Any April/May 2012 rad girls out there?

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  • linnyhopp
    linnyhopp Member Posts: 567
    edited June 2012

    Happy Weekend to all my buddies here!  I am down to 2 treatments and while my I am very sore and raw underneath at least I know from you guys that I will begin healing fairly soon.  I find it so interesting that so many others talk about the friends and family who have been there and those that have not so muich.  It has been surprising that some people who you thought were closest to you kind of ignore you...for me this includes a friend who's mom went through the same thing as I have and the friend was so "there for me" in words at the beginning and who hasn't even contacted me in several months.  Then there are those who have been so faithful in their support, some of whom I didn't realize would be that way.  So for me, I am grateful for those who have such wonderful empathy and kindness and I won't fault the others who haven't been.  However, I now know who I can count on and I also know that in the future I will try to "be there" for people and be consistent in my friendship and caring.  So, this is a big lesson learned for me and I am grateful for the fact that I now know how I need to act/react and to be consistent in my actions.  Is this what they call a "silver lining" in dealing with this rotten disease?  Hell, something good has to come out of it for us! 

    I have a co-worker going through treatment right now and I hope my support has been a positive for her.  We seemed to have formed a close bond since we are both in treatment at the same time although I was diagnosed several months before she was diagnosed. She seemed so lost at first and I was happy to be able to give her my input as to what she could expect to happen in a way that would not scare her as her journey began.  A former parent at our school has just been diagnosed as well, and I will try to be there for her, too.  I was so fortunate to have a friend who had gone through BC be an incredible support so I am hoping that paying it forward will help others as much as she has helped me.  I am trying to figure out how I can help women (and men) in our situation as time goes by.  Any ideas on how to do this?  I don't want to be in a group that dwells on what we have all been through.  I want to be a positive help for people who need support.  I think this would help me to move on after treatment because I am afraid of getting stuck in patient mode which wouldn't benefit anyone.  Sorry if I am going on and on about this, but it's been on my mind a lot as I come to the end of rads even though I still have Herceptin and Arimidex in my future.  I feel so fortunate to have you guys to listen to my thoughts, fears and hopes for the future.  Thanks for any input. 

  • Califgirl12
    Califgirl12 Member Posts: 92
    edited June 2012

    Hello Ladies

    I appreciate reading all of your thoughtful comments about moving forward and handling friendships. I can see that feeling disappointed by people we thought were our "good" friends is very normal. I also agree that others who we didn't really expect it from has stepped forward with their support. I have been fortunate in that a friends mom was diagnosed about 6 months prior to me with double DCIS. She is about 62, youthful and very positive. She has been my rock and inspiration.



    MY skin is black, peeling, and frankly a little scary looking but....it doesn't hurt. I have just 3 boosts left!! My energy is very good. I just have made sure to get a good nights rest and keep my stress level down.



    Luvmygoats; love your posts about goats!! We live in a townhouse, otherwise I would have all kinds of animal friends too. About jean shopping. I just found some good fitting Bermuda style shorts and capri's at JCPenny for a good price. I never really shopped there before but my "mom shorts" finally ripped and I was forced to shop. So my daughter and I have been hitting the stores all week! We found some good shorts for DH there for just $12, can't beat that huh?



    happy weekend ladies!

  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited June 2012

    Califgirl - Funny you should mention Penneys.  Almost never buy anything there; the store I went to today is pitifully small and it's a new store.  BUT I did buy some navy crop pants.  At 5'2" crop pants are a bit tricky.  Most fall so low I look like I just have on high water pants.  But liked these.  Thought about a T shirt but they only had it in 1X, comfy but I looked lost in it.  Didn't have it in ladies sizes.  Pass a much bigger store several times a week and maybe I can stop in.  Did you try on the guy- looking plaid Bermudas?  Loved the prints but they made my butt look 5x as big!!!

    I did end up going to the goat show after all.  Saw a couple old goat friends.  Boy does that sound odd - old goat friends.  Curbed my jealous oh I want to buy something attitude.  Retirement in Dec. sounds way much more inviting.  And did my little bit of retail therapy.  OH and hit Wally World too.  Tired but in a different way and I think the fatigue from rads is fading fast.  Now if only my skin would heal as fast.

