Breast MRI - anyone else have a miserable experience?

Options
25weeks
25weeks Member Posts: 76
edited August 2019 in Just Diagnosed

After being diagnosed last week, I had my first breast MRI this morning, and I have to say, that was one of the most miserable experiences I've ever had.  I was so uncomfortable with so much body weight being supported by my forehead and my ribcage just below my breasts.  Then to have my arms outstretched above my head with the IV in my arm.  My shoulders were burning and my elbows were sore from reasting on the metal of the MRI.  All I could think was please let this be over, please let this be over.  The technician said I moved a bit, so there is some streaking in my films, so I just hope I don't have to endure it again anytime soon.

I just needed to vent.  Surely I'm not the only one who found the experience so uncomfortable.

<sigh>

Tricia

Comments

  • Chris13
    Chris13 Member Posts: 254
    edited May 2012

    Hi, The MRIs are not a walk in the woods. My first one, MRI-assisted biopsy, left me with increased tinnitus. I knew they are loud, but didn't prepare for the jack hammer noise. They only gave me cheesy earplugs...no earphones.

     My 2nd MRI, at another facility, was fine. Admitedly it was a bit shorter, but I made such a stink about hearing loss, they were very helpful with the issue. I believe earphones, as they provided, are considered the norm. Now I'm stuck with permanent, increased tinnitus. Hiss, hiss. 

  • 25weeks
    25weeks Member Posts: 76
    edited May 2012

    My earplugs did a decent job for me, thankfully.  Sorry your ears were bothered so much.  I couldn't get past the overall discomfort.  I was hoping to be able to relax, but that stomach position just sucks so much! :P

  • Lovegolf
    Lovegolf Member Posts: 513
    edited May 2012

    Yeah I got BAD headache after mine. Friend of mine told me how it would be so I closed my and walked every golf course I knew in my head so I would not thnk about where I really was. I now tell folks plan a trip in your head during it so you can get through

  • CuterWCurves
    CuterWCurves Member Posts: 317
    edited May 2012

    Honestly the headphones were great this morning... So glad I had those over ear plugs!

    BUT what's with the face rest? I keep wondering if my cheeks will bruise.

    Eventually I must have gotten over it though. I think I fell asleep. 

    I had nice enough techs to try it with my arms extended in front of my head. It helped. Instantly. Just a FYI.

  • LAstar
    LAstar Member Posts: 1,574
    edited May 2012

    My techs gave me headphones with Frank Sinatra playing for the part on my back, but the long session on my belly was so miserable!  I kept transporting myself to Hawaii with my husband and daughter or imagining all my 4-year old daughter's amazing dance moves.  Sometimes I did such a good job at getting my mind off of it that I was surprised to remember where I was.  I almost had a heart attack when my BS told me there had been a malfunction with the MRI, but it only meant that they couldn't summarize the images.  Thankfully they still had my images!  He said they have lost them in the past. : /

  • mckenna
    mckenna Member Posts: 413
    edited May 2012

    i had to have an mri guided biopsy 10 days after my mri and i was afraid i was going to have two black eyes, my eye sockets felt bruised underneath :)

  • crazypenguinsfan
    crazypenguinsfan Member Posts: 56
    edited May 2012

    If I ever have to have one again I am going to get the earplugs because I was surprised by how loud the MRI is and I could barely hear the music in the earphones. And the unpredictable banging startled me, I almost started laughing at one point because I was envisioning that the whole thing was a hoax and it was just some crazy person banging things against the machine. Kept me amused.

    Also, something in my eye started vibrating to the frequency/vibrations at the very beginning of the session. I was a little weirded out and thought I was going to go blind so, I mentioned it and the tech said the MRI can get body parts vibrating... Luckily that went away and I can still see. If I ever have to have another MRI I think I will wear eye patches pressed against my eyes so they don't vibrate. I looked online afterwards to see if anyone else had similar experience, never did see anything.

  • Jeannie57
    Jeannie57 Member Posts: 2,144
    edited May 2012

    Midway through mine I felt like I was going to throw up! I did not want to start the whole thing over and neither did they. They quickly gave me IV fluids and I was able to continue. Whew. I didn't drink a lot beforehand because I didn't want to have to pee midway through, so I was dehydrated.

  • Leah_S
    Leah_S Member Posts: 8,458
    edited May 2012

    Last week I had my 4th MRI (in the past I'd had 2 breast MRIs and one pelvic). The ones in the past hadn't been too bad - noisy but only mildly uncomfortable. Last week was a different story! I have asthma, which has been a little bit worse this spring, and lying on my stomach with most of my chest compressed was NOT good for me. I was having trouble breathing towards the end. The doc there saw I was not doing well and removed the IV very quickly so I could get my Ventolin.

    Note to self: avoid  breast MRIs in allergy season.

    Leah

  • Cats134
    Cats134 Member Posts: 131
    edited May 2012

    My diagnostic MRI wasn't too bad.  I took 2 valiums and just sorta buzzed my way thru it.  But, when I needed MRI guided biopsies, OMG...it was horrible.  Reduced me to a puddle of tears.  The whole ordeal lasted 3 hours...3 LOOOONG hours.  My rib cage was screaming, my back seized, my lower lip was bloody from the hard plastic thing I was laying on, and my arms were absolutely DEAD when I was finally able to move.  My left shoulder has been bothering me since then and my PT thinks I may have rotator cuff problems due to keeping my arm in one position for so long.  I sitll shake thinking about it.

