Bottle 'o Tamoxifen

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  • June2268
    June2268 Member Posts: 1,202
    edited May 2012

    Bring on the pocket parties Jo and JoJo.....I will be there and JoJo you make me laugh about the legal drug....

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  • Paula66
    Paula66 Member Posts: 1,728
    edited May 2012

    Jo and JOJO I will be there with bells on.  I will also make the ultmate sacrifice and scour the www for some man candy!!! 

    Junie I know that you are not feeling very good this weekend, so (as much as this pains me) I will not hit you with pillows, NOT, HEE HEE WWWWWWWWWhack!!!

    alowen sounds like your getting a plan together.  You will find that once you do, things will start to fall into place for you!

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  • tinkertude
    tinkertude Member Posts: 2,047
    edited May 2012

    Shari I am so very sorry to hear about your dad! Yu have been through so much.No wonder you are feeling like that! praying for all good results so you can breath .. sending you great big hugs!!!!!!!

    Jo and JOJO you know it ladies we will be in your pockets causing all sorts of trouble :)

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  • jo1955
    jo1955 Member Posts: 8,543
    edited May 2012

    Paula - I knew I could count on you, You are the best!!!!!!!!!!!!!!

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  • sweetie2040
    sweetie2040 Member Posts: 817
    edited May 2012

    Alowen and ladies,- just got back from the gyno office. She confirmed that it sounds like the Tamox could be the culprit for the issues I'm having. She also thinks I have a fibroid and is ording an ultrasound. She mentioned that if the lining of the uterus is thick and I have fibroids she would probably recommend a hysterecomy. REALLY NOW!! This stuff just isn't making sense to me. I thought most women got fibroids because of the estrogen and when they are menopausa they shrinkl. If that's not needed she talked about some other procedures in the office and or D&C.

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  • 1openheart
    1openheart Member Posts: 765
    edited May 2012

    sweetie...from what I understand....the tamoxifen acts like estrogen on the uterus and bones.  That is why the uterine lining can grow when we use tamoxifen and why there is an increased risk for uterine cancer.  So, yes, fibroid growth could be from the tamoxifen. She might want to do a uterine ablation or a D&C to reduce the lining if you don't need a hysterectomy.  Good luck

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  • jo1955
    jo1955 Member Posts: 8,543
    edited May 2012

    sweetie - Fibroids don't necessarily shrink after menopause.  Last year when I went for my annual pap, I insisted on having a transvaginal ultrasound done.  It showed a 1.5 cm fibroid and a very thick uterus. My GYN did a hysteroscopy (biopsy) and a D & C. This is a simple outpatient surgery and when I got home I felt like I had wasted a day at the hospital.  I felt great, no bleeding, no pain meds needed.  The fibroid was B9 and is still there.  No need to remove it unless it gives me problems.  A hysterectomy may be a bit of overkill.  Talk to your GYN and see if this would be an option for you.

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  • alowen2
    alowen2 Member Posts: 18
    edited May 2012

    Sweetie, I agree with Jo.  The hysterectomy may be overkill.  I have heard that the tamox acts like estrogen on the uterus.  Premenopausal often have fibroids.  I have them and have opted to hang on to my uterus.  Like Jo, I had the ultrasound and the fibroids are benign.  Taking tamox could increase the symptoms of the fibroids and that is likely what is happening.  But there are so many alternatives today to yanking out the uterus.  I have just waited it out.  At the point I am at now, my periods are less and so not as heavy of bleeding or as often.  The d and c, or ablation are good options I hear, though, again, I've not had any of that done as I was willing to just wait it out.  Thanks for giving me a heads up that this issue may arise with whatever therapies I go into next.  Good luck on the ultrasound and keep us posted.  I'd say chances are very good it is benign and if that is the case, the office options are good and even those don't have to be taken, they are usually done to alleviate the discomfort of heavy bleeding and other symptoms.  Questions to ask if you get to that point are: will this option alleviate my symptoms?  Yours are bloating, etc. and you need to look at whether the symptoms will be alleviated by the procedure.  Also, whether the symptoms are temporary.  Another note: may try plant based, whole food diet.  Many symptoms of mine were taken out by that.

