April/May 2012 Chemo hang out

Sandik--so glad you mentioned the smell of the sheets. I think that smell of my body, pee, vaginal discharge, mouth/breath, the oozing chemo smell contributed greatly to my nausea. It's such a disgusting smell. I thought it was my own weirdness and sensitivity.

I must have caught it in time then. 

krazy,

haha you are not weird.

I am feeling much better today! Yay!   

LuvBngGma, I also had that feeling of a pain in the center of my chest like a poking effect that would radiate between my shoulder blades in my back. I had a CT scan and all they could see was the catheter from the port. When I went to see my BS the next day she said that the catheter is in a vein or artery that is much bigger than it is, so I should not be feeling anything. She sent me to an internal doctor because she said the pain is a result of panic attacks. My internist put me on lexapro and I haven't felt anything since. Our minds can play tricks on us and just the fact that we know something is where it should not be we can convince ourselves that we feel a pain or twinge that truly is not there. Being diagnosed with bc is the hardest thing I have ever dealt with and the txs can be very scary. I am sure it is nothing try to relax and take a deep breath. If you still feel something, call your BS.

Had my 3rd round of AC yesterday. Surprisingly, I've only had a tad bit of queasiness which is nothing compared to what I went through the first two times. My infusion nurse decided to give me Zofran this time along with the Decadron and Emend. So far so good.



I also mentioned the discoloration of my nails and she simply confirmed that they were a SE of the chemo. She also said they were fine and that I was in serious need of a fill-in!! lol



Wishing you all very mild SE and a wonderful weekend

Good morning!

I loved the Look Good Feel Better workshop that I went to the other night! I got an afgan and a scarf that people had made for cancer patients. I was so impressed with the "cut a T-shirt up" idea for a head wrap! I came home and cut one of my t-shirts up. My husband thought it was a really cool thing! I have cut out caffeine ever since my first Chemo treatment on the 3rd of May. I don't know, for some reason I have no desire to drink sodas anymore(I was addicted to Pepsi big time before Chemo) and I don't drink Caffeine Sweet Tea from Mc Donald's anymore either. I love the Green Tea. It's funny that the things that I used to LOVE (food wise), I could care less about anymore. I only had to have 2 shots of Nuprogen. I went back to the Oncologist yesterday and my white blood cell count had gotten down to 3400 before the 2 shots and now it's up to 6200! YAY!! My next Chemo treatment is on the 25th.

I can't remember who it was that shared the 1 cup water, 1/4 tsp. salt and 1/4 tsp. baking soda mixture to rinse my mouth out everytime after I eat was, but I want to say a very special THANK YOU!!!!!!!!!! I have not had any problems since I started that! I had a very white sore tongue before I started that and the next day my tongue was back to normal!!! I shared that with the other women at the Look Good Feel Better workshop the other night.

Hope ya'll have a great saturday!! 

7donatela81, that would be me.  After the first TCH, I ran a low grade fever (always in the 99's) for about 11 days straight.  This 2nd TCH, I've run one off and on for the last two weeks.  In fact, I am now day 18 post my 2nd TCH and again developed another fever last night and still have it today.  They've run bloodwork, cultures, urinalysis - no infection found.  In fact, I think I'm getting thrush again. 

I understand it is typical to run a low grade fever - in fact it can occur with Herceptin, Neupogen/Neulasta, too.  

Even so, I think it is unusual to run it as long as I have.  I hope yours goes away soon!  

Sade, I am curious - does your name rhyme with "Sadie" or "Sharday", like the singer?



So far, my tx#2 has been a lot like tx#1 - just the steroid crash on day 5 with the major fatigue and depression was the worst. On the upswing since - every day better. Getting the blisters again on the roof of my mouth (like when you burn your mouth on something hot) and probably the tongue sores again, so hopefully the baking soda/salt rinse keeps them from getting really bad. It also helps the burning/sore throat a lot, too.



It is rainy here (best kind - no wind, no lightning). I'm going to take my umbrella and go for a walk - lol, don't have to worry about my hair falling flat in the damp!



Hugs and purple energy to everyone!

Lisette:  Welcome to the board!

 vballmom:  Happy Aniversary

So glad my kids are visiting!  Tx2 was thursday, Neulasta yesterday, and so far so good.  Just waiting for s?!X to hit the fan!  

I am trying an oral rinse my sister (she's a radiation therapist) gave me--it's called MU Gard.  She got a sample bottle.  So far, so good.  You put it on 4-6 times a day, and it's like a gel.  I may have my doc call in the the script.  You can google it up. MY RO had never heard of it.  If you go to the website, it says it reduces mouthsores, by at least 60%, I think (it's been a while since I have read it).  My appetite seems to be a little better this round...Don't know why.  Not eating a lot, but eating....

It is 89 degrees here in sunny Peoria iL.  There is an ozone alert for the first time ever here.  Staying cool inside the house.  At least I don't have to put that hot wig on! 

Hope everyone is having a wonderful weekend with minimal side effects!!!! 

Welcome new gals to this thread!!!  The more, the merrier!!! 

It's my son's high school graduation on Sunday and I'm the lucky one missing it since it is going to be held outside in the Houston heat and humidity!!!! I feel so sorry for him since he has to wear the cap/ gown, long sleeve shirt, tie, slacks and dress shoes and also for my family.  He and I have taken plenty of grad pics already  before I started the hair fall out. 

Happy Anniversary Vballmom!!!!    Enjoy your DH and your special evening!!!!

Nap time and snack time!!!!!  What's your favorite snack ???

Thank you, I'll grab some later tonight at the store and give it a whirl!!!

LuvBngGma, yes just take whatever meds they give you. There is no reason to suffer! We suffer enough with the txs. I just had my second tx, and i am on the upswing now. I took myself off the lexapro because i felt better, boy was that a mistake! I spent 4 days last week very depressed, i called my Dr and she told me to start taking them again, chemo can cause depression. So please if you feel like you need some help ask for it. There is nothing wrong with needing help. Hope I helped you, even if a little.

Hi Lisette- I thought I recognized you from the March mastectomy thread! Welcome -lots of good info here.