January 2012 chemo

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  • Jennt28
    Jennt28 Member Posts: 2,021
    edited May 2012

    Thanks Kitchenella... I am hoping it's this cold virus that I've been fighting for three weeks. Not getting up at 6am every morning and driving an hour in rush hour traffic will hopefully make a difference!



    How are you going?



    Jenn

  • KristinFro
    KristinFro Member Posts: 230
    edited May 2012

    Thank you Denise and Jenn. My dad has an appt next week with a urologist, so we'll know more then.



    Off to meet with a plastic surgeon today. Wish me luck. I hear he's really good -- and really handsome lol.

  • Kitchenella
    Kitchenella Member Posts: 279
    edited May 2012

    Mission "TX/HER #8" accomplished.  Went out for lunch/dinner afterwards.  Arrived home at 5 PM and slept like a log for 2 hours.  Holding my breath and praying the lack of serious side effects continues.

    Even though my taste buds are messed up I have a tremendous appetite. Seems like I'm always feeling hungry.  I"m not on steroids so it must be the Taxol or the Herceptin.  I hope its not the Herceptin.   I don't want to be like this for a year. I'm managing not to snack but my portion control for meals is sorely lacking. 

  • PCBarbie66
    PCBarbie66 Member Posts: 84
    edited May 2012

    Kristen - How awful for your Dad and you.

    Jenn - You were scheduled for a Muga Scan after completing Taxol...is that the norm?  I know you said they moved it up three weeks, I was just wondering as my Doc & I never discussed up coming tests...that's tomorrow.  I would really like to know that my heart is OK after all this.

    I'm wondering how long this muscle & joint pain will last after the Taxol and should I be on some vitamins??

    Writing up my list of questions for the Doc now, thought I'd check in real quick..Hugs to all

     Barb

  • annie3310
    annie3310 Member Posts: 111
    edited May 2012

    How is it possible that I feel more fatigued since completing chemo than when I was in the midst of it. I'm 15 days since my last treatment, and while I feel pretty good now, I find that after doing work/chores/errands/whatever in the morning, I'm wiped out. I'm getting my walks in, but so far that hasn't energized me. I'm just wondering if I notice the fatigue more now that I feel better. In other words, feeling chemo sick kind of masked the fatigue. It was all a ball of feeling crappy.

     I know it will get better, but I'm sure I harbored the belief that once I finished chemo, I'd be able to do a lot more than I had been. Patience is not my strong suit.

     Annie 

  • Jennt28
    Jennt28 Member Posts: 2,021
    edited May 2012

    Hi Barb, the MUGA is standard for Her2+ women taking Herceptin. Guidelines are we should be monitored every 3 months while on Herceptin. Taxol isn't known to cause heart problems :-)



    Jenn

  • Kitchenella
    Kitchenella Member Posts: 279
    edited May 2012

    Annie your body was being poisoned  for several weeks.  Give the poor thing more time.

  • Kitchenella
    Kitchenella Member Posts: 279
    edited May 2012

    I'm not sure if it was this board or another one I am on but someone mentioned a salve for itchy watery eyes that worked better than liquid tears. Does anyone know the name of that salve or the active ingredient?

  • PCBarbie66
    PCBarbie66 Member Posts: 84
    edited May 2012

    Jenn-Thanx for the info, I didn't know that..no Pet scan for me either. 

    Well I finished the 12th Taxol today...ahh relaxing and waiting for the pain to kick in Sunday & Monday.  Gonna work tomorrow, to make up for pullling today off, besides I will be Wonder Women all day on the steriods anyway....

    Last 20 minutes pain from infusion started pushing its way through the pain killer, and the Hot blanket machine broke yesterday...no blanky on the last day is just not right!  Now I have a lots of Doctors to make appointments for on Monday and see where that takes me.

    I start Tamoxifen in 4 to 6 weeks...to keep the side effects from being confused with the Taxol side effects.  They printed out my vital stats for me to hang on to, and they were and have been O-K with the 102 Bpm, but if I feel it is too high I should go have that checked out...Knew that would be the answer, but I had too ask.  I go back in 6 weeks to run blood work etc...and hopefully I'll have been on the Tamoxefin for 2 weeks by then, with NO side effects.  Have nausea medicine ready as I may need that for the first few days of the pill or so...we'll see.

