MIDDLE-AGED WOMEN 40-60ish

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited May 2012

                                           

    Wow!  What a milestone!  What a lot of posts!  What a lot of sharing Middie to Middie!  Wow!

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  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited May 2012

    My guess for the mystery picture is a close up picture of styrofoam.

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited May 2012

    Barbe......I had a vaginal hernia repaired.  My bowel had literally fallen into the vagina.  I have sutures both in the bowel and inside the vagina.  Very miserable surgery.  He said my bowel was "a mess".  They had to tuck that back up with a patch and my bladder is in a sling.  The leakage is just normal post op fluids from all the work.  It is VERY strange, you bet!

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  • sheila888
    sheila888 Member Posts: 25,634
    edited May 2012

    MP...Pearl Onions or small Cotton balls

    Wink

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    Meece: I think it's styrofoam.

    I've been lurking and not posting much. I'm still waiting for the results of an oncotype, CT, and bone scan....but it looks like I'm going to be treated with Ameridex only...due to small size...although the HER2+ has me concerned.

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  • carollynn79
    carollynn79 Member Posts: 654
    edited May 2012

    rhubrb wine

    Here is a glass of rhubarb wine for all !!!

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  • barsco1963
    barsco1963 Member Posts: 2,119
    edited May 2012

    Janis - Sounds VERY uncomfortable to say the least. Hoping that you start to get some relief soon.

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  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 706
    edited May 2012

    That's does sound uncomfortable Janis...yikes! I hope and pray you start feeling better soon!

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited May 2012

    JANIS .. omg i couldnt imagine that please get well ... and here I am crying like a baby over my mastectomy and TE's...sounds like an uncomfortable mess .. HUGS for u darling ..

    That wine looks besutiful carolynn .. I am a non drinker so sorry I cannot take a sip .. although I bet its delightful :)

    Night ladies , I am gonna pray I wake up feeling no nausea in the AM ...Hugs .. maybe tomorrow I can get out to walk or something ... 

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  • Valjean
    Valjean Member Posts: 1,898
    edited May 2012

    I'm not a wine drinker, but the glass itself is pretty, carollynn!!

    I stay away from guessing the MP, don't want to have to find one to post if I happened to be correct. Enjoy reading everyones guesses though.

    Just flying through on my way out the door & wanted to say, "Hello!"

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited May 2012

    Janis, I had NO idea you were going through this!!! OMG, how did you get diagnosed? Did they just keep saying you were constipated, or did it become an emergency?? Hugs to you, sweetie!!

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  • Meece
    Meece Member Posts: 19,483
    edited May 2012
    Barbe, believe me, when you have this problem, you know it, and so does your Gyno.  I have been putting off the surgery for years.  Janis just confirmed why I have...Wink
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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited May 2012

    well my original thought was frozen corn also, so I'll go with white chocolate chips instead!

    Janis, That whole mess sounds like a real pain in the a$$!!!  Hope you are better soon!

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited May 2012

    Janis no wonder you are in such pain, yikes!!!

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited May 2012

    barbe....what Meece said LOL.  Yeah basically after a hysterectomy (or sometimes without) other organs just decide to move in to some of the empy space.  In my case it was the colon.  You can't much miss it.  It just sort of...invades.  In my case it bulged into the vagina.  Attractive huh?  I had put if off but finally became so sick of it that I had the surgery.  Would I do it again, knowing what I know now?  Well, not to scare Meece off but........not for the faint of heart.  Ask me in a couple of months if it was worth it.  I was surprised at the level of pain and discomfort and in more than one place! 

    Thanks everyone.  I know it was kind of graphic but it is what it is.  Oh, and I got shaved and everything.  The prep reminds me of childbirth, circa the mid 70's when they still though shaving was a great idea.  Just something else to add to the misery and humiliation!  Cry

    I am feeling a bit better every day, but sitting for extended periods is not fun.  For one thing I can feel those internal sutures poking me.  Not real pleasant.  Plus that tailbone thing, yikes!

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  • midnight1327
    midnight1327 Member Posts: 1,475
    edited May 2012

    Hey has anybody ever experienced a achiness in the rib area. i don't know whether its the tamoxcifen, its sort of in the breast bone area and both sides of my ribs, just twinges. i have been getting it abit over the weekend. I am due for my  first mamo after rads last Dec on the 18th of this month. so just wondering if anybody else has experienced these aches, i am scared of getting paranoid when i get aches in those areas.

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  • Meece
    Meece Member Posts: 19,483
    edited May 2012

    Midnight, I am 8 years out and still have the pain and twinges.  I was never on Tamox. so I have mine wouldn't be caused by tha.  Some times the pain continues for weeks, and other times it stays away for weeks.  It still scares me.

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  • Meece
    Meece Member Posts: 19,483
    edited May 2012

    Right off the bat, Elimar was right.  Of all things, when I was searching the house of what to take a picture of, I was trying to think what would stump Eli~.  She and I have similarities in our thinking and I thought I would at least give her somepause for thought.  I had considered taking a picture of the little styro-pellets used for stuffing crafts, but they are so hard to get back into the bag, so I opted for......

