March 2012 chemo

Galena, I was having the terrible indigestion too. Got a script for Nexium and have felt so much better since then. You wrote about a month ago, so maybe things are resolved for you. I don't know if meds are same in New Z. Nexium is a proton pump inhibitor. So sorry if my post is too late.

triplem-sending you a big (hug), you somehow have read my mind. I have NEVER teared up and cried as much as I have lately. Personally I hate it, it's not me. If we weren't so far away from each other we could at least keep each other company while our families had fun.

Corky-glad the MO was thinking positive, I'm on his side.  Thanks for the encouraging reminder of everything coming back. I don't know about the spelling though, spell check has become my friend. 

TrailGirl - so sorry this is happening for you! Sending purple energy, hoping you stop spinning and get sprung loose from the hospital soon.

Trail-I had the same thing and when it was all said and done it took a couple of sudafed to calm it down due to fluid in the ear. Keep us updated and let us know how you're doing. Take good care my friend and hang in there!

Question - anyone doing the B-6 complex what dosage is it per day? I know I read a while ago in back posts but can't seem to find it real fast. ( probably just being lazy)

Thanks for the help!!!!

When I started Taxol was told that it really did not help but when I just had my visit with ONC and told how bad I was after first tx she said that a nurse in the office believe it did help. How crazy is that? Must be something that she can't recommend but can make reference to nurse using it. The other thing she told me is that the pain anyone is feeling after Taxol is really all related to the nerves and not muscles. Of course that does not factor in the reactions from the Neulasta shot.

It is interesting how they all seem to differ in different ways. I have lots of confidence in her but still do lots of reading to educate my self and ask lots of questions.

I thank everyone on these sights again because I have found out sooooo much info from all of you. Needless to say I have also found so much love and support from everyone and it has made this very hard journey so much more bearable.



Again-----THANKS ----- and all my love and support back to all of you!!!!!

Trailgirl- sorry about the trip to ER.  Please let us know how it goes.  Man I hate CT scans.  It seems like every time I turn around they are pushing me through that silly doughnut while I tell myself I am not really peeing my pants. 

Januaryice- I just take a B complex along with my multi-vitamin.  My MO told me it couldn't hurt, might help.  I think it falls in the claritin line, works for some.  I don't know if it is time or the B but my toes are getting better.  Before it felt like the Kebbler elves had taken little hammers to them. 

Alice71-I think it was Sissydi doing the adding.  There is something about it at the begining couple of pages.  Maybe send her a PM. 

Trailgirl, very sorry to hear about your really bad day. I begin chemo next week and have no idea and lots of fear about what to expect my personal experience will be, so it wasn't happy reading for me, but I do feel for you.  Hang in there. Hope all is better now.

  Alice7-1, I also want to be added to list at top.  Let me know if you figure it out.  I am new to the site and still learning how to navigate around.  I will try to locate Sissydi, and thanks fpor that tip, tellie_s.

Thanks, IndigoMont11.

 I do know we all have own personal experience but it is also nice to hear from several of you who have been there already or will be.  This is my second time around (recurrence) as in 2009 I had lumpectomy followed by radiation.  Unfortunately, recently a mamogram found that demon cancer had traveled up to my lymph nodes, thus another surgery and this time-- chemo.  But I am grateful that I live in this day and age becasue I know I can survive this with the proper treatment and attitude.  It just sucks for the time being!

   For those of you who have already done the chemo thing, or currently are, i was told by a friend who's been there that for her the first week was the worst of the three week cycle, then the next two not so bad.  Yet my MO tells me Days 10-14 are lowest blood counts and most vulnerable time for infection and/or fatigue.  How did you gals feels around that mid point time, days 10-14?

  I think you are probably right, Indigo, that all this thinking about it ahead is actually worse then going through it.  I almost welcome the start up next week when I can see for myself what it's like and stop wondering what it's like!

Blessings,

Gemmie

Trailgirl - I'm sorry you are having such a rough time. Please update us as soon as you can. Xxox

KLTB - enjoy the wine and books! 

Hi everyone! Sorry it took so long for an update, but we were obviously up late and I just crawled out of bed a short while ago.

So they released me after about 6 hours, even though the ER doc looked like she would rather I stay. She gave me the option and of course I chose to flee!

Diagnosis.....wait for it....vertigo. Really, vertigo, after all that??

When they finally got the oncall Onc on the phone, he told them that the Neulaste shot (7 days ago) was probably causing the high white blood count and he wasn't worried about it. 

The ER doc did find a urinary tract infection, but my head scan and everything else was normal. So she gave me Keflex for the infection and Meclazine for the vertigo and said I could go home.

I still had slight spins when I first woke up this morning, but nothing like yesterday. So hopefully by tonight, I will have said goodbye to the spins! I see my onc on Monday (before Tues tx), so I guess I'll find out then if I get a delay in tx due to the infection.

Thanks for all the comments, you are the BEST!

**Note to self: Just because you are starving at 10pm is NOT a reason to stop at SMASHburger on the way home! You are not 20 yo anymore and cannot eat a burger and fries after 7pm! 

Hi again, Gemmie!  Yes, for me, the first week is the worst as far as how I feel.  Mostly just that killer, virtually paralyzing fatigue, but for me, it doesn't last much beyond days 4-5.  I've been told that nadir, or the time when white counts are the lowest, occurs approx. 10 days into the treatment cycle - but I can't find any connection between that and how I feel, or ay other SEs I've had.  I suspect that unless you are anemic or come down with an infection, in most cases you won't feel worst when you are at nadir. 

I have had a little bit of trouble with mouth sores, but they don't start until around the second week, and have healed up okay with just the salt/soda rinses.  

Today is day 8 of my cycle - and I feel a bit queasy this p.m., which is unusual up to now - but I think it mostly has to do with me deciding I just had to have Taco Bell for lunch...  It might also have to do with all the tornado warnings we had last night; two funnels reported within 5 miles of us and the sirens blaring until 12:15 did not do much for me!  

TrailGirl, glad you're better and I hope your "inner mom" hushed so you could enjoy every bit of your late-night Smashburger, lol.  I hear rumors that In and Out is making its way to Colorado - if it does I'm going to see for myself what the hype is about. 

I am just glad to hear you can still have Taco Bell  or Smashburger or whatever cravings while in the cycle! There's hope yet!

Gemmie, I am on week 3 of my fourth treatment and my appetite came back full force this week.  I have had shrimp, fish tacos, more shrimp, Mexican food, shrimp again...you get the idea.

Michelle - they have Whataburger down here (FL) but not where we live so DH is dying to go to one before we leave.

Tornado warnings - boooooo....we have had a relatively mild storm season in AR, knock wood. We don't have a weather radio, but I am signed up for one of those services where they call you when there is a warning in your area.

I decided to play with the others and go down to the beach this evening.  I don't mind being there in the evenings once it has cooled off.  I just hate walking down there.  And walking through the sand, lol.  And then walking back.

Bonus of having no hair - no hair to wash sand out of   I have been wearing a big sun hat but I have carried it around so much it has gotten misshapen and too floppy.

Lostinmo- GOOD LUCK ..... I just did my #6 yesterday and so far so good. Some bad digestion problems but should clear by tonight. Just hoping the aches and pains to hit in the next couple of days are not too bad. My best to you and hope you have very little SE's this tx. Just think only two more to go!!!!! I can't wait to have them behind me. Never can remember but do you do rads after this? I see that doctor on July 16th.

Thinking of you today !!!!!