June 2012 Mastectomy

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  • Lynn27
    Lynn27 Member Posts: 110
    edited May 2012
    curveball:  Ok, I'm not a doc/nurse/etc, I've just done an awful lot of research.  My mapping is done the day before too because the surgery time is already very long.  The isotope tracer is absorbed by the sentinel node(s).  The techs will use something that looks like an x-ray machine to locate the points of the greatest radiation.  This is the location of the sentinel node(s).  You'll get x-marks-the-spot with marker on your breast/armpit.  The half life of the tracer is very short and so it will degrade before it gets pushed out of the lymph nodes.  It is very likely that you will receive the dye injection the next day before your surgery, which is what I'll have.  The doc wouldn't want to take the risk that your lymph nodes will push the dye out too soon (remember, that's the job of lymph nodes, to push garbage out).  The dye itself isn't used to identify the sentinel node(s), it is just used to make them practical to find in the general area identified by the isotope tracer.  There is an awful lot of similar-looking fat and other tissue to dig through.  Having something indigo blue to look for allows for a much smaller incision.
  • tellie_savalis
    tellie_savalis Member Posts: 121
    edited May 2012

    my3sunz- what kind of horse?  Heck I am impressed, I don't have enough energy to mess with the horses I have right now, let alone get a new one!  Chemo has been a drag! 

    kimkay- I am in the same boat on reconstruction.  My PS wants to wait 6 months after rads Frown.  I think it depends on your PS's prefferences and what you are having done, size, skin sparing, etc.  Definately make a list of questions you have for your PS and ask, also talk to your rad person.  I think it is easier if we have the full info and feel like we have some control.

    Corky

  • 7of9
    7of9 Member Posts: 833
    edited May 2012

    my3sunz42....a horse!?! How wonderful! What kind and do you ride English or Western? My aunt has a Friesian who is a bit of a knucklehead but I'm looking forward to working with him again later this summer. I was told to cut out the barn during chemo :(  as I did hit the ER after my first treatment...but nothing since. Bring on the equestrian new normal! I'm also glad I'll be in the hospital and out between Preakness and Belmont (horse racing).  :)

  • my3sunz42
    my3sunz42 Member Posts: 148
    edited May 2012

    Corky/7of9 - Ya, call me crazy ... I decided to get back into the horse craze as I was going through the diagnosis process. So this is my 1 and only horse ... he's a 1 yr, 3 month old, Gypsey Vanner gelding. This is a relatively new breed to the US - they were discovered in 1996 in the United Kingdom (been there for years). The are known for their calm, loving demeanor (kind of like a Golden Retriever dog - which I have 2 of) and their stamina/endurance (they were used as cart horses & work horses for centuries). They look similar to Clydesdales - however, they are smaller (my boy will be about 14.2 hands at maturity). They have long flowing, double manes, forelocks that completely cover their eyes and run down to the tip of their noses, long tails and feathering beginning at their knees covering their hooves. 

    Hopefully I'll be strong within a few weeks post surgery to get back out & spend time with him - in the meantime my dad has asked me to 'train him' how to work with "Valentino" ... which ought to be interesting ... my Dad is pretty much clueless about horses ... but so sweet of him to offer Smile 

    So awesome to meet you guys! June 11th can't get here fast enough!

    Cheers! 

  • my3sunz42
    my3sunz42 Member Posts: 148
    edited May 2012

    Oh ... and I ride Western ... basic trail riding gal. 

  • tellie_savalis
    tellie_savalis Member Posts: 121
    edited May 2012

    The Vanners are beautiful.  Definately a bit of work unless you are into dreads on your horse! If you can, post pictures.  My icon is my mare, most likely Morab.  She is just work, but I love her.  I worked with a couple of horse rescues for a while and all 3 of ours are rescues (the mare and 2 mustang geldings).  I hope to work with the Mustang TIP program when I get to the other side of this crap. Are you planning on showing?  I had been going to to some endurance rides this year...guess it will be next year.  I ride an english/western hybrid.  My neighbor had been training me in dressage (what a work out) but I like to trail ride.  So I just use what I like from both styles. 

    It is nice to meet everyone as well.  Honestly June 11th scares the crap out of me.  Yeah for June 12th, maybe 14th Wink.

  • 7of9
    7of9 Member Posts: 833
    edited May 2012

    I have already started thinking how 3 weeks from today I'll be HOME from the hospital. I understand there is a new normal waiting for us all but it's got to be better than this sh!!. I love trail riding too...my aunt's horse is nearly blind in one eye (accident) so he's spooky sometimes. Think I may reward myself with a lease for Sept - Oct this year if I can get a good one at the same stable as her...I was ticked I missed Equine Affaire in Columbus this spring after chemo wiped me out the first few days after treatment. Maybe go down for Quarter Horse congress and I'm definitly not missing the big fairs later this summer!

