Poll on Sentinel Node Biopsy Pain

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  • sandik
    sandik Member Posts: 482
    edited March 2012

    I had a wire put in first, so the side of my breast was numb from the lidocaine. The dr started the SNB shots. He looked at me and said "This is going to be very painful, but it will only last 2 seconds" Holy crap! ok. I psyched myself up for them and said I was ready. Woza was he right!!! Most intense pain I have ever felt in my life. But only for 2 seconds. The whole time he was doing each of the 4, he was saying Im sorry, so sorry, I know it hurts, sorry. He really did feel bad. The 4 were done, then he did two in the side. Didn't feel those at all. They shoved me under the screen for 30 minutes. They said I lit right up. they flipped it over for a side shot, that was 10 minutes. They marked me, and I was good to go! Everything else was a piece of cake compared to those! 

  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited March 2012

    A year ago I had the worst pain of my life, when my podiatrist stuck a huge, long needle directly into the bottom of my foot, in the middle of my heel, and injected a huge amount of thick cortisone. He kept pulling the needle back and forth, angling it in as it went in sometimes up to two inches.

    I was sobbing and begging for him to stop - that I couldn't take the pain any more. DH had a death grip on my arm....not to comfort me, as it turns out, but to keep from passing out himself.

    After that, the doc grinned and patted my leg, and said "I knew you really didn't want me to stop!"

    Fortunately, I've known this guy for years and absolutely love him, despite the fact that he tried to kill me that day.

    My point? Whenever I am asked about my pain on a scale of 0 - 10, THAT day was a 30!!!!

    Nothing else has ever come close.

    When I had my BMX, I first went down to Radiology for the Radioactive Isotope injection in my left breast. Their policy was to use no lidocaine or numbing agents at all. Yes, it hurt, and I had to laugh as the little tech tried all sorts of conversation to take my mind off the shots. But I kept thinking of my foot, and the pain didn't even come close.

    Even when the Radiologist was finished, it still hurt, and the tech told me to keep massaging the breast, as it would both ease the pain, and allow the radioactive material to spread more quickly.

    So back I went to Pre-Op, calmly massing my breast and chatting with DH. Only later did I realize that my bed was at the end of the room, in full view of all the staff and other Pre-Op patients. Perhaps they just thought breast massage was a calming technique.

    The SNB itself was done during the BMX. I did have severe nerve pain in my armpit for a few weeks that has completely subsided.

  • FilterLady
    FilterLady Member Posts: 407
    edited March 2012

    Before I had the injection, the radiologist sprayed my breast with a very cold spray, it looks like the snow you flock Christmas trees with.  It was super cold and I didn't feel anything and it didn't take long before I went home.  I had my lumpectomy and SNB the next day. 

    I usually give the sticker one shot then someone else gets a try.  If that person cannot get it, I ask for someone from the lab.

    When my sister had surgery on her colon, the nurse that started her IV before they took her to surgery, offered her an injection of lidocaine, she took it and could not feel anything when the she had to try 3 different times to start the IV.  So I'm going to ask for that if I ever have to have surgery again!

  • daisylor
    daisylor Member Posts: 42
    edited April 2012

    I had my SNB shots on Monday afternoon.  I was completely psyched out from reading online how painful the procedure was and was more afraid of this than the surgery the next day.

    They put a numbing cream and ice pack on 30 minutes prior to the 2 injections. The Radiologist warned me it was going to hurt but would go away. And that is exactly what happened. By the time it registered to me how bad the pain was it was already going away. To be honest, the tattoo on my foot hurt worse, lol.  

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited April 2012

    It was done when I was asleep during my lumpectomy.   I felt nothing.    My original tumor biopsy was another story  - but she didn't use enough numbing agent, because when I had a second one with another doctor, I didn't feel a thing.  

    With a good doc, there should be no pain.

  • vballmom
    vballmom Member Posts: 426
    edited April 2012

    I have to say this thread scared the daylights out of me before my surgery.  I am a total wimp and I was terrified.  The thought of it kept me up all night before the surgery.  The nurse held my hand tightly and they joked that it was to keep me from punching the doctor.  It stung a little but I can honestly say it was no big deal.

     I was terrified about the wires, so I called ahead and asked for numbing cream, to which BS responded.  "You have a palpable lump - there will be no wires."

