December 2009 Rads Group

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  • mimi1964
    mimi1964 Member Posts: 2,163
    edited April 2012

    So sorry Valerie I'll be thinking of you :(  try to have some good family time and stay positive

  • BonnieSF
    BonnieSF Member Posts: 101
    edited April 2012

    Valerie, have you received any news or results yet? Thinking of you .

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Its cancer, again. I meet with the team of doctors on Monday and find out what the plan is. Here we go again.

  • adrienne2
    adrienne2 Member Posts: 183
    edited April 2012

    Darn, Valerie. I'm so sorry you have to go through this again. I'll keep you in my thoughts as you squash this cancer.



    Adrienne

  • BonnieSF
    BonnieSF Member Posts: 101
    edited April 2012

    OH NO! Oh, Valerie, I'm so sorry you're back fighting the cancer again. You got dealt a tough hand. Don't forget you're an experienced fighter; a veteran.  You got through this before, you can do it again. Grrrr!

    Good luck with the meeting on Monday and keep us posted. I hope that they find it and get rid of it with a minimum of ordeal for you.  

    Will be thinking of you. Be kind to yourself.

    Bonnie 

  • somanywomen
    somanywomen Member Posts: 872
    edited April 2012

    I was going to come say hello to all and tell you about another recent bad tech ultrasound and how important these techs need to take thier jobs, it is our lives they are dealing with...But I am so upset over Valerie's bad news that makes I feel my bad ultrasound experience is so nothing...

    Valerie, stay strong...Just don't know what to say except that we are still here for you and deeply saddened by this....Jewly

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    I met with the surgeon and chemo doctor. I have to have a MX next month. I'm hoping for reconstruction at the same time. Then I will have 8 chemo treatments or 4 month of chemo. I cried, I asked why and I demanded things my way. The cancer that I have now is a different triple negative cancer and not a recurrence from the last one. I have to do genetic testing too. I'm scared.

  • somanywomen
    somanywomen Member Posts: 872
    edited April 2012

    Valerie, been thinking about you since reading this awful news...so sorry, our worst fear...Now your reality, I guess knowing it is new and not recurrence is the only half-way good news..

    Sorry those docs didn't listen to you, we have to trust our gut and so glad you pushed it and finally got those docs on the ball...

    Did you say that these new lumps did or did not show in your mamm/ultrasounds of the last year or so...I have had mammo/us every 6 months since lumpectomy, did you?...Did these areas cause any alarm to your radiologists and or notated on your results info...What birads rating did they give you on your last mammo/us...I got a birads 3 and areas that were being watched in Oct 2010 but just last week had a recheck and downgraded to a birads 2.....I'm just wondering if these lumps could have been found or if they showed up at all...

    Wow, you must be overwhelmed and all this to handle in the next couple of months, I will be checking for your progress and hoping this will go fast for you so you can get back to your somewhat of a normal life...Jewly

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    I get a mammo once a year. Nothng showed up on my last mammo 9 months ago. I complained of a buringpain similar to a branding iron pain inside my breast. The breast was a little hard from being in pain but there was no lumps. The chemo doctor checked that out and found nothing. She said if the pain continued to let the surgeon know. One month later the surgeon felt two lumps. I don't know how it grew in one months time. I don't have a birads rating.

    I am very overwhelmed and very angry and depressed. Too many emotions to list. I think scared is another one. I just want to curl up and not move. Today I babysit. She is almost 6 months old and a sweetie.  After 21/2 years I was just starting to feel like my old self, leaving go of some of the barbaric hospital experience and now I am dealing with it all over again maybe worse. 

  • somanywomen
    somanywomen Member Posts: 872
    edited April 2012

    V....Can only imagine your state of mine, just mush...Can't believe nothing showed up on mammo, and how fast this came about with your mammo only 9 months ago, did you also have ultra-sound?...There should always a birads or similar rating on these reports, I always get copies and sometimes request the films...That pain never set anyone off, should have, esp, burning pain, wow your body was trying to tell you, if only we could get docs to take us more seriously with our gut feelings...

