May 2012 radiation

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  • nrp
    nrp Member Posts: 34
    edited May 2012

    Thank you everyone for asking about me. 

    I expect I should probably hang out in the room about surgery.  Thank you for the suggestion.  As being newly diagnosed I was just checking all the rooms and new radiation was in my forecast and trying to learn more about it.  There are a great bunch of women here I know I can learn much from and I thank you all.

    My lumpectomy is for June 22.  June 21st I go to the hospital to get the blue dye shot.  The next morning I go to surgery center to get lump out.

    During the biopsy consult, I learned that the invasive ductal cancer was actually sucked out during biopsy, and visible signs of the mass are gone.  Tell my breast that...LOL It is still so bruised and swoll even with the ice, but it will get better soon I am sure.  Thank you for explaining the process of checking those nodes during the lumpectomy that ws very helpful.

    33 days of radiation after lumpectomy heals and tamoxifen or another like it for 5 years.  My mass was 99% hormone receptive.

    Even though I have seen the plastic surgeon I haven't given reconstruction after the lumpectomy any serious consideration.  I thought having small breasts would make it easier (34B) but have learned it makes repair harder.  I know I must consider it more before surgery.

    That's about all I know.  My surgeons wife is having 6th child and complications, so have to wait two weeks for him to come back to do the surgery, but at least it will give my breast time to heal from the biopsy.

    I will keep you all posted and continue to search all boards.  This is a great group and am glad I found all of you.

    nrp

  • Goodie
    Goodie Member Posts: 244
    edited May 2012

    Hi Everyone - I'm not really sure where I belong.  I joined the June Radiation thread but it's not very active yet.  I started last Wednesday the 23rd after a two week delay.  I've had 4 treatments so far and I should be done either June 29th or July 2nd.  I'm trying to get a double treatment one day so I don't have to come back for one treatment on a Monday.  Today is my first meeting with the RO since this treatment started.  I have so many questions for her. 

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited May 2012

    Good morning Goodie!  Welcome.  I don't think they will let you double up on a day.  Mckenna already asked Smile - I know how you feel, I am in the same boat, I wanted to finish on the 29th, but I have to come in on July 2nd too.  

    This reminds me - so, at my clinic they keep a picture of us on file, and ask for our birthday before every treatment.  This never ceases to amuse me, as I keep wondering, "what do you really think that someone else is going to come in and sneak my treatment?" -- I wonder how much I would have to pay someone Smile.   Also, I made the never-crack-a-smile tech smile yesterday.  The nice guy asked how my weekend was and I told him, "great, and I did not miss you for a millisecond" he he.

    I hope you all are SE free and feeling well.  And sbelizabeth -- I hope the cookies were well received?  I still can't get over how sweet you are! 

  • mckenna
    mckenna Member Posts: 413
    edited May 2012

    Hi, Goodie, i wish you luck on the double up day, i got a big fat no so i have to end on a monday too.  i did get them to switch my appointment next wed to 6:45 so i make sure my kids are not late for thier parade and school picnic, i plan on rolling out of bed getting zapped then going back home and climbing back into bed, maybe i can pretend it was all a dream :)

    saw my gyn yesterday, i love her.  she spent a ton of time with me answering my questions about SE's of tam. and about what happens if i test positive for brac and need my ovaries/tubes removed.  and she asked how my kids were doing with the diagnosis.  i see oncology professional after oncology professional and not one has asked how my kids are doing with the diagnosis.  here she is nothing to do with onc and she thinks to ask about my kids.  this was only the second time i had seen her too, i had recently switched dr's prior to diagnosis. 

    Bl, i have to repeat the same things too and today i almost said the wrong birthday :)

    Jan24, after tomorrow we are half way done !!!!!

  • Mopsy
    Mopsy Member Posts: 49
    edited May 2012

    BLinthedesert:  So Sorry about your losses.  As someone who has had many elderly pets, to see them go so soon, I do not say this cavlierly:  get another pet as soon as you can.  It will do so much to take your mind off things, even help your other dog, and will save a pet with a short future.  Moving this discussion over a bit:  does anyone else find they rely even more on their pet(s) for comfort right now?

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited May 2012

    The cookies went over well.  I think these techs are different from our chemo nurses in that they have to process one patient after another all day, and it just takes a special effort to make friends.  Mine are very nice and make a special effort to help me be comfortable (even before the cookies!).

    Here's something remarkable.  I've been wearing a buckwheat-filled, lavender oil infused eyemask during my treatments and I noticed that every time the radiation turned on (BUZZZZZ!) it got light through my mask.  It was like I was wearing a blindfold and someone shined a strong flashlight at it when the beam was on.  The techs were mystified, but my R.O. said the mask was picking up the minimal amount of scattered electrons in the room and concentrating them to produce the light.  He asked me to give it a miss, so NO MORE RELAXING EYEMASK FOR ME!  I don't want to come out of radiation with a raccoon-style facial tan!

