April/May 2012 Chemo hang out
Comments
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I don't know about everyone else but I'm haing a tough time coming back after AC treatment number 3. I've been so tired and queeziness just keeps hanging on. I'm going back to work today (day 7 after treatment) it's what I've been doing throughout...but as I sit here drinking Gatorade..it seems ambitious. I'm also more emotional this time...just feeling defeated.
I only have one more AC treatment before starting the T phase. I'm sure I can do this...but cripes!
I'm reaching for strength. -
chapter 4 - I'm so sorry. I understand, I feel that way, and I've only had 2 treatments! Be easy on yourself. We all struggle along together, but we WILL get there. The road just may be pretty rough at times. Hugs.
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I had my hair shaved yesterday and I feel GREAT! All morning i noticed every time I put my hand in my head I was shedding from the root. So I called a friend who I had already drafted for the task and said it's time to go. I thought I would feel sad about the whole thing as it was being done but I didn't. It felt so much better to have control over the situation. I hated waking up every morning to look and see if anything was on my pillow. If anyone out there is on the fence believe me you can do it. We all have so much strength we don't even know about.
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Dear all,
I'm noting your discussion about neuropathy...if you search in these forums using the keywords neuropathy and l-glutamine, you'll find countless references about what to take.
The best way to fight this SE (Melrose mentions from taxane-chemos, and she's right) is to take a combo of the three supplements you've mentioned above: l-glutamine, acetyl carnitine (it has to be acetyl, not the other type) and B-complex.
I took 15 g. of glutamine twice a day, mixed in water. I tried it in other drinks but I don't like artificial drink things like gatorade, etc. and juice has too much sugar for me, so I just gulped it in water. It takes a little like baking soda, so beware.
I took 1000 mg of carnitine and 100 mg of B-complex. I did NOT take them 1 day before chemo, chemo day, or 2 days after but that was simply because my MO asked me not to take any supplements on those days.
I have no neuropathy and am 7 weeks PFC, so the stuff works.
I also read some discussion on running during chemo. My emphatic advice is: YES! Whatever you can do to keep your head "normal" during this absurd time, do it! My activities were never just about keeping fit: they keep my head right, and I was more afraid about not being able to do them than I was about chemo, radiation, surgery, etc.
I hiked religously almost every day, through bad weather and good, kept up my regular bikram yoga practice, and went to the gym 2x a week during my ACT tx, which together lasted nearly 5 months. After each weekly Taxol I'd hike with my hubby and dog (I was tx in in Sedona) about 45" to an hour, walking FAST. AC beat me down for a few days after each tx, but I dragged my *ss out there, hearing Lance Armstrong's words in my head the whole time (Keep Moving!!!). Claire in Seattle, another member of our discussion boards, really inspired me since she keep cycling the whole time and she did more chemo than most of us.
RE animals: there were a few times I was so scared and felt so down, emotionally and physically, that I spent most of the day in my bedroom, reading. My dog and two kitties (rescue animals, all) were right by side the whole time. Who rescued who on those days? I truly think that our animals can help us heal.
BTW, our third rescue animal (black kitten) is over a year now, and she is a rare cat who fetches. When she wants to play she brings us foil balls that we've made and we throw them for her--she retreives them and brings them back. She's a complete delight to me.
You all sound like you're soldiering through chemo. Way to go, warrior-girls!
XO
Claire in AZ
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I'm feeling kind of beat up today, too, at tx#2 day 5, and mostly blaming it on the steroid crash. I was wiped out enough last night that it was an effort just to go to bed, and then I didn't sleep very well. I don't want to complain, though; using that energy to wish that Fierro gets to evict Jaxson soon!
My hair has really fallen out up from my hairline. I guess before too long I'll be quite shiny. And I'm wondering/hoping that I might really be done with periods - last one overlapped tx#1 and dragged on for 2 weeks. So far this time, nothing - and I can't really tell if I feel it coming.
I'm going to have to drag someone out of bed to put the trash cans by the curb.... later and hoping we all have minimal SEs today! -
Thanks, claireinaz! Putting the bigger boots on!
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Good morning from Texas everyone. I was up twice last night but took meds and slept right in. Family was all gone...just me and dogs. It would be kinda cool if they put is in an induced coma and woke us up to a room full of family and said "welcome back you're cured".
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Hi all,
I had AC#3 yesterday. Last night I was much more nauseous than the previous 2 times which was strange. But I actually got some sleep and feel better today. I'm going to head to the gym now and get a walk in, it's pouring outside here.
