Anyone from Mississauga???

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  • Westielover
    Westielover Member Posts: 9
    edited May 2012

    Hi Nicole4.  With your diagnosis you are in the right place and keep positive thoughts.  My girlfriend worked with many of the Oncologists in Canada dealing with BC.  She wanted me to go to Sunnybrook (she says the docs there are incredible) and had I not had such a simple diagnosis I probably would have done.  My diagosis was straighforward and I was lucky enough not to need chemo.  Had I not been comfortable with the answers I was getting, I would certainly have moved even with the inconvenience. It is obvious that you thought long and hard about having radiation.  It is not something you are going to volunteer for if you don't feel the need! The long drive won't be helping you, no wonder you feel fatigued.  I too was told that I should be sailing through this and that I won't have any side effects.  Turned out the person who told me that was in a study looking at low dose rads for only 16 treatments!!!  I find that breathing seems very tight when I go for my walk as well as severe reflux.  My RO said that it is due to swelling in the tissue and because they are irradiating close to the chest wall in the prone position.  

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited May 2012

    Westie...OH NO not Timmies???? What a terrible SE!

    My GP is a super cautious Dr. ...been going to him for a decade. He pretty well does as I ask as long as it makes sense. I know what you mean about Dr. M. He sent me to my BS after seeing my seroma saying "this is definitely NOT fluid" The BS says to me "How does HE know"?  Kinda got me caught in the middle. Anyways long story short, it WAS just fluid...2 syringes full. Mind you the next day it was all back again but because it doesn't bother me I will just leave it now that I know it's harmless.

    About the breast screening...he didn't tell  me that but I assumed as much. Thing is, I was kind of annoyed at them anyways because two years before my diagnosis, they sent me a letter telling me not to get a mammo for 2 years...so I didn't! I wonder what would have shown a year earlier? Perhaps a stage I ? It's all a crap shoot anyways.

    Are you on Arimidex for 5 years?

  • rachel5738
    rachel5738 Member Posts: 920
    edited May 2012

    I had my rads at CVH and would say that my RO was not the Dr. with the best bedside manner but he laid out my treatment plans (post chemo) and answered all my questions. I was stage 2--rads were because I had lumpectomy instead of mastectomy. I was/am confident in the treatment plan that was prescribed by both my MO and RO.

    I only had to drive a few minutes to CVH so I am sure the longer drive is a big hassle--every day...Rads were easier than chemo for me but the daily drive to hospital, checking in and getting ready did begin to wear on me after a while. I was so glad for those rads to end...I gave my techs a gift card at Timmies and said that "no offence, but hopefully never see you all again". I would say the techs in the radiation dept at CVH are amazing.

    Post stage 2 breast cancer--my MO just does mammo yearly and checkup every 6 months...I asked about a scan and he said only if I have some symptoms that would warrant it. I'm also about 18 months into Tamoxifen--even though I had rad hysterectomy due to cervical cancer--still am on Tamoxifen--Doc said he would keep me on it due to my age etc. I had asked him at my last appointment if I should be switching but he said no.

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited May 2012

    Rachel...same here...lumpectomy also...15 chemos...16 rads and 5 years Arimidex (into 4th month). Was your MO at CVH too? Rads were an easy treatment but as you say...the daily routine was a grind, especially when a machine was not working.

  • Nicole4
    Nicole4 Member Posts: 104
    edited February 2015

    today was rad number 20, I am feeling very sore and my chest is extremely red and tight.  at the end of my scar a blister (bump) has formed just today.  I have done cold compress and glaxo cream.  I am worried that this week is going to be far worse than its been.  Five more to go!   

    I am so happy to be near the finish line, but at the same time I am feeling scared and still emotional, I hope this goes away soon.  maybe once I get my life back. 

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited May 2012

    Glaxal Base is a godsend....Make sure you use it for about 2 weeks after rads as well, in case they forget to tell you!

  • rachel5738
    rachel5738 Member Posts: 920
    edited May 2012

    schatzi14--my MO was actually at Trillium (by Sherway). I have another MO at PMH for my 1st cancer (cervical--diagnosed 3 months before my breast cancer). I was pretty lucky with my Docs as I didn't have any issues/concerns with any of them. My MO at PMH is the head of gyne oncology so she normally had a group of residents following her around--nothing like 5-6 Docs in a small room with you.

