Calling all TNs

That is great about your son Gill!

Thanks for all of the words of encouragement. I was sprung at around 2:00 pm today. It only took about 30 minutes to travel by wheelchair from one end of the hall to the front doors,(lots of hugs and good wishes from coworkers and my MO). Then probably another hour or so of text messages from friends and relatives.



I am happy for everyone who has good news this week, and saddened and praying for those with not so good news or upcoming tests.

BTW: CANCER SUCKS!!!

Becca

Just received this in Google Alerts:  Sure looks real hopeful, especially for those newly diagnosed:

http://web.mit.edu/newsoffice/2012/dual-drug-order-chemotherapy-0511.html

Quick question first, I updated the bio info that shows at the end of my post, but how do I insert a quote in there?



*waves Hi to Bernie* Votes yay for laughter.



Cocker - don't be to nervous about your next taxol. If you were having an allergic reaction, it would have reoccurred when they restarted the IV. Could have been some other kind of SE. Just please have what I call a "bulldog friend" with you. That's the kind of friend that will literally grab a nurse and drag them into the room if necessary



Clowngirl - your in my thoughts and prayers today.



NavyMom,- I can't fit gardening into my to-do list, so thank you for the flowere for LJ, Suze, and MBJ.



beljmc - so sorry for the hell you're going thru right now.



Inmate - I have no idea how you have stayed this strong this long. (and all you other ladies going thru relapses). Yours was especially awful Inmate because you didn't even get a break from round 1 before you got slammed into round 2. I know I couldn't have held up as well as you have and I admire your courage. Sending you some red party panties to go along with

those "big shoes"



Fighter - you don't need Tourette's. Just tell everyone it's a SE of your treatment and swear as needed!



LuvRV - have a blast in Paris!



Gilly - congrats on your sons graduation.



Painting - Prayers for your cousin and her husband. I can't begin to imagine the fear and pain they're going through .



Minxie- No "selfish-slug thoughts allowed. Sometimes you have to be in "it's all about me" modes and this is one of those times. Just please keep us updated, like you're doing and enjoy the Coke!!!



LRM - great article!

This post is just for anyone who wants to laugh today. I know I've mentioned that I'm in back pain again, but I don't think I've told you the story of how it happened this time. (backstory: spent 5 mo. In killer pain from a herniated disk. Had surgery last April with poor results. Got diagnosed with TN, 3 weeks after surgery. Pain was at manageable levels during treatment. Last week of radiation it let go again)



I now live with (I get to visit my home, lol) and care for my 86 yo Mom. Mom can be a handful. She usually does her worst damage when she's trying to "help me"



During one of my last radiation days, the oxygen delivery man was late. I told my Mom I had

to take a shower, and to please bang on the bathroom door when he got there. I got out of the shower and was drying off when I heard what sounded like the rattle of my Mother's walker hitting the kitchen cabinet and a loud thump. I thought my Mother had fallen, so I came charging out of the bathroom. As I started to turn right to go to the kitchen, something flashed in my left eye. I spun around to see the oxygen delivery man looking like a deer in headlights! The poor man was face to face with a semi-bald, fat, middle aged woman with one bright fire engine boob. The poor young man will need therapy for many years. At that point I did a very ungainly 180 degree pirouette and DOVE back into the bathroom. (how I re-injured my back).



After I got a bathrobe on and apologized to him profusely (he was very sweet, said he'd do the exact same thing if he thought his Mom had fallen), I asked my Mom why she hadn't knocked on the door like I asked? She told me " oh, I decided not to bother you". I didn't have the heart to tell here what happened till the next day.



