April/May 2012 Chemo hang out

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  • vballmom
    vballmom Member Posts: 426
    edited June 2012

    My insurance will only cover Neupogen if I have it in the hospital, otherwise I pay $4000.  Silly, huh? And Emend is NOT covered.  $465 for three pills.

     Will I need Emend with Taxol?

  • RoulaG
    RoulaG Member Posts: 239
    edited June 2012

    Vballmom - I do not have taxol but I do have taxotere, I use Zofran for nausea and it seems to be working ok so far.

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012
    vball, I agree, that is silly/ridiculous.  My insurance approved at home injections.  I do them when I need injections over the weekend.  It is indeed expensive medication! 
  • Marcia1111
    Marcia1111 Member Posts: 368
    edited June 2012

    kjiberty - Thanks and good luck to you on Thursday.

    vballmom - Right now my hunger and the subsequent headache are over-riding my fears!  I haven't had anything to  eat or drink since last night and my surgery isn't until 3:15.  I worked this morning and as I was leaving my students' were calling out, "Don't leave!"  "Don't go home, Mrs. S!"  It made me feel good and bad at the same time.  I took a shower with the special soap they gave me for my other surgery, put on no make up, deoderant, lotion, etc. and am waiting for my husband to come home to drive me to the hospital.  Thanks for letting me know your experience.  It really helps.   I'm glad you're feeling better today.

  • Ashlyn
    Ashlyn Member Posts: 141
    edited June 2012

    Vballmom: you most likely will not need Emend on Taxol. I has my first Taxol a week ago today and only took the Emend the morning of day 2 cause my MO said it wouldn't hurt. In the end I totally didn't need it. Didn't take anything for nausea at all after that.



    Nofear: I hope your first taxol goes smoothly today with no reaction and minimal SE. The worst for me has been muscle and joint pain at night. The GI situation is unfortunately not any better. I'm blaming it on the pre-med drugs they gave me. Senokot is slowly making it easier however.



    Good luck to those in the chair this week!! We're all one step closer to being done with chemo!



  • nofear2012
    nofear2012 Member Posts: 160
    edited June 2012

    Ashleyb - by the sounds of it u had very little to no nausea as compared to the AC? I can deal w the constipation as long as my stomach is given a break & I get my appetite back. What have u been taking for the night pain?

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    Marcia1111 - thinking of you and hoping you find the port placement to be as easy as most of the rest of us. Hope DH is standing by with some yummy food for you as soon as they cut you loose after the procedure!  I was starving too and mine had a burrito all ready in the car.  

    To those of you who have struggled with constipation and heartburn:  I as a rule don't ever have trouble with constipation outside of surgery, chemo, painkillers and stuff like that - so I am keeping this in mind, BUT:  I have done so much better with both heartburn and constipation since I started taking Prilosec.  I know that some of you, like Dancetrancer, need the "big guns" for heartburn and so Prilosec wouldn't be enough, but if it does work for you - I believe that it also has a "softening" effect.  I am not reading the warnings - there probably is one about diarrhea, so another word of caution.

    Still, for the first two tx cycles I had on A/C, I had some issues with constipation - not major, but not normal.  I have been upping the fiber and water (those Thomas high fiber english muffins and Eggo high fiber waffles are good), and for the first week or so after tx, taking one to two stool softeners at bedtime with a spoonful or two of Phillips, until I am sure I'm "out of the woods."  I didn't switch from Zantac to Prilosec until around three weeks ago, so this is the first cycle on the Prilosec from day 1.   This time around, I have really had no problems at all (I never went a whole day without - but it just got difficult, so to speak).  

    Hoping it does the trick for at least some of you, too.  Plus - my heartburn, which was constant no matter what I ate or didn't eat, and was requiring multiple doses of both Zantac and Maalox during the day - is gone.  

  • Alicethecat
    Alicethecat Member Posts: 535
    edited June 2012

    Hi Val

    The onc switched me from one shot of Neulasta the day after FEC because it didn't have any effect on my white blood cell count to five shots of Neupogen starting on day five after the chemo.

    Neupogen was much, much better. No side-effects and it worked!

    Good luck!

    Alice

  • Ashlyn
    Ashlyn Member Posts: 141
    edited June 2012

    Nofear: no nausea on taxol for me. There was one time I thought for a second that I was starting to not feel well but it passed and I figured if I had to think about it, it wasn't nausea. Did you have your first tx today?