    In the immortal words of Roseanne Roseannadanna..."it's always something."

  • Jan24
    Jan24 Member Posts: 64
    edited May 2012
    Oh yes, I talk to my Golden Retriever constantly.  McKenna, I am nearing the home stretch!!!  Yesterday, I picked up my rX for the burn situation Silver Sulfadiazine ( not to scare any of you new gals but thought I should mention it in case any of you have this problem).  It is helping.  My OR warned me that because it contains silver it may oxidize and turn black, not to worry.  I am happy for the warning as you better believe I would freak out if my nipple turned black Yell  I have 5 more full breast rads and then she can target the rays just to my ex-tumor area for the remainder of the treatments. I went to see Men in Black 3 yesterday with a friend (after a nap of course) to get my mind off things, it's a good movie.  My significant other went back to Minneapolis yesterday (he is still working) I am solo for a week or so.     For all of you with jobs and children you certainly are rock stars!!!!  Rock on ladies.  (and yes, I was born in the 60's)
  • Jan24
    Jan24 Member Posts: 64
    edited May 2012

    sbelizabeth wow... what a strange experience.  I still keep my eyes closed and picture a beach I visited.

  • mckenna
    mckenna Member Posts: 413
    edited May 2012

    i have 8 more regular zaps then then 5 boosts.  how many boosts are you having jan24?  sorry about the burn issues.  we saw MIB on saturday, it was better than the first two but not my kind of movie, my kids loved it though :)  i need a good chic flick to see, my kids are staying the night at my parents on friday and i want to see a movie.  any recomendations? jan24 did you have to relocated for rads or does your s/o live in a different city from you?

    i am not a pet lover we have a dog because my kids are animal lovers and that darn thing has been trying to be next to me all all times since this started.  i don't want her on my bed so i had to put a baby gate up so she can't get in and she lays by the floor, poor thing, but she is a sheader and i don't want hair everywhere.  the kids are getting jealous :)

    sbe: my techs are very nice and personable.  they ask about my weekends and joke with me, i am glad for that, i would not want "robot" type personalities.  i was thinking about making brownies for tomorrow since it is my half way point :)

  • Jan24
    Jan24 Member Posts: 64
    edited May 2012

    I will have 5 boosts.  Did you see The King's Speech?  Regarding any new releases, I didn't see any good previews for chick flics yesterday. I just did a search on this site for the Mobile App since I am leaving the house.  I will have to look into it more. I just searched for the BCO or Breast Cancer Org app on my iPhone app store and didn't find anything.

  • Neeners815
    Neeners815 Member Posts: 358
    edited May 2012

    Hi guys!  

    Just got back from my set-up appointment.  So for those that haven't gone yet, basically you're on a cat scan table (I'd never had one before - if you've had a breast MRI it's MUCH easier than that.  It's open and there's more room in the actual 'donut hole' part of the machine; you don't feel claustrophobic) with your arms above your head holding on to these handles.  I had something under my knees and they used a band to keep my feet together so that I would be completely still for quite a while.  Then I was drawn on, markers put on, and scanned.  I think the whole thing took about 45 minutes.  The hardest part was my elbow really started hurting for some reason, but I couldn't move.  She did put something under it to try to make it more comfortable.  I ended up getting two tattoos; one hurt (right on the chest with no fat) and the other I barely felt.  Now saying it hurt, it just felt like a shot basically - just one poke.  The treatments start for me on Monday at 8:00.  I'm not a morning person Undecided.  Ah well.  30 to go! 

  • mckenna
    mckenna Member Posts: 413
    edited May 2012

    Jan24, the last time i got to see a movie all by myself i saw the kings speech :)  i didn't think about a rental, maybe i will rent a movie and order chinese, my kids hate that :).  do i have your end date correct, i thought it was the same day as me but if you have 10 left, i think i have the date wrong.

    neeners, glad things went smoothly today.  yeah for a start date, which means you are that much closer to an end date.  i did not have the band around my feet, interesting.  are you an 8am appt every day? maybe they can work you towards a later appointment.  i would think 8 would be prime time that everyone would want so they could get in and then to work.  maybe someone would switch with you?

  • Neeners815
    Neeners815 Member Posts: 358
    edited May 2012

    Hey there - even though I'm not a morning person, I purposefully chose that time as nobody will be before me and I won't have a wait.  We'll see if that actually happens, or not!  My end date will be July 16.  I'm one of those that has to end on a Monday, too, thanks to the 4th of July!

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited May 2012

    Neeners glad everything went well --- watch your arm -- I found I ended up having to go back to physio during my treatment because of my arm positioning.

