My grade

Options
2

Comments

  • sallyyy
    sallyyy Member Posts: 77
    edited May 2012

    I wonder why drs didnt give the same caring for lymph vascular invadion as nodes involvement as long as they are same and through them cancer can transfer to anywhere else ??

    · Share on FacebookShare on Twitter
  • ashley2
    ashley2 Member Posts: 62
    edited May 2012

    I have the info from my MO. he took this LVi in consideration for my treatement plan. I'm on ACx4 and taxolx12 plus radiotherapie x33. an agresiv treatement ...........

    · Share on FacebookShare on Twitter
  • lago
    lago Member Posts: 17,186
    edited May 2012

    Another grade 3 HER2+ chiming in. I'll be 2 years NED August 31st.

    Answer to your question: I wanna ask something is it bad to have ER,PR- ?? With HER2+

    Well yes and no:

    1. The good thing about being ER/PR+ is you can get hormone therapy (pill) for several years to help prevent recurrence.
    2. Good thing about ER/PR- is if you recur it's usually in the first 3 years…
    3. ER/PR+ can take longer to recur… if it's going to. Doesn't mean it will.

    As far as being HER+ and ER/PR-… if you were triple negative you would have surgery, chemo and or radiation to treat your cancer. Being HER2+ you have the addition of Herceptin if you tumor is large enough… yours is large enough to get Herceptin.

    BTW don't google HER2+. There's a lot of information that is old. Herceptin hasn't been around for very long but it's really changed the prognosis for all us HER2+ gals in a positive way.

    · Share on FacebookShare on Twitter
  • sallyyy
    sallyyy Member Posts: 77
    edited May 2012

    Ooh good luck .. But i took 4 rounds of cyclophamide and taxotere and herceptin for a year ,,, why didnt i took radiotherapie too ?? I dont know why

    · Share on FacebookShare on Twitter
  • ashley2
    ashley2 Member Posts: 62
    edited May 2012
    hello Sally again, maybe because of my pathologic report I got the radio. the size, the position, all others "caracters'. for sure your MO took the right decision for you. Smile
    · Share on FacebookShare on Twitter
  • sallyyy
    sallyyy Member Posts: 77
    edited May 2012

    Lago thank you for the information good luck xx



    · Share on FacebookShare on Twitter
  • ali68
    ali68 Member Posts: 1,383
    edited May 2012

    Did you say ER+ PR - recur in first three years

    · Share on FacebookShare on Twitter
  • sallyyy
    sallyyy Member Posts: 77
    edited May 2012

    Ashley2 thank you so much xx wish you the best hang in there :)

    · Share on FacebookShare on Twitter
  • sallyyy
    sallyyy Member Posts: 77
    edited May 2012

    No she means ER-,PR-

    · Share on FacebookShare on Twitter
  • ali68
    ali68 Member Posts: 1,383
    edited May 2012

    Ok does anyone know ER+ PR- when that is

    · Share on FacebookShare on Twitter
  • sallyyy
    sallyyy Member Posts: 77
    edited May 2012

    Actually i dont know but you have to know that we never know .... God only knows

    · Share on FacebookShare on Twitter
  • ali68
    ali68 Member Posts: 1,383
    edited May 2012

    Fingers crossed then.

    · Share on FacebookShare on Twitter
  • ali68
    ali68 Member Posts: 1,383
    edited May 2012

    Fingers crossed then.

    · Share on FacebookShare on Twitter
  • lago
    lago Member Posts: 17,186
    edited May 2012

    ali68 as far as ER+/PR- there is a lot about it that they don't know but it is treated the same as ER+/PR+

    My PR is only 5% which is very low. My onc calls this positive. My BS calls it negative. My ER was only 30% as well but they treat that as positive. I guess you can't be a "little pregnant." You either are or aren't. Hang in there.

    sallyyy thanks but I'm done with treatment except for that little estrogen sucking drug (ESD). Good luck to you! Hope treatment isn't too hard on any of those just starting!

    · Share on FacebookShare on Twitter
  • fightn4fam
    fightn4fam Member Posts: 48
    edited May 2012

    Hi girls,

    I am also a grade 3 ILC Frown.  My tumor was 2.7 cm.  Nodes were 0/3 negative, and I don't know how they test for vascular, blood work??  I'm 100% ER+ and 50% or more PR+.  Her2 Neg.  I had the tumor removed and got 4 Rnds of Taxotere and Cytoxan, 32 rounds of RADS (23+9 boosts).  On Tamoxifen for 5 years.  I often wondered if my chance of recurrence is going to be huge, but my Onc said my chance of recurrence is low.  According to the Onco Type test my chances were about 11%, but since I had chemo that dropped it to about 5%.  Still very, very scared... what scares me is the word aggressive.... still keep thinking it could pop it's head back in again.  Everytime I hear someone had a recurrence I get so scared.  Always ask why does a recurrence occur :(??  So yeah, very scared.  I hope everyone is doing well and praying for all of you and me Smile

