Bottle 'o Tamoxifen
Comments
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Definitely a pocket party for tomorrow afternoon ladies. The overnight output was down again. This is looking sooooo good. I can't wait.
Hope everyone has a great Sunday.
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Jo... sp glad to hear that!!!! read and waiting to go!
momx3.... happy planting!
Junie.. hope your having agood day... have you passed those stones yet? been thinking about you!
Sherry Paula odie Linda heartn soul and ALL my wonderful Tammy ladies.. hope you all have a great day!
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Hey girlies I am here I had a PS appt on Friday and then went to Boerne which is where we use to live and is only about 30 minutes from my PS office. Had lunch with friends then on to visit more friends then stay the night with another friend and they had all there family over then yesterday had lunch and hung out by the pool with some more friends and I got sunburned. Since I lost weight and now have boobs I bought a bikini and decided what the heck I'll be 50 next month and am back in a bikini. Looks like my exhange surgery will be mid to late August. Need one more fill and then I need to be able to hold my grandbabies when I take care of them in August and PS thought I would be rushing things so we decided I'll just wait until after that to have the surgery.
Alowen-goo that you are getting more testing to be able to help you make a decision. You will make the decision that is right for you. Taking this time to research is very good because you will be armed with quesitons.
Heatnsoul This last year it seems all I have done is hurt. One pain after another. I took 6 weeks off of tami for my BMX and am now back on it and I have to say I am doing much better this time around. I almost did not go back on it at all because I felt so crappy this last year.
Looks like we will have pocket parties this week. First Jo on Monday (get the darn drain out) party. Then JOJO for her test. OH and woohoo on a clear mamo. Hopefully you will get all good news on your next scans. I remember when my hip was hurting so bad and had to have test run and they told me I had arthritis and I was like yeah. Funny how perspective changes on our ailments. Before BC I was have been upset to have arthrisits but I'll take that any day over mets.
June I think I'd have that treatment. You have had so many stones you need some relief.
Tink will you fly by and pick me up for the pocket parties.
Paula love the weekend eye candy we just have to have some things to spice it up around here.
Hope everyone is having a great weekend. -
Stopping by after a super busy weekend.... But the garden is in.....
Count me in on the pocket parties this week. Jo, I know you wont miss that stupid drain and Princess JoJo, clear scans await. Not sure who mentioned it but am so glad to see I am not the only one bruising easy these days.
Sweetie, a page or two back you were discussing possible hysterectomy. I too have been trying to avoid that option but suspect it will be strongly encouraged at my next onc visit once I tell him that my maternal aunt has been treating for uterine cancer for the past 6 months..... UGH!
June - Hate to see you continuing to suffer with those stupid stones. Hoping you can get relief soon!
And why does the eye candy look so perplexed? Had he not noticed it before??? ....LOL
Happy Monday ladies & hugs to all!
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Jumping in the pockets Jo!! Focus on him as the PS is doing his thing!
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JoJo yours will be up later this afternoon! Jumping in your pockets as well! After Jo party us gals will need to hop onto Tinks wings so she can fly us all over to your party!
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Love you guys! Thanks for all of the words of support and sympathy after my father died. It's been very hard. I miss him. Also, spending so much time in a cancer hospital made me a bit of a headcase, but....I have good news! MRI was clean, all good! I don't know if you feel this way but I think that all of our good news is good news for all of us. I'm always happy when I hear of other ladies with B9 results as it means to me that they are making strides and curing more of us. Better treatments, surveillance, whatever. I'm wishing for all good scans for all of you so we can party, hardy.
Jo, hope you get that drain out. (After my mx, the drain might have come out too early and I had to have seromas drained twice, so I guess they have their reasons for keeping them in so long. But I remember that when it came out I was one of the happiest girls on the planet.Looking forward to celebrating with you.
