IDC Plus DCIS, how common?

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  • etherize
    etherize Member Posts: 423
    edited May 2012

    Roula, your MO or BS should be able to answer those questions.  The IDC could very well have been in the center of the DCIS, or it could have been on the edge ... there are all kinds of variations as to how the tumors form. 

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  • RoulaG
    RoulaG Member Posts: 239
    edited May 2012

    I have an appointment today, I will definitely ask. Thank you Etherize!

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  • AEM47
    AEM47 Member Posts: 297
    edited May 2012

    I had both also - only one tumor 1.1 cm and only 1 edge showed evidence of IDC.  There was also LVI there too.  I think mine was DCIS for a while and started on that one edge to become invasive.  Pathology report actually states that no IDC was found on any edge other edge..only DCIS.  The chemo was a precaution because of the LVI

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  • gsg
    gsg Member Posts: 3,386
    edited May 2012

    My DCIS was never mentioned to me.  Read it in my path report.  Treatment was all about the IDC. 

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  • Blessings2011
    Blessings2011 Member Posts: 4,276
    edited May 2012

    Had both - multifocal DCIS, with microinvasion of IDC.

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  • Shayne
    Shayne Member Posts: 1,500
    edited May 2012

    wow......had no idea it was this common.  

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  • kathleen1966
    kathleen1966 Member Posts: 793
    edited May 2012

    I would say your path report is not clear enough.  I would read this as the entire area removed was 2.5cm and I would want to know what part of this was the invasive part. I had a 7cm total mass that consisted of DCIS, IDC and I also had Paget's disease on my nipple.  I know I had at least two tumors but may have had more.  The largest tumor in this 7cm mass was 1.6 cm. You can have all kinds of cancer in one breast, very unfortunate....

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  • bevg49
    bevg49 Member Posts: 739
    edited May 2012

    I also have both but they are two unrelated cancers, I think. I was first diagnosed with DCIS. The surgeon said I was very "lucky" as it was the "best cancer" one could have and I was scheduled for a lumpectomy. Actually went so far as to have my pre surgical testing done. We did the MRI just to make sure and that came back with what at first was thought to be another DCIS. On a second examination of the slide, it was discovered this second one was actually invasive. The invasive part is 2.5 mm. Because the DCIS is at 12 o'clock and the IDC is at 8 o'clock, I have no choice but a mastectomy. Surgery date is June 5. I am new to all this, learning, anxious but moving forward. Best of luck to all you other ladies fighting the fight.

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  • MizMarie
    MizMarie Member Posts: 332
    edited May 2012

    I had DCIS within my IDC tumor; I was told that this is very common, although the DCIS was not found in the initial biopsy.  I did chemo first, then surgery, and when the tumor was removed, 30% of what remained was high-grade DCIS.  This number plays into the treatment plan for rads, but as I understand it, chemo is not effective on DCIS.

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  • Alicethecat
    Alicethecat Member Posts: 535
    edited June 2012

    Hi everyone

    In case it is of interest, I had DCIS and IDC before my mastectomy - both Grade 3.

    The breast surgeon was of the opinion that the DCIS had changed to IDC.

    With a Grade 3 tumour, I hot-footed it down the road to chemo, immunotherapy for HER2+ and rads. Everyone is different of course!

    Best wishes to everyone 

    Alice

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  • gamergirl
    gamergirl Member Posts: 68
    edited June 2012

    I was originally diagnosed with 2 areas of DCIS.  Because of being BRCA2 positive, I chose a bilateral mastectomy.  My surgeon said in about 20% of his cases like mine, there is IDC discovered during the SNB as well.  In my case, there certainly was.

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  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2012

    I had a partial masectomy (left) in February 2012 to remove what was initially thought as a large cyst.  It turned out to be cystic structure contained DCIS 4 cm and IDC 2cm.  I had a UMX w/o recon in March 2012 to get clean margins and to removal some questionable areas found during my MRI.  I know two of the questionable areas were very small DCIS and seemed minor in comparison to the IDC.    I'm in the middle of my chemo treatment and participating in the Herceptin B-47 clinical trial now. I don't know if I will be having rads yet.  My onco plans to take my case back to the tumor board to determine if rads will be necessary since the cancer was encapsulated.  Somewhat glad to know that I'm not the only one out there that had two forms of breast cancer sitting next to each other. 