    Nicole--I think it is very normal to be a little scared once treatment has finished. I always thought it was like being pushed out in a boat into a big lake all by yourself...I had spent so much time with Docs over the past 2 years that when I stopped seeing them so regularly---I was so scared. It will go away and you will get your life back. There are days when I can't believe how far I have come from my two cancer diagnosis. Days when cancer doesn't even pop into my mind or I talk about it as something that happened in my past.

    p.s. Like schatzi said...keep using the cream for a couple of weeks after rads...my techs said the skin keeps cooking for a while after. I had 25 rads too...you are almost at the finish line :)

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited May 2012

    rachel...wow you sure had it dumped on you all at once...you sound so positive and that's good to hear. The worst is over now. Did you have your chemo at Trillium or CVH?

  • rachel5738
    rachel5738 Member Posts: 920
    edited May 2012

    Had my chemo at Trillium--rads at CVH.

    Yep, had the biggest shock when I was diagnosed with breast cancer as I had been back at work TWO WEEKS after my leave for my rad hyst for the cervical cancer....I think my Boss thought I was crazy. Believe me, I wasn't very positive at the beginning...I really had to dig myself out of a hole after both diagnosis. Ultimately, my Docs were good and my family/friends carried me through. I have two young boys and we tried to keep their lifes as normal as possible.

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited May 2012

    You are amazing....you sound like you have handled this well. A positive attitude is such a plus in beating this thing.  It's weird to say but I have yet to shed a tear....odd as it sounds I had always been sure I would end up with this and always sure it would be my left breast. I had 2 biopsies on the left side and they were both B9 but somehow I was prepared. I too had a cervical scare in my early 30's and had a cone biopsy and eventually a vaginal hyst...that took care of that before it became malignant.

  • rachel5738
    rachel5738 Member Posts: 920
    edited May 2012

    schatzi--From the looks of your Diagnosis --- we had pretty similar breast cancer.

    Cancer really shocked me....I had never thought of cancer before....My Aunt had been diagnosed with breast cancer over 20 years ago..but at that time, I was younger and probably never gave it another thought. Cancer has taken over a lot of my mind in the last couple of years. I went back to work at the end of last summer which was the best for me as it occupies my mind.

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    Hi Rachel...have you been following the Get Together for Ontario BC Survivors? Are you on "the Canadian Connection calling all Canadian women".Check it out...we are trying to get a date in August where we can all meet, if you would be interested..would love to meet you!

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited June 2012

    schatzi -there's been a get together the past two summers in Niagara-On-The-Lake. Rachel and I went last year together. I wonder if this get together you mention is the same thing.  What thread are the details on?

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    Hi Sugar...I guess it's basically the same thing but of course most of us weren't here then. There are a few of us that want to meet in August...we are in Hamilton, Burlington, Oakville, Mississauga, Brampton and as far east as Belleville. It remains to be seen if we can pull it off or not. The consensus was to go east instead of west.

    I saw your name so I guess you have the right thread...I had a heck of a time finding it.

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited June 2012

    Yes, I found it.  FYI...I organized a get together in April 2010 and it was well attended.  It was a luncheon at Pickle Barrel at Yorkdale and it was a nice central location. Hopefully we'll get to meet face-to-face!

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    That would be great! We have a a Pickle Barrel at Erin Mills Town Center but I think some are talking further east. Actually, the more I think about it, it might be pretty central for most!

    Good idea...never thot of the PB! Hmmm already know what I would order.  LOL

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited June 2012

    PB at Erin Mills sounds great.  If the greater group wants to go further east, we could still also have a Mississauga meetup.

    LOL...it seems I end up at Erin Mills Town Centre a few times a week anywat buying birthday presents for all the parties my daughter attends, browing waxing, etc. It's my "go to" mall.

  • rachel5738
    rachel5738 Member Posts: 920
    edited June 2012

    Hi there...I replied to the thread and should be good for the 19th. Mississauga meetup also sounds good. I am at Erin Mills regularly also. I swore I wouldn't eat at PB again at that mall there after kind of crappy experience a couple of weeks ago--but it is easy place. It is easy meet up spot!



    Sherri--Hope you are well. We are heading to Jamaica at end of school--just incase I see you at airport ;)



    Schatzi--i noticed in other thread you mentioned of acupuncture...I have been thinking of that for a while.

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    rachel...it didn't work for me because it turned out the cause of my headaches are bulging and herniated discs in my cervical spine. Acupuncture can only do so much. I know many that have had relief from many other things tho'.