    All in all, a good day compared to some, lot's of hug..and my husband let me go there with 2 hanger bumps on the back of my sweater., I didn't see till after I finished the pre testing....just not right!!  Tongue out

  • Jennt28
    Jennt28 Member Posts: 2,021
    edited May 2012

    I hate those hanger bumps! I bought kid sized plastic hangers and hung my jumpers that got those bumps on those. It seems to be working. Every now and then I pull out a jumper I haven't worn for a while that's still on a big hanger and realise it's got the bumps so get out another kid sized hanger.



    Jenn

  • Denise-G
    Denise-G Member Posts: 1,777
    edited May 2012

    PCBarbie66 - CONGRATS on finishing TAXOL!!

  • NCbeachgal
    NCbeachgal Member Posts: 181
    edited May 2012

    PCBarbie-woo hoo-you did it and now it's done! Take care and I hope you can smile through the upcoming pain knowing it's the last time!

  • Momof2inME
    Momof2inME Member Posts: 683
    edited May 2012

    PCBarbie- Congratulations!!! You did it!!!! Hoping your last treatment will be kind to you.

  • Momof2inME
    Momof2inME Member Posts: 683
    edited May 2012

    Hi everyone,

    I have a question for my chemo comrades. I am having #12 taxol this coming week but all of a sudden my face is breaking out like crazy. I haven't had this many pimples since in was 14. And my skin has been exceptionally clear up until a week ago. Anyone seeing a difference in their skin? I think my body knows I am trying to army crawl across this finish line and wants to give me one more insult. At least I see the horizon. Smile I hope eveyone has a wonderful sunny weekend.

  • KristinFro
    KristinFro Member Posts: 230
    edited May 2012

    PCBarbie66 -- Yay! Congrats on finishing!!

  • Janetanned
    Janetanned Member Posts: 532
    edited May 2012

    PCBarbie - YAY!!!! for no more chemo!  Just remember to give yourself plenty of time to recover.  A book I'm reading (After Breast Cancer, Hester Hill Schnipper) says that it will take at least as long as treatment time to begin to feel like your old self.  I've lost track of who is continuing on to radiation. Hopefully, you are one of the lucky ones who can truly begin healing now.  Did you do anything to mark the end of treatment? 

  • rachelvk
    rachelvk Member Posts: 1,411
    edited May 2012

    PCBarbie - Congrats on making it to the finish line! And congrats to everyone else who has finished.

    Annie - It does take time to recover, so don't worry if you're not feeling 'normal' yet. My MO said it takes a good 6 months to start feeling back to normal.

    I figured I'd check in on everyone - I just got overwhelmed with the threads and stuck to the December group. Sounds like everyone's making progress. I'm 7+ weeks pfc. I'd say about 3 weeks ago I felt a big lift in energy and physical condition - at least I no longer had the 'cement legs' feeling. I've made it back to the gym a few times. But I still get tired from even little bursts of energy on occasion. I have some nice peach fuzz coming in as well. Hopefully I'll be able to go topless soon, because the wig is just too sweaty when it's hot outside.

  • NancyHB
    NancyHB Member Posts: 1,512
    edited May 2012

    Barbie:  Congratulations on your final chemo!!  Yea!  Now on to healing...and life!

  • NancyHB
    NancyHB Member Posts: 1,512
    edited May 2012

    A quick (knowing me, probably not) catch-up; it's been a busy week.

    Thank you for your kind words and thoughts re: my son Michael.  He is now on permanent dialysis until a transplant can be found.  It's been an eye-opening experience for all of us, and a humbling one for me.  I realize that my cancer is (hopefully and expectantly) a short-term bump in the road; treatment is hard but doable; and I can see the light at the end of the tunnel.  Michael's life is changed forever; treatment will slowly destroy his body, and even a transplant is no guarantee of health.  It feels so much like what I'm going through, but on a grander scale.  Gosh, how do parents do this?

    Today we are doing the SGK Walk in Kalamazoo.  My DH's daughter and her husband flew in from NY to walk with us, as did her twin sister and her husband, from WI.  And last night, somehow, when my leg gave out from underneath me, I twisted my freaking ankle - and I don't know if I can walk today.  :-(   But I'm going to do what I can - I feel like I have to.  And I want to.  So wish me luck!

  • Kitchenella
    Kitchenella Member Posts: 279
    edited May 2012

    Nancy say "hi" to the Kazoo for me.  I lived near and worked there for 6 years in the early 60's.