    · Share on FacebookShare on Twitter
  • ali68
    ali68 Member Posts: 1,383
    edited May 2012

    I was told I had 37% chance of dying in next ten years, not sure what recur is for first five years. I know my surgeon said the first three years are the worse. I go next Wednesday for my scan to see how well chemo has done then decide on surgery

    · Share on FacebookShare on Twitter
  • lago
    lago Member Posts: 17,186
    edited May 2012

    Believe it or not this study showed "Women who had low-grade, or less aggressive, tumors, actually had a higher risk of late recurrence than women who had higher grade tumors"

    source linky: Breast cancer recurrence seen as low after 5 years

    · Share on FacebookShare on Twitter
  • mumito
    mumito Member Posts: 4,562
    edited May 2012

    I am being constantly monitored my onc is concened about mets.I get routine bone scans. 

    I had an excellent response to chemo and had it before my surgeries. 

    · Share on FacebookShare on Twitter
  • sallyyy
    sallyyy Member Posts: 77
    edited May 2012

    Really i get nervous when i read that drs limit his patient lifes by giving him an expire date that shame ... Noone knows ... Believe me you can die from anything else and not from cancer

    Dx 11/15/2011, IDC, 1cm, Grade 3, 0/12 nodes, HER2+
    · Share on FacebookShare on Twitter
  • Sassa
    Sassa Member Posts: 1,588
    edited May 2012

    Sallyyy,

    I had the same diagnosis as you 5 1/2 years ago.  I did 4AC and 1 year of herceptin.  I did not have radiation as I had a mastectomy and the radiation oncologist that my medical oncology consulted with felt that radiation would not add any benefit in my treatment.  That probably also is the reason you are not being given radiation treatment.

    I am 5 years, 3 months out from the end of AC, 4 years, 3 months out from the end of herceptin and I am NED and feeling healthy and energetic.

    Hang in there, the odds are you will be in my shoes in 5 years.

    · Share on FacebookShare on Twitter
  • lago
    lago Member Posts: 17,186
    edited May 2012

    Sally I forgot to say I didn't get rads either. Usually they do rads for tumors larger than 5cm (like mine) even if you get a MX. I was in a grey area. My rad onc felt with all my treatment is wasn't necessary.

    Radiation to the area only helps reduce local recurrence.

    · Share on FacebookShare on Twitter
  • camillegal
    camillegal Member Posts: 16,882
    edited May 2012

    Sallyy u'r tratment sounds promising for u and u'r team of Drs. seem like they are on top of it.  Don't google just ask u'r questions if u need to. I'm sure everything will be on the right track and soon it will be behind u. Don't get all freaked out just go with it and let the Drs. freak out if they need to, LOL

    · Share on FacebookShare on Twitter
  • sallyyy
    sallyyy Member Posts: 77
    edited May 2012

    sassaa you are so beautifulllll you gave me a power and a hope love you xxxxxx

    · Share on FacebookShare on Twitter
  • msmanuf
    msmanuf Member Posts: 4
    edited May 2012

    Hell-o,

    I am her2+ The Dr. said my number is 6.  What does that mean?  I am scheluled to start chemo on June 5th.

    Thanks

    · Share on FacebookShare on Twitter
  • lago
    lago Member Posts: 17,186
    edited May 2012

    msmanuf it means you are HER2+, no doubt about it. Some people are equivocal and need more testing to be sure but there is not question about your testing.

    · Share on FacebookShare on Twitter
  • sallyyy
    sallyyy Member Posts: 77
    edited May 2012

    Msmanuf may be it means that your score is 6. Mine is nuclear=3 , tubical = 3, mitosis = 2 then total 8/9 ,,, am not sure but what is your grade?

    · Share on FacebookShare on Twitter
  • lago
    lago Member Posts: 17,186
    edited May 2012

    I thought she was referring to her HER2 testing

    · Share on FacebookShare on Twitter
  • sallyyy
    sallyyy Member Posts: 77
    edited May 2012

    Camillehal. Lol yes xx hugs

    · Share on FacebookShare on Twitter
  • msmanuf
    msmanuf Member Posts: 4
    edited May 2012

    I don't know what my grade is.

    · Share on FacebookShare on Twitter
  • msmanuf
    msmanuf Member Posts: 4
    edited May 2012

    My Dr. said that was high.  Anything over a 3 is high.  So, is that what you mean it is HER2+..No doubt?

    · Share on FacebookShare on Twitter

Categories