Taxotere/Cytoxan starting February 2012.
Comments
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I'm so happy, just finished my LAST chemo #4 !!! Now to just get past the SEs, usually better by day 7. Since I'm moving in 2 weeks, definitely looking for lighter SEs this time. MO reduced the Taxotere and gave me more steroids to combat the fatigue, hot feet/hands and bone pain from Neulasta. I'm taking Claritin which does seem to help. Steroid keep me up at night, darn. Also take Benedryl for the hot feet/hands.
I will start my RADs in about 6 weeks after I get my ins switched over and doctors set up. Ins wants a new referall for their area (darn them). OH well.
Loe to all and hope for light SEs for you all, Kathy
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kat2nich --- I also just finished my LAST treatment yesterday -- and also looking forward to getting from here to day 7 !! And I too, am moving from apartment to another afterward -- and hoping for strength and energy back... as much as possible.
Silvia -- thanks for sharing your final treatment experience. For the last two treatments - I went through the despair of knowing I had to do it again and not knowing how I could possibly go through it again. THIS time... that despair will not be part of the experience!
I do NOT need a Neulasta shot this round! woohoo! After the first extremely painful treatment with a full dose of Neulasta (yes -- I take Claritin, but it doesn't help me) they lowered me to a half dose for treatments #2 and #3 -- which help significantly with bone pain. Even so, I still had moderate bone pain and relied on percocet every treatment.
My white blood count needed to be in the normal range in order to get a half-dose.
Normal range is 4.8 - 10.8
Prior to tx #3 -- my WBC count was 4.9. (Just .1 within normal)
Prior to tx #4 -- my WBC count was 17.3 (ABOVE normal -- big change)
The only thing I did different, was follow my naturopath's advice. After seeing my WBC count on the low end of normal, put me on an immunity boosting supplement which I took twice a day for the 3 weeks between these treatments. SO... we'll see how this works out. I'm relieved, while I understand there coud be a risk... I plan to be extra careful. If there was a big risk, my MO would not have okayed my skipping the shot -- my chemo nurse told me he rarely omits it.
In case your interested in checking it out, here's what my naturopath is having me take for immunity: MARROW PLUS Ji Xue Teng Herbal Supplement. Formulated and distributed by company: Health Concerns, 8001 Capwell Drive, Oakland, CA 94621
I do not need rads and expect they will get me on Tamoxifen soon... not looking forward to it. Anyone begin Tamoxifen yet? How is it going?
I need to schedule my exchange surgery to switch this TE to a permanent implant. I'm moving to new apartment in June and refuse to deal with surgery during July.... so I'm planning to keep the TE and the port in until surgery end of August or September. Anyone else extending exchange surgery? My PS said it was fine... so just looking for reinforcements. Would be nice to get this over with... but not at the sacrifice of summer!
What got me through December scans, January surgery, and Feb -- May chemo was visualizing dancing in the sun under blue skies in July.
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Congrats to everyone who just finished their final TX!
I'm 6 weeks PFC today. SEs for my 4th were not that bad, but what surprised me was the fatigue in my legs, especially if I had to squat or climb stairs. My MO said that it usually takes 4-6 months to fully recover from chemo. But I'm glad to say that my legs are now much better, almost normal. I also noticed that the Taxotere left me wth slightly darkened finger nails, but I can see healthy nails growing out -- glad to have no lifting or nail loss. (And I didn't ice during treatment.) Also glad that I kept most of my eyelashes and had only thinning brows. I'm using Latisse now, mostly out of vanity. My hair is slower coming back than I'd like, but now I can see that it is indeed coming in -- I can now tell my scalp from my skin and look like a baby bird, in that I kept about 10% of my hair (which had been buzzed) during treatment. I so look forward to hair!
I started Tamoxifen 3 weeks ago and can't tell that I'm having any SEs from it, praise the Lord. Altho post-menopausal, I'm doing Tamox rather than an AI because I have osteopenia.
Had my last TE fill a week ago, and this one hurt afterward more than the others -- I guess I'm maxed out at a real B/C cup, while I used to be a light B. I'm scheduled for exchange on June 6 (D-Day). PS says I'll have no drains and should be able to go back to work in less than a week. Hope that's true!
Wishing everyone no SEs and a quick recovery.