    I also feel more like myself on taxol. I was pretty down and low days 2 to 4 but after that I feel like I'm not in that whole chemo fog as much.



    I have just been taking extra strength Advil for the pain at night. It hasn't been bad enough to do anything more. It somewhat helps but my MO said if it worsens they can prescribe me something stronger. However, I really hate taking stuff as it is... It feels like one drug after another to treat side effects on top of side effects... And I just don't like putting more into my body. Can't wait until this is done!



  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    #3 Round of Chemo-- DONE!!!!  Just three more to go.... YAY!!! So happy when I found out my numbers were good to have my chemo today!  Everything went well and tomorrow I get a Neulasta shot to make sure the numbers stay up for round #4.  I'll be taking the Claritin before and after I get that Neulasta shot and hope the pain is managable.  Saw my onco today and she said I was doing pretty well and looked well.  All in all, things are looking good.  I'm just hoping that I have minimal side effects with this chemo round.

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012
    Melrose, wishing you minimal SEs too! 
  • vballmom
    vballmom Member Posts: 426
    edited June 2012

    Awesome, Melrose!

    Thanks for the Taxol feedback.  I am looking ahead.

     Round #2 of chemo definitely better than one. I had a good day but am feeling shaky. Time for a nap.

    Marcia - how did you do today? 

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012

    Yay Melrose - 1/2 way there!!!!!  Wishing you minimal SE for Round 3!!! 

    vballmom - so glad round 2 is going better than round 1!!!  Hope it stays that way!   

  • lsharvey822
    lsharvey822 Member Posts: 257
    edited June 2012

    Not bouncing back as quickly from tx #2 last Thursday. Still really tired and draggin butt and now I must be getting a cold too, starting to lose my voice.  Should I expect to be more and more tired after each tx?

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012
    lsharvey, they say that the fatigue is indeed cumulative.   Rest and listen to your body!  Feel better soon. :-)
  • nofear2012
    nofear2012 Member Posts: 160
    edited June 2012

    Ashleyb - I hear ya about all the drugs. I have my treatment tomorrow I hope my se are a minimal as yurs. I am trying not to freak myself out. did yur mo have u take steroids the night be4 & morning of yur treatment? I am so ready for this to be done too, it seems as if this is taking forever. Thx for the update.

  • FightingLikeAGirl
    FightingLikeAGirl Member Posts: 69
    edited June 2012

    IsHarvey...I totally felt the same way after tx#2 which I had on May 24th...it took me 10 days to start to feel like myself this time.  Also, make sure you aren't getting Thrush...that's how mine started...a white coating on my tongue, burning throat and eventually almost completely lost my voice.  Thrush can be nasty if you haven't already had it so contact your Dr. right away cause it is tough to get rid of.

    Nofear...Good luck tomorrow...you're gonna do great.  Its gonna be great to finally get this first one behind you.  As far as the Steroids...my onc has me on them the day before and day after my tx...day of tx they give them to my in the IV.  As far as nausea...I was soooo freaked out about it but got lucky and haven't had any.  The worst SE's for me really were the muscle pain...for me only really bad after the first tx and Thrush which I had after both.

     Melrose...congrats on getting halfway there!!!  I will be there next week and feel like it is an incredible milestone.

    Looks like a lot of you ladies were/are in the big girl chair this week.  Wishing you all minimal SE's.  I'm going for my 3rd next Thursday so I'm trying to enjoy my days with more energy until then.

    Did anyone else notice more body pain from the first Neulasta shot than the ones that followed?

     Cindy

  • lsharvey822
    lsharvey822 Member Posts: 257
    edited June 2012

    Thanks DanceTrancer! I did have a bad sore throat but thought I shook it with the baking soda gargle.  I wonder if it just moved lower?  I hate going to doctors for everything.  I know that sounds ridiculous under the circumstances.

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012

    I know lsharvey...it gets real old going to docs by this point, doesn't it?  Uggh!  Fighting Like A Girl makes a good point - check your tongue.  You can get thrush of the throat/esophagus, too...or, the sore throat/hoarse voice could actually be reflux (yep, it can come that far up), OR it could be a cold, etc.  Take care and make sure to monitor yourself for a fever!  

    nofear - didn't realize this is your first one...best wishes for tomorrow!!!!  After tomorrow you will be one step closer to being DONE.  Oh and I take steroids day before and after, they give me steroids in my IV the day of.  