  • my3sunz42
    my3sunz42 Member Posts: 148
    edited May 2012

    Wow! What a small world ... horse people too!! The Vanners are absolutely beautiful ... one of my favorite things about being a horse owner is the grooming side - so I'm up for the battle of the brush :-) 

     Corky - my 1st horse was an Arab - I specifically bought him because I thought I would get into endurance races. Unfortunately, he turned out to be afraid of his own shadow - for example he would leap about 4' over a small puddle of water. Maybe my little Gpsy will be the one for endurance riding!

    7of9 - I think you owe it to yourself to find a nice lease for some awesome Fall riding!!! It can be done - so many kids go off to college & need a little help with board in the Fall months. I too missed the Wisconsin Horse Fair due to vacation ... damn, all the $$ I could have saved reinvesting in all the horse collateral I sold a couple of years ago! Oh well ... a shopping I must go.

     Again, so awesome to meet you gals... 7of9 I'm extremely envious of your date! You'll do great ... just think of all the GREAT times that await you once you get through this 'fun'. Do you have any plans for your "Bye Bye Booby Party"?? As a mom of 3 teenage boys, I told my husband & boys we are going to Hooters - I want a tank top for the new set :-)

    Cheers! 

  • annievan
    annievan Member Posts: 92
    edited May 2012

    Hello June friends --

     It's so nice to have a forum to chat with folks playing the same waiting game. . .

    Loriio -- thanks for the heads-up about the pectoral muscles and TE expanders. . .  I've really not known what would be the best thing to do to prepare.  Called the PS's nurse who said all the workouts are great, BUT to discontinue anything involving pectoral muscles and latissimus muscles for about a week prior to surgery, just to let them heal and rest before surgery.  Unfortunately, there's nothing really to be done in advance (other than stretching) that can prepare the area or make the placement of TE expanders any easier.

    Then, she hit me with this - - and here's where I'm going to sound like a big whiner.  Tellie and KimKay - I know you're already in this boat.  My plastic surgeon has just been placed on complete bed rest for her pregnancy (20 wks along) and they are rescheduling surgeries until late October at the very earliest.  Obviously, people with immediate need will be referred to another surgeon.  I have a call in to my BS to find out what's going on, but I just really don't know what to think at this point.  After umpteem appts with surgeons this spring, to arrive at decision of which surgeon, which procedure, whether to do this, and finally setting the surgery date. . . I was hoping for a little breather for the lead up to the surgery. . . certainly not looking FORWARD to it, but finally at a little peace with the decision.  Obviously, I don't blame this young woman. . . she needs to take care of her baby and her health, but ugh - - what to do, what to do? 

    You ladies are all so positive and wonderful - - and those of you dealing with the chemo and radiation are already handling so much - - I'm sorry to sound like such a whiner.  Hope I can stay hanging out with the June ladies and all get this behind us together!

  • loriio
    loriio Member Posts: 247
    edited May 2012

    I took my daughter to the orthodontist this afternoon and like usual, she needs to go back in 6 weeks for tightening.  6 weeks from today is June 26th-my surgery date.  Freaked me out a little bit.  It seems so far off, but is really just around the corner.

     Continued best wishes to those finishing up chemo.  My prayers are with all of you!

    Lori 

  • faithhopenluv
    faithhopenluv Member Posts: 323
    edited May 2012

    Getting ready!  I just put in my PTO - I am hoping to be off for 2 weeks and then work from home for 2.  I can change it if I have to, I just can't wrap my head around not working for 4 weeks.  My work has been really great, my boss refused to accept my PTO for my chemo days and I've worked from home the day after Txs.  How much time off is everyone else anticipating?

  • my3sunz42
    my3sunz42 Member Posts: 148
    edited May 2012

    faithhopenl - I'm already on leave ... since I didn't know how quickly I'd get into surgery and what to expect, I began leave right after my diagnosis. I plan on remaining on leave for at least 3-4 weeks (depending on add'l treatments needed). 

  • curveball
    curveball Member Posts: 3,040
    edited May 2012

    I told my boss and his boss a shortly after I was diagnosed that I wanted to work part time from home until surgery. But what with one thing and another I am still going in to work and don't yet have the remote access software installed that will enable me to access the network while I am away from the office. I am hoping that will be done by the end of this week, because I have a bunch of loose ends to tie up before surgery that I will never get done if I go in to work every day.I haven't told anyone else in my office yet but one person overheard part of the arrangements for telecommuting and guessed most so I told her the rest. But in a way the delay is a good thing because I don't have enough vacation time to have stretched from when I got diagnosed until June. I have a ton of sick leave, but I can't use that for the errands and stuff I need to get done before surgery.

