Hi to all....am new here

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Wolebearsvicky
Wolebearsvicky Member Posts: 5
edited June 2014 in Managing Side Effects of Breast Cancer and Its Treatment

Hi to everyone....I am new here.....my name is Vicky.....I am 56 yrs old....Oct. 2011 ....I got the worse ANNIVERSAY gift of all....I got told the dreaded breast cancer word......at first the drs told me it was stage O ....then by the time my surgery was over in Nov. it went to stage 3 triple negative .. .. I have lost BOTH parents to cancer ....my mom to breast cancer 30 yrs ago and my dad to lung cancer 12 yrs ago ....so I am double whammied.....lucky me.....I have had BOTH breasts removed AND finished chemo on April 23rd AND just had my implants done ......now I have my 1st appt next Thursday for 6 weeks of Radiation ( 5 days a week).........imhave had good days n bad days......chemo was not fun at all.....lost ALL my hair and being a X hair dresser it was the worse thing to happen to ME!!!!!!.....now I am dealing with the after effects of the chemo....burning feet n hands.....if there are 10 side effects of chemo I usually will get them ALL.....hahahaha.....had to cut my chemo from a 3 hr treatment down to a 1 hr treatment as my body would not tolerate it so lucky me I got 2 extra chemo treatments......guess I could look at the positive side of it ...right now the last 2 PET scans have been NO CANCER .....I have family members that think I am making this stuff up.....yeah like I want to walk around with no hair n have BOTH breast removed for a new set.....all I know is Cancer brings out the strangest people at times.....especially family members.....well that's where my story ...the readers digest version of it.....I need support n have been reading on this site for awhile n like the support here so I hope you don't mind me joining in......love n hugs n prayers to you all

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  • cookie97
    cookie97 Member Posts: 908
    edited May 2012

    Hi Vicky, Sounds like you've been through a lot already and have maintained your sense of humor. Family and friends can be quite over whelming sometimes, but we gotta tell ourselves they mean well. Simply put they just don't get it.

    So sorry to hear that you are joining our group but welcome. This is a great place for info, venting, waiting for tests etc.....The support here is phemoninal. I'm sure there will be others coming along soon. Just wanted to say that I'm glad to meet you.

    Edie

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  • Wolebearsvicky
    Wolebearsvicky Member Posts: 5
    edited May 2012

    Thanks Cookie97 for your response.....I have been busy reading so many posts hear already n feel I will be very happy I joined this site....thank you for posting on my post.....

    Love hugs n prayers

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  • candie1971
    candie1971 Member Posts: 4,820
    edited May 2012

    Hi Wolebearsvicky, so sorry about your messy cancer. It does suck, doesn't it?  But i am so glad you kept you sense of humor. Welocome....you will like it hear on the boards. Lots, of cool people, lots of topics and lots of support. I am so glad you finished your chemo. Now the radiation adn you will be on your way back !!! hope to see you all over these boards. The chat room is a great place to go to also.

    hugs

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited May 2012

    Hi Vicky,

    wow.. there are a lot of trucks out there just running over people on this site. 

    I am pretty new to posting (dx'd in Jan 2012) didn't join in chatting until beginning of this month.  But am I glad I did.  Like Edie I am sorry you had to find us... but you will not find a more supportive, funny, caring bunch of women anywhere. 

    You may want to check out the boards for Calling All TNS... under the Triple Negative Forum.   The humour and support on that board keeps our sanity at times. 

    Take Care.

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  • enosier
    enosier Member Posts: 1
    edited June 2012

    Hi Vicky!! I am new to this site as well. Great to hear that your last PET scan was clean. I pray for that everyday.

    I was diagnosed 2 yrs ago. Now have mets to the bone. Just got started on Abraxane, hopefully it will work.

    Does anyone out there know about Abraxane , and if it's working?

    I hear this is a great site for bc patients.

    I would love any tips on fatigue, nutrition, and how do you exercise when u don't have energy.

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  • FilterLady
    FilterLady Member Posts: 407
    edited June 2012

    Hi Vicky:

    Welcome....I'm sorry you had to join this group.  Yay on the good PET scans!!!

    Family and friends can act a little nutty sometimes but I think it's may be because they feel so damn helpless.  My DH and my sons have been more upset about my breast cancer than I have been.  I still have a "mini meltdown" from time to time but I just want to be "normal" again.

    I found that drinking a glass of Carnation Instant Breakfast (now it's called Breakfast Essentials but I still call it the "real" thing, lol) with a small breakfast helped me fight the fatigue since it has a lot of protein.  I buy the powdered kind to mix with 2% milk.  I'm not a milk drinker at all but it's not too bad since I LOVE chocolate, rofl.

    I walk on my treadmill, trying to do 3 miles each day but sometimes if I'm running errands all day, I don't get on it at all.  I'm also trying to lose weight (always) since I know it's better for me to do so.  

    I thought I would be too tired to exercise but have found that it helps me feel energized to do so.  I started out just 30 minutes a day, usually 10 minutes 3 times a day.  It takes time to get your energy back up....I still don't think I'm completely there and I finished my rads in January!

    I hope you have a great weekend!

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  • Tazzy
    Tazzy Member Posts: 2,546
    edited June 2012

    Oh! the dreaded fatigue.... what a roller coaster ride that is.   On the days I feel really weary and fatigued (like now  chemo treatment was on Friday)... I at least try to walk around my garden.... even if slowly and for about 10 minutes.... it does make me feel better... however hard my legs may not want to walk.   On the good energized days I walk for about 30 mins or longer.   Plus exercise is good for rebuilding the red/white blood cells.  

    enosier - sorry I have no idea about Abraxane.  Have you checked out the Stage IV and metastic breast cancer ONLY boards?   And very sorry to hear about the mets - really sorry.

    Hope everyone is well and had a great weekend.

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  • rita65
    rita65 Member Posts: 23
    edited June 2012

    Hi everyone, I am newbie to this site, too.  I find this site hopeful and understanding. It is unfortunate that any of us are here, but I know I need  support as we all do.  I have IDC stage 1 grade 2 ER POS PR NEG HER NEG. Had SNB with neg nodes.  Thought my treatment would be RADS and chemo pill for 5 yrs. but had OXYDX test score of 35 high risk so I will start Chemo this coming Tues 6/12/12.  Not looking forward to that but I will do what it takes to improve my chances for no recurrence.  I would suggest anyone newly diagnosed to have this test if possible because if my MO would not have ordered it I would not be having the chemo because of my early stage of BC.  I am not looking forward to the treatment but am looking forward to killing what cells if any are left.  I intend to stay positive no matter what.  I wish everyone the best of luck and send hugs and prayers to all. 

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  • FilterLady
    FilterLady Member Posts: 407
    edited June 2012

    Hi Rita:

    Welcome!  I'm sorry you had to join our group.

    It sounds like you have a plan in place and are ready to get started.  I'm not known for my patience so I was so anxious to get started so I could get finished.

    Time really passed by fast and now I just see my MO and RO every 4 months.  So far it's all NED!

    I'm expecting to get a good report from my mammo in September.  I'm trying to not get stressed out about it but sometimes it's hard.

    When I feel myself getting antsy, I just come to this site and read.  The women on the boards are so inspirational and it means a lot that you can read posts from women that have walked in my shoes.

    I'm sending hugs and prayers to you as well.

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