April/May 2012 Chemo hang out
Comments
-
My insurance will only cover Neupogen if I have it in the hospital, otherwise I pay $4000. Silly, huh? And Emend is NOT covered. $465 for three pills.
Will I need Emend with Taxol?
-
Vballmom - I do not have taxol but I do have taxotere, I use Zofran for nausea and it seems to be working ok so far.
-
vball, I agree, that is silly/ridiculous. My insurance approved at home injections. I do them when I need injections over the weekend. It is indeed expensive medication!
-
kjiberty - Thanks and good luck to you on Thursday.
vballmom - Right now my hunger and the subsequent headache are over-riding my fears! I haven't had anything to eat or drink since last night and my surgery isn't until 3:15. I worked this morning and as I was leaving my students' were calling out, "Don't leave!" "Don't go home, Mrs. S!" It made me feel good and bad at the same time. I took a shower with the special soap they gave me for my other surgery, put on no make up, deoderant, lotion, etc. and am waiting for my husband to come home to drive me to the hospital. Thanks for letting me know your experience. It really helps. I'm glad you're feeling better today.
-
Vballmom: you most likely will not need Emend on Taxol. I has my first Taxol a week ago today and only took the Emend the morning of day 2 cause my MO said it wouldn't hurt. In the end I totally didn't need it. Didn't take anything for nausea at all after that.
Nofear: I hope your first taxol goes smoothly today with no reaction and minimal SE. The worst for me has been muscle and joint pain at night. The GI situation is unfortunately not any better. I'm blaming it on the pre-med drugs they gave me. Senokot is slowly making it easier however.
Good luck to those in the chair this week!! We're all one step closer to being done with chemo! -
Ashleyb - by the sounds of it u had very little to no nausea as compared to the AC? I can deal w the constipation as long as my stomach is given a break & I get my appetite back. What have u been taking for the night pain?
-
Marcia1111 - thinking of you and hoping you find the port placement to be as easy as most of the rest of us. Hope DH is standing by with some yummy food for you as soon as they cut you loose after the procedure! I was starving too and mine had a burrito all ready in the car.
To those of you who have struggled with constipation and heartburn: I as a rule don't ever have trouble with constipation outside of surgery, chemo, painkillers and stuff like that - so I am keeping this in mind, BUT: I have done so much better with both heartburn and constipation since I started taking Prilosec. I know that some of you, like Dancetrancer, need the "big guns" for heartburn and so Prilosec wouldn't be enough, but if it does work for you - I believe that it also has a "softening" effect. I am not reading the warnings - there probably is one about diarrhea, so another word of caution.
Still, for the first two tx cycles I had on A/C, I had some issues with constipation - not major, but not normal. I have been upping the fiber and water (those Thomas high fiber english muffins and Eggo high fiber waffles are good), and for the first week or so after tx, taking one to two stool softeners at bedtime with a spoonful or two of Phillips, until I am sure I'm "out of the woods." I didn't switch from Zantac to Prilosec until around three weeks ago, so this is the first cycle on the Prilosec from day 1. This time around, I have really had no problems at all (I never went a whole day without - but it just got difficult, so to speak).
Hoping it does the trick for at least some of you, too. Plus - my heartburn, which was constant no matter what I ate or didn't eat, and was requiring multiple doses of both Zantac and Maalox during the day - is gone.
-
Hi Val
The onc switched me from one shot of Neulasta the day after FEC because it didn't have any effect on my white blood cell count to five shots of Neupogen starting on day five after the chemo.
Neupogen was much, much better. No side-effects and it worked!
Good luck!
Alice
-
Nofear: no nausea on taxol for me. There was one time I thought for a second that I was starting to not feel well but it passed and I figured if I had to think about it, it wasn't nausea. Did you have your first tx today?
I also feel more like myself on taxol. I was pretty down and low days 2 to 4 but after that I feel like I'm not in that whole chemo fog as much.
I have just been taking extra strength Advil for the pain at night. It hasn't been bad enough to do anything more. It somewhat helps but my MO said if it worsens they can prescribe me something stronger. However, I really hate taking stuff as it is... It feels like one drug after another to treat side effects on top of side effects... And I just don't like putting more into my body. Can't wait until this is done! -
#3 Round of Chemo-- DONE!!!! Just three more to go.... YAY!!! So happy when I found out my numbers were good to have my chemo today! Everything went well and tomorrow I get a Neulasta shot to make sure the numbers stay up for round #4. I'll be taking the Claritin before and after I get that Neulasta shot and hope the pain is managable. Saw my onco today and she said I was doing pretty well and looked well. All in all, things are looking good. I'm just hoping that I have minimal side effects with this chemo round.
-
Melrose, wishing you minimal SEs too!
-
Awesome, Melrose!
Thanks for the Taxol feedback. I am looking ahead.
Round #2 of chemo definitely better than one. I had a good day but am feeling shaky. Time for a nap.
Marcia - how did you do today?
-
Yay Melrose - 1/2 way there!!!!! Wishing you minimal SE for Round 3!!!
vballmom - so glad round 2 is going better than round 1!!! Hope it stays that way!
-
Not bouncing back as quickly from tx #2 last Thursday. Still really tired and draggin butt and now I must be getting a cold too, starting to lose my voice. Should I expect to be more and more tired after each tx?