    I am having another re-scan this Thurs (ultrasound) because they tech took about 5 minutes total to scan both breasts, I have had so many that I spoke with her supervisor and she agreed with me 100% that 5 minutes was not enough time to do a thorough exam, what is wrong with these people, it is our lives they are dealing with..Don't take anything for granted Valerie, even though you are depressed and all that crap that comes with this horrible news, stand your ground and get the treatment you deserve and  respect of those who hold your health in thier hands...Question all that bothers you, good luck and please keep us posted....Jewly

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    I had ultrasound first and then the mammo. The radiologist came in the room to watch them do the ultrasound. It felt like I was in that room for a half hour. Next was the mammo and 7 pictures were taken (3 then 2 then 2 more on small plates).

    Today I feel a lot of anger, why me, depression, anger and crappy. I understand what they said I don't get the why. This sucks!

  • somanywomen
    somanywomen Member Posts: 872
    edited April 2012
    V, I don't blame you for being mad and angry..Do you think if your docs had listened this would have been caught earlier, why do they say it is not showing up on scans?...I saw my surgeon today and he told me to be sure to do self exams, he said he felt a lump on a patient whos scans were clear and sure enough that also turned out to be BC...Wow, 7 pictures on the mammo, bet that hurt like crap, I just wish I new what to say except I am so sorry you are dealing with this again..and we will be here anytime you want to vent....J
  • mimi1964
    mimi1964 Member Posts: 2,163
    edited April 2012

    Valerie have you gotten any news about the results of your tests? I have been worried about you.

    Renee

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2012

    Its cancer. My surgery date is penciled in for May 15th. I want both breasts off and immediate reconstruction so we have to find out if the PS is okay on that date. I have been super upset about this. Its not a reoccurence but rather a  new cancer... like I never had cancer before. The cells don't match up from the first time. Its eerie how one month there was no lumps and about a month later there were 2. I am going through some tests before surgery...echocardiogram, MRI (I had to take anxiety pills to get through it) and Friday I have a PET scan. After I heal from surgery I have to have 8 rounds of chemo which will take 4 months. I'll be bald again (the least of my worries). I hae been on ativan since I met with my team; just enough to take the edge off and quiet my brain so I can sleep. I am so scared but I want to get rid of the monster once and for all! 

  • somanywomen
    somanywomen Member Posts: 872
    edited May 2012

    Just checking on you Val, hope after this upcoming surgery you can get back to recovery and get this behind you for good!!!...That is so crazy how no lumps and then there were 2, I always thought that these tumors took years to get big enough to be able to actually feel them...

    Hey Renee, hope all is well and you landed a great job....

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    May 15 is my surgery date. The stupid lump in my breast has grown larger. I am no longer fearing this surgery but I'm actually ready for it. On the 8th I see the PS. If his schedule won't allow him to be in the operstion room on the 15th, the operation goes on without him. I'll worry about reconstruction later. I just want this breast off. I never thought I would hear those words come out of my mouth.

  • BonnieSF
    BonnieSF Member Posts: 101
    edited May 2012

    Hi Valerie, 

    It's great that you have a "Let's Get On With It" vibe going as you approach the surgery.  That's go to help. Hopefully the PS will be there so you can just do it all at once. But you're right - what ever. Just get the breast off. Are you having a double or single? 

    It's scary your lumps grew so fast. I wish they would figure out cancer.  

    I'm thinking of you as you go through this. You have had a hard go of it.

    Bonnie 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    I meet with the plastic surgeon tomorrow morning. One week before I go in for surgery. I'm getting anxious.

    Editted to say.. I did not like the plastic surgeon. I walked out on him. 

  • somanywomen
    somanywomen Member Posts: 872
    edited May 2012

    Wow, I almost gave up looking for my group, I don't think I like this new format...Very confusing...Just glad I could at least find you guys and will be checking on you Veggy through your upcoming weeks....J

  • BonnieSF
    BonnieSF Member Posts: 101
    edited May 2012

    Hi Valerie,

    Good luck with your plastic surgeon meeting, unless it already happened today. I'm sure you're getting anxious. Yikes. Tell us how the meeting goes and what the plan is. Hang in there. You'll get through this.