    Only goats and 1 rat terrier dog here.  We have 2 acres but also on the corner so bar ditch takes up some, some is across the creek, some is the leech field for septic, some flat floods in heavy rain so not as much as it sounds.  Funny DH won't let me fence in the front yard.  Could put a few more out there.  NOT!  I thought I wanted a miniature donkey till I went to the State Fair.  Stubborn and not all that small esp. when they don't want to do somethng.  Share a fenceline with a horse, donkey and cow (female) next door.  Forget which 2 came together but cow escapes in fall when she's in heat.  Gets herself penned in a round pen for security otherwise she's out roaming neighborhood for a male friend. Wink, wink.  We are 3 miles outside small town northwest of Ft. Worth.  Was not raised a country girl.  Moved out here almost 14 years ago when DD was in 6th grade. Do love my goats but 2 are very old and will probably lose both this summer.  But had babies born on May 15 but bummer both males.  Will have to rehome them once they get neutered.

    Had 2 cute chihuahuas (part not full blood) dumped here couple weeks ago.  Heard them barking at night.  they were living in the culvert.  Both males bummer again.  would have found a way to keep at least one if female.  House pets for sure.  One scared the poop out of me one night following me in door.  Found the 2nd one curled up in the tall grass.  Had a hurt leg but getting around on 3 legs.  DH managed to lure into big dog crate with leftover chicken and took to county shelter.  As they were taking them into quarantine he said people were jockeying to get a look at them.   He felt at least the non-injured one would surely get adopted and maybe even the hurt one.  Made me feel better.  Always have strays around here.  At least I didn't fear for my goats from them.

    Gosh, ramble forever.  Need shower for church tomorrow.  Been bad girl past few weeks.  Not been to both Sunday School and church probably since late March if then.  Might have been before my LX.  TTYL

  • ang7894
    ang7894 Member Posts: 540
    edited June 2012

    Hi, all I was wondering if anyone knows what my diagnoses means this way anyone know please let me know in people terms not doctor terms it's T2, NO, MO,G2, ER+ PRA+ HER2NEU+        Thank you been kind of confused for some time now of what all that is.

    p.s   estrogen receptor 68% progesterone receptor 96% her2neu score 3+

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited June 2012

    ER+ is estrogen receptor positive

    PRA+ is progesterone receptor positive

    HER2NEU+ is her2neu positve

    G2 is grade 2

    T2 is stage 2

    NO ?? zero nodes ???

    MO ???

  • Cindyl
    Cindyl Member Posts: 1,194
    edited June 2012

    Victory!  I got dressed this morning and put a bra on!  Now it's my biggest softest sports bra, and I put a strip of mepilex under the band, but by golly it's a bra.  Hoping to ease my poor abused back some. I may not manage to wear it all day, but for a while, at least I am feeling all Bartles and Jaymes...

  • soldatov
    soldatov Member Posts: 10
    edited June 2012

    Hello girls!

    Just to let you know, I finished the (dreaded) brachytherapy two days ago, and now I am home relaxing for the weekend, monday back to work.

    It was not so bad really. They told me it was a 2 and half hour operation, but all they did was stick a big needle one side and went straight through the other side. The thing is - they must have missed the spot 6 times, as I have six dots on one side and six on the other... But - they confirmed they hit the right spot, the tumor-bed, as they call it.

    So, for now, I just want to forget the whole thing and get on with my life !

    By the way, very little sore feeling, but no pain whatsoever. If anyone of you happens to go for this "boost" of radiation called brachy-therapy.

     Bye and good luck to you all !
    Nela.

  • MOT
    MOT Member Posts: 130
    edited June 2012
    ang -- Your MO or RO should have explained all this to you in terms of your tumor and treatment in regular plain English so that you would understand. My RO was very good with this on my first visit. I would ask for an explanation the next time you see any of your BC physicians. Your diagnosis determines your treatment course.
  • ang7894
    ang7894 Member Posts: 540
    edited June 2012

    Thank you Joanne53

  • mamglam
    mamglam Member Posts: 178
    edited June 2012

    Hello Ladies,

    Hope you all are having a restful weekend so far!!  I woke this morning with a sore under my arm - there is a small bump and it is painful to touch.  My rads finished on April 30 and have a follow-up appt. this Wednesday with the RO.   Do you think it is related to the radiation?  I am not sure who I should be calling!!  

