How do I move forward??
I am so desperate for insight into this. I had a PBM on Feb 21 and it turned out not to be preventive. I know I should be thanking my lucky stars, that it was relatively small, no node involvement, and low onco score. Instead I am completely and totally paralyzed. It is effects my whole family and I feel so guilty. I had a catatonic breakdown two weeks ago, and since have started antidepressants, and have been relying on anti anxiety meds to get me through. I have been talking to a counselor and a psychologist, but I just can't seem to move on. I tried tamox for 10 days and went totally beserk, which could have been partly due to the to the onset of the anxiety, and starting a new antidepressant. Now I am totally fixated on the the recurrence aspect and my failure with the tamox although it would only make a 2-3 % difference. The onco acts like it is no big deal. I have lost faith in the whole medical community because all the screenings failed and it took me doing a a PBM to even find it.
Now I have tumor envy. Why couldn't it have been smaller? Why couldn't it have been DCIS. Why the hell it did have to be there? Why couldn't the stuid pathologist have just missed it and let me go on with my life. I know I should be grateful but grateful is so far back in the closet I cannot find it. Please if you have any wisdome please impart. I hate what this is doing to me and my family. When will it get better??
Comments
-
The only thing I can say is it takes time. We've been traumatized and probably all suffer to some degree from post traumatic stress disorder. Keep coming here for support. Also, you might want to seek out a counselor who specializes in bc survivors. It WILL get better! Best wishes!
-
Some fear going forward is totally normal, and it does get better with time. But it sounds to me like your medical team is a big part of your negative thought patterns. Can you possibly change doctors? Even though your active tx is behind you, you'll need to be followed for several years for everyone's peace of mind, and if you don't have confidence in your docs, finding new ones might help you move forward with a lot more confidence.
Also, are the counselor and psychologist you're seeing primarily involved with oncology patients? That can make a big difference. As a psychologist at UCLA pointed out to me, this isn't the time to try to explain what you're going through to someone who normally deals with family & marriage issues, for example. You need someone who knows more than you do about bc, so that they can give you the appropriate strategies to use for your bc-specific issues. Deanna
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team