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  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited May 2012

    heartsnsoul, I have been off tamoxifen for almost 10 weeks, and am still having lots of pain issues. I think some of us just have a prolonged reaction to chemo, cancer, surgery, med SEs. Some days I am able to "just BE" with the pain, other days I am angry, some days I just need to take the damned pain pill and feel better, some days more rest is helpful. I actually teach an elective for pharmacy students on pain management, and it is very interesting to read all the literature, what is known and what is not known. We DON'T know a WHOLE LOT MORE than we DO know!!!!!



    Have read posts, thinking of all you lovely wonderful women and hoping for a good weekend. Fingers bothering me a lot so am not typing much, but wanted you to know I am hanging in there for pocket parties for Jo and anyone else who needs me next week!

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  • Galsal
    Galsal Member Posts: 1,886
    edited May 2012

    Am I missing something?  Does T interfere with our healing?  On 5/8 I had two small skin biopsies done.  I would have expected them to be pretty well healed by now.  One on top of the foot and the other on the back of the thigh a bit above the knee.  They're still rather sensitive.  It's not that they didn't get a layer of sealing themselves in.  Just today I've had to put bandaids back on them although initially that was only for a few days.

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  • Paula66
    Paula66 Member Posts: 1,728
    edited May 2012

    Linda I hear you and get you on the good and bad days.  Somedays I'm so glad I did do chemo/tammo.  I also have days that I just want to spit nails at this whole cancer treatment thing.  I know my kiddos are older, but we still roughhouse sometimes.  Well I went to go block a shot coming at me and my daughter whacked my arm a good one.  I felt it clear down to my bone.  It really hurt bad.  Never had that problem before.  We all could roughouse with no problem, that is until BC.  I got rather upset about it to the point of I started crying because I wanted the old life back.  Not none of this sissy crap, where I got my licks and could dish them out too!.

    Galsal I have noticed that it takes me longer to heal compared to before BC.

    Have a great night all.  I will be posting back later with some weekend eyecandy!

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  • Galsal
    Galsal Member Posts: 1,886
    edited May 2012

    thanks, Paula.  ooooh, eye candy?  nice!

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  • momx3
    momx3 Member Posts: 161
    edited May 2012

    Hi All, 

    Jo, I am soooo glad you are getting rid of that extra appendage!!!

    Sweetie, I went through the same thing after I started Tamox. After ultrasounds, uterine biopsy, a few not so permanent options, I went with the hysterectomy. Between all my doctors, it was decided because of the ER+ BC, that was the best option, and truthfully, out of the whole surgery episode, the easiest of the 3 (BMX, expanders and hyster), the hysterectomy. I hope that you get good results from your ultra sound and it can be taken care of simply!!!

    It's Friday night and I'm ready for a weekend kickstart!!!!  WHACK on Jo!!!!!

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  • Paula66
    Paula66 Member Posts: 1,728
    edited May 2012

      To bad he won't show us what he is lookn at!!

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  • 1openheart
    1openheart Member Posts: 765
    edited May 2012

    Girls.....what do you think he is looking at in there?  He looks confused!

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  • jo1955
    jo1955 Member Posts: 8,543
    edited May 2012

    momx3 - Ouch!  On the whack.  No whacks yet please.  Still have my little friend and it is painful right now. 

    I will volunteer to help him figure it out!  Paula, Paula, what eye candy you come up with - you are the best. Can't wait to see what you have in store on Monday for me. 

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  • tinkertude
    tinkertude Member Posts: 2,047
    edited May 2012

    whaaaaaackadoodle ladies!!!

    oh yes.... lets help the poor guy figure things out... shall we????? lol

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  • Paula66
    Paula66 Member Posts: 1,728
    edited May 2012

    WhackKKKKKKKKKKKK to you Tink!!!

    Jo you will have some good man candy for sure!

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  • joanneasiata
    joanneasiata Member Posts: 719
    edited May 2012

    Can we bring him to our pocket party's and we can all help him work out what's really done there and how it works hehehe

    I'm also a big softy after all my treatment that's why if I ever join in on the pillow fights it has to be gentle or I'll start to cry my cuts take longer to heal ,I bruise really easy, I also cry really easy especially with the help of booze cause I'm not really a drinker, I ache always, hands and feel feel like there hundreds of years old , ooohh I carnt wait for all theses up and comming partys

    Princess jojo

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  • Paula66
    Paula66 Member Posts: 1,728
    edited May 2012

    JoJo are you sure your not discribing my life, minus the booze, lol!

