Just Diagnosed with a Recurrence that has Metastasis to my bones

suzieq414
suzieq414 Member Posts: 2
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis

Hello! I'm new here. I'm generally a joker but right now.. I'm so afraid.

February I had a "break" in my left femur and found out my breast cancer from 2006 had come back. I jokingly tell people my cancer is a "repeat offender". I just finished 15 rounds of radiation to my left femur and right hip. I get Foslodex and Zometa.

The first Onc. told me I had 3 months and was incurable.I knew this was wrong. I felt to good and my cancer is only in my bones. I have no major organ involvement. I went home, online and found a local cancer center at a large hospital that has a Breast Cancer and advanced cancer center. They were and are wonderful to me.I call them my "one stop" treatment center because everything and everyone who treats me are right there. No going from one location to another like my first time in 2006.

My problem is my FEAR. I know my bones are ok right now because my onc/radiologist and orthopedist took x rays on 4/25 but every little ache or pain terrifies me.  I don't know anyone with my diagnosis and I feel so lost. I don't know whats normal and whats not. I do ask questions at the doctors office but I would really like to talk to some one on my "side of the fence".

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Comments

  • Chickadee
    Chickadee Member Posts: 4,467
    edited May 2012

    So sorry that you are joining us but please do post in the Stage IV forum and we will be there for you. Lots of bone metsers who are hanging in for years.

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  • CoolBreeze
    CoolBreeze Member Posts: 4,668
    edited May 2012

    Good for you for getting rid of that first doctor. Three months?  That's unbelievable that he would say that.  You'd have to have mets everywhere to have three months, what an idiot.

    I agree with chickadee, as usual.  Those of us on Stage IV can help you.  I have liver mets but there are lots of bone metsters.  

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  • stellaratovsky
    stellaratovsky Member Posts: 618
    edited May 2012

    When a doctor gives you a time frame thats when its time find a new doctor.  I was just diagnosed with bone mets.  I was almost 3 years clean from my first breast cancer.  I just got my port removed in november.  I am lost for words I dont stop crying.  This is all new to me.  I am a 40 year old mom of 2 boys one is 6 and the other is 15.  I understand that this horrible disease is not curable but it is treatable.  I will fight this monster with every option until I can't fight no more.  I promised my boys that I would see them graduate and get married.  I have to keep my word.  So as long there is medicine and my body could take it I will fight.  I will not let this monster get the best of me.  I am not the one to preach but the best approch is a good attitute.  I changed my ways about my diet I am trying to live on veggies and fish.  I can't have fruit because I also have type 2 deibetic.  I have been eating right for the past 3 weeks my diebetis is under control.  That one less problem as soon as I found out my hip is ok I will start walking.  I know these things dont cure this monster but if I stay as healthy as I can maybe the meds will coraporate too.  My onc said he will do his part but I have to do my part and listen and do everything he tells me.  He said that I dont have an experation date stamped on my forhead.  Yes this will be a tough but there is so much treatment out there that we could be hear for a very long time.  It does not matter what age we are we all deserve to live.  We are warriors.  Women could handle alot of things.  I know cancer is chronic but lets think like this asma, diebetic, high blood pressure, heart diffects.  They are all chronic disease.  We have to love ourself and stay as healthy as possible and leave the rest to our doctors.  Oh and try to stay away from sugar from what i hear this monster loves it.  its his favorite.  I was told by 2 doctors.  Hopefully he wont have anything to feed on he will disappear.  (I hope).  Love and hug and we are all in this together.

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