anyone with PASHA and how you chose to treat it...

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MariaB2010
MariaB2010 Member Posts: 54
edited June 2014 in High Risk for Breast Cancer

I was dx'ed with PASH 6 months ago and I chose to not do anything at that time simply because i wanted a break from biopsies, etc.  Have had 2 biopsies on that breast and another one that I can recall the name but that is where they took out the pre-cancerous cells found in 2010. 

I go back next week for a 6 month follow up (bilateral MRIs) and I guess I need to start thinking what to do. I'm wondering what others here have done. 

 thanks for reading!!!!!

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  • marie5890
    marie5890 Member Posts: 3,594
    edited May 2012

    I have PASH.

    Chose not to do anything. BS agreed. And I didnt even have to go back 6 months later. He was completely fine for me to go back to regular screening mammos every year.

    Sometimes, PASH even goes away one it's own.... 

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  • Sommer43
    Sommer43 Member Posts: 600
    edited May 2012

    Interesting Marie, so you are living with it? 

    How does it go away on it's own?  Just disappear? 

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  • marie5890
    marie5890 Member Posts: 3,594
    edited May 2012

    Yes, it never was palpable and it doesnt bother me. I am a chair mobile paraplegic so being laid up do to surgery for even a bit isn't thrilling and my BS was completely fine with leaving it.

    Here is a bit more information. PASH's arent fully understood just yet.

    http://www.ncbi.nlm.nih.gov/pubmed/7872425 

    http://www.archivesofpathology.org/doi/pdf/10.1043/2008-0686-RS.1 

    I should mention that when I went for my annual mammo this past Jan, I got a copy of the radiologist report, and no mention was even made of it. I dont know if that means it's gone, or if the  core biopsy I had (I think they took 6-8 samples) pretty much got rid of it??...Not sure on that to be honest

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  • Sommer43
    Sommer43 Member Posts: 600
    edited May 2012

    I did do a bit of reading on PASH, Marie, when I first heard it on these boards.  And on the British boards that I post on, very little is know about them there, (given the poor woman had one reply) 

    Hum, that's interesting.  I am always interested in anything that little is known about, so if so little is known about them, how would a surgeon know it is fine to leave them?  (am sorry, that sounds really stupid, but I always ask stupid questions) I can understand not wanting uneccesary surgery, but on what basis because it is benign, is it ok to leave them? 

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  • Sommer43
    Sommer43 Member Posts: 600
    edited May 2012

    Can't open your links, Marie. 

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  • maiyen
    maiyen Member Posts: 81
    edited May 2012

    Hi MariaB2010,

    Unfortunately I do not know much since I am trying to learn about pseudoangiomatous stromal hyperplasia myself as I just recently had PASH come back on my path report.  Just wanted to say that a BS and the director of radiology (dealing only with breast issues) advised on closely monitoring the area in question so I will be back in 6 months.  My mass is palpable and the size of a golf ball.

    I hope your MRIs result in happy findings.

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  • MariaB2010
    MariaB2010 Member Posts: 54
    edited May 2012

    Hey ladies:

    my breast surgeon wanted to go in there and remove them, but I said no, because i have had a mammogram guided  stereotastic biopsie, an excisional biopsy and an MRI guided stereotastic biopsy on that same breast and numerous mammograms, sonograms and breast MRIs and I needed a break from it all.  :(  (all of the above because of ADH/microcalcifications).  

    However, my 6 month bilateral MRIs is next week and if the PASH shows up again, I guess I need to decide what to do.  I was told that they can not tell how big it is, only that there are PASH cells in that area. 

     thanks for the responses

    PS: Marie, I can not open the links you posted.  please re-post.

    thank you,

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  • cinnamonsmiles
    cinnamonsmiles Member Posts: 779
    edited May 2012

    I was diagnosed with PASH after my BMX in 2011. If you google it, you can come up with some information. I find it best to put its full name, Pseudoangiomatous stromal hyperplasia, in the search engine.

    For some, PASH can lie dormant and not cause problems. For others, PASH may continue to grow..and grow...and grow...without stopping. My breast surgeon, however, told me the only cure is surgical excision. It was found on the noncancerous breast during a pre-surgical MRI. I chose to skip the lumpectomy and get that breast removed as well. I probably would have opted for surgical excision of it anyway. I know I would not have wanted the wait and see approach with it. Some of us are fine with it. I am one that wasn't/isn't.

    http://www.ncbi.nlm.nih.gov/pubmed/7872425

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2615356/

    http://rarediseases.info.nih.gov/GARD/Disease.aspx?PageID=4&diseaseID=9410

    http://www.ncbi.nlm.nih.gov/pubmed/20586640

    Theres a start to some websites. I hope the links work.

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  • MariaB2010
    MariaB2010 Member Posts: 54
    edited May 2012

    thanks for the links.

    I had the bilateral MRIs yesterday. waiting on results. :(

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  • maiyen
    maiyen Member Posts: 81
    edited May 2012

    Maria, good thoughts your way! Please keep us posted.

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