    Joanne_53,

    Hope your visit with your family went well and that the distance for driving was tolerable. 

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited June 2012

    mamglam you have a very good memory -- my visit with my family went well.  The little guy (whose birthday it was) is beautiful and so good natured.  I also have 9 year old great nieces that are wonderful young ladies and love to spend time with me in the summer -- campfires and smores and swimming and bocce.

    Funny you say about your arm -- my armpit feels swollen and bruised today.  Is the bump too painful to wait until Wednesday?  If you can wait until then I think I would and let the RO and nurse see it.   Let me know what they think.

  • LovesDogs
    LovesDogs Member Posts: 95
    edited June 2012

    ang7894

    The TNM is a staging system based on tumor size (T), presence or absence of cancer in lymph nodes (N) and presence or absence of distant metastasis; spread of tumor to other organs or body sites besides breast and surrounding lymph nodes (M).

    The M0 means no distant metastases (good!).  The T, N and M are combined together for a final stage (I,II, III, IV).  Based on your results, you would be stage IIa.   I hope that helps.  You should definitely make sure your MO reviews this with you. 

  • ang7894
    ang7894 Member Posts: 540
    edited June 2012

    Thank you lovesdogs I was really concerned of what the mo was.  Hope everyone's weekend went well.

  • Maghery721
    Maghery721 Member Posts: 68
    edited June 2012

    Hi ladies,

    I've been out of this loop for a few weeks now - I went back to work and I've been so busy and tired since then.  I hope to catch up on all of these messages (and add my two cents if it's needed).  Congrats to those who have finished rads, and good luck to those starting or in the midst of it.

    Quick question in the meantime:  After starting back to work, I noticed that my non-radiated breast started looking very bruised, and one big bruise began growing and I now have two - they are mostly red - looks like a bunch of broken capillaries.  I believe they have formed from the friction from my arm rubbing against them consistently (which it wasn't while out on disability for 3 months).  I was not wearing a bra the first day, so that mistake is what started this I think.  I have one bra that has no padding (but is tight) and one that has padding.  The padded one seems to protect it more.  It lessens a lot during the night when I sleep with a pillow pushed up against it and when I wake up the bruises look yellowish, like a black and blue that is healing. But as soon as I start moving in the morning, it starts getting red and angry looking.  I've been doing my best to wear a bra.  I have an appt. with the PS in the morning so I'll know better then, but thought I would ask here if anyone has experienced anything similar.  Thanks for any insight that might be provided.

  • Cindyl
    Cindyl Member Posts: 1,194
    edited June 2012

    Maghery721, Check your measurements.  Has your bra band size changed?  Mine increased by about 4 inches.  Trunckle lymphademia? Or swelling from rads? We don't know yet.  But the swelling and tight bras did cause me some bruising on both breasts till I picked up a couple of bras that actually sort of fit.

  • Maghery721
    Maghery721 Member Posts: 68
    edited June 2012

    Thanks Cindy - I honestly think it happens when I do not have the bras on.  Like right now I have the padded one on and the bruises look like they do when I wake up - just yellowish.  Once I get home and take it off, it will start up again.  It has to be something with the arm friction - it's not happening on the right side because that is the side that I wear my purse, and it sits right up against my boob and my arm hangs on the outside.  I just hope the doctor can do something about it.  Thanks for replying!

  • Califgirl12
    Califgirl12 Member Posts: 92
    edited June 2012

    Hello Ladies

    I am on my 33 out of 35 treatments now. I have noticed an increase in swelling in my arm and hand where the 4 lymph nodes were removed. My incision is on the Outter end of my breast near the auxiliary area. I think the targeted boosts are causing this new mild lymphedema. Has anyone experienced this too. I am not too concerned but it is uncomfortable. I am also limiting what I try and carry, push, and pull with this arm. MY RO will see my on my final treatment day on Wednesday. The suggested excercises does not seem to help it much. I am just figuring it is just another inconvenience in the long list of junk that we have to deal with.



