"Heat rash" turns into cellulitis

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vlnrph
vlnrph Member Posts: 1,632
edited June 2014 in Lymphedema

Spent the 1 year anniversary of my axillary node dissection (it was on Friday the 13th in 2011) on the couch drinking lots of water and keeping my puffy/red blotchy arm horizontal. Walked around the yard a few times because we are having gorgeous weather here but had to stay out of the sun due to the antibiotic I'm taking.

The trigger seems to have been a 2.5 hour orchestra dress rehearsal. Since a Beethoven symphony gave me lymphedema last fall, I have been wearing compression while playing my violin. On tamoxifen, I get warm flushes at times perspiring into the sleeve and, even during a concert, will switch between glove & gauntlet to keep my hand cooler.  I never woke up the next morning with spots however. 

Not looking forward to summer - can some of you share how you manage in hot climates? 

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  • kira66715
    kira66715 Member Posts: 4,681
    edited May 2012

    Oh this totally stinks!

    I hope your cellulitis is getting better rapidly. And to have your LE triggered by your violin playing is common--Binney knows of a study of musicians and LE and how it negatively impacted their ability to work as musicians--and to have this flare on your "anniversary"

    I get hot flashes on tamoxifen also.

    There are medications to reduce hot flashes--like low dose SSRI's--on tamoxifen, only celexa or effexor are considered not to interact with the med--some people try clonidine, some try herbal stuff like evening primrose.

    I wonder if it's the chafing and if some powder would help.

    I don't have any great solutions for you, but hopefully the other women who post will.

    Gentle hugs, and this will pass and I'm sure there are some solutions.

    Kira

  • Binney4
    Binney4 Member Posts: 8,609
    edited May 2012

    vln, I'm so sorry!Frown Several things going on all at once here, so maybe we can sort them out and see what ideas others will come up with.

    First, cellulitis causes are sometimes difficult (or impossible!) to pin down. Micro-breaks in the skin can allow bacteria to enter, so it's important to consider whether the soap and lotion you're using is doing enough to keep your skin soft and supple.

    Repetitive motion (violin playing, for instanceUndecided) can aggravate LE and that makes infection more likely from whatever small cause (even a hangnail, insect bite, paper cut). Chafing can be a problem. Maybe Nordy will come along and tell us what marathoners do to avoid chafing their arms as the run (I think it has something to do with Vaseline, but I wouldn't swear by it. Oh, Nooooooordy!) If it's something like that, be sure to wash it off well afterward and again apply your regular lotion.

    Keeping cool when dressed to the nines for a concert is a challenge, for sure. Here's a cooling vest we were discussing recently. It's less bulky than others and the cooling effect lasts a long time -- probably as long as that marathon rehearsal:
    http://www.activemsers.org/gear/reviewcoolingvest.html
    You can also get small cleavage coolers (I'm not making this up) that you place in your bra. The theory is they cool your chest, thereby sending cooler blood coursing through your veins. I have no idea whether that's true or not, but they are refreshing and actually work fairly well. Here's an example:
    http://www.cleavagecoolers.com/A-Wardrobe-Basics-2299-BW.htm

    Finally, since staying infection-free is going to be an important aspect of continuing in your career, you might ask your doctors if a referral to an infectious disease specialist would be in order to help you track down any other risk factors. If you go that route, make sure the one you see is familiar with LE.

    Rest up, feel better, heal up fast! You must feel sorta conflicted about Beethoven at this point, but I hope you and he will be able to come to a mutually healthy regard for one another again-- play on!

    Gentle hugs,
    Binney

  • vlnrph
    vlnrph Member Posts: 1,632
    edited May 2012

    Thanks Kira & Binney! 

    Effexor has kept the warm flushes to a minimum and I'm not a full-time musician so it could be worse...

    I suppose corn starch or talc might be helpful if they're compatible with the Juzo soft fabric. 

    I'll have to make room in the freezer for my Tribute night sleeve (I think I read on these boards about trying a trick like that during the height of summer). The cleavage cooler sounds like a winner!

    Hoping others have secrets to share. 

  • hugz4u
    hugz4u Member Posts: 2,781
    edited May 2012

    For anti chafing, try BodyGlide anti-blister & Chafing balm. Sport people use this.

    I use it for my inside elbow and it is pretty good all though I am still super sensitive. I wrote the company to see if it was compatible with the sleeve material and they said yes, they have customers using it with compression garments.  

    You can use it also on your heel area if you have a pair of shoes that want to make a blister.  

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