For those talking about the steroid crash, that has happened to me big time after my first and 2nd treatments. For me it meant I spent most of the day having a good old fashioned pity party for myself. Which is very unlike me. My doc yesterday said we could try weaning off the steroids more gradually which would probably mean the insomnia would last longer which I can't take. So I'm not doing that.
She also suggested I take Ativan during the day to even out my emotions, so I will try that. Otherwise I've arranged playdates for my little kids thAt day and I'm planning to spend the day in bed watching movies. Maybe with ice cream
Rose -
Thanks to one and all for the support. I'm feeling less "full of pity" during the light of day. I REALLY like Stacie's idea, but since that can't happen, I'm going to take Jaxson for a walk around the yard and maybe the block to get some fresh air and sunshine. What better (other than a cancer cure) to help a mood?
Dancetrancer, I've had the fish test, but I cannot find the result right now. It wasn't back yet when the original pathology test came back, but has since come in. I'll keep looking.
Thanks again to all. I've decided that I HAVE to get through this day better, with this many strong women behind me! Let's do this!
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I like Stacie's "coma cure" too; I suppose distraction is the next best thing. Going to put on sunscreen and get out a bit today. Hugs and purple energy to us all!
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I haven't visited the wall in a week or so. Buried my mom on Thursday and had my first Mother's Day without her on Sunday. Had CT chemo treatment #3 on Monday. And got hit with the big D Sunday night. Doc was right on it...called in a script for Lomotil and it seems to be working. Wheww!!!
Going in for my Neulasta shot this morning, additional lab work to make sure I didn't pick up a bug around all those people last week, and to get IV hydration. I can't believe the number of people I see coughing and not even covering their mouths..my goodness.
chapter4: praying for your strength. try not to be too hard on yourself. you've been through a lot emotionally and physically, and you're not defeated, you're winning this battle, with all of us cheering you on. you'll get there. rest when your emotions and your body are telling you to rest.
petagae: I love your attitude with the head shaving. I shaved mine two weeks ago. Decided to wear a wig to my mom's funeral because I didn't want cancer to be the focus AND it was pretty windy at the gravesite. Took the wig off in the limo and forgot it. So I was bald at the dinner afterward at the church. Felt very liberated and free.
I was looking through a basket of knitted caps at the Cancer Care Center yesterday when a lovely lady came over to me and said, 'honey, you don't really need those. You're absolutely beautiful the way you are. And I commend you for being free enough and proud enough to go natural.' She made my day!
pets: My dog has been such a God-send. When I got him a year ago, I named him Cayden which means 'Companion in Battle'. Had no idea he would be. I boarded him last week while I was out of town and after two days, I found a hotel that would let me keep him with me, and went and got him. He stayed by my feet every day, everywhere I went. Can't imagine what this would be like without him.
IndigoMont11: Praying for you. If you're not sleeping well, make sure you get something from your doc (Ativan or Ambien or something). Rest is so important to your recovery.
Minimal SE's, strength, and good vibes to all....you are amazingly strong and courageous!!! Have a great day!!
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Steroid crash for me = painful stomach cramps, diarrhea, fever, severe heartburn, and fatigue.
Lynnbea, you've had a rough, rough week. My thoughts are with you and your family.
And yes you ARE beautiful the way you are!
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Thanks Lynnbea! Actually, I think part of the problem last night was that I was scared I was getting a fever, but all good there. Peace and blessings to you.
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Hello, Ladies. I start chemotherapy this Friday. Four rounds of cytoxan and taxotere. I see the oncologist tomorrow to confirm this since the pathology report had a few suprises. Although I'm a little nervous, I'm more looking forward to starting since the sooner I begin, the sooner I can be done.
My family is taking the impending hair loss harder than I am. My plan was to shave my head before the fallout to take whatever control I had and minimize the emotional impact, but I'm getting pressured to "wait and see... it might not fall out. It doesn't happen to everyone." They're having a hard time accepting that it depends on the drugs and given the ones I'll be using, yes, if they're doing their job, the hair WILL fall out. I'm actually thinking of having a hair-cutting party/ceremony. It's an idea I got from the book UPLIFT by Barbara Delinsky. Just gather an intimate group of friends, let each cut a piece of my hair and wrap each piece in pink ribbons. Then buzz off the rest and leave it for the birds who may make a nest out of it.
Geez... when did I get so sentimental? I'm from the Bronx, dammit!
