What is the BEST things to hear??
Ok, I need to know, what is the BEST thing someone who does not have cancer could say to you to support you??
What do you NOT like to hear??
(I do not have cancer, I am at high risk. I am just wondering.)
Thanks and Happy Thursday!!
Breezyanna
Comments
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I liked it best when people would ask me how I was doing in a way that told me they really wanted to hear my honest answer. When dealing with BC patients, listening is a more important skill than talking. I disliked when said that they knew I would be all right. Really? Then they knew something I still do not know. I also disliked when people said they were glad my cancer experience was over now. Once you have had cancer, the experience is never over.
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I think the best thing to do it just listen and let the patient lead the way, in terms of discussion. At times she may want to talk about it, at times not. There were times when I got sick of living in cancerland and wanted to hear what everyone else was doing. The patient may be tired and not want to talk. So think of the conversation as a dance, and follow.
Please don't tell anyone you understand (how can you?), don't tell stories of other patients you know, esp. not stories that end badly (! why do people do this?), or treatment options esp. some alternative treatment your ex-boyfriend's sister's neighbor tried. In terms of being supportive, there is a list somewhere (via google) that offers practical suggestions on how to help a patients, such as making specific offers (can I bring dinner over on Thurs?) vs. the vague "is there anything I can do to help?" (the patient has enough on her mind; don't make her guess what you are willing to do).
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I agree with Peggy; listening is best and letting them lead the topic of discussion.
Also, don't say "if there is anything I can do, just ask." Just do. I had friends make me muffins and drop them off, drop off fruit or brownies (yum!), make meals they can eat or freeze for later, set up a meal calendar (on care calendar) for everyone to sign up while I was on chemo (awesome, since the smell of food cooking wasn't good especially on the day of chemo), giving me gift cards to local take out places for my family, txting me or calling me daily or on the day of treatment txting me on the way or during infusion, several cards through out chemo saying they were thinking of me!, emails. One neighbor and his son stacked our cord of wood that was dropped off in our driveway while we were out one day! That was so awesome! So, just do what you do well! Anything is greatly appreciated! Oh, and don't stay too long if they aren't up for it. We get tired really easily especially during active treatment.
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"I'm here for you. You don't have to do this alone."
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When my fallen-out hair began to grow back in tiny curls (from waist-long hair), I thought I looked old and ridiculous. But my mother LOVED my short hair. She was just dazzled by it, stunned is a good word, and each time I'd see her she would ALWAYS say something about how crazy she was about my hair. Made me feel sooooo good.
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When an acquaintance from my Sunday School class found out about my BMX in June, she didn't just give me the standard sad face and "I'll pray for you.". She immediately asked if it was ok to call my husband and check on me in the days after. She asked what kind of food our family likes. I know that she's a vegan and my daughter is a vegetarian so I told her that Sarah might like some vegetarian dishes and she got all excited about all the vegetarian snacks and food she can bring for Sarah. She then said that she would pray and gave me a hug. I appreciated her so much because it was practical yet compassionate.
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