April/May 2012 Chemo hang out

Dancetrance, I don't know about MM and hot flashes but in the name of science I will work on it and get back to you.

Hi,

Just a quick note.....I ordered scarves and hats from www.headcovers.com

I like them alot and they have a huge selection.  They arrived withing 12 hours of my order being placed on  line.

Velutha:  YOu are too funny about DH taking you to chemo.  I totally agree.  I have had friends take me twice (second time was postponed due to my low platelets) and my husband came the first time.  He sat there and played Angry Birds on his computer and didn't even talk to me!  One of my friends wants to take me this Thursday but just told me she can't, so now my DH is taking me.  

It's a beautiful day here in Illinois.  High 82!  I am going to sit outside and enjoy the weather while I can!

Have a great day! 

Morning or afternoon ladies! I'm wondering if today will really be the big crash day since I accidentally took 3 decadrons on Fri and only one was left yesterday. Strangely, I did sleep Fri night with just a half ambien, and my guys came through unscathed.



I love etsy.com. I hadn't even thought about looking for scarves there. Since I bought four head buffs, I gave up on scarves because the buffs are so much easier to put on IMO, and I wear my wigs out most of the time.



Pauletta, I thought my face was a little puffy after tx#2, but that was also right after my port placement. The puffiness seemed to improve after a few days - but I haven't posed for any pics since starting chemo.



My DH has been so freaked and negative about the chemo that he's gotten a pass on going with me. He would if I wanted him to, but I'd be stressed out the entire time worrying about him. So my two college-age sons have been my chemo buddies. It has given us the chance to have some great talks and we have always taken a fun comedy movie to watch, too.



OK, this is kinda awkward. DH doesn't get along with most of his family, including his sister and brother, and as a result, hasn't been allowed to see his mom in some time. He only stays in touch with his one aunt and uncle, who are sweet, but he didn't tell them about my cancer diagnosis back at the time it happened because he didn't want it getting around the rest of the family. I told him I didn't mind either way; I'm not close enough to them any more, sadly, for it to really hurt me if they don't wish me well. And unfortunately between my BIL and nephew, they csn't stay out of trouble, and tge only time we hear from them is a collect call asking for bond money, n/k. They are old enough to know better and so we put our foot down about that.



I do really miss my MIL, who for years was my little hero and the glue of the family, and I pray for her all the time, but with this mess with my SIL, even DH's aunts, her owm sisters, haven't been to see her.



Anyway, DH spent the afternoon with his aunt and uncle on Fri and decided to tell them about me - but made it sound like we just found out and I haven't even had surgery yet! I'm a bit miffed at this little tangled web. I wish he had just told them he hadn't been ready to talk about it at the time. Grrr. Oh, well.

Kjiberty, Marcia1111, Sade, Mary71, Velutha,

Thanks for the well wishes...I think it is the chemo....I feel better today . I think it is also cause I have chemo tomorrow I always get nervous...never know what kind of SE I will get lol



I think I am also bummed about the summer, feel like we can't do all the fun stuff we normally...we live 90 minutes from Disney and usually go all the time, too hot for me this year, just makes me sad. I worry about my daughter, she is 11. I want her to have a somewhat normal summer. She has some camps she is going to so that should help...

Thanks ladies, the hugs are greatly appreciated it. It feels good to be able to express how I feel and know that I'm not the only one feeling this way. I have my last A/C treatment this week then I'll be starting 12 week Taxol and Herceptin . Although I'm happy it's the last one I dread going. I was so depressed the time. I started crying as the nurse checked my vitals. I felt like a complete idiot but I couldn't control it. I pray everyone has little to no SE!



Maria, (I think you asked about the medical pot) I live in Ga and I do not believe it's legal here but my oncologist did mention it to me a about a month ago saying it was an option to help treat the nausea. At first I was opposed to it but now I'm thinking I should take him up on it .



Has anyone had shaky hands??? For the past couple of days my hands have started to shake. It's weird and somewhat embarrassing. It don't happen all the time.

My hair started falling out today.  Tomorrow is my second treatment.  Any guess as to how soon I will need to shave? I have a fancy art opening to go to on Thursday.  It's been in the works for a long time. I hope I can go and not be a burden to my hubby.

 I made it to see DD#2 off to the prom! I was so worried this week that i wouldn't be out of the hospital in time!

I started crying when they did my port draw this past Thurs., it wasn't that it hurt or anything - I was just overwhelmed with the "I hate this - I don't want to do this any more" feeling. It all sucks. I understand about frickin cancer and chemo derailing summer plans - but I confess, it's easier for me to go through this now than in winter. I hate driving down to the clinic on snowy streets, and I am less likely to take my walks when the weather is cold and bad.



I should be doing all kinds of housework but my energy got used up showering and making breakfast.

 rose - it is your duty to report back your research findings!  LOL!

 indigo - I can totally relate - the majority of my days were like that.  All my energy just to get ready for the day!  This stuff can really knock ya down.

vballmom - yay for getting home in time for your daughter's prom!  

Rose,

Its worth a shot.  I was surprised too at how much easier I could swallow when I had some before I ate.  My heartburn had gotten so bad that everything hurt like it was on fire going down, like a little ball of pain.  If you don't want to smoke it grind two teaspoons and add to enough cookie mix to make 6 cookies.  Now I don't know if it will work the same if you eat it, and it does take longer to take effect but its another way to go.

Awwwh vjm so sorry to hear about your rough week!  I hope the broth helps you - definitely felt like liquid gold to me!  I think it's b/c it is so mellow tasting- so easy going down, yet at the same time it has flavor.  The recipe says it is full of many of the nutrients chemo depletes from us.  

Sounds like you and I are lock-step in many of our symptoms now.  I wouldn't be surprised if your hemoglobin is taking a hit - that would be giving you the shortness of breath and fatigue.   Seems like my body has accomodated better to it now, but I still have symptoms if I push too hard.  When we hiked yesterday there is one area of semi-steep climb to get off the trail and into the parking lot...I had to stand still and take deep breaths afterwards - held onto DH 'cause I saw little stars...eeeks!  So take it easy and don't push too hard - it's apparently easy to do!!!   And thanks for the feedback on the mm!  I may have to call in some sources.  Ha ha ha. 

Here's hoping for a better week for you!   

@Indigomont11--what is a hair buff? I haven't seen those...how do you wear them? I am definitely keen to have some easy headcovering options...

nofear:  My brother lives in RO and is a "licensed" distributor.  Wish he lived closer!

jkbuffy:  go to www.buffusa.com.  Their headcovers are great and very cool, especially now with the warm weather.  I bought 5!