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I had treatment # 3 of AC/CT and I am dragging today. Yesterday was a good day but I think I over did it. My stomach is still upset which makes eating hard beccause nothing sounds good and I do not have hunger. My mouth is full of sores, which I medicine for, but nothing tastes good. My 3rd treatment was hard the night of treatment, very upset stomach and very dizzy until 5 am thursday am. Then I felt better for the day and then I felt like the mac truck hit me. I hope the 4th isn't as hard but I am dreading going. I keep holding on this is the last treatment for this drug coctail and the next Taxol hopefully will not be as hard, especially on my stomach.
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May I ask why people are taking claritin when they get the nurprogen shot?
I am going to a workshop of Look Good Feel Better on thursday night, I'm really looking forward to it. I was told that they help you to know how to apply your makeup to make you look good when you really feel like crap! Plus they said that they will give me alot of makeup for FREE to take home! That is really cool.
Has anyone gone to one of these yet? I was told that it is put on by the American Cancer Society.
I go back to work tomorrow. I haven't been to work since March 19th, the day before my first surgery. Then I will get my second Chemo treatment of A\C on the 25th and be out til the 30th again. I hope that's long enough. I am going to drink, drink, drink lots of water, take my anti nausea meds and get lots of rest between the 25th and the 30th.
I hope everyone has a wonderful evening!
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Thanks for the support Dancetrancer...it means more than you know on days like this
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Pauletta......the claritin helps somehow with the muscle ache and pain brought on by the shot. I didn't use it after the first shot...thought I was fine...then by about day 3 or 4 started feeling the aches and pains....I've been taking Claritan for 7 days after the shot and it works wonders....why? I don't know, but it does
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Thanks lynnbea.....means the world to me that there are people out there like you.
This is no picnic ladies! I so admire all of you! -
I just wondered, because my oncologist told me to take extra strength tylenol and it has worked really well for me. I got my first shot on friday and another one yesterday (monday). I've only had to take the tylenol 2 times since sunday night. They never mentioned claritin to me, but I know I was seeing it on here that people were taking it.
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No fear,
My 3rd AC has been harder than the first 2 as well. Today is Day 2 and I've been very nauseous since last night. I can only I imagine how I'll feel on days 4-5. When I went for my Neulasta shot today I mentioned it to the nurse and she just said "oh yea" so I guess it's common.
They just keep assuring me that the nausea is much less of and issue with the Taxol which I guess is good. But I still need to get through this week and 1 more treatment!
Good luck to all,
Rose -
@cityfi - people hear others refer to "chemo" under so many different circumstances that they don't realize the differences in treatments. I'm running into the same thing. I am 8 days post tx#1 and planning my buzzing party too! We're thinking we'll shave in a mohawk first!
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Pauletta - it is theorized that when Neupogen/neulasta makes your bone marrow work hard to produce new white blood cells that there is a lot of associated inflammation - hence - the bone pain. The Claritin keeps the inflammation, and associated bone pain, minimized.
chapter 4 - any time! I've had a rough ride and those who have held my hand at the worst times have been my lifeline to making it through. You are right, it sure ain't no picnic! So we'll just hold each other's hands and eventually we will all make it to the other side. Kind of like crossing a raging river...we are all stronger together holding hands!
Here's another idea for you all with the nausea...I've been wearing my anti-motion sickness wrist bands for the past couple days...and while my symptoms are heartburn (which is getting better)...perhaps the bands would be worth a try for the nausea? I am taking a new med for the heartburn which I am sure is the big factor (Carafate), plus eliminating caffeine (wah! Switched to decaf green tea)...but, for what it's worth...thought I'd share!!! It's an easy thing to try!
Hope you feel better soon Rose_d.
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Does anyone know if Allegra would be as effective? I have a HUGE bottle of it already.
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Rose
Did u experience any dizziness the night of treatment. Mine was so bad all I could do is lay on the couch. I explained my symptoms to my nurse the next day & she didn't say much either. I felt better by day 4 but am feeling beat up again. I am going to talk to a guy who owns a health store in my town & see if he can offer any help. I am so hoping the next 4 rounds are easier.
Everyone keep going - this too shall be over. -
Thank you so much! I just sent my son out to get some claritin. I figured the tylenol was working, but if everyone is thinking that the claritin will work better, than I will give it a try.
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rn4babies - I know they both are antihistamines, but are different types of antihistamines...so I'm not sure - likely it would work? But I really don't know. Maybe you could call your pharmacist, tell him the purpose, and ask? I found my pharmacist to be really helpful, more than I ever expected, when I called with some questions.
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Pauletta I loved the look good feel good class. And the free make up was all quality full sized stuff.
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Day #1 after chemo #3. If my pattern stays true I crash tomorrow night. Hoping for a slight delay...my niece has a concert I would like to make.
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@Stacie - hoping it holds off for you!!
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