    Tapioca Pearls

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited May 2012

    Woot, woot!  Sometimes having the first guess is an advantage.  I'll try and have a good challenge for next week's MP.  Meece, we do have something of a mind meld, if that Memories thread is any example, so I was on your wavelength.  I had a box of those pearl's in the cupboard for a year.  Went thru' a couple boxes of the regular kind before finally trying them.  They were just too globular, and I found I preferred the tiny bits after all. 

    midnight1327, I am only 2 1/2 years out from rads, but think Meece is correct that these twinges can go on a long time.  I still have them.  My own theory is that rads makes the treatment side less elastic (tighter) and even if you can't see it, you get a bit lopsided...meaning, over time the tighter muscles and ligaments put different pressures on the ribcage and your breast bone.  You might try stretching (especially rads side) or massage or even PT.

    My ribs were sore to pressure (to the touch) for over a year after rads, but they are 90% better now.  They did not really hurt otherwise.  Usually, we are told to give a pain, feeling, or twinge three weeks and if it worsens or remains unchanged at all, the doc needs to know.   My treatment side gave me a pain in my back that lingered.  I told the doc, and before I even blinked he was ordering a bone scan.  They have to, to rule out the worst.

    Tamox. can cause achiness that lingers, usually joints.  It doesn't come and go, it is more or less there everyday.  To me, your twinges do sound like they come from the rads.  In my very humble opinion.

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  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited May 2012

    I'm almost 5 years out from rads and still have the rib pain on that side.  Apparently I'm one of the 10% who gets long term pain from rads, been told to expect to have heart damage show up in another 10 years or so, and my current asthma problems may be lung damage.  I wan't told about any of these possible side effects since "they happen so infrequently it's not worth mentioning." 

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited May 2012

    Got my first fill today. It really looks like a boob now Laughing. It didn't hurt, just felt really weird.

    I got my appointment to go to Beth Israel today. I will be going Friday at 4. I am sure the traffic in Boston at that time of day will be interesting. I am not familiar with Boston at all either. I feel bad it is on my son's 13th birthday and he wanted to go out to dinner. I want to make sure I am around for a lot more of his birthdays and he is a good kid so he should be fine with it. BC sure gets in the way of lifes pleasures.

    I still get pains on the side they radiated 8 yrs ago. I was told it was neuropathy. It comes and goes. Sometimes it's just the skin on my side that hurts.

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  • carollynn79
    carollynn79 Member Posts: 654
    edited May 2012

    I am over 2 1/2 years out from rads and I still get the rib pain, I am on tamox, I am told I am one of the lucky 5% who will have chronic pain from rads, I am also blessed with a very red boob ,most of the time, I like to think I have a radiating personality but Maybe it is just the cellulitis!!

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  • midnight1327
    midnight1327 Member Posts: 1,475
    edited May 2012

    Thanks for that, I am booked for my mamogram and they said, this will tell them whether the rads  and treatment are working or i am back to the drawing board again. it is the six month mamo after rads. BS told me that they got it all in surgery, but the rads will kill any cell that is playing up and trying to start new problems and then the tamox will act as another deterrent. hoping i get a good bill of health on the 18th of this month, i have to shift house again, as this house has to be sold, and i need to be up and running to cope with it all.

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  • Meece
    Meece Member Posts: 19,483
    edited May 2012

    Congrats on the little steps, Dianarose.

    I think rads affects tissues long after you don't feel the immediate discomfort.  I have had 2 recon surgeries and my irradiated side is still tightening enough to make a noticeable size difference...again!

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited May 2012

    Diana congrats on your fill.  After that first one they do start looking like a real boob again.

    midnight good luck on your mammo, keep us posted.

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  • cmbear
    cmbear Member Posts: 1,086
    edited May 2012

    Dianarose- I feel your pain, my BS offered May 18, my DS's 16th birthday as my surgery date. He's older than yours--but I didn't want him to remember his 16th birthday as the day his mom got new boobs!!! Just plan something super special for him on Saturday--he'll remember that he got to spend special time with his mom. 

    I get the rib pain too and I'm one year out from rads. Sometimes it kicks me for a loop. All my docs all say my radiated skin has healed super well. I bought a big jar of Aquafor last year, and I'm still using it. Between the lubing and the massage, maybe that's what helps. And I stretch all the time. Rads the gift that keeps on giving.

    My dad had prostate cancer 2 years before my DX, and he opted for the internal radiation pellets. He has been progressively getting weaker, dizzy all the time, no strength, constant low RBC.FINALLY, after test after test, a new doc (hematologist/onc--not his original) said that he is suffering a SE of having the internal rads near his hip bone--that messed up  his marrow production. And has began to shut down his kidneys. They say its fixable, iron injections, and some kidney medication will fix him up. First of all, they never told him how this would happen. And second, why did it take them 2 years of hell to figure this out? ARRRGGHH. Radiation, the gift that keeps on giving. 

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited May 2012

    Good reminder, cmb..  My RO nurse did tell me to keep moisturizing on the treatment side.  The natural oil gland in the skin get shut down, and I don't know if they all recover, so it is a good idea to use some kind of lotion.   And I'm all about the stretching too.

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited May 2012

    I too lube down daily.  I use vitamin E oil at night and keep stretched with yoga.

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited May 2012

    when i left hospital noone told me anything about pt or excersice so i stretch myself hope im not harming anything .. i cant touch my incisions im glad i can wash them in shower but as far as lotion i cant bring myself to touch it .. :(

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited May 2012

    We are writing about stretchihng and lotion after radiation.  Of course you can after surgery too, but not as soon.  Give yourself time to heal first, then start gently.

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