June 2012 Mastectomy

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7of9
7of9 Member Posts: 833

Who are my June 2012 comrads? It's our turn soon....good riddance neoadjunct chemo. Just one more to go!

Positive thoughts, negative margin results for us ALL!!!

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  • LastMango
    LastMango Member Posts: 21
    edited April 2012

    FINALLY!  Ooooh!  ME!  ME!  (jumping up and down in my seat, hand raised) I'm here! 

    Add me on for June 15th.  BMX with NS / direct to implant.  I was originally scheduled for May 1st BMX with TEs (with a different surgeon).  Nothing like switching horses midstream. Welcome!

  • 7of9
    7of9 Member Posts: 833
    edited April 2012

    Hi LastMango! So good to finally have some company. Getting a little jittery here...I have 1 more neo adjunct chemo to go! Woohoo! Then wammo! June 1st off they go....scared but excited to wrap up this phase of treatment then get the surgery behind me and the last of the cancer OUT.

    What does NS direct to implant mean? I'm bummed about my TEs since it appears I'll have radiation for preventative (pretty sure at least one node is/was involved) so I'll only get 2 or 3 fills then have to pause til end of summer. Still nice to worry about how flat I'll look instead of cancer anymore (well, at least worry less).

    Can't wait to see who joins us....

  • hannah318
    hannah318 Member Posts: 23
    edited April 2012

    My date is June 11th for my PBMX. I am very excited to have this date! Best to all.

  • faithhopenluv
    faithhopenluv Member Posts: 323
    edited April 2012

    I'm in...June 14th is my date for a BMX. I just got a letter from my insurance company that my BS is opting out of the network May 31st, so either he will get a waiver or I need to line up another that will work with the PS that is also already scheduled.

  • Jacki2005
    Jacki2005 Member Posts: 12
    edited May 2012

    I'm in.... June 6th is my date for BMX. Scare as hell, but also anxious to have this cancer out of my body, I also have one more chemo to go and then after surgery, yup  you guessed it radiation..... has been a very long 6 months so far.... good luck to you all.

  • faithhopenluv
    faithhopenluv Member Posts: 323
    edited May 2012

    Jacki2005 - when is your last chemo?  I am in single digits today - 9 days!!  And, then I guess the surgery countdown will bubble up.  Will you delay reconstruction until after rads?

    I called my surgeons office yesterday and they said that the insurance thing was a mixup.  why do mixups always happen at 4:00 on a Friday to add stress to a weekend?

  • 7of9
    7of9 Member Posts: 833
    edited May 2012

    faithhopenluv: 9 days til my last chemo too...yeah!!!

    I haven't contacted insurance yet...hoping they don't give me crap about takincg both bbs. I am at 20% risk on noncancer side but surgeon said it will go down to less than 1%.Did you call them or they call you? I have my preopt stuff May 17th and it includes billing/ins issues I guess...

  • faithhopenluv
    faithhopenluv Member Posts: 323
    edited May 2012

    I think when I started counting may 10th was 90+ days out, it feels great to be this close to the end. I've been pretty lucky with ses, it hasn't been fun and i really, really miss my eye lashes but many others have had it much worse. How about you?



    I called the bs because of the erroneous letter from the insurance compnany. But, I will start calling the ps in a couple weeks. I'm having fat grafting with the brava system and there is talk that some insurance companies are no longer covering it because it experimental. It is such a personal decision, it is so frustrating that was is covered becomes so arbitrary. I'm brac2 + so it makes my decision pretty easy, but I hear so many say that insurance won't cover their testing. It's nuts, i wish I had known years ago.

  • loriio
    loriio Member Posts: 247
    edited May 2012

    PBMX with Immediate reconstruction on June 26th.

  • GeorgiaRai
    GeorgiaRai Member Posts: 175
    edited May 2012

    Is there room for one more in here?!  I have my last chemo (TAC #6) on May 14, and BMX is scheduled for June 28.  I'm not doing reconstruction, but am having my PS assist my BS in my surgery in the hopes of getting the best-looking results possible (flat scars, no excess skin, etc.)  Rads will follow, but I'm not ready to start thinking about that yet! 