    I think what got to me most was when I started crying because one of the biopsies really hurt, I couldn't wipe my own tears or nose. So I'm laying there dripping, my face stuck in what felt like a diving mask, in pain, and I'm claustrophobic to begin with, and I felt like I was going to scream.  I got thru it...but when my radiologist told me she wanted yet another MRI guided biopsy, I refused.

    Cats 

  • Dianarose
    Dianarose Member Posts: 2,407
    edited May 2012

    I had an MRI and an MRI guided biopsy and both times I insisted on not putting my face down into what would have felt like a fish bowl. They let me keep my head to the side. I wouldn't have been able to do it the other way. I would have felt like I couldn't breath and my neck would have hurt.

  • mckenna
    mckenna Member Posts: 413
    edited May 2012

    That is a horrible mri biopsy story. I now know I lucky I was. Mine did not take much longer than diagnostic mri and the radiologist got the whole tumid out the first try. There is no way I could have layer there 3 hours. They would have had to knock me out. I did feel like I was going to throw up but that was because I was thinking about what the radiologist was doing

  • septembersong
    septembersong Member Posts: 287
    edited May 2012

    My first MRI, done before surgery, was like yours--I was incredibly anxious and uncomfortable and felt several times like pushing the panic button. When I had to have another one last year (because the radiologist who did my mammogram saw something too small to diagnose with an ultrasound), I asked my NP for Ativan. Maximum dose. That helped; I also went to a facility run by a larger hospital, so the equipment was more up to date. I was nauseous afterward from the giant dose of Ativan, but the procedure was a piece of cake. And best of all it was completely clear!

    So if you have to have one again, ask for Ativan or Valium. If anybody needs those drugs, we do!

    And best of luck with your treatment.

  • Tanya_B
    Tanya_B Member Posts: 1
    edited August 2019

    I got diagnosed this morning, and sent to the MRI this evening, and I had exactly the experience of the OP. Holy smokes did that hurt. By the end each breath was so painful, my body was trembling and I really hope I held still enough. I thought maybe the discomfort was because I'm fat, and got terrified what else that is supposed to be "easy" will be hard because of being fat (285 lbs, 5'6") (I'm not actually sure that was the reason for the pain, but it makes sense that it might put more pressure on the ribs.)

    I think the Ativan idea is brilliant, I've never taken one, but I'm gonna try it next time. I soooo hope they got the image they need.

  • GlobalGal
    GlobalGal Member Posts: 63
    edited August 2019

    I've had a breast MRI and a MRI-guided biopsy. I consider myself to be very stoic pain-wise, but I was not expecting how uncomfortable the two procedures would be. Not only was the body positioning almost unbearable--with arms frozen overhead along with the unrelenting pressure on my breast bone--but with flimsy ear plugs, the machine noise was almost beyond human tolerance. I did not flinch, not even for a second, during both procedures, but was completely shaken and disoriented afterwards. I needed assistance with getting off the table and walking as my balance and gait were affected.

    MRI-Guided Breast Biopsy: Am I the only patient who bled like crazy into the clear plastic breast molds? I was not expecting that either!!! It was shocking to see so much blood, but maybe that's to be expected?

    GlobalGal

  • BAMR
    BAMR Member Posts: 85
    edited August 2019

    I've had MRI's before, and knew I was slightly claustrophobic, but everyone said being on your stomach was so much easier. Well, it wasn't the claustrophobia that got me, it was the panic of the whole ordeal just a few days after being diagnosed with breast cancer. I knew it was ridiculous, but my heart beat so hard against my chest I thought I was having a heart attack. I tried every kind of imagining I could but could not escape. The tech told me next time I should take Valium. Well, next time is coming up. After chemo, I now have to have another one before surgery to see some exact sizes of the tumors. Now, my big concern is how much Valium and when to take. My MO wants me to do oral, not IV.

  • grayskies
    grayskies Member Posts: 52
    edited August 2019

    I took valium before my MRI. It was just one 5mg pill (I think that was the dosage). I had to take it in front of the nurse giving me the MRI. It didn't kick in quick enough for my comfort.

  • MarilynIllinois
    MarilynIllinois Member Posts: 79
    edited August 2019

    Hi GlobalGal,

    I bled like crazy after my 2nd MRI guided biopsy (the first one was ok) when I had the "gentle" mammogram right after the procedure was finished. The technician had me sit down and brought me some juice, but she was more concerned with mopping up the mammogram equipment and the floor where the blood landed!

    She did send in theradiologist to help me afterwards. More pressure had to be applied before I could leave.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited August 2019

    If I ever need another one, I want some really good drugs first. That was the most miserable part of the whole BC experience! And I don't get claustrophobic in MRIs, so it wasn't the mental part for me. It was just so effing uncomfortable.

  • jessie123
    jessie123 Member Posts: 532
    edited August 2019

    I have to have another MRI in December and am trying to get some weight off before the event-- I think it will help. I may have to have yearly MRI's because they found LCIS during my lumpectomy. The machine at my facility was small and not scary. However a friend stayed in the room with me and by mistake thought the tech needed to come in so she pushed the red button which stopped the entire MRI machine. I was livid -- it all had to start over. Also, the music they offered was some sort of loud rock that made me more nervous. I asked if they had talk radio -- nope --- then I asked for classical - but they just had Disney classical. So I went without music. My doctor gave me 5 mg valium, but it didn't help at all. Next year I'm going to get a stronger pill. The machine is just so very uncomfortable and being in that position for 40 minutes is really hard. I agree - it was the worst part of my cancer treatment as far as comfort goes.

Categories