Still not loving tamoxifen, but the devil I know is still better than the devil I don't know. MO wants me to stay on tamoxifen until December even tho I had an oopherectomy in November. Wants 2.5 years of tamox and then switch to an AI. I thought I knew hot flashes but I've learned that I didn't. Those moments of heat pre ooph were nothing compared to these waves of heat and upper lip and head sweat that I now get. They actually make me feel weak and dizzy. Also can't stand how smelly I've become (anyone else? Please say yes. I never used to have bad body odor, now I smell like a teenage boy's locker room. Can't possibly shower after each hot flash and don't want to use strong antipersperant with lots of aluminum, not sure what to do. Right now just avoiding close contact with other humans...:)I bruise more easily, heal more slowly and am way more tired than I ever used to be. I exercise and eat really well, so I don't think it's that I'm out of shape. Also have major hip pain, sciatica and tendonitis in one arm. Sleep is a thing of the past and asthma is worse. Haven't had a calm enough time (either my own medical bumps or sick father) to do reconstruction so I'm still lopsidedly single breasted....
And yet, with all of this, I'm just so happy to be alive. Happy to see my annoying but wonderful teenagers grow up. Happy to love my husband. Happy to see each morning, as I remember the day of dx thinking that I'd give anything for....just this.
With love, Shari
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Wow Shari I am glad that you are doing better, but after reading your post I feel like you. One thing after another after another and it just never stops. Did you ever in your life think that you would be like this, with one pain and ache after another. I wish we could all live a healthier life. I am so happy for you that your MRI turned out good.....YAY!
Jo I am thinking and praying you are one happy lady as the took your drain out.....
Sherri I think you are right about doing treatments. I am now in so much pain and waiting for the Doctors office to open so I can go in and see if I have an infection from my stones. Last night I ended up peeing all night long and the urgency was horrible that I actually called out of work which I never do. I got up to do my walk this morning and was in so much pain that I only did a little over 2 miles and went to the bathroom and I peed so much blood which is from my stone. I thought I passed the sucker as the pains hasn't been as excruciating over the weekend, but again I feel like I don't know my body like I used to. So fingers crossed that I pass this sucker and they can give me an antibiotic or something as the pressure is unbearable. So I will be calling my urologist to schedule my treatments.....just one more freakin thing to do!
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Junie... so sorry sweetie pleasew let us know what the docs says will be in your pocket too... love ya..
Jo.. thinking about you and hoping that last sucker is coming out!!!
Sherry.. on my way over to get ya!
Shari... oh yes I agree. Had no idea life would be like this, I too am grateful to be here , but also very frustrating sometimes. I feel 20 years older if not more than I am some days.
Odie.. yah garden in! what did you plant?
Ladies you all better put your seat belts in becasue with that eye candy Paula got for us not sure ill be able to fly straight lol!!!!
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Paula - You have done it again. What wonderful eye candy and this early in the morning. I am going to keep him in a safe place for later today. Appt is at 3:00.
Tink - When you get out of my pocket, you will need to fly me over to JoJo's pocket.
Happy Monday Ladies!!!
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Jo Tink and I are on our way. Hope she has not had any happy juice so we make it there safely.
June keep us posted on your stones.
So sorry for all of you having aches and pains. I was just like you guys this past year. But when I took the 6 week break from tammi it all went away. Now that I am back on it the aches and pains have not come back, the hot flashes are way better and I am sleeping much better. I can't explain it, maybe it had something to do with the morphine coma I was in in the hospital. I just hope it keeps up like this, because I sure don't want to go back to feeling like crap. I feel so darn good and the thing is that everyone around me is noticing. I can't tell you how many people have said they can look at me and tell I feel better. Or maybe it is just my new boobs and they are not connecting the two. hehe -
Good luck today Jo....one good yank it that sucker will be GONE!
June...so sorry you are in so much pain and discomfort. My heart goes out to you. Feel better.
Sherry....I'm at day 11 of my Tammi sabbatical. So far, not feeling alot different. In fact, I felt like crap yesterday. Still having joint, bone and muscle pain and the night sweats are not fun either! I'm only suppose to be off for 2 - 3 weeks, so we'll see where we go from here.