-
lsharvey, they say that the fatigue is indeed cumulative. Rest and listen to your body! Feel better soon. :-)
-
Ashleyb - I hear ya about all the drugs. I have my treatment tomorrow I hope my se are a minimal as yurs. I am trying not to freak myself out. did yur mo have u take steroids the night be4 & morning of yur treatment? I am so ready for this to be done too, it seems as if this is taking forever. Thx for the update.
-
IsHarvey...I totally felt the same way after tx#2 which I had on May 24th...it took me 10 days to start to feel like myself this time. Also, make sure you aren't getting Thrush...that's how mine started...a white coating on my tongue, burning throat and eventually almost completely lost my voice. Thrush can be nasty if you haven't already had it so contact your Dr. right away cause it is tough to get rid of.
Nofear...Good luck tomorrow...you're gonna do great. Its gonna be great to finally get this first one behind you. As far as the Steroids...my onc has me on them the day before and day after my tx...day of tx they give them to my in the IV. As far as nausea...I was soooo freaked out about it but got lucky and haven't had any. The worst SE's for me really were the muscle pain...for me only really bad after the first tx and Thrush which I had after both.
Melrose...congrats on getting halfway there!!! I will be there next week and feel like it is an incredible milestone.
Looks like a lot of you ladies were/are in the big girl chair this week. Wishing you all minimal SE's. I'm going for my 3rd next Thursday so I'm trying to enjoy my days with more energy until then.
Did anyone else notice more body pain from the first Neulasta shot than the ones that followed?
Cindy
-
Thanks DanceTrancer! I did have a bad sore throat but thought I shook it with the baking soda gargle. I wonder if it just moved lower? I hate going to doctors for everything. I know that sounds ridiculous under the circumstances.
-
I know lsharvey...it gets real old going to docs by this point, doesn't it? Uggh! Fighting Like A Girl makes a good point - check your tongue. You can get thrush of the throat/esophagus, too...or, the sore throat/hoarse voice could actually be reflux (yep, it can come that far up), OR it could be a cold, etc. Take care and make sure to monitor yourself for a fever!
nofear - didn't realize this is your first one...best wishes for tomorrow!!!! After tomorrow you will be one step closer to being DONE. Oh and I take steroids day before and after, they give me steroids in my IV the day of.
-
Fighting Like A Girl, my 4th tx is next Wed, so you and I are both in the "3rd week reprieve" from sx...I'm enjoying feeling significantly better than the last 2 weeks! I cleaned (light), did laundry today, ran an errand to the library, and even did 45 minutes of very light upper and lower extremity exercises. This is the most I've done in one day since I started chemo...it was glorious! I still have to sit down frequently and pace myself, though.
-
Thanks Fighting! Dance - you're past the half way point, right! yay! you won't have to do anymore rads after will you? I know you had them already.
-
Nofear: Wishing you the best tomorrow. I, too, get the steriods the day before, the day of, and the day after (2x/day). My doc said to make sure I take the last one of the day before 2 p.m. They will keep you up at night.
Ishharvey: I do believe the effects are cumulative. I was so much more tired after the second round. Even though this is week three, I was still so exhausted yesterday. I was so happy I could go for a walk with my DH and two dogs instead of lying on the couch after dinner whining about how I was too tired to go, but feeling guilty.
Stacie: Hope you're having fun... I don't know where you get the energy....
Melrosemelrose: Congrats on being 50% done. It's another milestone--yeah!
Vballmom: Have you decided what to do about your hair on Thursday? I hope you feel well enough to attend.
-
Bug hugs to all who have treatment this week. Wherever you are on the path, it is one more down. May the SEs be light and the sleep good.
-
lsharvey - YES! I actually only have one left. I decided I am only doing 4 chemos instead of 6 (saw a study that showed only a few percentage point differences in the effectiveness, and my tumor is tiny, so I feel comfortable with 4). And nope, no more rads! I will have Herceptin infusions for the rest of the year, though, and Tamoxifen for 5 years.
-
Lisa: Thank you!
-
I'm so glad for you Dance!! So glad you can finally be done with all this and as usual very glad for your research since my new doc says 4 tx are fine too and I don't need the variety of tx that the last doc seemed to be randomly pulling out of the air! Woohoo!! We need to have a virtual party when you finish!
-
Hi Fighting! Glad to hear from you.
Took witch's hat off (better today). I still started crying for no real reason when I was walking this morning; go figure, but I felt good enough to take a break from work and walk again in the afternoon to meet a friend. I never get enough girl time (live with three guys), so that helped! I should be at least feeling more guilty about not using some of this bit of energy to clean, but I'm quietly annoyed that there are two other people living here who could also do it - and don't unless they are told.... argh. Oh, well.
And Lisa2012, wishing you good sleep too! It sure does make all the difference.
Purple energy to everyone!
-
Thanks for all the support ladies, I really appreciate it. The first one is always the hardest not knowing what I will be dealing with. I'll report later how it goes.
-
Oh thank you so much lsharvey!!! Big time party for each one of us when we are done!!!!
-
Dancetrancer: I am so excited for you to be done and over with this!
Nofear: We are here for you! Again, I strongly recommend you take the atavan before you go. I was very scared and it helped calm my nerves. I took one the second time around and plan on taking another one on Thursday--about 1/2 hour before I leave my house. I am very fortunate the chemo center is 5 minutes from my house.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team