    Jan24 -- you commented about being freaked out if your nipple went black -- slather your breast and underarm with lotion and under your breast and your nipple -- I got very tanned and very dark and my nipple peeled -- yuk!! it was very sensitive and painful.  It took 2 weeks after the end of rads to get back to being able to comfortably wear clothes.

    Good luck all -- you are nearing home stretch......

  • FLislander
    FLislander Member Posts: 243
    edited May 2012

    Hi glad everyone had a good holiday weekend, so nice having a three day break! I am having dizziness for a few hours everyday lately, I am a little tired but not really fatigued, and it's getting close to 100 degree everyday, my MO is an hour away and I'm trying to wait it out. I'm having blood checked maybe low iron or protein. RO said it was normal to get someone to drive me... I feel ok in mornings and evenings, just mid day. Anyone else having dizziness?

  • mckenna
    mckenna Member Posts: 413
    edited May 2012

    neeners, i understand.  apparently 6:45 is the first appointment at my facility which is why they said it was available next wed, who wants that every day :)

    FL: i am not feeling any dizziness.  i hope they can figure out what is causing it.  this heat and it is only may is very distrubing, we had a mega hot summer last year and barely a winter, i was hoping for some releif this summer but doesn't look too promising. 

    we are already half way done with the week and then we get another 2 day break ;)

  • Dizzy215
    Dizzy215 Member Posts: 74
    edited May 2012

    So, I am 1/3 of the way through....yey! Absolutely no SE's apart from a tiny bit of pinkness.  Using my Glaxal Base and Biafine during the day and Aquaphor at night. Still exercising and making myself a protein shake most days :) Lets hope it continues like this!!

  • jittersmom
    jittersmom Member Posts: 165
    edited May 2012

    only have 8 to go! today the nurse gave me these gauze pad things to fill with aquaphor and stick to my skin for the spot that is the worst. Hopefully that will help. I am still using radiaoplex and also aloe. I am counting down from 10 do tomorrow I will have 8 left 5 for the whole breast. Then the last ones are at the tumor site. I havn't been too tired but i guess loosing my job right before i got diagnosed was a blessing in disguise because I am not working right now. I also found out my son who is in the Navy will be coming home on the 8th for his deployment leave.

    hang in there everyone

  • mckenna
    mckenna Member Posts: 413
    edited May 2012

    yeah dizzy!!!

    jitters, sorry about your job but maybe you needed this time to take care of yourself.  also congrats on your son coming home.  i am in awe of military families, they sacrifice so much.  thank your son for us.

  • Neeners815
    Neeners815 Member Posts: 358
    edited May 2012

    Thanks, everyone.

    Jittersmom - what do you mean re: the gauze pads?  Do they have adhesive on them, or something?  How large are they?  

    I have my aquaphor and glaxal - haven't used any yet (I start my treatments on Monday).  Do you think I should start something now?  And I put it on the whole boob, right?  Also ordered some emu oil since lots of people seem to talk about it.  Once I start the treatment, I know I'm not supposed to put anything on 4 hours before my appointment.  Since my appointment is at 8, I figure I'll not put anything on until right after my appointment.  Then how often do you all put stuff on?  Every certain amount of hours?  Also, I'm not sure if I can put anything on at night or if that would be similar to putting something on within 4 hours of my treatment.  I guess I have a lot of questions all of the sudden - sorry! 

  • Dizzy215
    Dizzy215 Member Posts: 74
    edited May 2012

    Neeners - you could start moisturizing now to prepare your skin. Use any body lotion and save your Glaxal for when your treatments start, unless you have loads of it? Put it on the whole boob and underneath and the armpit. You can put your Aquaphor or Emu oil on at night, then nothing until right after your zap. I keep a tube of Glaxal in my purse and use it in the changing room.  Put another load on around lunchtime, then again in the early evening if you need it.   

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited May 2012

    Hi FLislander - it is well in into the 100s here too.  Ick.  I was also feeling dizzy.  I started taking sublingual b-vitamins (http://www.amazon.com/Natures-Bounty-Vitamin-Complex-Sublingual/dp/B001G7QPC8) and make sure I get plenty of electrolytes (in addition to plain water -- I use this, because it doesn't have added sugar: http://www.emergenc.com/index.php/products/specialty/electro-mix).  Both of these have helped me a lot.  Be sure to check with your RO (or nurses) - though neither of these products have anti-oxidents.

    Neeners - I started using Miaderm about 5 days before I started.  I put Miaderm and then 100% aloe on right after treatment and again sometime in the afternoon/early evening and then use Emu oil before bed.  Sometimes I will use aquafor on the weekends before I go for a run (because I am sweating -- see 100F above Wink and it stings when I sweat).  I am sure one doesn't need to be so obsessed, but I am ... 

