May 2012 radiation

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  • Dizzy215
    Dizzy215 Member Posts: 74
    edited May 2012

    Hi ladies, 9 down, 24 to go. No SE's so far & no fatigue to speak of. I told the techs today about us counting and the 'teeth' and they were fascinated!! They also showed me my chart, so I could see the fields and how they narrow when the teeth come in! I don't get to keep my gown up either because its a wrap in front style, but they do give me a modesty cloth which covers my good breast while they are positioning me and my 'bad' breast stays exposed. Don't mind that at all, as my techs are women but I might feel different if they were male.

    Hope you all have a great weekend!!    

  • Lagata1276
    Lagata1276 Member Posts: 85
    edited May 2012

    New to this thread and have a couple of questions from this experienced group! I already had an appointment with a rad onc next week, but after my initial meeting with my oncologist yesterday, she recommended that I get a second opinion from another provider in her chain, as she felt the other may be more "traditional" with their treatments. Has anyone else visited with 2 different docs before getting rads? My concern is for my saline implants that I have had for 13 years. She too was concerned about side effects from the rads. Anyone else with this type of issue? Thanks!

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited May 2012

    Hello Lagata, Welcome (it feels weird to say that!) ... I did not get a second opinion on radation - though I did get a second opinion on my pathology.  It is interesting that your doctor thinks that there would be differences in ROs -- of all the doctors I would think that they are the most likely to agree, since treatment is pretty standard (either 25 or 33 treatments with or without a boost).  

    I do know that radiation might be difficult with implants, so hopefully someone else will chime in with their experiences.  You also might try using the search option on the board here, to see if you can pull up some previous threads on this topic.   

  • etherize
    etherize Member Posts: 423
    edited May 2012

    Hi all,

    Wow, lots of activity on this thread since I last posted. I have trouble keeping up with who said what ...

    Mckenna, we are on the same schedule; my last tx is on June 18.  

    Beachbum22, radiation has been more emotionally challenging than chemo for me, too.  Part of it is just because I'm already tired from 3 1/2 months of chemo, so it's harder to be upbeat.  But there's also something about radiation that makes the cancer so "in my face" -- having my shirt off and looking at my boob constantly (along with everybody else it seems).  

    Like somebody else said, I'm also getting to the point where I want to pull up my shirt and ask everybody, "you wanna look at this?" Since everybody and his brother is looking at it.  And yes, this is more action than my boob has seen in a long time.

    I keep my eyes closed during treatments because of all the little lights and I have this silly, irrational fear that radiation will go in my eyes if I open them!  LOL  So I've seen the manhole cover but not the teeth. ;-)  I haven't counted how long the "zaps" are, but I think I get 5 areas zapped.  I know it's at least 4, because it's the collarbone lymph nodes as well as armpit, breast, etc.

    Started getting more tired this week (halfway finished) and my skin's getting a lot redder and now it's starting to ITCH!  So far I've just been using aloe vera gel but I may need something else.

    Oh, and Joanne2012, I'm 55.  So, not very young. ;-) 

  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited May 2012

    I also had no molds, just four little dots. I have finished my 16 rads and now will have the seco dof five boosters. It really has been a breeze for me also.

  • jnbg88
    jnbg88 Member Posts: 9
    edited May 2012

    Hi everyone. I'm just starting Radiation...on May 24th. I have to have 35 of them. I'm like a few others who is having a rough time.... very emotional and anxious.....about the radiation. I had my surgery, lumpectomy and complete axillary dissection (all my lymph nodes were cancerous), and just completed chemo. I am afraid that not having the chemo working in me makes me feel less safe and while it was rough, I felt secure in knowing the chemo was killing the cancer throughout my body. With my advanced stage and in numerous lymph nodes, my main concern is metastisis. Right now the the Radiation is just so impersonal. I know it's a very technical field, but the technicians are nothing like the warm and loving nurses I grew close to in chemo. Being exposed, having a male tech try to make jokes while I lie partially naked, then alone in the room with this big machine hovering over me just makes me feel terrible. I really hate it. There. I said it. I really do hate it. Somehow it feels better just to say it. I get tired sometimes of trying to put a positive bent on the treatment. Hope this is not too discouraging. I feel like I've needed to share it with someone, because I'm trying to be strong and positive for myself and my loved ones. Thanks for listening....

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited May 2012

    jnbg - it sucks, but it does get better, or at least you do get used to it.  It is necessary to keep you healthy - so you WILL get through it.  And there are lots of people here to make it as tolerable as possible.

    HUGS 

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited May 2012

    jnb....there now you've said it! Ya gotta feel better for that. Just imagine how much greater you will feel once it's done. Look down the road to the light at the end of the tunnel...it's there. I wish you no SEs and stay with us. I know what you mean about the techs tho...especially the males...it's so day in day out for them. I found the older females the most caring but the ordeal takes such a short time I guess they don't have time for small talk, even tho it might make us feel more comfortable. Good Luck!

