Looking for success stories!

Options
nonblonde70
nonblonde70 Member Posts: 5
edited June 2014 in HER2+ (Positive) Breast Cancer

I am 1 year out from all of my treatment and looking to connect with others who have had Her2nue +, grade 3, ER- PR-. I have made changes in my diet and don't drink or smoke and I have been trying to educate myself on this particular kind of cancer. The more I read the scarier it sounds! I would really like to hear from women who have been through this. I want to hear from women who have had other kinds of breast cancer also! I have gotten a few responces back on other posts and it just made my day to talk with other people who have been through having this horrible disease! Thank you for being there!

Nonblonde70 

· Share on FacebookShare on Twitter

Comments

  • msphil
    msphil Member Posts: 1,536
    edited April 2012

    Hello sweetie, I had idc, and at stage 2, I hadtotal radical mastectomy on left side, I had reconstruction,but my body rejected it, and now wear prothesis in my bra,chemo and rads and 5 yrs on tamoxifen, all this while we were planning our wedding, I found the lump myself in the shower, I had just some soreness no real pain then,I GOT MAD AT THE CANCER AND VISUALIZED IT AS the enemy and talk to it and said,"you will leave my body, and I fought, I kept HOPE and stayed Positive and most of All, my Faith in God got me through,come here and you will never be alone in this, only us that been thru this thing can understand. msphil  (Oh and I am a 18 yr Survivor) Praise God

    · Share on FacebookShare on Twitter
  • Dutchie
    Dutchie Member Posts: 112
    edited April 2012

    Hi Nonblonde 70,

     I was diagnosed in 2008 (age 39) with HER 2+ grade 3 ER- PR- inflammatory breast cancer. So pretty similar to you except I have brain mets. My treatment (I was in a clinical trial with Avastin) was really successful, the chemo, radiation and surgery, all went great. Most recently I had brain surgery to remove a large tumour and gamma knife radiation-- also successful!

     I'm glad you reached out and it's nice to meet you! When it comes to positive talk like yours, I'm in!

    Dutchie (a blonde--lol!)

    · Share on FacebookShare on Twitter
  • shadow2356
    shadow2356 Member Posts: 393
    edited April 2012

    I was diagnosed 8/2009. I had BMX, DIEP (partial failure), TCH and herceptin for a year. I go to the onc 3x a year and the BS once a year. I feel like I am doing all I can but if it is going to recur, it will. I try my best not to think about it too much, but occassionally those thoughts creep in. If you let it take you over it will have won because it will dominate your life. I know it is easy to say, hard to do.

    I plan on being here a long time. I will be so happy to write to you in 10 years.

    · Share on FacebookShare on Twitter
  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited April 2012

    Yes, bring the success stories, please.

    I have been mostly positive over the past 20 months, and managed to get through the recurrnce (and subsequent treatment).

    I give thanks for every day that I wake.  But there are moments where i feel absolute terror!  yesterday was one of those moments.

    Nice to 'meet' you.  Let's celebrate when we reach 10 year and 18 year survivor status.

    Sending you love and wellness.  All praise to God

    · Share on FacebookShare on Twitter
  • Birds
    Birds Member Posts: 67
    edited April 2012

    Just had my MRI last month and it was fine.  I go to the onc every 6 months, get blood drawn, get an MRI, 6 months later see onc, get an Ultrasound and get a lung xray once a year.  See my surgeon twice a year. I make sure I come to this board to post every 6 months to say I'm ok and give others hope.  DX in September of 2009, ER-PR-Her2+  I had surgery, TCH and Rad.  Hugs to all.  I'm gonna read the boards for awhile and pop in on a few other threads.

    · Share on FacebookShare on Twitter
  • Corinne6
    Corinne6 Member Posts: 311
    edited May 2012

     Hi, I am 3 yrs 10 months out and feeling great!! Someday you will be back to normal in your life. I joined a survivor sculling row team and love it!! www.rowstrong.org   Because of this benefit I am almost happy I HAD cancer. I did chemo, radiation, reconstruction and hysterectomy. Took about 2 and a half years but I feel better than ever. I exercise and am on a glutten free, sugar free diet and love it. I am here to hel if you need to talk!! Hugs to all my bc sisters!! If anyone is in the area...please join us!!

    · Share on FacebookShare on Twitter
  • lago
    lago Member Posts: 17,186
    edited May 2012

    nonblonde7, I don't have quite  the same biology as you but I'm also HER2+, diagnosed about the same time as you and doing just fine. The one thing about being HER2+ and hormone negative (in your case) is if you make it past the 3 year NED mark your chances of recurrence goes way down after that.

    I'm assuming you're coming up on year 2 NED! This is exciting!

    · Share on FacebookShare on Twitter
  • lkc
    lkc Member Posts: 1,203
    edited May 2012

    Hi NB, just reading this. It does get easier honey, more and more of us are out here doing terrific. I

    "had Stage 3 C BC", 12 nodes pos , lymph & vasc. invasion her2 pos, ER/PR neg, NO clear surgical margins  and Pagets too.

    That was 7 years ago this month. I am living large, healthy  , thankful for everyday, and enjoying a a richly fulfilled life.

    you will too!

    · Share on FacebookShare on Twitter
  • Alicethecat
    Alicethecat Member Posts: 535
    edited June 2012

    IKC

    Wow! What a star! Thank you so much for posting.

    Alice the Cat

    · Share on FacebookShare on Twitter
  • Alicethecat
    Alicethecat Member Posts: 535
    edited June 2012

    Dutchie

    For me, you are a symbol of everything positive thinking can offer.

    Thank you

     Alice the Cat

    · Share on FacebookShare on Twitter
  • greenacres
    greenacres Member Posts: 144
    edited June 2012

    I am 1.5 years our from end of treatment.  GOOD LUCK to you!

    · Share on FacebookShare on Twitter
  • Marfl
    Marfl Member Posts: 3
    edited June 2012

    7 years for me also, life is good. ErPr - her2 positive, lumpectomy, chemo, radiation. Keep fighting the good fight, things do get better!!!

    · Share on FacebookShare on Twitter

Categories