    Hugs to all of you as we take this crappy journey together.

  • annie3310
    annie3310 Member Posts: 111
    edited May 2012

    Hi, everyone. I just had my last neoadjuvant chemo treatment four days ago (dd Taxol, preceded by dd A/C), so my next step on this long journey is June surgery. I'm glad to find a group to go through it with. I meet with my surgeon next Friday, when he'll look at the ultrasound and mammogram I'll get that day. I assume it will be decision time on whether to do lumpectomy or mastectomy at that time. I think my chemo shrank the tumor enough to do LX, but I also have a benign tumor elsewhere in the same breast that needs to come out. That probably bumps me into mastectomy territory, and frankly, that's what I prefer. Whether it's just psychological or not, I think I'd feel better with the whole thing gone.



    I'm also hoping that a mastectomy will mean I can skip radiation. I'm triple negative - don't know if that means they'll just throw everything they can at me or not.



    I'm looking forward to following everyone's story.

    Annie

  • faithhopenluv
    faithhopenluv Member Posts: 323
    edited May 2012

    Congratulations Annie! A couple of us on this thread have our last Taxol this week. I've been counting days for so long and am sooooo happy this week is finally here :)

  • annievan
    annievan Member Posts: 92
    edited May 2012

    Hi all - -

     Just stepping in to join the June group. . .I'm scheduled for June 25th - PBMX with immediate reconstruction (TE placed).  Judging from the little bit I read in glimpsing the March and April  MX posts, I'm looking forward to having you guys go through this with.  I'm just sorry for the reason(s) you are all on here!  This has been a long drawn-out decision making process, and while I can't really say I'm "ready" to get the show on the road, I'm definitely ready to stop thinking, analyzing, researching, discussing and stewing about this surgery!

     Congratulations to those of you who are finishing chemo now - -

    Wishing you all the best, and for right now. . . hoping you all have a good week   Find something to make you laugh!

  • 7of9
    7of9 Member Posts: 833
    edited May 2012

    Georgia Rai: way to sum it up...a crappy road trip at best? 6 people in a coup... Not even that....but I guess our destination (healthy again) is going to be worth it.

     Looks like I'm first up (yeah, uh, oh no, crap) I'm June 1st. I have my last Taxol this week. A week vacation to the beach 8 days later then back 5 days to worry before surgery and oh-shitville.  I'm trying to get back into the "this is the end of cancer mode and first step to re-building the new me"...but getting nervous about the pathology report, pain, drains, ....plus I'm a do-er. The more I do, the less nervous I am and the less I think about this. While on chemo I repainted the bathroom (3 coats), powerwashed the front porch, patio, painted the porch, made 3 paintings for my son's room, working on a Memorial Day float with friends, been bike riding, hiking and mowing the lawn. I'm scared shitless of the weeks post op and trying to sleep on my back(!). Not thrilled that my fills are going to get cut off due to radiation (probable) so I may only get 2 or 3 in then have to look like a tired, bald boy the rest of summer (this hair thing is such a bummer in the heat....wig = hot and itchy...ugh).

    Anyone else feeling scared (again) as you wrap up chemo? I've gotten good news on how the chemo is working and sugeon was optimistic she'll get clean margins...but I made the mistake of mentioning to my cousin that the surgeon thought I may have 1 lymph node involved and she looked at me like I had dead meat written on my forehead. I'm definitely going to request no results released to anyone but me and my husband - just "she came through surgery fine".  I may keep my cards to my chest (ha, lack of it) and not bother sharing if anything less than jacks or better if you know what I mean.

    Annievan: looking to take your advice!

  • Lynn27
    Lynn27 Member Posts: 110
    edited May 2012

    June 7 for SNB and June 8 for BMX and DIEP (or TRAM if I'm unlucky) reconstruction.  I'm scared to death about the SNB, not the BMX.  I just want all this as much behind me as it is possible to be.

  • faithhopenluv
    faithhopenluv Member Posts: 323
    edited May 2012

    Awhhh 7of9 (and yes I do know the next generation reference :)) - no one wants node involvment, but we don't want any of this. Someone on another thread made the comment that the lymph node's job is to take the hit so it doesn't spread farther. 