     Two nodes lit up, so he took those.  I have had nearly complete use of my arm since I got home.  The SNB scar looks amazingly good after two weeks.

  • daisylor
    daisylor Member Posts: 42
    edited April 2012

    Vballmom, that is too funny that they held your hand to not punch the doctor...the nurse warned me not to do the same thing! :) Apparantly it happens often enough for her to tell people not to do it.

  • anndh
    anndh Member Posts: 23
    edited April 2012

    Wow, just wanted to chime in in case in helps someone.

    I, too, was prepared for "the worst pain of my life, but for under a minute."  Ooooookaaaay.

     Upon arrival at the hospital and changing into a gown, they put a ring of numbing cream around my nipple and held it on with a ring of plastic bandage.  Then, say 1/2 hr-1 hr later, when I was on my back for the dye injection procedure, they sprayed it a lot with cold spray.  They told me it would be four shots in a ring around the nipple, and that yes, it would hurt.  The doctor appeared out of nowhere with a giant needle.  I braced myself.

    And it was practically nothing!  I mean like the teensiest tinsiest prick.  After all that stress, I practically fell asleep while they mapped out the sentinel lymph node on the screen!

    So I guess everyone needs to ask ahead of time about numbing medicine.

     forgot to mention that mine was last week.

  • JNS
    JNS Member Posts: 24
    edited April 2012

    I had my SNB yesterday and didn't receive any numbing agent.  After reading this thread and others, I expected it to be extreeeemely painful--but it wasn't.  Maybe by expecting the worst, I was mentally prepared for the pain?  It was a strong stinging sensation that lasted less than 10 seconds.  The nice part was that the technician showed me the pictures she took--I could see my sentinel node light up.

  • sweetpea23
    sweetpea23 Member Posts: 56
    edited April 2012

    New here but have been lurking for over a month now. I was terrified after reading through this board of having the SNB. I had that along w/ a LX this past week. I felt that I must comment about my experience. After basic pre-op, they took me to the breast center where the girl from radiology came in and told me I could either have the lidocaine or not. After reading this forum, I said shoot me up even though it made 8 shots instead of 4. The lidocaine hurt but was bearable and then I felt nothing but pressure from the dye shots. It was not nearly as bad as I imagined. My vac assisted needle biopsy was much worse. Then I went to the mamm lab for the wire placement, then to surgery. I realize everyone's experience is unique but if I would not have read this forum, I would have probably opted for the less shot version and maybe had more pain. The not knowing what is going to happen, with the mind imagining the worst, makes for an extra stressful experience. Hope this can help someone.

  • Gingerbrew
    Gingerbrew Member Posts: 2,859
    edited April 2012

    The radiologist MD who did my injection walks in and quick says, "I think it is better to just get it over with than wait for numbing inject. Don't you agree?" I was totally uninformed.  It was beyond doubt the worst burning pain I have ever had in my life.  I screamed!   I was limp like a dishrag when I was rolled out of there. It flet like he had thrown a burning sun into my breast, 4 times.

    I am still stunned that he said what he did to me and gfave me NO opportunity to discuss or decide.  I had no idea it could hurt that much. 

    I am known to have a high pain threshold. I have had two births with no anesthetic, many root canals and severe sciatica follwed by back surgery.   

    I recommend insisting on a numbing agent being injected at all SNB injection sites!  Preceeded by the numbing cream on the aerola so even that injection does not hurt.  My surgeon was  upset when I told her about the expreience. She said, "It sounds like how they used to do it."    I have given consideration to sueing the radiologist, it was truely that bad. It has shaken me to my core to have felt that much pain.   By insisting on the proper proceedures you can avoid this experience.  

    Ginger

  • ndroby
    ndroby Member Posts: 104
    edited April 2012

    I had one shot on each breast behind each areola with no numbing creams or lidocaine. It was like a bee sting that lasted less than 15 seconds. I also read this thread and dreaded this SLN injection more than the PBMX. I lost several nights of sleep for nothing. Just do what you have to and get it done. No worries.

  • Gingerbrew
    Gingerbrew Member Posts: 2,859
    edited April 2012

    ndroby, I think SLN is different from a Signal Node Biopsy. It is four injections. I am glad your experience was not a problem for you. It may have been actually a different proceedure.

    My message is that we insist on proper premedication before this proceedure. It need not be so painful. 

