Concerned about IBC, please advise

I have severe burning, itchiness, and pain in both of my breasts, but especially my left one (which is where it first started).  About 6 months ago, I developed a small red patch on my left breast that changed to a purplish, bruise-like color that rapidly expanded to my entire breast and along my left side.  My left nipple then began to change: it flattened, the areola became darker, wrinklier, and the nipple retracted.  The nipple does come out, but when it does, it looks very wrinkly, red, and crusted.  It burns whenever it pops out and sometimes the tip of the nipple looks blood red.  The rash then spread to my right breast and my right nipple then proceeded to flatten and retract like my left nipple.  The burning and itchiness used to be intermittent, but is now persistent.  I have tried many creams and ointments prescribed by dermatologists for the rash, but nothing works. I've also tried homeopathic, natural remedies for eczema (shea butter, jojoba oil, olive oil, vaseline, etc.).  I take minocycline 200mg every day long-term so it can't be an infection (and none of the doctors seemed to think it was).  I had an ultrasound that showed nothing (it was done in february), but the technician said she felt lumpiness and thickening of my breast tissue (which could be normal fibrocystic breast-but it didn't feel this way before).  The first breast specialist I saw completely blew me off.  I've seen more than one dermatologist who didn't know what it was or why none of the things I have tried worked.  A dermatologist did a punch biopsy of the rash on my side (not on my breast) and it came back as most likely being eczema.  I saw a second breast specialist who said she was completely stumped by my symptoms.  She noted swelling along my chest, rib, and in my left breast.  She said it wasn't IBC, but did a punch biopsy because I insisted.  Every day the burning becomes more intense and now it feels like my lymph nodes are swollen on both sides and the pain is very intense.  I had the biopsy on tuesday (may 8th--my 23rd birthday) so the results won't come back til next week.  I'm just very worried and uncomfortable.  What if the biopsy comes back negative and I still have it?  I have small fiber neuropathy and other health complications so doctors tend to think every problem I have is related to that, even when it's not.  This feels different and not many people take me seriously because of my age.  I would greatly appreciate any suggestions!!! (sorry for the long story)