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  • Cindyl
    Cindyl Member Posts: 1,194
    edited June 2012

    I had 3 IDC tumors the largest of which was 3.5 cm "on a bed of DCIS" the removed a little more than 5 cm and think they have all the dcis...

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  • Letlet
    Letlet Member Posts: 1,053
    edited June 2012

    I think every IDC starts out as DCIS because it's a disease that grows.

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  • Poppy
    Poppy Member Posts: 405
    edited June 2012

    I had both and the DCIS was the reason i had to have a mast, not the IDC. It may not yet be deadly, but it's just as serious.

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  • flannelette
    flannelette Member Posts: 984
    edited June 2012

    I had a very large tumour, my surgeon came by the morning after my mx to tell me - and this was reassurancce - "it looked like a whole lot of DCIS mixed in with the IDC". Much later, I also read on my path report that I had a large amount of mucinous carcinoma -every cancer growth is a unique entity. I also had a 9 out of 9 on the nottingham scale for bad cell behaviour ie aggressive growth - yet none reached my nodes - go figure.

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  • gardengumby
    gardengumby Member Posts: 7,305
    edited June 2012

    I believe that all IDC (invasive ductal carcinoma) starts out as DCIS (ductal carcinoma in situ)  They are both ductal in origin.  I had 2 areas of IDC amongst a large area of DCIS with some LCIS thrown in for good measure.  The mastectomy was required due to the extensive DCIS, however my staging was based upon the IDC and lymph node involvement.

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  • deborye
    deborye Member Posts: 7,002
    edited June 2012

    I had IDC & DCIS which was in the same area but the DCIS did not show up on mam.  So I had a re-excision to get clearer margins.  Then rads & arimidex, I will be done with arimidex July 26th.  IDC & DCIS are common.

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  • cheryl1946
    cheryl1946 Member Posts: 1,308
    edited June 2012

    My DCIS was found on my yearly mammogram; saw surgeon and she felt 2 large hard areas that worried her more.

    Stereotactic biopsy showed DCIS left upper,inner quadrant.

    Core needle biopsies showed IDC left upper and outer quadrant (Large tumor),and  IDC on bottom of nipple. 3 totally separate tumors. These did not show on mammograms; surgeon said they were probably there about 10 years!

    No surgery,chemo,or rads.

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  • bluepearl
    bluepearl Member Posts: 961
    edited July 2012

    Interestingly, IDC with DCIS tends to be less aggressive that pure IDC.

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  • DianaPrince
    DianaPrince Member Posts: 21
    edited July 2012

    Yes, my path report showed IDC grade 2 with adjacent DCIS grade 3.  The tumor is small, though, and no other areas of concern, so hoping for the best.  My breasts are very tiny (as noted by every single female rad tech I've ever had working on my breasts--the males don't say anything!), so that increases my positivity--possibly falsely so--that all malignancies were found.

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  • Moonflwr912
    Moonflwr912 Member Posts: 6,856
    edited July 2012

    I was Dx with Dcis, had a biopsy, it was grade 3 . They thought I could get by with a lumpectomy. But do to my mom and her sisters passing from bc, I told them mx, and if I was doing an mx, it would be both. A BMX, they really didn't argue, and we were all happy I chose the BMX when a 1.6 cm tumor was found in the second breast. It was IDC. So BMX and chemo for me. The tumor did NOT show up on either the screening mammo, the biopsy ultrasound, the ultrasound they gave me later or the pre surgery mammos. So its a crapshoot! at least I had clear margins so did not need RADS

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  • ahdjdbcjdjdbkf
    ahdjdbcjdjdbkf Member Posts: 645
    edited October 2014

    I was in the same boat - 4.5 cm tumor - but only 30% was IDC and the rest DCIS. My original biopsy came back ONLY DCIS so I thought I was a surgery only case. I didn't find out how serious my situation was until I was in the hospital after my DMX. The doctors told my boyfriend first and had him tell me. What a moment. He told me "You're going to have to go through chemo and lose your hair and it is going to be tough but you're going to be alright. He told me he could see into the future and that I would be OK."  Still, pretty much the worst news I ever heard. Normally a tumor this large would have made me Stage IIb, but my doctors categorized me at IIa because they said the IDC component made up about 1.4 cm of the tumor. I will take any good forecast I can get! Luckily ,I had decent margins and I believe that is a good thing for my future.

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