    Now that I have a surgery date of 6/6, I have put "out of the office" on my Outlook calendar from the 4th thru the 19th and told boss's boss that I would be unavailable during that time, because I don't expect to be able to drive nor to be recovered enough to take the bus in to the office.

  • glendag
    glendag Member Posts: 53
    edited May 2012

    KimKay, have you also connected with your plastic surgeon?  I believe that sometimes they will place the TE and then deflate it for rads.  Not sure if the BS would do this or would have to coordinate with the PS during the surgery.  Is there a nurse or PA you can contact?

    Good luck with your upcoming surgery!

  • 7of9
    7of9 Member Posts: 833
    edited May 2012

    Time flies...tomorrow is my pre-opt visit with nurses, doctors, blood work (that should be interesting, last chemo last thursday so I'll be low across the board) and chest xray. Its a little early since it's VACATION time on friday! Yeah! Looking forward to my bottle of ativan and surgery the following week I come back. In some ways I'm scared how fast it's coming...in others, now that last chemo is done, I want these boobs off of me fast before it comes back/starts growing again!!!!

  • annievan
    annievan Member Posts: 92
    edited May 2012

    Good luck, 7of9, with your pre-op, and HAVE a GREAT VACATION!  Wishing you lots of peace, relaxation and laughter!

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited May 2012

    Hello, June Sisters!

    Just popping in here with a load of good wishes for all of you.

    I was dx'd last September, and after being rescheduled twice, had my BMX w/ TEs on December 5th, 2011.

    I remember the anxiety leading up to my surgery.....what would they find? How would I cope? How "disabled" would I be when I got home from the hospital?

    Please believe me that the anticipation is WAAAY worse than the reality!

    I remember reading (as I was waiting) where someone posted that they just wanted all of this to be a bump in the road in their rear-view mirror. I'm not quite there yet, but soon!!!

    I'm in the process of losing weight, so have postponed my exchange surgery til the fall. In the meantime, I'm feeling good. I surprised DH after surgery when I became so much more independent sooner than we had expected.

    Distraction now is good. Stay away from Dr. Google. Sometimes he's a big fat liar. Find something you love to do and stay busy.

    Sending up big prayers for all of you, for successful procedures, and quick recoveries, and good healing!

  • 7of9
    7of9 Member Posts: 833
    edited May 2012

    Blessings...thank you so much for the reminder about Dr. Google...he's a quack at best especially late at night...glad you are doing well and keep it up (or down as you are loosing weight). :)

  • faithhopenluv
    faithhopenluv Member Posts: 323
    edited May 2012

    Ahhhh blessings, thank you once again :). Blessings was on the december surgery thread when I was going through my lumpectomy. I am so grateful for sharing their experiences.

  • 7of9
    7of9 Member Posts: 833
    edited May 2012

    mmmm by by bb party/sendoff? The Hooters shirt is a great call. I think I'll get one of those "yeah, they're fake! The real ones tried to KILL ME" tshirts...of course will need my first few fills to make sense...also a Start Trek halloween outfit for sure. Those women all have gravitiy defying breasts...my turn!

  • loriio
    loriio Member Posts: 247
    edited May 2012

    My friends are taking me out for margaritas the week before. We are calling it "Adios Amigas". Since I'm currently a double a I thought that was a good name. Yes I know. It's amazing that something so small could cause so many problems ; ).

    My daughter has named my future boobs "bafoobies". She got the name from a tv show. We are trying to find laughter wherever we can.

  • rosetx
    rosetx Member Posts: 121
    edited May 2012

    Scheduled June 5 for PBMX with TE after years of lumpectomies, fibroadenomas, cysts, calcifications, extremely dense tissue, needle biopsies, precancerous cells etc.  Family history of Mother (2x), sister (deceased), 3 first cousins and 1 2nd cousin. 

  • annievan
    annievan Member Posts: 92
    edited May 2012

    Love the "Adios Amigas" Margarita Party, Lori - - - Yes, it's good to find some laughter wherever you can in this. . . particularly as the days wind down. 

