MIDDLE-AGED WOMEN 40-60ish

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  • carollynn79
    carollynn79 Member Posts: 654
    edited May 2012

    Hello All

    I know I have not been on for awhile, i do a littel lurking but not much posting lately, so anyone of you have problems with cellulitis infections? This is my second one this year and feel quite worn out.

    DR says might have a chronic condition but time will tell, thought I would ask to see if anyone has had problems and suggestions for better healing. 

    Elimar new batch of rhubarb wine is brewing, will make rhubarb juice soon, it makes a great punch base and rhubarb lemonade is very tasty!

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  • Momine
    Momine Member Posts: 7,859
    edited May 2012

    carolynn, I have not had this infection (yet anyway). However, what are you doing for the lymphedema?

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  • carollynn79
    carollynn79 Member Posts: 654
    edited May 2012

    Momine,

    I  have not been diagnosed with lymphedema but wonder if I have amild case, when I get this infection by arm, shoulder, breast are all sore, I do massage my arm and pump my fist, not sure if it helps but I think it does.  May have to ask Dr, I am actually seeing my GP, my Onc is too far away, but prefer my GP, he seems more in touch with the issues I am having.

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  • Momine
    Momine Member Posts: 7,859
    edited May 2012

    Carol, as far as I know cellulitis is caused by lymphedema. Can you get in to see a PT who knows about lymphedema, so you can be assessed and possibly treated?

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  • 2FriedEggs
    2FriedEggs Member Posts: 640
    edited May 2012

    Regardiing the Brac testing; I have very strong family history of cancer on both sides of the family. I had a large fibroid removed at 18 years old and for years had numerous biopsies etc. My mom passed away at 42 from BC. My onco had me do the BRAC testing which he had to fight the insurance company to pay for even though they have "qualifiers" for the test which I fit into. They agreed but I tested negative. The thing is and I saw the same thing written on this site, there is a 3rd part called the Bart test. My onc felt that it is a very important part of the test but my insurance wouldn't cover that part. That part wasn't available several years ago.Anyway he said that there is only one company that actually does the testing but that after this summer their exclusivity runs out so it should be easier and less expensive to get tested with others doing the test. He also said there will probably be more trials available then as well. I am hopeful that I will be able to get the Bart then.

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  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited May 2012

    Carolynn--have you had radiation therapy?  Radiation causes permanent changes in the normal tissue, and especially in the tiny blood vessels, that make recurrent or chronic infections like cellulitis  a real problem.  I had that, plus truncal lymphedema, plus "post radiation pain syndrome" and wound up having a mastectomy to stop the problems and pain.  You should get a referral to an Infectous Diseases doctor, you may need long term antibiotic therapy to make the cellulitis go away completely. 

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  • Meece
    Meece Member Posts: 19,483
    edited May 2012

    I was trying to make sure I read up all the posts before I posted the new Mystery Pic, but noticed it was already being discussed, so I will post now, then complete my catch-up.  I hope that I am not seeming callous in case there is something serious being discussed.

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  • Meece
    Meece Member Posts: 19,483
    edited May 2012
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  • Meece
    Meece Member Posts: 19,483
    edited May 2012

    Now, back to my reading...

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  • carollynn79
    carollynn79 Member Posts: 654
    edited May 2012

    Native Mainer

    My GP discussed a little about the long term antibiotics, my big frustration is with my ONC as he does not always agree it is cellulitis but I know when i don't feel right, they told me I was one of the lucky 5% who had radiation damage and would always be a litel redder and maybe tender, but when I hurt to move, the breast is hot and there are streaks I know it is infection.  Looks like I will need to work thru it and see where it leads, I really appreciate you sharing your experience, I will discuss a referral with my GP if this does not clear up better this time, he also told me that I really need to come see him if I EVEN THINK it is infected as that way it may not get so bad.  Soemtimes I feel like I am making trouble where there is none, but I knwo my body and I realy need to listen to it better.  I have been described as a grunt and go woman and have been.  I think I am srtuggling with not being able to do as much.  Really trying to prioritize.  Thanks to all for your input.  Have to check in more often!!