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AnnTop so wonderful you have been doing so well.I am hoping for the same.Also excited that you didn't loose the lashes also using the Generic form of Lattisse so I have my fingers crossed.Also used it on the brows so, so far so good.Kept some of my hair although it is mostly the white ones and buzzed but didn't shave hope these remain. Though it may be harder to know which are new and which are old.Glad you seem to be tolerating the Tamox but do keep us posted,I am to begin this in 4 weeks along with rads.
Not sure if it is mind over matter and I know i am only 3 days out from last treatment but I feel as though this one is also easier.The real test will be over the coming weekend
Great day to all
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Happy day....
Today is day 5 past my 4th and LAST treatment.
I didn't need the Neulasta shot this time -- I assume because the immunity-boosting supplements I was taking, worked. As a result, I haven't been in bone pain, haven't needed any percocet.
This has been the easiest round for me -- at least partially due to no Neulasta shot.
The food aversions are toning down some, the bones don't hurt, the sun is shining -- and it occurred to me today that the worst part of chemo-hell is behind me. And... I can't stop crying.
I think they are tears of relief, gratefulness, and 'holy shit I'm really done' all wrapped together.
I didn't expect it to be so emotional.
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Shera - I think something happened to all of us when we finished chemo.,,there were alot of posts reflecting a strange mix of emotions right after finishing. I chalk it up to holding everything in thru cemo and then the guard comes down? very strange
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hi all- i will be starting T/C on may 18--have read a few pages and will come back to read more of your journeys....
my question is about icing nails--who did it? what did you use?
i've seen suggestions of ice and bags of veggies- did you take a dishpan for your feet? my cancer ctr does not have ice on premises so i have to take my own--my MO seems to downplay nails....
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Lumpy
Just a thought but is there any reason the MO would let you have your TX on Thursdays? You'd feel not bad at all to go to work on Friday and have your tired day on Sunday?
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Lumpy - I did thursdays..and I've got to say even tho I didn't actually go into work monday (took 3 months off), it was a MUCH better day than the first 3 days.
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i can probly ask to change to thursdays- i wouldn't really care except for trying to work-- i did hear that at work wednesdays are a slower day so it would be better to be off then but i don't think that would do it --it would be so much easier if i had "the job" !
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Lumpyne I used 2 small storage bags for each hand.Smaller than the gallon but bigger tha a baggy.Plus they are a bit sturdier so easier to keep in place. I bought one of the cloth ice bags from the drug store (largest they carried) that you fill with ice and bent my legs and put one bag over toes on both feet.This worked well for me.I thought about the frozen veggies but I am not sure how long they would take to defrost and didn't want to guess how many I would need.Though I was going to get rid of the soybeans i will no longer be eating this way.My place had ice but you can easily bring a small cooler with a bag.It didn't seem to matter if I took my hands out now and then to eat or whatever but I did do it through both the C and T drips,though I hear it is the T that effects them. It worked 100% for me my nails they are perfect even grow out whiter than before.I didn't do my toes the first TX and I got tough ridged nail on the big toe but iced after that and never got any worse. So in my opinion it worked and I would would definitely give it a shot.
Hard to say for you what day you should go as everyone is different.For me I have been laid off so diidn't have to work but I went on Tuesdays and I could have worked wed-Fri as I felt OK just a bit spacey due to the steroids .For me my bad days would be Sat and Sun or Sun and Mon.
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@Lumpy, I did my chemo on Thursdays, the first 3 treatments I was ready to go on Tueday, the last 2 Ive been off until the following Wednesday... Sunday was the hardest day (crash from steroids, the bone pain from neulasta shots). I think that schedule worked for me a great deal. I worked through out chemo, and Im ready to have my 6th and last round on May 17th!!
I iced my nails the first and second round of chemo, I was done by the third and Im happy to report my nails are fine. I had strong nails from the start so that may be why. I applied Sally Hansons Strong Nails polish through out my chemo as well.
Good Luck!
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thx gals!
btw-i finally got the job offer today so--start working monday-have been off since december 1st....
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Lumpynme: Congrats on getting the job
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Congrats, Lumpynme -- another step toward your "new normal"!
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lumpynme - Good luck with the new job.
Gayle
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I am one hour 45 minutes PFC!
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woohoo Joan!
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Hi, I am starting t/c and neulasta next week. Do I take the 12 or 24 hr dose. I would like any other support with this combination. Thank you in advance.
Terry -
I take the 24 hour dose per recommendations I found on this board. Has worked for me last 3 treatments. Good luck to you!
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Thanks Kim. I wish everyone well on this journey.
