffee--- I had a cup of decaf from my make one cup at a time coffee maker and it was just wonderful. I just wait to have one when I know my taste buds make their visit around weeks 2 and 3. Have a fun and safe trip to the Pocono Races and try not to get sunburned!!! BTW... I always love your grumpiness humor.....!!!
Sgtgee_69- Glad you are better after your stay in the hospital for that high fever. I managed to dodge that bullet by that same weekend. I had a case of chills and high spikey fever but got some antibotics quickly that brought the fever down and no ER trip. I had #3 tx on Tuesday and a Neulasta shot yesterday. If you are having bone pain from the Neupron shots, you may want to take Claritin daily for 5-7 days to help with the pain plus Advil or Tylenol if the Claritin doesn't cut the pain. Congrats to you and your DD upon her graduation!!! It will be a great day for both of you!!!
Minimal side effects for all this week and those in the big girl chair this week.... smooth and calm treatments!!!!
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Well Im sitting in the big girl chair waiting for AC #3 to start wish me luck I am dreding the SEs this time
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Featherweather9- I'm holding your hand right now and hopefully the minimal SE vibes are strong enough this time so you do better this round!!!! Just remember that you are not alone. Drink that water during the infusion and afterwards to help flush that chemo through. Eat mini-meals so your tummy is fed so you won't get nauseous. If your anti-nausea meds don't seem to be working, call your onco asap so you can get some help. We are here for you girlfriend, wrapping you in a blanket of positive thoughts and support!!!
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@Fairweather - I'll be thinking of you and the others that are sitting in the big girl chair today! Hope everyone's side effects are minimal!
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Best wishes today fairweather...one more down, one step closer to being DONE.
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Thank you everyone im going to try my best to keep ontop of all the SEs honestly its the weakness i dread the most that and the big C lol
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Day after my first taxol treatment...they give you a lot of steroids through IV and wow...couldn't sleep...up all night..they warned me that would happen....a lot of energy this morning too.
They say I will probably be tired tomorrow....but who cares I'm driving to the cape to get away from it all.
Feeling for you ladies still on or starting AC its no picnic.....words of advice echoed by merlosemei ....lots of rest, fluids, smal meals....I loved milkshakes....ensure and boost if you can't eat....and stay ahead on those meds...don't let nausea get ahead of you....and if your feeling really down, frustrated with no energy and a dark outlook....you are not alone....don't hold back on thoses needed good cries...it's cleansing.
You will get through this...SE,s a few days...then back on the climb back up to feeling strong again....sending positive thoughts! -
Hi all! Hope you're having the best possible day,
@Fiero: I finished my 20 weeks of dd A/C then 12 of T on may 3rd. My MO had initially considered a 4 cycle, "easier" regimen, but when my oncotype came back that went out the window and I got a port. I think dd A/C followed by T is standard of care for E +/ P + patients, though how many T you get varies (some get more at a time, fewer sessions). If I could do it over again, I might do the 8 cycle taxol instead of 12. Weekly infusions got very old about 6 weeks in, just not enough downtime between infusions to feel good.
Foobs: My exchange was last week. My TEs were 400 cc's, My gummy bears -mentor memory gel high profile- are 400 cc's. They look pretty good, C cups. I was a 34D before, (120lbs, 5'6"), and there was no way I had a donor site for a flap. My implants do NOT project as much as my TEs, and my understanding is that is typically the case based on the exchange city board. So if you LIKE your TE's projection and you still have room, you may want to have more fills, so that your implant will project as much as your TEs. Memory gel is a little firmer than my original 32yo boobs (which I gave up due to hereditary BrCa, would have kept as much as possible otherwise), but it squishes nicely, nothing like TEs. The way I see it, implants are not forever. Eventually I'll have to choose something else. Maybe by then I'll be fat enough to use my own tissue or they'll have some other foob that will be even more awesome. Or maybe I'll just ask them to fix the skin so I can be flat the next time around, who knows. Right now, my current chest looks reasonably like my former chest, and with clothes I don't think anyone would know the difference.
Neupogen shots: I tossed that needle into my belly like a dart. I found if you inject further away from the belly button (more to the side of your belly) it hurt less. My insurance company required lots of whining from my MO's billing dept, but they did ship it to my house for every cycle of A/C and my counts were always fantastic.
Heartburn/mouthsores/nausea: a reminder of the water + baking soda thing a lot of us use(d). It's harmless, not a pill, and it really does help. My MO lists it with her potions to try for SEs.
Headcovers: A friend gave me several 100% silk squares, they breathe like nothing else. Perfect for summer. And I really like my cotton headcovers.com sleeping cap -I wear it out and about, it's so easy to pull out of a purse when you get cold and throw it on, and it breathes better than the buffs (and is like 1/3 the price). But I just go with my fuzzy duck head a lot too. Does anyone else get driven nuts by fans blowing on the bald head? My poor DH is so tired of not being able to turn on the ceiling fans.
Big hugs
And a reminder that this really does end! And you WILL feel better. Just keep swimming, just keep swimming, just keep swimming.....
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velutha-Just love hearing from you. You always remind me that this time in chemoland will pass and we can all get through this time!!!! HUGS!!!!
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thanks Velutha! I was hoping you'd chime in for Fierro's questions on her tx regiment.
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Thanks to you,dear dancetrancer, i have hand lotion in every room! And in the car (along with hand sanitizer.) hope doc is right and WBC is coming up. I had my first not-great blood test my nurse had to "dig around.". I have no port but all my needles have been fine till that one, which still worked. Can I try to get the other nurse whose been 100 or is that too rude?
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Velutha - "tossed that needle into my belly like a dart" made me lol! Thanks for staying with us!
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