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited May 2012

    Good to hear from you again, carollynn79, but too bad you are still having issues.  Glad you got some responses and can try to get the cellulitis resolved.  You are more than ready to move on, but cannot ignore the physical reminders lingering on and on and on.  That is one of the big bummers of B/C.

    Never tried rhubard wine.  It does sound tasty!  Tongue out  (They need an icon licking it's lips.)

    Meece, my guess for the Mystery Pic is tapioca, the kind they call "pearls."  

    Hardly any guesses last weekend.  If people want to have Mystery Pic on the weekend, get your guesses in this week.  If interest is low, we'll just let it go, so this is up to all of you Middies.  I'm neutral on it.

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  • cmbear
    cmbear Member Posts: 1,086
    edited May 2012

    MP-- insect larvae. Ewwwww!!

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  • madpeacock
    madpeacock Member Posts: 369
    edited May 2012

    MP - couscous?

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  • fmakj
    fmakj Member Posts: 1,278
    edited May 2012

    I think that it could be a sheep shaped cake pop!!  My daughter and I have been having fun with cake pops lately!

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  • cmbear
    cmbear Member Posts: 1,086
    edited May 2012

    Yarn with lots of little pills

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  • cmbear
    cmbear Member Posts: 1,086
    edited May 2012

    BTW HAPPY national excuse to drink margaritas and tacos day!!

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  • Ossa
    Ossa Member Posts: 919
    edited May 2012

    Hail

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

     My guess is frozen corn

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited May 2012

    Miniature marshmallows??

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited May 2012

    Melatonin??

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited May 2012

    White caviar ????

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  • Dianarose
    Dianarose Member Posts: 2,407
    edited May 2012
    elimar- I need your help. How do I get back into the signature part to make changes??? Please humor me, I am not computer smart. I know how to post on this site, get emails, copy and paste, and turn the thing on and off. Undecided
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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited May 2012

    D-rose, Click on your own name above, then on your profile page (to the right) click on Edit Profile.

    Marybe made me think of Dippin' Dotz, the weird round ice cream stuff, for the MP????? 

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited May 2012

    barb beat me to the marshmallows.

    Had another good visit with the MO yesterday.  I go back in three months and if all is still good I get to graduated to every 6 months.  Woohoo.  He also said my PS did an excellent job.  I thought so but good to hear it from a professional that sees what all the PS's do.

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  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited May 2012

    I was thinking a soft pillow .. but then again im on sooo much pain im in love with pillows .. LOL :) good day ladies .. and Happy Cinco De Mayo.... 

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  • mumito
    mumito Member Posts: 4,562
    edited May 2012

    When did we start the MP 's again?

    A bag of filling for crafts.Laughing 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    Fish eggs.. not caviar but fish rouge...

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    So glad I moved us to pg 667.. hated the last page number

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited May 2012

    carollynn.......Sorry to hear you are still having problems.  I hope you can get some resolution and feel better very soon.  When I was having problems, my RO originally thought I had cellulitis.  He treated it with antibiotcs for 10 days and there was no change.  Eventually I was diagnosed with Truncal Lymphedema.  I did go to a certified LE specialist and learned how to do self massage.  It has helped a lot, also I wear compression bras.  They are not attractive, but they really help a lot.  I sure hope someone can properly diagnose and treat you.  Hang in there.  I know it is frustrating.

    I still can't sit for long periods of time.  I went to the doctor Thursday for my ten day post op check.  Apparently feeling like I have given birth to a hippo, plus feeling like someone took a sledge hammer to my taibone, is normal for ten days out!  Glad to know that, and also happy to hear in 6-8 weeks I should be all healed up.  I wish it was today.  Just sitting here makes all my south parts scream!   I do have one of those donut things, but it really has not helped much.  I feel so funny having to wear an Always pad almost 16 years after a hysterectomy.  Drainage! 

    Dianarose I hope you start feeling better very soon.  You have been through so much!

    LovesChristmas, glad to hear the last Julia update was positive.  Sending lots of healing energy to her.

    Count me in on sharing some of that rhubarb wine.  I have never had it, but it is wine.  Wine is good......

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  • barbe1958
    barbe1958 Member Posts: 19,757
    edited May 2012

    Janis.....call me stupid, but why are you getting drainage into a pad??? I've had a hysterectomy too, and that area is all closed off.

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