  • lemondrop1967
    lemondrop1967 Member Posts: 107
    edited May 2012

    Jnbg, I hate it, too, for all the same reasons. I have completed only 4 of 33 treatments, and am just trying to take it one day at a time. Chemo was harder on me physically, but going to rads every day is more emotionally draining, and makes it harder to get work done since I am out for part of each day. Happy to have Monday off from both work and rads! Hope everyone is enjoying the holiday weekend.

  • jnbg88
    jnbg88 Member Posts: 9
    edited May 2012

    Wow. I can't tell you how much it means to hear from those of you who had a chance to write. I am so grateful that you are helping me feel not so alone. Thank you, all of you. God bless you as you go through your treatments. And thank you so much for the encouragement. It really helps to know you are all there, and truly understand. I agree with you lemondrop19 that the chemo was harder physically, but that having to go every day just keeps it in the forefront of my thoughts. I am also very glad to have this Monday off. Hope you are all enjoying quality time.

  • jittersmom
    jittersmom Member Posts: 165
    edited May 2012

       JNBG      Rads is a big change from chemo..chemo did a number on me but going there was a good experience? almost like family the nurses and Drs. I still go every 3 weeks for herceptin. Last time i just walked across the waiting room to chemo after rads and it was like coming home all the nurses were so nice..Rads is like come in do your thing leave very impersonal. I talk to the techs everyday and almost force them to talk it kinda funny lol....I had 23 so far, I am getting quite burned but I am dilligent about my skin so hopefull these 3 days off will help

         I am glad to have this thread to come and read and then know I am not alone also!

  • Mopsy
    Mopsy Member Posts: 49
    edited May 2012

    jnbg88:  I also found the first week of radiation to be emotional and the machinery intimidating.  It was much better the second week.  With the third week coming up I feel like it is just a quick thing, and my attention is turning more to how the skin feels.

    The technicians have always been women, very nice, always have a concerned manner (but do the job without deviation).  I asked if they deal with all cancers, like prostate, or if there are men technicians.  They said they deal with all, and that there are very few men in the radition treatment field. 

  • Jan24
    Jan24 Member Posts: 64
    edited May 2012

    Jittersmom I had #22 on Friday and I experienced my 1st so called pain on Saturday.  I too am relieved for the break! My nipple is burned and part of upper breast.  I am embarrassed to say my doctor instructed me to use bag balm.  I'm surprised I am writing this as I typically am a very private person.  It's amazing how this forum gives me the outlet and freedom to express myself.

    All: This was on the Today show. There is a commercial at the beginning, after that it's worth taking a look at.

    http://todayhealth.today.msnbc.msn.com/_news/2012/05/24/11860236-laughing-in-the-face-of-wifes-cancer-he-poses-in-a-pink-tutu#.T77u46RvUbg.email

    The photos show a stout, middle-aged man dressed only in a pink tutu: poised on a diving board, hanging off a tree, wandering through a cow pasture, catching the breeze on a ferry deck - and lying in a bed alone. Photographer Bob Carey started shooting the quirky, often touching ...

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited May 2012

    Jan24 -- no time now to be private-- that is WAY gone .... we can now talk about anything!!!  Please be generous with the lotion --- I had a burnt boob and nipple and that was SOOOOO painful - almost 2 weeks before I could comfortably wear a bra. 

  • Neeners815
    Neeners815 Member Posts: 358
    edited May 2012

    Hey all - back from a relaxing weekend away, since once Rads start I'll be stuck at home for a bit. Wednesday I have my appointment where I get my tats.  Can you tell me what else to expect?  I haven't had a cat scan before - I think that's what he said I'd have to have - I have had breast MRIs, though.  Can someone tell me if it's that enclosed? I know for the cat scan I won't have dye or anything and they're solely doing it for measurements, etc.  I'm not sure what else to expect, though, and I'd rather go in knowing that deal with any surprises.

  • mckenna
    mckenna Member Posts: 413
    edited May 2012

    The cat scan was nothing to me. It was like a Donut shape they send you through. There was a lot of drawing and I think maybe I was sent through twice. I did not get the tats. You r laying on your back not on your stomach like an mri. Also much quicker than an mri.



    Hope everyone had a nice weekend. Welcome to all who joined. Back to the rads again tomorrow :( skin still looking good and I have done a lot of resting this weekend.



    If I have missed anyones end dates let me know. Lets hope the 4 this week go quickly :)

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited May 2012

    I got three tattoos.  One on each side of my chest, and one about three inches above my mastectomy scar.  They are all EXTREMELY small, especially the one in front.  I have to search my chest with a magnifying mirror to find it.  Also, all of them will go away when I have the healthy side removed and everything reconstructed next year.  

     I spent my weekend cleaning my house!  This evening I'm making molasses cookies for the radiation center folks.