  • mckenna
    mckenna Member Posts: 413
    edited May 2012

    i only put the creams on at night, they have me on topicort and something that starts with a V (maybe viacort?)  and i have rads at 8:15.  the rest of the day i use corn startch,  it keeps my skin and clothes from rubbing.  i apply the cornstarch when i get into work, after lunch and right before i leave work so that by the time i am ready for bead there is little to no cornstarch left on my skin.  so far so good so i am sticking to my routine.  i am sort of a rule follower :)

    BL, ask about using cornstarch before you run, might keep some of the sweat off your skin?

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited May 2012
    Great idea mckenna ... I am going to try that out!
  • beachbum22
    beachbum22 Member Posts: 18
    edited May 2012

    Hello all, I find myself very fortunate to have found you all.  I've found that no one understands this experience unless they've been through it themselves.  With you all, I know I am not alone.  I have a 22yrs old male technician who I am very uncomfortable bearing my breast to.  Its not him, its me.  I identify with feeling like having chemo and being with the nurses and drs there is like a warm security blanket and that while having chemo, it was keeping the cancer away.  In a very strange way, I am glad that I will still continue to go the my MO every three weeks for Herceptin so I still get that sense of security.  I feel that radiation is more emotionally challenging for me.  I too have experienced skin burns and just picked up the sulpher rx cream and hope it gives some relief.  I also can totally identify with the urge to lift up my shirt whenever I see someone I haven't seen for a while because I know they're checking out my boob.  I think people can't help themselves.  I dread the day I have to go back to work in an office of 150 people.  I also hope & pray that my hair grows back by then.

    Thank you again for showing my I'm not alone in this journey.

  • Goodie
    Goodie Member Posts: 244
    edited May 2012

    Thanks for the warm welcome!  I got to talk to my RO today and she explained my treatment in detail for me and why I had the delay.  I feel a lot better.  I didn't ask her about my double treatment but the nurse and my techs thought I could do it.  I am working on changing my appointment of Friday morning to the afternoon.  My daughter is graduating from high school in the morning!  Then I will work on my double treatment day.

    My pets have been wonderful.  I also have a golden retriever and she keeps me walking every day and stays with me. The amazing one is my cat.  She's rescue from the streets of Baltimore.  She was skin and bones when we got her.  She's always been very nice and would kind of hang out with me on the sofa but since I was diagnosed she has been my constant companion.  She likes to sleep beside me on the arm rest of my recliner of actually on my lap!  It's amazing how much she follows me around the house.  I guess she knew I saved her and she wants to comfort me.

    I'm thinking of making brownies for my techs too.  They are very nice.

    I use Miaderm too after treatment and before bed.   I'm 5/28ths done.

    Wow, you ladies are aweseome!  I'm glad I joined this one too.

  • jittersmom
    jittersmom Member Posts: 165
    edited May 2012

    Neeners....they are 4X3 teflon gauze pads no tape she rubbed the aquaphor all over it and stuck on my skin in the worst spot. She suggested a sports bra with wide sides to keep it in place. I have a spot under my arm that seems to be  the worse.so now I put radiaoplex all over. then like every other time I put on aloe 1st then radioplex. tonight I am going to do the gauzepad thing all night and see if that helps ugh! for such a small boob it sure is a lot of trouble! lol

    also start moisturizing now it should help

  • Neeners815
    Neeners815 Member Posts: 358
    edited May 2012

    Thanks so much, everyone.  You're all wonderful!

    So is wearing a bra painful with rads?  The good news is I work from home mostly, so not wearing a bra isn't a big deal - obviously!  The bad news is I *will* want to leave the house sometimes, so not wearing a bra *will* be a problem! 

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited May 2012

    Oh beachbum ... I agree, a 22 year old male would be a problem for me, the two techs that are in my clinic are easily in their 50s or older, so it is not as big of deal to me.

    I am also sorry to hear you are having skin problems, I hope the cream helps -- I know what you mean about people staring at your boob, I am most definitely not used to that (being that I am pretty small) ... between the surgery and now radiation, my one boob is shrinking - and *I* can most definitely see it, but I am not sure other people can (and I am hesitant to ask people Wink) - since my husband is already "trained" he will not answer the question (e.g., "it looks beautiful, honey").

  • Jan24
    Jan24 Member Posts: 64
    edited May 2012
    Super hot here too.  102 today and 108 predicted for Thursday.  For any of you that play 'Words With Friends'  or want to start playing my handle is 'SeattleBlue' if you want to start a game.  I started playing with a random opponent quite a while ago, it turns out she is working nights and going to school in nursing.  She too is a kind stranger following my cancer progress via messages in WordsSmile 

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