Mammogram Question
Hi
When I had my mammogram the other day, the lady was going to do an image of my mastectomy side. In 9 years, I've never had that done, so I refused it. Does anyone else get mammograms on mastectomy sites?
Comments
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Wow... I mean, OWWW!!! No way.
I've had 4 mammograms since my mast/SNB (no recon) in 2008. Each was ordered as a "diagnostic" mammogram, and was done digitally. Never once did my BS or the mammo tech hint at squeezing my mast side between those plates. In fact, the orders always specify the mammogram as being done on my right breast; and the tech usually says (cheerfully), "This won't take long, because we only have to do one side!".
OTOH, I know there are others here who would tell a different story.
otter
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How would they even do that? My rad doc commented that I had very little meat on my ribs. With no clothes on, I look like a skinny 10YO kid. What is there should be amply visible on a regular chest X-ray.
However, I asked both my docs if an ultrasound of the chest and axillaries might not be a good idea. They both said no, but I don't really get why. Anybody know?
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I have heard that some women do get mammo on mx side. When I went for my last mammo she noted that there was not enough "meat" there also so she wouldn't even try. I had it in my mind that I would refuse a mammo on that side anyway - still quite tender.
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My mother has had mammograms on her mx tissue for years. It just seems to be part of her regular, yearly follow-up. She doesn't mind: as a retired nurse, she's aware that she still has a chance of recurrence after the mx, so she likes to receive the "all clear" every year.
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I too do not see how what's left in my breast area could possibly be placed on that paddle and compressed. I would refuse not only from a comfort or practical standpoint, but because my cancer eluded a mammogram just 8 months prior and even at diagnosis when it was visible and palpable was read as inconclusive on the mammogram. Not to discourage others, but just my experience.
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I'm glad to hear I'm not the only one who doesn't have it done. The tech said, "First I'll do the left and then I'll do the right." I was standing there with no top on and said, "Uh, I only have one." She grabbed some tissue from around my armpit and said that they image that. She said that it's possible to have a recurrence there, but it was up to me. I said that I wanted to think about it and could I come back at another time if I wanted it done because I wanted to deal with the lump I found in my breast first. She said that I couldn't. She only gave me the time that it took to do my left side to decide, so I declined.
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I don't have it done on the mast side either. Not sure how that would even work.
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Wow, I can't imagine getting a mammogram, it would be so painful and there is just not any tissue to grab!
But aside from that, the mammogram failed me miserably, I got a 100% perfect mammogram results the same day my biopsy
came back cancer so I personally would not even try a mammogram.
Seems an ultrasound would be more...friendly and practical?? Anyone?
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I keep getting letters in the mail from the "mamogram place" reminding me to make an appt. Maybe I shouldn't be throwing them away
. They couldn't even get my breasts, when I had them, in between those darn compression plates & get a decent enough picture to show tumors. I don't have any loose tissue, so I'm not making an appt. I did read on another thread awhile back, that in some parts of Canada(Nova Scotia I think), they do mamograms on non-reconstructed mastectomy sites.
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My breast surgeon, head of the breast care center at a Harvard teaching hospital, told me after my BMX, "No more mammograms necessary!"
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Erica - That's good enough for me. I'll go with that!
The tech was trying to scare me into having it done by informing me that even though I had a mastectomy and many nodes removed, something like 8% of people will get recurrences in that area. I don't know where she got that statistic from.
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Barbara, Thank you for telling us...I can breathe easier now.
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@curlygirly, when I was first diagnosed I was given a video to assist in choosing between lumpectomy and mastectomy, and it included the same statistic, i.e. that about 8% of women who have mastectomy have cancer recur in the breast or breast area, compared to 10% of those who have lumpectomy & radiation (this is in the ten years following surgery). IIRC the video said this is a broad average based on a large number of studies including many hundreds, maybe even thousands, of women. So I don't think the tech was merely using a scare tactic, and if it is possible to get tissue from your underarm area onto the paddle why not screen it? I can tell you it's possible to get breast cancer there too...that's where mine is. I don't remember that I ever had a mammogram that included the tissue way around in the armpit until after my diagnosis. I did have one then, and for me anyway it wasn't any more painful than an ordinary mammogram.
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curveball - Thanks for the info on the stats. It's nice to know she wasn't using scare tactics. I was just upset about how I had to decide at that moment whether I wanted to do it or not. Maybe after looking into it, I would want to return to have it done. I just think I should have had that option, and that she should have told me to speak to my doctor about it.
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CurlyGirly, the stats I read (in more than 1 place) said local recurrence after mx is 3-4%. U/S or MRI are better imaging for post-mx site.
I don't think I'd trust that tech all that much - the most common site of local recurrence is the scar area, not the axilla, especially for someone like you with a complete ALND. And why in the world did she say you couldn't come back and have it done another time? She sounds like a my-way-or-the-highway type.
Best of luck. Ask your doc about an U/S if you're worried.
Leah
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Leah - I just saw my surgeon and told her what happened. She said she had several complaints in the past weeks and that it was the same tech. She is going to deal with it. She said that unless a person has a lot of excess tissue in the area and/or that there is something unusual there, that her patients, with mastectomies, do not require a mammogram (unless of course they want one).
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CurlyGirly, I'm glad you doc will deal with this tech.
Why am I not surprised that there have been other complaints about this tech?
Leah
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I just did a search and found this thread. I had Mod Rad Mast on right side in Nov. I went for annual mammo this past April, thinking I would only have my remaining breast to do. My med. onc had ordered both being done. I was shocked and kinda scared bc what the hell were they going to squish between the plates.
Well, they squished. I had gone to chiropractor earlier and boy did I wish I had that appt after the mammo. The tech had to get me soooo close to the machine that my neck was all crinked up against the clear plastic part so I could get the small amount of tissue somehow in the machine for a good image. The tech did the front and side or whatever images and then moved onto the other actual breast.
So, yes, it is possible, very uncomfortable, and sometimes ordered, I guess.
All clear was good to hear for sure.
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I had bilateral mastectomies. My oncologist told me, "No more mammograms for you."
After I had delayed reconstruction with silicone implants, the oncologist still says no mammograms.
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Yes I have had a mam of my mastectomy side. They take a pic more of the underarm to see if any nodes are acting up. It doesn't hurt but the position is a little awkward. I just had my other breast removed so I 'm guessing that they will recommend having the armpits of both sides done.
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