I'm on board for the pocket parties too. I'll bring the fan for all of the sweating we've got going on! I find that adult beverages seem to make them more intense too. Bummer!
Have a good day ladies. I've got a busy one ahead so I had better get to it!
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Jo anything yet??? I hate the waiting.
Went to doctor, no infection cause there was way too much blood in the urine. She is sending it off to culture it, but bottom line its just those damn pesty stones........pass already will ya.
Going to lie down and pray for a miracle....
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Hello all;
Been watching the thread for a while, knowing I will be going on this when I start my chemo. Loving the eye candy; just too pretty.
Jo, hoping you get your drain out; they really suck.
June, my daughter struggles with stones, so I really hope you did pass yours and get some pain relief.Anyway, thanks for letting me post and hope you don't mind me joining in.
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Jo, suck in and yell!!!! YAH, it's gone
OK, I will catch up on everything later, but I need to complain!!!
Why is it, when you don't feel good, they always aked if you are on treatment??? Most people consider treatment to be chemo or radiation, BUT not Tamox. So even though the answer always come out NO, it's really YES.
Ok, I'm done. The "train" feeling will pass BUT I know it will return again another day!!!!
Hugs to ALL who feel like that!!! Keep it in your pocket til you need it!!!!!!
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momx3 I know when I say something hurts people will ask and I say yes I will be on treatment the next 4 years.
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Sherry thats too funny. I have to do the man candy search after hubby goes to bed. Try explaining that to him would not be a good thing, lol.
(((June)))))
Welcome Vicki. This is a good group of gals around here. Feel free to post away with any questions that you have. We do get silly sometimes, but heck why not!
I am seriously thinking of going off this for a break. I am so tired of all the garbage that has come with this and I'm ready to spit nails. I feel like I'm doing more damage to other body parts from the SE and keeping them at bay with other meds.
Well from what Tink has posted, she can get us there lickity split with a man candy pic dangled in front of her, lol. To bad Im at work or I would do a man candy search right now. I could use me a pick me up right now.
I do have to say that the one issue that has really bothered me for months is the memory thing. I'm so tired of having to read over and over to get it to soak in. I'm learning a new computer program and man o man is it taking forever to learn.
Have a great day all, love and light to you all!
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June - I should have the damn drain out in 2 hours from now. So very ready for this. Having for almost 5 weeks is more than enough. But in the end, it was so well worth it.
momx3 - I do the same thing as Sherry. Went asked if I am in treatment, I tell them I will be in treatment until Jan 3, 2016 when I take my last little white pill. At least the nurses in the hospital would refer to Tamox as my chemo pill. So hard for some to grasp that concept.
Paula - Did I tell you you are the best!!! I just did. I have the eye candy ready to go.
Leaving in 1 hour 20 minutes.
Update when I get back
Hugs & Kisses
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JO ~ hoping that drain is gone shortly. Hugs it is such an annoying feeling when that sucker comes out. Hang tough sister !
HUGS
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Jo- I'm in your pocket with my fingers crossed!
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Leaving in 15 minutes. Climb in my pockets and let the party get started!!!!!!
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Wow and this is gonna be a big party for sure......hopping in girlfriend!
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Ok ladies I just passed my stone and boy did that hurt coming out. Still tender and sore and I hope it is the only one and I don't have more......so I am hoping it is going to be quite the party tonight with Jo.......
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Okay! Pocket party is over - you can all get out now. What a party - it was so noisy I had a hard time listening to the doctor. You ladies are great. Thanks so much for going with me. The drain site hole is sore and it should close in a couple of days. I go back in two weeks to see what the next step is. Right now, he wants to let things settle down and make sure I have no seromas. It is smooth sailing from here.
Hugs & Kisses
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Yippee Jo!!!! So glad for you!!