    BTW my wounds are healing nicely and skin is improving. All along I have worn those comfy bras that they advertise on QVC. I have to admit they are comfortable and allowed me to leave the house throughout my healing.

  • Califgirl12
    Califgirl12 Member Posts: 92
    edited June 2012

    Hi Luvmygoats

    I did not know that you can neuter a goat? I guess if you keep them as pets and don't want a whole herd of them then that's what you do. News to me! Can you tell I am a cIty girl? Sounds like a ton of fun. The closest time we came to having farm animals is when my 2 Mallard ducks had 28 ducklings in total.



    One of my RAD techs has a couple of acres and he has a donkey. He also has like 8 dogs, chickens, and other assorted small animals. He said his donkey is very stubborn.

  • wiskris
    wiskris Member Posts: 93
    edited June 2012

    3 more to go..whohoooo. Today I had a student from university in the room. They were kind enough to ask if i would allow a man in the room. I said No problem...I probley scarred him for life with my 43 yr old saggy 36D's and now loppsided...He was very nice and cute! It was just awkward...even though my Ro is  man also..

    Have a great day!

  • Cindyl
    Cindyl Member Posts: 1,194
    edited June 2012

    My clinic has a lot of students coming through medical students, rad techs, nurses... even the RO's high school aged daughter came through, job shadowing.  I don't mind, but I will say students seem to always have coooold hands.  The young surgeon in training who gave me a breast exam?  Burrr. 

  • linnyhopp
    linnyhopp Member Posts: 567
    edited June 2012

    I graduated from rads today...I am done! done! done!  Can't wait for the rest of you to have this feeling, too.  Hugs to all.  Linda

  • Nicole4
    Nicole4 Member Posts: 104
    edited February 2015

    Congratulations linnyhopp, I am happy for you. 

  • Cindyl
    Cindyl Member Posts: 1,194
    edited June 2012

    Yay Linnyhopp! Glad you are joining us on the other side!

  • Binney4
    Binney4 Member Posts: 8,609
    edited June 2012

    Califgirl, you can ask any doctor on your team to write you a referral for an evaluation by a well-qualified lymphedema therapist. Here's how to find one near you:
    http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm

    Early stage lymphedema is easiest to treat and requires the least amount of on-going care. It also heads off the very high risk of serious systemic infection that comes from having stagnant lymph fluid in your arm or hand. Lymphedema is staged, just like breast cancer is, and left untreated it will progress, either with more swelling or with tissue changes inside (hardening, fibrosis, abnormal fat deposition) that will cause you grief down the road.

    Many times our doctors don't know much about lymphedema, and they can be slow to refer us for help. Do speak up and get help promptly -- it'll make your life so much easier moving forward!Smile (If you have questions, do feel welcome to drop by the Lymphedema forum here at bc.org. Lots of friendly and encouraging gals there who would be happy to help.)

    Be well!
    Binney

  • Sandyland
    Sandyland Member Posts: 262
    edited June 2012

    Linda ~ Congratulations my friend...let the healing begin!

    <3 SAN

  • ang7894
    ang7894 Member Posts: 540
    edited June 2012

    congratulations linnyhopp  you made it!!

  • mamglam
    mamglam Member Posts: 178
    edited June 2012

    Congrats linnyhopp!! Wishing you a speedy recovery from the treatment.

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited June 2012

    Congrats linnyhopp!!! Now on to the next part of recovery .... YOU

  • linnyhopp
    linnyhopp Member Posts: 567
    edited June 2012
    Thanks for all of your kind words and good wishes.  You are all so supportive and wonderful!  I feel honored and privileged to share our journey, even though it's one none of us should have had to take.  I will always treasure the women on this board.  XOXO  Linda
  • wiskris
    wiskris Member Posts: 93
    edited June 2012

    Congrats Linny Hopp!! I will celebrate with you in cyber space when I have completed mine on thursday! It's hard to beleive it is almost over! Celebrate Life!!!!!!

    Kristi

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