    We have plans for a Ta Ta TATAs outing  - going to outdoor Earth, Wind and Fire concert (and maybe have a few margaritas?) with friends couple nights before. . .
    Now the TATAs sendoff might be on hold, as the plastic surgeon part of my PBMX team can't do the surgery -- - -
    Rosetx -- Welcome to the June sisters site --  I'm sorry about loss of your sister and all BC in your fam.  If you don't mind me asking. . . what was your diagnosis that kept leading to biopsies, etc.?  Wishing you all the best on the 5th, now that you've made the PBMX decision.
    Blessings - - You mentioned that your surgery was rescheduled twice from last summer to Dec. - - - How did you stand it?!  Mine is being posponed (or I have to go thru the plastic surgeon search/selection process again (ugh), and I'm really bummed.  Don't know whether my anxiety is fear of the waiting and what might happen. . . or just wanting so much to have it be in the rear-view mirror.  Anyway, you sound great and amazing - - thanks for the positive thougts to all the June ladies!
    7of9 - - How did your pre-op go?   Hope you're vacation is off to a fantastic start  - - - Enjoy yourself, and throw cares to the wind! 
  • annievan
    annievan Member Posts: 92
    edited May 2012

    Good grief, girls - - Don't know what that "address" business is in my post - - guess my computer is freaking out - - -sorry!

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited May 2012

    Hi, annievan!

    I was dx'd on September 15th, and my first surgery date was October 31st - Halloween! I really didn't want to wake up and find a witch or a clown taking my blood pressure, and fortunately, there was a scheduling problem. My BS and my PS both needed to be in the OR at the same time, and one of them had a conflict.

    So they changed it to November 8th. On November 3rd, I went into the Apple store to buy an iPad, and the teenage clerk sniffled and sneezed and coughed on me the whole time. Three days later I was sick as a dog, and it went into bronchial asthma with suspected pneumonia. I tried to tell my docs that it was just a cold, but they all refused to do surgery.

    So I got rescheduled to December 5th. From early November to the day I checked into the hospital, I didn't leave the house except for doctor visits, and then I wore a surgical mask. DH and I wiped everything down with Clorox wipes, and sprayed the soles of our shoes with Lysol before we entered the house. I was a crazy woman!

    I just knew that had I had my surgery in November, my nodes would have been clear, but waiting another month would mean that the cancer had spread...not to mention the fact that I'd had a core-needle biopsy, and I imagined that was like popping a balloon.....and the cancer was now spreading all over my body!!!

    Fortunately, the Breast Care Coordinator talked me down from the ledge....Undecided she told me that it didn't work that way. And as it ended up, there was NO invasive cancer found in my final path report - they said the biopsy had gotten it all! (And the lymph nodes were still clear....)

    We were in the middle of redecorating our house at the time. New paint, new carpeting, and everything packed up in boxes. I was happy for the distraction. All I wanted was for my surgery to be over, and suddenly, there I was - done, home again, and looking forward to recovery!

  • loriio
    loriio Member Posts: 247
    edited May 2012

    Annievan,

    When will you know for sure about your surgery? Have you met with your BS since hearing about the PS? Keep us updated. We want to keep up with you no matter when your surgery is!

    Lori

  • LAstar
    LAstar Member Posts: 1,574
    edited May 2012

    Hi, fellow lucky ladies!  I'm having BMX and hip flap reconstruction in NOLA on June 19.  Still can't believe it.  Any of it.  But I felt strangely peaceful after I made my appt for surgery yesterday.  

    Thanks for your insights, Blessings!  It makes a world of difference to hear positive thoughts from the other side of this.  

  • keonghi
    keonghi Member Posts: 111
    edited May 2012

    @kimkay I had a BMX on April 9th and TEs put in (filled 60cc).  I have to do rads to my chest after my next surgery (lymphectomy) and the PS said they wont get in the way.  But, he also said that he may not be able to fill the one on the right (where I am getting my rads) because the rads changes the skin (kills it actually).  So, he will continue with the left as planned but we may have to take out the TE on the right and do a DIEP.  Long story short, rads will affect the TE fill process so best to wait until after rads to get them done (cancer on my right was a surprise found after surgery pathology came out so they didn't know going into BMX surgery that I would needs rads later).

  • tellie_savalis
    tellie_savalis Member Posts: 121
    edited May 2012

    lastar- Hello in Oregon.  I am up by McMinnville. Why are you going all the way to NOLA? 

  • bevg49
    bevg49 Member Posts: 739
    edited May 2012

    Hi to all...... I'm another June girl. Scheduled for June 7 - scared to death. I have spent too much time on Dr. Google. Saw a terrible picture of TE recon which is what I'm having.... Also read that the prognosis for Type II diabetics is poor. I am staying off all sites but this one and my PS's site where the pics are beautiful. I'm just having the right side done. Don't know if this is a mistake but it appears the other side is clean for now. At 62 with several health issues (diabetes, COPD, stent in coronary artery), I just felt I wasn't up for doing both sides. I wish I wasn't in this club but I have to say, what a nice bunch of ladies in it with me.

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