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012
    Fighting Like A Girl, my 4th tx is next Wed, so you and I are both in the "3rd week reprieve" from sx...I'm enjoying feeling significantly better than the last 2 weeks!  I cleaned (light), did laundry today, ran an errand to the library, and even did 45 minutes of very light upper and lower extremity exercises.  This is the most I've done in one day since I started chemo...it was glorious!  I still have to sit down frequently and pace myself, though. 
  • lsharvey822
    lsharvey822 Member Posts: 257
    edited June 2012

    Thanks Fighting!  Dance - you're past the half way point, right!  yay!  you won't have to do anymore rads after will you?  I know you had them already.

  • kjiberty
    kjiberty Member Posts: 1,385
    edited June 2012

    Nofear:  Wishing you the best tomorrow.  I, too, get the steriods the day before, the day of, and the day after (2x/day).  My doc said to make sure I take the last one of the day before 2 p.m.  They will keep you up at night.

    Ishharvey:  I do believe the effects are cumulative.  I was so much more tired after the second round.  Even though this is week three, I was still so exhausted yesterday.  I was so happy I could go for a walk with my DH and two dogs instead of lying on the couch after dinner whining about how I was too tired to go, but feeling guilty.

    Stacie:  Hope you're having fun... I don't know where you get the energy....

    Melrosemelrose:  Congrats on being 50% done.  It's another milestone--yeah!

    Vballmom:  Have you decided what to do about your hair on Thursday?  I hope you feel well enough to attend. 

  • lisa2012
    lisa2012 Member Posts: 652
    edited June 2012

    Bug hugs to all who have treatment this week. Wherever you are on the path, it is one more down. May the SEs be light and the sleep good.

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012
    lsharvey - YES!  I actually only have one left.  I decided I am only doing 4 chemos instead of 6 (saw a study that showed only a few percentage point differences in the effectiveness, and my tumor is tiny, so I feel comfortable with 4).  And nope, no more rads!  I will have Herceptin infusions for the rest of the year, though, and Tamoxifen for 5 years.  
  • kjiberty
    kjiberty Member Posts: 1,385
    edited June 2012

    Lisa:  Thank you!

  • lsharvey822
    lsharvey822 Member Posts: 257
    edited June 2012

    I'm so glad for you Dance!!  So glad you can finally be done with all this and as usual very glad for your research since my new doc says 4 tx are fine too and I don't need the variety of tx that the last doc seemed to be randomly pulling out of the air!  Woohoo!!  We need to have a virtual party when you finish! 

  • IndigoMont11
    IndigoMont11 Member Posts: 1,095
    edited June 2012

    Hi Fighting!  Glad to hear from you. 

    Took witch's hat off (better today).  I still started crying for no real reason when I was walking this morning; go figure, but I felt good enough to take a break from work and walk again in the afternoon to meet a friend.  I never get enough girl time (live with three guys), so that helped!  I should be at least feeling more guilty about not using some of this bit of energy to clean, but I'm quietly annoyed that there are two other people living here who could also do it - and don't unless they are told.... argh.  Oh, well.

    And Lisa2012, wishing you good sleep too!  It sure does make all the difference.  

    Purple energy to everyone! 

  • nofear2012
    nofear2012 Member Posts: 160
    edited June 2012

    Thanks for all the support ladies, I really appreciate it. The first one is always the hardest not knowing what I will be dealing with. I'll report later how it goes.

  • dancetrancer
    dancetrancer Member Posts: 4,039
    edited June 2012
    Oh thank you so much lsharvey!!!  Big time party for each one of us when we are done!!!! 
  • kjiberty
    kjiberty Member Posts: 1,385
    edited June 2012

    Dancetrancer:  I am so excited for you to be done and over with this!

    Nofear:  We are here for you!  Again, I strongly recommend you take the atavan before you go.  I was very scared and it helped calm my nerves.  I took one the second time around and plan on taking another one on Thursday--about 1/2 hour before I leave my house.  I am very fortunate the chemo center is 5 minutes from my house.   

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