Just got back from my MO appt and my first chemo is scheduled for the 15th of June. I will go get my head shaved on Thur (my daughter will do it) We are going to do a pink mohawk! Got to have fun while I can!
Again, Jo, so glad for you and June, glad you passed that stone; hope you feel better quick.
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woohoo Jo so glad that nasty drain is out.
Vicki glad you have a start date and you are so right have fun with it while you can.
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Vicki.. welcome aboard! we are here for anything you might need!
Jo... so glad to hear that those drains are finally out!!!! wahoo....
June aahhh glad you passed that stone... hope you start healing from here!!!
What a day... had to get my daughter from school again.... a kinda meltdown I suppose. I think everything is getting to her, along with the mood disorder and all the physical ctrap I think she is done!. I have an appt for her with one of her docs tom. and the school suggested talking with them about documenting why it might be beneficial for her to finish the school year from home. They are very supportive. I am hoping to get at least phone wise with all her urrent docs tomorrow and figure out what we will do... so very stressed... but have to keep going to help her!!
HUgs to you all!!!!
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Jo and June - such great news to read! The suffering is so hard to take sometimes - hopefully THAT IS IT!! June I can't imagine having to deal with stones in addition to all the other PAIN this little white pill causes.
Pain, Pain, Pain. Like when I get up I ache all over until I work it out. Or just shots of pain anywhere - like my shoulder, or my back, or hands or feet. I think it's the tammi, and yes, I would say we are still in treatment. It is a form of chemo, after all, and I can see how it would build up and gradually get worse. But maybe after it reaches it's crescendo, it levels off and the pain stops and the last 2 years aren't bad. And maybe that's just me dreaming, but I think I've heard some people say something like that.
Sherry - I'm just so happy that you are feeling great, like your old self. It makes me hopeful! Shari, it's like you said - good news brings us all up! And congratulations on your good MRI results! That's a scary test to me.
For now, I have a hard time keeping up with my friends - I feel like Grandma tottering along. Hurry up, Grandma! But I'm optimistic - I'll just keep working at it.
Tink - I hope you can get all the docs together to provide the school what they need to give your daughter a break from the last few weeks. Sounds like she could use it; I hope it works out that way. You're so lucky you have a caring school. My son's high school treated everyone like a convict; probably some of them were, haha.
Paula - that hunky guy looking down his pants is my favorite one lately. Of course, I'm shallow so I could abandon him on a whim! Thank you for giving us all this amazing eye candy to help ease our woes!
I just found out there is something called Cancer Fatigue Syndrome. Still trying to learn what I can but you girls should look at this:
http://www.cancer.gov/cancertopics/pdq/supportivecare/fatigue/Patient/page2
Tamoxifen is no doubt biologic therapy, then there's the surgeries and all the other stress. Maybe I can find a connection to this and pain, but it definitely connects to depression and memory loss and of course fatigue. I don't know if anyone offers any suggestions on what to do about it, but I won't let my doctor act like it's just me or blame me for not making exercise my new 40-hour week job.
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I just read in that link that taking pain relievers, or opoids, can lead to a reduction of sex hormones in the ovaries. Well, gee, sounds like taking pain pills would kill 2 birds with one stone to me! So I'll tell my MO that I want to take pain pills instead of tamoxifen - lol.
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Jo, SO glad you are finally drainless!!
June, so glad you FINALLY passed that stone!
Tink, sure hope you can get things worked out to help your daughter.
Paula, you are such a good provider of eye candy for those who really need it, and the rest of us can really appreciate it as well!
Interesting about the fatigue, and it's interesting that the MO never mentions this can be prolonged, just "it takes a while".... This has truly been one of the most distressing problems I have had to deal with, along with the various pain issues.
Today was Day #2 of my new commitment to a walking program - everything I read and am told seems to indicate that walking is the best therapy for physical and emotional problems, so I'm doing it. And yoga..... well, maybe at least one or the other each day.
Hugs to all - thinking of you and hoping you all sleep well and wake up refreshed.
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