    Bonnie 

  • mimi1964
    mimi1964 Member Posts: 2,163
    edited May 2012

    Val I see u were to have surg for a mast on the 15 th and today is the 18th. Just Wow!!! I'm so sorry words can't say. I hope to hear from u soon enuff!! Thinking of u. Hope all is well and u found another plastic surgeon. Big hugs sweeety.

    Jewly I did get a job it's on midnight shift and I hate the hours. Love being a nurse just wish I could find a day shift job being a nurse manager. Thanks for the concern and prayers ladies

  • somanywomen
    somanywomen Member Posts: 872
    edited May 2012

    Hi Valerie, hope all went very good, will keep checking on you so let us know....Wishing you the best....

    Renee, glad you're working, but hours are terrible, hopefully this will lead into a better hours job..

    I'm trying to get use to this new format, but I still prefer the old format better....

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    I changed surgeons and hospitals. Its a long story. As you know I walked out on the PS. I meet with my new team May 23. I am feeling a lot better about this whole experience. Not as angry or upset.

  • mimi1964
    mimi1964 Member Posts: 2,163
    edited May 2012
  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2012

    Two weeks until surgery.

  • somanywomen
    somanywomen Member Posts: 872
    edited June 2012

    Val, I keep checking up to see your updates, hope all is going good, bet you just want to get this all behind you and back on recovery road....How is your new team of Docs holding up, I know it is so hard to believe that they are doing everything they can for us...Some of my past experiences made me lose respect for some in the medical field, felt they had lost their compassion and drive...Keep us updated, we are pulling for you and wishing you much better days really soon...

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2012

    I went to bed a little early last night. Now I am awake and starving.

    Tuesday I got all marked up for surgery. We got a hotel room and stayed the night. We found a chinese restaurant and ate. I was able to sleep with the help of my anti-anxiety meds. 

    I got to the hospital early on Wednesday They took me to a private room to register. They had me and my DH walk to the operation area and we hugged and hugged once more. I walked to the OR room and froze in the doorway. That's when I got nervous. I was in surgery for 4.5 hours. I woke up in the recovery room. I didn't get sick. I heard the nurse say that my husband could come in and then I went back to sleep. 

    They took me to my room and the nurses were in and out all night. I'd sleep for 5 minutes and wake up. I had a catheter. I never had one in my life. I must have drank 3 pitchers of water suring the night. I had no problems... just felt like a truck ran over my chest. I had a normal diet and kept everything down. I was up and walking on Thursday.

    The nurses were wonderful and so was the surgeons. My mom and dad and some friends came down on Thursday. They were surprised to see how good I looked.I haven't looked at myself yet. I'm not brave enough. I have to massage my TE's downward as much as possible. 

    They released me on Friday. The plastic surgeon wanted me to go home and get some rest. My room mate and her family were very loud. My youngest son came with my DH. He just held on to me. My older son stayed home to help straighten up the house. His choice. 

    I have to take little walks today, drink lots of fluids and use this stupid breathing machine to exercise my lungs.  Tuesday I'll find out from pathology information on the cancer. I'm not going to worry myself about that. Right now I just want to grab some toast and have a little bit to eat. Then I'll go back to bed.

    Love you all!

  • Stacie
    Stacie Member Posts: 607
    edited June 2012

    Hi ladies. We gave a group of women trying to stay together through treatment. Some of us are just finishing up with chemo or soon will. We started a thread in this forum "Summer 2012 RADS hang out" I started the thread. Right now we just have a few starting but no experience to answer questions. Were all experts on chemo SEs ( :

    We could use a couple ladies checking in who have been through RADS aleady. Some women did so on our chemo thread when we started and it was helpful. Right now there's an open question posted about the level of tiredness?? Would be so grateful.

  • mimi1964
    mimi1964 Member Posts: 2,163
    edited July 2012

    Hey Valerie so sorry I wasn't here when you had your surgery but my home internet has been down due to a bad modem.  It's fixed now.  How are you doing? 

    How are you Jewly?  Hope you are both having a decent summer. 

    Valerie I know having surgery sucks but things will get better over time. 

    Hugs to all

    Renee

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2012

    I have been sleeping all day. I take my pills, try to eat and drink and then go back to sleep.

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