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited June 2012

    I also had a really bad experience at PB at Erin Mills last year...even though I suggested it for a get together.  I had hoped mine was an isolated incident because I've had awesome food at all the other PB locations.  Maybe it's not such a good suggestions after all. Spring Rolls is really good (just outside from PB).  

    Rachel, have fun in Jamaica.  You won't see us at the airport this time. But we're going on a cruise to Bermuda again in August...sailing out of Baltimore. Can't wait!!!

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    Come to think of it, I have had a few not so great meals at PB too but at another location. It seems the problem has been solved!

    For any that haven't seen the other thread, it has been decided about the GTG.

    We are meeting at Thickson/#401 on Sunday August 19th at approx 1 p.m. at Milestones!!!!

    Please let us know if you plan to attend so we can make reservations.

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited June 2012

    I should be able to go on the 19th. 

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    sugar...GREAT!! Looking forward to meeting you.

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited June 2012

    Good morning! Quick question...does anyone have the name of a physiotherapist in Mississauga/Oakville area who has experience working with breast cancer survivors?  I need a little physio on my shoulder on the BC side and wanted to make sure I go somewhere that has experience with people who have had surgery, lymph nodes removed, radiation, etc.  Any suggestions are welcome.

    Thanks, Sherri

  • schatzi14
    schatzi14 Member Posts: 1,647
    edited June 2012

    sorry Sugar...I don't. I have a registered MLD therapist here in Oakville but other than calling wellness clinics, I can't even suggest anything.

    Why not give the Wellspring a call...they have names for everything...905-257-1988?

  • rachel5738
    rachel5738 Member Posts: 920
    edited June 2012

    Sherri..if you find someone let me know as I need to go all as sadly, I have what my doc thinks us beginning of lymphedema....blah. I know that when I was taking exercise class at Wellspring... A couple of the therapists had own business but for some reason I think they were in Burlington. I will ask one of my bc group members from wellspring.

  • Sugar77
    Sugar77 Member Posts: 2,138
    edited June 2012

    Rachel, the woman who runs the exercise program at Wellspring used to work at a private centre in Burlington (I went there two years ago) but now she's back working at the Jurvinski Cancer Centre in Hamilton. She and I have emailed each other about it and so far I've not found anyone else. Kate who is working at Wellspring right now also used to work at the centre in Burlington. I'll keep looking and let you know what I discover!

  • Westielover
    Westielover Member Posts: 9
    edited June 2012

    Hi Sherri - I just called my Physio office to double check.  They are located up near the 401 on Mississauga Road.  I am awaiting a call back.  They wanted to check on the radiation bit - they do have experience working on patients with lymphedema.  I have been to several Physios in my life and when my shoulder froze and I was diagnosed with Osteoarthritis my doc finally sent me to Physiotherapy on Wheels.  It was like night and day from anywhere else I have ever been.  They didn't ask how much coverage I had, or work on 3 other patients at the same time and leave me to excercise.  The Physio, Gord, actually worked in my shoulder - he has courses in advanced tissue massage.  After 6 sessions he told me that he would do more harm than good to my nerve if he kept working at my shoulder and to let it rest (I have not had a problem since although the radiation positioning caused a bit of a problem).  Alain Nolet, who is the director of the clinic is a gold medal gymnast and Physio to the Olympic gymnastics team.  I will post back when I get an answer. Lesley

    Ps finished my 30 rads on the 18th June - Yeah.  Despite the red hair and skin that burns, managed to get through with only minor blistering.  The saline soaks and polysporin were a lifesaver.  

  • jjl
    jjl Member Posts: 68
    edited July 2012

    I'm in Mississauga too

  • jjl
    jjl Member Posts: 68
    edited July 2012

    I had 2 lumpectomies and still didn't get clean margin. I got my second report today. Look likes worst than before. I had 2 positive and 1 close margins. Before only have one. My BS sent me to oncology, I'm waiting.. He said I might have an option to save my boob. If i do radiation. Actually I don't really care the boob if that effect my life. I need see my son grow up, he is only 15 and he is brilliant. He just made his dream come to true, got selet to play for a Triple A hockey team in GTHL with only played one year hockey experience. he went to tryout same time as I got diagnose BC. He huged me when we signed contract for him, he said mom I made it, now it's your turn, you need win this battle.. He made me cry. Poor kid only have me in his life, I'm a single mother who is 42. I have no idea, do I have any option about my treatment or not, waiting is killing me..

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