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  • joanneasiata
    joanneasiata Member Posts: 719
    edited May 2012

    Lol I'm seriously thinking of taking some time out from this relationship I'm having with tamoxifen may be just 2 week break just to give my body a break

    What do you ladies think but I'll keep it our secret and don't tell my onco cause he's a bit of a stiffy

    Jojo

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  • bgirl
    bgirl Member Posts: 538
    edited May 2012

    Yes to the healing more slowly.  Have a problem with my SI joint, last flair took 3 months to heal this time (after T) it is 5 1/2 months and counting.  Every old injury seems to be popping up again too.  When did I get to be so old.

    Only 3 hrs of sleep last night.  Got 5 the 2 nights before by taking sleeping pill, but doctor says not to take them all the time.  Can get about the same most nights without - don't seem to work well for me.  I hate T this morning (and last night too).  Feel bad because I hated my husband, not for snoring, but because he was sleeping.  He works so hard he really needs it (off to work at 6 am this morning) but I was so jealous.

    Going to my parents this weekend (about 2 hrs away).  Will be busy because they live in cottage country and it is a holiday weekend here.  Think I better let someone else drive.  Having bday dinner tonight for my mom/daughter.

    The eye candy was a nice pick-me-up this morning.

    Fingers crossed for you on Monday Jo.

    Here is to us all feeling better soon.  Hope you all have a good weekend

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  • jo1955
    jo1955 Member Posts: 8,543
    edited May 2012

    Paula - I think JoJo is describing all of our lives - with or without the booze.

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  • momx3
    momx3 Member Posts: 161
    edited May 2012

    Jo, it was a GENTLE whack!!!! I wanted you to feel invovled :D

    I'm going to have to hide this eye candy from my daughter!!!! LOL She want to marry a military man :D

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  • jo1955
    jo1955 Member Posts: 8,543
    edited May 2012

    momx3 - Thanks!  Just wait until next weekend.  I will be back with bells on.

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  • momx3
    momx3 Member Posts: 161
    edited May 2012

    Oh NO!!! Paybacks!!! LOL

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  • tinkertude
    tinkertude Member Posts: 2,047
    edited May 2012

    uh oh! yes paybacks are rough... but bring it on sista!!!!!! lol

    yes too true that does describe our lives in a nutshell!!!

    JoJo I think you have to listen to your body. 2 weeks the Tamoxifen is still in your system so you would still be covered, so maybe a little break would help. I know when I had to come off of it a few times surgery and se and tooks breaks what helped me going back on was goig back on it slowly. I would do 5mg for a week then 10mg for a weeek then 15 mg for a week and then split the 10mg into am and pm doses.. that actually did help quite a bit. The ones I have now as far as se I think will be with me the whole time... so I am trying my best to go with it although some days I do think there is no way I am going to go another 3 and half years ont his stuff and other sayd I am just reseigned to it. Whatever you decide we are here!!! hugs

    Going to a very dear friends daughters wedding today... so heading out soon

    Hope you all have a wonderful Saturday and just for good measure.... whaaaaaaacccckkkkk!!!!

    HUgs

    Maria

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  • jo1955
    jo1955 Member Posts: 8,543
    edited May 2012

    momx3 - Just remember what they say about paybacks........  I will let your imagination take over now - LOL!

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  • June2268
    June2268 Member Posts: 1,202
    edited May 2012

    Paula I must say he is my favorite.......ooohhh la la

    Guess what time it is......WHAAAACKKKK a doodle doooooo - minus my Jo, I will catch you later and you know it will be good.....

    Busy busy day today and tomorrow the same, so I will check in tomorrow night.....

    Hugs ladies

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  • momx3
    momx3 Member Posts: 161
    edited May 2012

    Nighty Nighty!!!!

    Gonna plant my 50% off from Lowes tomorrow :) YAH!!!!

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