  • NancyHB
    NancyHB Member Posts: 1,512
    edited May 2012
    Peggy:  I certainly will!  We love the area, it's a wonderful college town!  I wonder how much it's changed since you lived here?!
  • Janetanned
    Janetanned Member Posts: 532
    edited May 2012

    Good luck, Nancy! I'll be thinking about you today.  I'm so sorry that your son is having such difficulty!  I just can't imagine being in this situation.  You have a lot to deal with right now.  I don't know where you get the strength to keep on going.

    Hi Rachel!  I was also told that it could take at least 6 months to really feel better.  What a year this has been!  I think back to how innocent I was this time last year.  I was having some minor gall bladder trouble and I was worried that I might need surgery.  Little did I know........

    So, I have noticed that my hair/fuzz is growing in on the sides of my head, but the top is taking much longer to show any real growth.  I'm getting a little worried.  Anyone else seeing this pattern?

    Radiation has been going well.  I haven't had any problems yet.  It does take up my evenings, so I don't have much time to read or garden like I would normally do in the evenings.  Oh well, four more weeks and I will be done. really done, except for the five years on an AI.

  • KristinFro
    KristinFro Member Posts: 230
    edited May 2012

    I know I said that going off Taxol and starting AC helped with my treatment acne, but I spoke to soon. My skin is AWFUL. I have huge, painful cystic pimples all over my cheeks, chin and forehead. I've been using 3 different kinds of Clean and Clear twice daily for about 3 weeks now, but it doesn't help. Not only does my face hurt, but it's also embarrassing (I know I shouldn't feel embarrassed, but I do anyway). Is it from the AC or from the steroids? I was on the steroids during Taxol too, but my acne then was a lot less and also on my chest and back. This time it's just my face. Does anyone have any advice? I go in for treatment tomorrow (3 out of 4 AC's) and will ask the nurse, but I have a feeling I'll get the same old answer -- it just happens, deal with it.

  • Denise-G
    Denise-G Member Posts: 1,777
    edited May 2012

    KristinFro - my face was a horrible mess of pimples on Taxol, and had a few on A/C.  NP gave me a script for

    Clindamycin 1% gel - it helped alot right away. 

  • Janetanned
    Janetanned Member Posts: 532
    edited May 2012

    KristenFro - AC really dried my skin and everything else! I developed skin issues, but not to the degree that you are describing.  I had a rash on my arms and hands that was painful.  Once I finished AC tx my skin cleared up. This sounds like something you might want a dermatologist to look at. At least have the nurse take a close look tomorrow.

  • KristinFro
    KristinFro Member Posts: 230
    edited May 2012

    Talked to the oncology nurses this morning. No one has seen acne as bad as mine from treatment. Again, I'm special :) (she says sarcastically). They recommended that I see my dermatologist.  Hubby called to make an appt from the treatment room, and they were amazingly able to get me in this afternoon. Derm gave me the same med, Denise. He talked about giving me an oral antibiotic as well, but didn't want to burden my liver any further right now. I see him again in a month and if the acne is better, we'll just continue on with the gel. If not, he'll give me the antibiotics.

    Today was AC 3 out of 4. I've officially completed 15 chemotherapy treatments. I have ONE more to go. I'll be so glad when this is over, even though I'm reverse of a lot of you and still have surgery to look forward to -- coming up in July.

  • NCbeachgal
    NCbeachgal Member Posts: 181
    edited May 2012

    Kristin-I feel like I'm holding my breath for you until you finish. I can't wait for you (and everyone) to be done. Waiting for that last treatment is almost like waiting for a really crappy Christmas gift. It's just weird to wish for something like that to hurry up already. It'll be the best crappy Christmas ever!

  • NancyHB
    NancyHB Member Posts: 1,512
    edited May 2012

    What a great analogy - the best crappy Christmas ever!!  I'm eagerly anticipating my LAST Taxol chemo this coming Thursday - we're going to make it a celebration, I'm determined, even if I sleep through the whole thing.  I want this part of the journey to be *done*!

  • KristinFro
    KristinFro Member Posts: 230
    edited May 2012

    I LOVE that! Happy crappy Christmas to us all!!

  • Denise-G
    Denise-G Member Posts: 1,777
    edited May 2012

    I will be SO HAPPY when everyone is done with Chemo! 

    KristinFro-I sure hope the gel works for you.  Glad you got the script.  It started working for me within 2 days though I wasn't as bad as you describe.  Keep us posted!

    Nancy - good luck this week!!!

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