Terry -
Hi all... I haven't posted in a while. Last tx was on May 2 and Ive been focused on recovery from chemo... and getting back into projects at work.
A question for those of you who have begun Tamoxifen... are you taking a generic brand? This seems to be most common. According to this article / blog post -- there are more than one type of generic..and they are not all created alike. http://ihavebreastcancerblog.wordpress.com/2012/05/31/do-you-tamoxifen-then-read-this-post/
If you're on a generic... what brand? How are your SEs so far?
Does anyone use Wegmans Pharmacy? Which brand do they use?
I begin taking it next week. -
Hi, I am new to this forum, but have had two rounds of Taxotere & Cytoxan. I am halfway through! 4 scheduled treatments total. My side effects have been mild compared to others that I have read. Hair loss was the hardest for me. It occurred on day 16. I think most of the other side effects that I have had are due to the Neulasta (bone pain & lowgrade fever). When trying to describe it to non-chemo people, I've compared it to the flu. I have my treatments on Fridays & work from home on Mondays ( I have an awesome boss). So far, I've been able to go back to work on Tuesday.
I've just started noticing some numbness/tingling in my fingers. Is this normal & how long has it lasted in others? Any suggestions?
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Hi jgal,
Congrats on being half-way through! It sounds like you have some mild peripheral neuropathy. It is definitely a side-effect you should let your MO know about. Some of us take some preventatives to help (e.g. L-glutamine, Vitamin B6, acetyl L-carnitine). I would suggest a quick search using keyword 'peripheral neuropathy' on this site for more tips on dosing, etc. Your MO should approve everything as always.
Best of luck!
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Shera, I'm taking the Tamoxifen, and I have not had any trouble with it. I think that the people who have side effects tend to post more than those who don't and I have a lot of patients who take it and when I ask how its going they just say fine, and move onto something else.
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I truly wish I had found this page when I started my TC in Feburary 2012. As I was going through all four treatments, while it was not fun, I was amazed at how doable it was. I was not working and feel for anyone who continues to work through chemo. For me the mild nausea was controlled with drugs and it didn't seem to last more than a few days. Fatigue was the biggest issue along with the drug I was given the day after treatments to keep my white blood count up. It caused pretty severe joint and bone pane, but again, relieved by pain meds. Don't be afraid to ask for drugs! There are some really good ones that can be prescribed.
The aftermass of treatment has its ownset of issues, but still doable. All of my nails turned purple and lifted, but did not fall off as I thought they would do. I keep them cut very short, keep clear pollish on them and use teatree oil on them every day. If they got smelly, I soaked them in a little peroxide for a couple of minuetes, then applied the teatree oil.
Three months out my hair is coming in and I am still dealing with nail problems. Other than slight to moderate pain at the surgery site my life is getting back to being more normal. Whatever that is?I have discovered that BC will change your life forever, but it does not have to be in a negative way. The flowers smell a little sweeter, the birds sing a little louder, and love is ever deeper.
May God bless you all,
Cindy in TX -
I begin my first treatment today - it is currently 4:30 a.m as the steroid is causing sleeplessness and headache. Nervous about reactions as I already have terrible reflux disease and began having severe gastritis attacks in 2008 after taking some tainted Tylenol - visits to ER every couple of months for Zofran & Dalaudid IV. Have been managing that with Zofran and Levsin prn but still had 3 attacks over last 6-7 months. I will get Compazine with the tx and have compazine pills for home - plan to keep working (work in hospital doing bone density tests 3 days week in Mammography area - very, very supportive coworkers & boss). Happened on to this site by surfing net - lots of good tips, I am making a list for my visit with my doctor today! My treatment is just 4 times and just as a precaution as I had a rare type - metaplastic, squamous but with some DCIS - they were going to to an oncotype test to see if I needed chemo but because of the DCIS, the outside company said it wouldn't be accurate so chemo is just a precaution - will get Neulasta injection next day. After tx I will have 22 radiation sessions and go on Tamoxifin (probably). Crossing my fingers for all the drugs and remedies to help as family is quite nervous - more than me, I think. Will post my reactions. Thanks for this site!
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Chemo went well - no outright reactions - actually felt great all the while. Will see what the next couple of days bring...
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Third day after Neulasta and really, really painful bones. Hope this stops soon.
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MKRain - one way many of us manage the bone pain from Neulasta is by taking Claritin the day of and for 4 days or so after the Neulasta shot. Search for "Claritin" on this site and you will find lots of tips.
Feel better.
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