    Not sure if you have a PT lined up, but I definitely recommend it.  I didn't after my surgery because my BS said I didn't need it unless I had an issue.  I think I babied my arm a bit too much, whereas I would have appreciated a specific recovery plan. 

    Last chemo is in two days and I am ready!

  • tellie_savalis
    tellie_savalis Member Posts: 121
    edited May 2012

    Hi guys!

    BMX should be June 11th.  Last chemo May 15th (TAC).  Met with PS to see about reconstruction, I want DIEP, and found out I can get it but because I will most likely have rads, she will want to wait until 6 months after my last rads!  I will find out about what I need for rads on the 24th.  I have at least 6 nodes involved (positive biopsy).  Had a palpable mass before chemo started but can't feel it anymore. So either way will probably have ALND. 

    Everyone says chemo is the hard part but I have a real problem with the idea of being cut open.  Oh and hospitals.  I think this scares me worse than chemo. 

    Corky  

  • 7of9
    7of9 Member Posts: 833
    edited May 2012

    Corky...loving the screen name!

    I am not thrilled about the "wheeling in to surgery part" (I think I'm going to keep my eyes shut....no bad memories of the OR for me thanks...). And I hope I can wipe my own rear the first few days. HATE being babied!

  • annievan
    annievan Member Posts: 92
    edited May 2012

    7of9-

    Yep, can relate to that "wheeling in to surgery part" - - I think I'm dreading that moment the worst.  I read on here somewhere, someone said they'd not really cried throughout the whole lead-up to the surgery, then the reality of it hit her as they came to get her to go to surgery, and the tears just started a freefall. . . I'm envisioning that, too.  I can envision all the sadness coming to a head and falling apart at that point.  I did have a nurse (who'd been through this before) tell me to take pictures of beautiful images, setting your mind in another place (Hawaii, France. . . whereever) to look at just prior to being knocked out - - and that you'll wake up on the other side with positive thoughts, too - - going to try that!

    I know many of you are going through chemo now, but is anyone working on trying to get in great shape before the big date?  I'm meeting with a trainer this afternoon to try to set some goals to get in in good shape before. . . using this as my incentive to get my rear end moving and strengthen arms, torso, etc. --- want to at least feel good about the other parts when the boob void hits -

    Just re-read all the stuff you've been doing, 7of9. . . wow - going to try to get some painting and other house stuff done, too-  hoping it will get my mind off things. . .

  • faithhopenluv
    faithhopenluv Member Posts: 323
    edited May 2012

    I've had 3 surgeries since November -(biopsy, lumpectomy and port installation) and I've cried each time as I went into surgery and I cried each time when I've woken up :(  It is hard to explain, I wasn't overly upset or scared.  It just seems to be the time when everything bubbles over.  But, it is literally a moment and each time some sweet stranger actually dried my tears.  That is the memory that sticks with me.  Hope that helps ease your minds a little!

  • tellie_savalis
    tellie_savalis Member Posts: 121
    edited May 2012

    annievan- I think that is great you are meeting with a trainer.  Honestly I believe that the better shape you are in the easier any surgery is.  I was in pretty good shape when the BC started slowing me down (part of the reason I found it).  I am doing chemo now 4 rounds of TAC which is really heavy chemo but only 4 rounds so I am happy.  It is only because I was in good shape I could do that.  I still try to keep up, but have lost a lot of muscle.  I do stationary bike, treadmill, light hiking and martial arts. 

    7of9- I love your screen name too.  Actually I saw it somewhere a little while back while poking around on the boards and told my DH about it.  I do call the port my borg port and joke about being assimilated.  I had better be able to wipe my ass, of course I hear a lot of people talk about being constipated afterwards so maybe I won't have to.  Silver lining?  I also hear that the nurses come in like every hour to check on you, I hate that.  I am a very bad hospital patient. 

    faithhopenluv-love your avatar! 