    Zaps numbers six through nine next week for me.  Bring 'em on.  Fry, cancer, fry.

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited May 2012

    I have 4 tattoos -- 2 in the middle of my chest and 2 at the side of my breast -- they were little pin pricks -- look like black heads (yuk)  -- would rather have this then have the techs mark me up all the time.

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited May 2012

    I'm with you Joanne....I have 4 also but mine are green....I look like a baseball diamond...all 4 bases!

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited May 2012

    I have 4 tattoos as well, 3 in the middle and 1 on the side (under my arm).  Even with the tattoos they still put blue ink on me every morning (it has ruined one of my new 'non-underwire' bras)!  Although, last Friday one of the male techs made the ink really light -- he said for the weekend (I thought that was so sweet of him - especially since for the most part the techs are not that friendly).  One of the women in the waiting area said that she uses hand sanitizer to take hers off - I am going to try that tomorrow on the one that is most noticeable.

    My skin is doing well, but I am already tired, and my breast is really sore (on the inside) sometimes.  All that after only 5 days ... I can't wait to see what this week brings (not) Tongue out

    It was a tough weekend, we had to put one of our dogs to sleep.  It has not been a good year for me, my Mom died in August (it was exactly a year ago this weekend that she told me that she was diagnosed with stage IV lung cancer), I have been sick since about January, and now my dog Keiko is gone.  Whew.  What a ride.  Getting old is not for sissies.  

    I did not miss getting up and going to rads this morning ...

    Enjoy the rest of your evening ladies -- good luck this week!  Stay strong!! 

  • jnbg88
    jnbg88 Member Posts: 9
    edited May 2012

    Hi everyone.....well a beautiful weekend, with no rads, and I am trying to just ignore going back there in the morning. So appreciate hearing your words of encouragement. 

    BLinthedese, just want to tell you that I am so sorry for the hard year you have had and am so sorry for the loss of your Mom and your special pet. I know it seems like things just keep getting harder, but please know things will get better, and that You will see good things coming your way. God Bless You

  • mckenna
    mckenna Member Posts: 413
    edited May 2012

    Bl. So sorry about tor mom and now your dog. It stinks. I am very much hoping that 2013 is going to be much better than 2012. Only 7 more months of this year left right ')

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited May 2012

    Bl - I am so sorry you are having such a hard year .... my thoughts are with you ... your losses are very real and need to be recognized -- you really didn't have enough time to grieve your mom when you were diagnosed and now your dear Keiko --

    Please know that I am thinking of you and know that things will get better.

    Joanne

  • Neeners815
    Neeners815 Member Posts: 358
    edited May 2012

    BL you've really been put through the wringer, and I'm so sorry for that.  Sending big hugs your way.

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited May 2012

    Thank you jnbg, mckenna, Joanne, and Neeners.  I am a lucky person in so many ways, this was just a particularly hard weekend.  I appreciate your kind words.  Just like with life, and now treatment, there are good days and bad.  

    My wish for all of you this week is quick treatments, smiling techs, soft skin Smile, and refreshing naps ...  

    sbelizabeth -- molasses cookies?!?!  You are going to be rads center pet!  how very kind of you.  Can you make some for my center too Wink

  • jittersmom
    jittersmom Member Posts: 165
    edited May 2012

    BLinthedesert: Hang in there sorry for the tough year and everything seems worse when you don;t feel well. I will add you to my prayer list

    hope everyone has a good week( only 4 days!) at radiation

  • BLinthedesert
    BLinthedesert Member Posts: 678
    edited May 2012
    jittersmom, how kind of you ... thank you.
  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited May 2012

    BLinthedesert, if I could make molasses cookies for anyone in Arizona, I'd make them for you and your family.  What a miserable time for you, dear sister.  Like jittersmom, I'll add you to my prayer list. 

    Don't you wish the application of aloe and aquaphor would soothe all the rawness in our lives? 

    OK...time to make fresh coffee, park my hat on its hook in my office, and get down to work!  Happy Tuesday, everyone, and may our cancer cells all just get in line for the bug zapper today. 

    P.S.  When I'd just finished chemo, a friend at work said, "The chemo killed all the fleas.  Now the radiation just has to finish off all the nits."  Now that's a visual!

  • mckenna
    mckenna Member Posts: 413
    edited May 2012

    Good morning all. Today was a new one the computer got "stuck" and I had to lay there for what seemed forever. The sequence of zaps was all out of order so now the computer running the show has a whole new meaning :)

    off today to go to regular doctors and get my car licensed what a vacation day :)

    11/25 after Thursday I will be half way hope the next 3 days go quickly for us all

  • jittersmom
    jittersmom Member Posts: 165
    edited May 2012

    sbelizabeth......good way to explain it to people who keep asking why do you have to have both??

    Hope you don't mind if i use it!

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