2yrs out Body still doing weird things. Anyone else?

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jjhuntt
jjhuntt Member Posts: 35

Hi Ladies,

I'm at the 2 yr mark, going to see the MO Thursday. I'm not having the recurrence fear.  I'm dealing with frustration over a few other things. At the 1 year mark, my cycle came back - so bad that I had to have a roller-ball procedure. I started noticing my weight started to creep back up over the next 6 months (I had gained then lost 19 lbs. during; then after chemo) so I started being a little more diligent, weight kept creeping up. In November, a blood test showed I am pre-diabetic, and weight still going up. I am now back to the top weight I was during chemo. Latest wrinkle, an ultrasound shows cysts on both ovaries, multiple cysts on one. I am really tired of being told to exercise and diet.  I eat healthy about 1400 cals. a day. I could do more on the exercise part, but I am fairly active. Has anyone else had something like this? I am going out of my mind. I am still gaining weight.

 I was Stage IIa, 2.7cm tumor that came up in 5 months. Had Neo-adjuvant, then bilat. mx with tram flap reconstructions. No radiation because luckily my nodes were negative. Still have most nodes, no lymphedema issues.

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  • Titan
    Titan Member Posts: 2,956
    edited May 2012

    jj...any chance you can get on Metforim?  I'm with you on the weight issues..I gained 20 lbs. during chemo lost 15...then gained back 5...

    You must be younger than I am because the chemo made me go through menopause....so I can't relate with you on the period issues.

    Guess I didn't help much...but I hope that your MO gave you some advice on the weight gain issue to help you.

  • jjhuntt
    jjhuntt Member Posts: 35
    edited May 2012

    Thanks, Titan. My blood sugar is not considered high enough. I was 41 at dx - 43 now. Some tell me it's just menopause...others say it sounds like PCOS...I think it is meno...and I will have to accept it.

  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited May 2012

    Many women gain weight during and after treatment.  I put it up to chemopause and being given a carte blanche to eat whatever we can keep down while we have no appetite.  The docs want calories going in to power survival.  A few years later, I'm still about 10 pounds over, and a size or two up.  I've started working the midsection and it's responding, but these things take time as energy and stamina return.  My experience was that it was only after two years that I felt strong at all, could think as clearly as before, or see my sweetie as the very attractive person he is.

    Anyone else able to validate this?

  • linali
    linali Member Posts: 194
    edited May 2012

    Hi just read the posts and it is very timely. I'm coming up to 2yrs mark and I'm feeling very frustrated as my body and head aren't where I thought they would be. I have the weight gain and not yet the energy to exercise to get rid of it. I have been left with pain , loss of power and radio dermatitis and it is getting me down. I have been to mindfulness programmes, tai chi and my local support centre, but can't seem to snap out of it and look to the future with positivity and hope.

    I think also because I am not back to work as physically I can't do my job the financial situation is worrying me.

    I am so disappointed with myself as I have been so positive throughout all the treatment

    I have a family wedding this weekend and the weight thing is an issue as I would love to dressup and feel good, but all those lumps and bumps look awful.

    Sorry about this, I should feel thank ful to be here as I know other people's story is so much worse 

  • KELL414240
    KELL414240 Member Posts: 69
    edited May 2012

    I'm about 2 1/2 years out from my original diagnosis. I think my digestive system is wrecked from the chemo. I also went into chemopause, came back out and am now back in. I'm going to be 46 this year. For the most part, I feel well but I am more tired and less energetic than I used to be. Weight is a little bit of an issue for me and I love dessert too so it sounds like you eat much better than I do.  I need to exercise but I'm too tired when I get home from workUndecided I do know things could be a lot worse and I could be where I was in the middle of AC chemo 2 years ago so I'm not going to complain too much. You know, I think I've jumped back in life and just so grateful to be here for my sweet, sweet 12 year old DaughterSmile Hang in there!!! And I hope you find a solution to your fluctuation in weight!!! It's not fair as we shouldn't have to deal with all these other issues since we had to fight the big battle.

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2012
    OH Kell I really think like u guys--I don't think anyone is complaining we are just confused and frustrated. I ersonally thought when oers., chemo, rads. were done and over I was going to be pretty much like how I used to feel---instead I feel retty much how I felt on chemo--hurting, tired, headaches, diarehha and can not lose weight and I get fevers whenever and more--so I think the cancer may be defeated but it ran a number on our bodies and systems tohae this haen. Aft all we'e had poison (in a sense) pumed into us, if it killed cancer it has to react somehow to other thins in our bodies.Innocent
  • KELL414240
    KELL414240 Member Posts: 69
    edited May 2012

    It just stinks that anyone should have to deal with anything else after the cancer. We are entitled to complain if we want though as this is an extraordinary event for mind, body and spirit. We've earned it and it's ok to be frustrated. It just means that we are human. We can say we could only imagine and believe that we understand a walk with cancer but it's hard to really know until you've walked in those shoes.  I have so many people around me with cancer from 1st graders to 6th graders to parents of my daughter's friends. It's so sad. I hope one day they will know how to prevent so no one has to poison their body to fight it. Many hugs to you all and prayers that one day our bodies will get back to the normal that we once knewSmile

  • Fighter_34
    Fighter_34 Member Posts: 834
    edited May 2012

    Have you tried reaching out to an endorocologist?? Maybe you should have a panel pulled and see if something is off (this is just a suggestion). I feel you on the period issue at first mine was light and I was like YES, and then it went WILD, but now it is calming down. Verdict still out.

    You do have to rem. that we have had a lot of stuff done to us in a short period of time. It will take time for our body to rebuild and resemble normal again. We all are going through it in some type of way.

    Sometimes a big OLE cry just helps. I go there sometimes while I am soaking in the tub I just cry and I feel better.

    Gentle Hugs!!!

  • yellowdoglady
    yellowdoglady Member Posts: 349
    edited May 2012

    All of you.  Just keep taking those steps forward and give yourself some slack when you need it.  It is true that most of us were cut, poisoned and burned.  We did it to live, and those around us should know and appreciate that.  Some do, some don't.  But after a few years, you can feel more like yourself and if you still have a few spare pounds, know they may have kept you strong enough to survive.  I think I was more annoyed at how round and puffy I looked just after treatment than just a bit heavy now.  I'd love my pre-chemo waist back, but that was also pre-chemopause.  At 48 going in, I wasn't expecting or told to expect my cycle back.  I was actually glad that didn't happen, as in my case I had all the fun of full blown menopause in just a few hot/cold/cranky/miserable months while I lost my hair and felt like shit going through chemo.  One large compacted package of hell, against which everything else in life looks like catered beach party.  Including the radiation to follow.

    It will get better.  

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