    Corky

  • Lynn27
    Lynn27 Member Posts: 110
    edited May 2012

    I'm trying my best to get into good shape, too, working with a trainer 4 hours a week.  He's a good kid whose mom just finished chemo and has just started radiation for her own BC.  It's been kind of weird having that emotional dynamic going on.  I'm especially working on arms, hoping that the stronger muscles keep lymphedema at bay.  I'm not sure it'll make all that much difference, but at least I feel like I'm doing something to regain some control over the situtation.  My PS is all excited about my extra working out, but I think he's just trying to be supportive. 

  • curveball
    curveball Member Posts: 3,040
    edited May 2012

    I am scheduled for mastectomy on June 6, left side only. I will be getting the injection for SNB on June 5. Does anyone know if it makes any difference getting the dye the day before MX vs the same day? Does the dye travel further the longer it is in your system? If so, will the surgeon still be able to tell which node it went to first?  

  • loriio
    loriio Member Posts: 247
    edited May 2012

    Good morning all. I hope those of you finishing up chemo are doing well.

    Annievan- good to see you here. I'm the day after you. I have started working out as well. I don't have a trainer but I'm using some DVDs here at the house.



    I think I read on a thread somewhere on here that you should be careful not to build up the chest muscles too much before TEs. I can't find the comment anymore. My PS said I can email/call him anytime with questions but I was wondering if anyone here had heard that. I am trying to focus on core and arms (although my posterior could also use some firming!)



    Good luck to everyone on this journey! I look forward to following everyone's experiences and pray all goes smoothly for all of us.

    Lori

  • 7of9
    7of9 Member Posts: 833
    edited May 2012

    Last neoadjunct chemo done! I finally feel like I can look out over the next few months and get back to my life after this surgery. The weather is beautiful and we are going on vacation next week. Then when we come back...6 days and a whole refill left on my Ativan to conquer last minute jitters! LOL

    It has helped to pick up early father's day gifts for hubby and dad...baseball tickets! Also some horse shows, relatives in town in July....it's finally ok to look forward again and not be afraid!!!

    How's everyone coping with the last few weeks til surgery? Doing well I hope...blessings to you all. I know I won't feel this positive the whole time, but my mother hired a gal to clean my house today and I had also hired a young guy to move some stones around and work on a patio project. It's coming out beautiful...a real oasis to look forward to reading and recouping on in June. Momentum is a beautiful thing.

    Let's keep pushing, pulling and encouraging each other til we get to the other side of this blasted thing...onward! 

  • longislandmom
    longislandmom Member Posts: 248
    edited May 2012

    @curveball- i don't think there is a difference re: when you get the SNB shot.  i had it day of because i had my BMX on a Monday and they don't do the nuclear medicine piece on Sundays.  most women i have spoken to get the shot the day before.  i think it's more of a scheduling vs. a medical thing.  but others may know more.

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2012

    Hi June folks! Check out some good info from the main Breastcancer.org site on Surgery, including:

    Hope this helps and good luck with all of your surgeries!

    --Your Mods

  • curveball
    curveball Member Posts: 3,040
    edited May 2012

    @longislandmom,

    surgeon replied to my email and said basically the same thing. The injection is a radioactive tracer and breaks down before it travels beyond the sentinel node(s). 

  • kimkay10
    kimkay10 Member Posts: 12
    edited May 2012

    I am scheduled for June 8th for my BMX.  I am being told I can't have reconstruction because I have to have RADS after my surgery.  I am confused because I see lots of posts of woman who are going to have BMX and RADS afterwards but are getting TE done.  I can't talk to the BS about this until May 21 and since she is at MD Anderson Houston downtown the patient access is a bit limited.  Anyone out there who has been told TE are ok to do even though RADS is necessary after surgery?

  • my3sunz42
    my3sunz42 Member Posts: 148
    edited May 2012

    Hey there June ladies ... I just heard from my surgeons ... scheduled for June 11th for BMX and reconstruction. So Corky, looks like you & I will be off to sweet dreams on the same day! As many of you have written, I'm keeping myself extremely busy these days, cleaning, planting spring flowers, remodeling our master bedroom, oh & buying a new horse (I needed a little more inspiration). Looking forward to getting this crap outta me and moving forward with you guys to our new normal!

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