    Ginger

  • ndroby
    ndroby Member Posts: 104
    edited April 2012

    I thought the sentinel node was the signal node---the first one on the chain of lymph nodes on each breast?

  • Cyn0619
    Cyn0619 Member Posts: 63
    edited April 2012

    I guess I was a lucky one too. After reading posts how bad it hurt I was really nervous. The dr knew how nervous I was and showed me how thin the needle was. I felt a few pinches but nothing as bad as I imagined. I think the shots for my biopsies hurt more. I don't think I was given lidocaine but not sure. Good luck with your procedure.

  • New-girl
    New-girl Member Posts: 358
    edited April 2012

    I was told by my BS and the admiting nurse that this procedure would be painful and ask for drugs.  When the doctor called the night before my surgery I told him to make sure I did not feel this procedure.  It had to be done in nuclear medicine and could not be done when I was already under for surgery.  By far the most painful thing ever done to me.  Mind blowing pain that I still have nightmares over.  I am no wimp.  Did all the needle biopsies with no problem.  Had two kids one high forceps without drugs.  This was beyond barbaric.  Stupid doctor gave me a Xanax only as my preop.  I seriously would attack him verbally  if I ever saw him again.  I have such anger over what was done to me.  Never would a man go through this without drugs.  I now do not trust any of my doctors.  I hate cancer and hate the way the some of my doctors treated me.

  • RachelM11
    RachelM11 Member Posts: 9
    edited May 2012

    I was terrified because of everything I read here. I swear that it did NOT hurt any worse than bloodwork. When she gave it to me I asked for meds because I read so much and she laughed and told me that she needed to know where women were getting this because everyone she sees tells her that they know it's going to hurt. She said in 20 years she's never had anyone tell her after that it hurt. She promised that when we counted together to 3 it would be over. In all honesty, I counted to about 7 before I didn't feel a pinch/burn on one side and just to 3 in the other. It's the one thing I read on these boards that was really just not true at all for me. It will be just fine : )

  • anastasia31
    anastasia31 Member Posts: 45
    edited August 2012

    My local hospital told me the injection of the radioisotope for the SNB was no big deal as a numbing agent (lidocaine) would be given at the same time.  I had my surgery at a different hospital and they told me they don't use numbing agents as it interferes with something (I don't remember what).  The injection just about sent me through the roof.  The tech was very apologetic about it, warned me ahead of time and just asked that I please not hit him.  There is no way I would ever go through that again without some sort of pain killer.  They told me it would take 2 hours for the isotope to travel to the lymph nodes and that is why I couldn't be knocked out for that long.  Although a friend of mine had the same procedure done at a different hospital and they did knock her out.  By the time I had the 2 wire locators and the SNB injection, my breast was so mangled and mutilated and painful, I couldn't wait to be knocked out for the surgery.

  • FilterLady
    FilterLady Member Posts: 407
    edited August 2012

    Oh Anastasia31, I'm so sorry you had that experience.

    Mine was just the opposite.  Freezing numbing then didn't even feel the injection.  I was also told it could take up to 2 hours for the isotope to travel, but it was about 45 minutes if I remember.

    I had the wire localization right before my excisional biopsy and the SNB at time of lumpectomy.  The wire localization was no big deal for me.  I think it depends on the facility and the medical team.

    Take care of yourself,

    LaDonna

  • 3kidsmom
    3kidsmom Member Posts: 21
    edited August 2012

    Mine didn't hurt at all.  The dr numbed it first, but was very concerned since I was scared after reading everything here.  After it was over, he said  I shouldn't go looking up procedures on the internet before I have them.  I think he's right since I had really worried myself over this for weeks before my surgery. 

  • HLB
    HLB Member Posts: 1,760
    edited August 2012

    Mine was the absolute worst part of the whole bc experience! No numbing and one shot of god knows how much material because when I went for a 2nd opinion she was reading my records and said no wonder it hurt, I never use even half that much! My poor mom held my hand while I hyperventilated and then burst into bawling when it was over! Come to find out at the following bs appt that there are 2 guys who do the procedure and the other one does give anesthesia! The bs told me that she had been campaigning to get them to let her do the procedure preop under anesthesia right before the operation, but nuc med did not want to give up the revenue. Not only that, he said no one ever complained about it. I got so mad I cried when she told me that. I hate him and wish him ill to this day. He made my poor mom cry too. Emeffer.