So Happy Mother's Day to all the Moms on here and have faith that no matter what your children's age, you will have a chance to get revenge on them for all their misdeeds someday! **big-a**ed grin**

LuvRVing.....wow, 20 months.  Ugh, right?!  I had surgery on the 3rd of april to remove the most recent relapse, skin mets.  They weren't able to remove the internal node because it would have involved removing the end of my first rib as well.  When they removed the skin mets, my BS had to take about a 4 x 6 inch section of skin and pull up my skin to close.  The doctor called it a reverse tummy tuck.  Yet my tummy doesn't look tucked.  Whatever!  He did not insert a drain this time and now when I build up fluid I have to actually go and have him manually drain me.  He is concerned that I will actually bust open my incision and if that happens he doesn't think he can reclose it because it is so tight.  The last two weeks I have actually been leaking through two small holes in the incision that just don't seem to want to heal.  On one hand it's great because it helps to drain the fluid, on the other hand it is not attractive to have a constant wet spot on my non-boob chest.  I have been wearing a lot of black lately.

This is the 4th surgery on what is left of lefty.  I now wish that I would have just left the skin mets and let the chemo take care of it.  I was just so panicked at the time and wanted to have the cancer removed at any cost.  Well, now I know exactly what it cost.

Sorry for such a long response to a simple question.  

Gotta run and help a friend before chemo.  I will come back and chat with everyone.

Minxie.........thinking of you my dear! 

Love to you all. 

Inmate - please don't ever apologise for a long response - we love hearing from you.  You are one heck of a strong woman.  You already have a beautiful tummy, why would you need a tummy tuck anyway, right?  I hope the wounds heal this weekend.  The sun and spring is here to heal all of us mothers, sisters, daughters, one and all.

Kathyrnn - that was so funny!  You mean completely naked?  Sorry, I am slow to catch on.  Ha! ha! ha! nice, sweet guy, though.  Mom's are so so so very precious, aren't they?  They are nothing but next to God. I love you mom.

Lovelyface - that would be b*tt-a**ed naked and still dripping wet!

Inmate - There's nothing like a reaction to rip your day apart. Freaky, fucking freaky man.  I thought I was going to die.  Couldn't see a thing,  but my BP went really low and I'm sure someone was sitting on my chest causing the red face!.  Mind you my BP is always high anyway but scary as you were girl.  Know exactly how you feel. Scared shit about the next one this coming Wednesday.  I'm going to take a bucket full of Diazepam before I go otherwise they can shove this chemo up their arse cause I've had enough.  Its ok for them to say they thought it was an anxiety attack but freaking hell never had an anxiety attack like that before and I feel 100% they are wrong.   I love the F word too right at this moment.   With you all the way Inmate.    

Heather, glad you are settling in.  Good luck with the job, hope you get the one you want!

Hope everyone has a lovely day! 

Have a great weekend all...esp those awating tests, tx, or surgery and recovery

{{{INMATE}}}    {{{MINXIE}}} 

Luvrvin...I have been thinking of you as we had similar exp with the elevated CA2729.  My doc says those tests can b quite unreliable for some of us. 

I am feeling strange with tx over now.  Cannot really describe it.  Those around me act as if it never happened.  Now I have LE in my left arm and hand so back to PE for a few weeks.  Depressing tx plan with the wrapping and sleeves and gloves to b worn for life but I am thankful to have another b-day pass me by.

I'm am 60 years old.  I was first diagonesed in september 2010- lumpectomy in december 2010, radation march/april 2011.  I did not recive chemo becuase I was and still am under treatment for advanced renal cell carcenoma, manfasting as artiral lesions in my liver. - which was diagonesed in July of 2010.  I had an adomnal scan last month, and new lesions where discoverd in my liver and 4 very small nodes in my lungs.  pilemanry resulsts  Liver biopsy reveled that new lesions were breast cancer.  I will start chemo on May 21 or May 22 - Breast oncolgist is waiting for final biopsy results and addtional information from blood work up I had this week and the bone scan I will be having this coming week.  

Navymom:

You truly do know what my words mean, and I am so sorry that you too must share the pain that we mothers who lose children must live with forever.  Sorry you can't be with your son in Florida, but the love will be felt by both of us from our children - across the miles.  Glad I have my mom to share the day with too.  

SueRae:  So very sorry you had to join us here, but I can promise you that you will not take another step in your journey without a wonderful group of sisters to hold your hand and share their strength with you.  Welcome, and I wish you nothing short of the best. 

Linda