  • HLB
    HLB Member Posts: 1,760
    edited August 2012

    When I decided on a prophylactic mast of the other side she wanted to do a snb on that side too just to be safe and I said NO FREAKIN WAY!!! She even offered to make sure the anesthesia guy did it and I was so traumatized I wouldn't even trust that.

  • TinaT
    TinaT Member Posts: 2,300
    edited August 2012

    I had two injections with no lidocaine, numbing cream, etc.  It did sting and burn, but it only lasted a few seconds.  Everyone's pain threshold is different, I suppose.  Not a traumatic experience for me. 

  • michellej1980
    michellej1980 Member Posts: 342
    edited August 2012

    I had my isotope injection on Wednesday and apart from a tiny scratch of the needle I felt no pain at all.



    I had my sentinel lymph node biopsy the following day under general anaesthetic so of course didn't feel that. Just left with an achy arm pit now!

  • crazyride43
    crazyride43 Member Posts: 154
    edited August 2012

    I was scared before the tracer injections also, and my surgeon gave me some emla cream and said I could take a strong painkiller one hour before. The doctor that did the injections said that both those things would help with the needle pain, but the radioactive tracer is what causes the intense stinging because it's a different ph than our body so there is a "reaction" that no painkiller can prevent. I'm sure it's a different level of pain for everyone, but for me it was over very quickly. It hurt like heck - definitely agree with intense bee sting comparison - but the pain doesn't linger after the injection. I hope I never need to do it again, but it wasnt as bad as I feared!

  • Tazzy
    Tazzy Member Posts: 2,546
    edited August 2012

    Had my SNB on Thursday before mx.   Hurt like a beatch...but was over in seconds.   Crazyride, I agree I wouldn't want to do it again, but not as bad as I feared either.   I had no painkillers or numbing cream either.

  • juliaanna
    juliaanna Member Posts: 1,043
    edited August 2012

    I had conscious sedation when I had the injections for my SNB.  My BS had personal experience with having the injections for SNB and vowed never to let any of her patients experience the pain.  It has been a blessing to have a BS who can say "I know how it feels."

  • anastasia31
    anastasia31 Member Posts: 45
    edited August 2012

    I am 9 days post lumpectomy and SNB and all of a sudden I have this pain in my armpit.  It is almost like a deep bruise.  Is this related to my SNB or did I do something else to injure that area?  You wouldn't think this would take 9 days to kick in.  This isn't a minor case of lymphedema is it?

  • Natkat
    Natkat Member Posts: 75
    edited August 2012

    I just had SLN biopsy + lumpectomy 2 days ago.  The nuclear med tech gave me 1 shot of sodium colloid laced with technesium (the radioactive tracer).  He explained there was lidocaine in the mix.  The needle was placed on the scar  from my original needle biopsy and the tech explained he wanted to fillow that path as much as possible.

    Pain was about 3 on scale of 10.  It felt like a bee sting.

    The tech said lidocaine makes all the difference.  Before this hospital started using lidocaine, the procedure was very painful.  Now it is relatively minor.  The tech seemed grateful for this!

    Just FYI, the sodium colloid and technesium are metabolized through the liver and spleen where they break down into (supposedly) harmless salts.

  • New-girl
    New-girl Member Posts: 358
    edited August 2012

    I have written previously on this subject.  I still think this procedure caused me more intense pain than anything else I had done.  I am furious that we as women are forced to "deal" with this when it is so unnecessary.  I understand that for some women it is not painful.  I get that. But for me the FOUR needle sticks hurt horribly and continued hurting until they wheeled me into surgery.  I was in severe pain for the hour before surgery while also being scared out of my mind.  It continues to haunt me and give me nightmares.  I hate that my pain has been excused and brushed off.  I did not complain about anything other than this procedure so please believe that it hurt.  I spoke with the pain management coordinator at the hospital and she said for some reasons some women think it hurts no more than a bee sting and for others like me it hurts terribly.  She could not explain the difference.  She thought it might just be pain sensitivity but all the biopsies hurt me but didn't in anyway cause me to have nightmares.  I told her about this site and this thread that I think she should read.  I cannot imagine an ob telling a patient that some women can handle childbirth with breathing exercises therefore no one should get pain relief.  Nor can I even fathom a man having four needles stuck into the tip of his penis without any pain medicine.  I so still wish that on the doctor who told me it shouldn't hurt more than a second.

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