Has anyone had balloon-catheter internal radiation?
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I had just turned 50 when my diagnosis of bc was made. My first BS wanted to do the Mammosite. I researched it and got a second opinion, from another BS (whom I ended up choosing) and he said I wasn't a candidate for brachtherapy as I was too young (ie.my life expectancy was long). I was glad he said that. The long term results are not out there yet and i don't want to be dealing with this again 5 years hence. Also, there is a small chance that BS would return in the same place and if you have internal radiation, you cannot generally irradiate that same area again, so what would happen then?
I'm due to start external whole breast radiation in the next week or so and will take the tried and tested method along with the schlepping to the hospital 5 days a week for 6 weeks over the convenience of getting it over with in a week. Everyone's different though. -
Yes, everyone is very different. You are 50. I am 76. You have IDC Stage 2, Grade 2. I have DCIS Stage 0, grade 1. Truth is, I am not sure I need any radiatoin if the path comes back all margin and no pathology. I think the biopsy got it all out. It was confined and not infiltrating. Would be a whole new issue.
Even though I know nothing, I would think Stage 2 is not suitable. You ask what hapens if it comes back. The answer to that is, mastectomy. And I would be OK with that. No rads, No chemo. I am on the fence even now to get that rather than lumectomy. All depends on the path report which I should get this week..
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Infobabe......I spoke to a woman this week, 76 who got brachy NINE years ago....from the same doc as I am going to - AND she had the same exact dx as you.....all removed in biopsy, but she had a lumpectomy as well. She forgo the five years of meds.....She's fine and has no regrets.....and said the Brachy was very easy.
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Infobabe, best of luck at your lumpectomy - when you are able, please post so we know you are ok! But we have all been through this and know the first thing you do when you come home is NOT get on the computer :-) I will say prayers for you tonight A young friend of 34 just had her lumpectomy today (4/30).
Shayne - I got your email, I'm just so behind on emails with overtime at work. And I had choir practice tonight and donl't get home till 1015pm and then had to eat dinner....and I have to get to bed now as I have my psychollogist appt before work tomorrow......always a fun time, lol. Will be in touch soon!
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Shayne
That is good and I hope I have the same experience.
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Thanks Cherilynn64 and I will check in when able.
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No worries Cherilynn......
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Well, I am home. Much as I hate to admit it, I have no pain. It will be more awkward than painful. Like so many have said, not fun, but doable.
Didn't see the RO. Operation at noon and RO appt. at 2 pm. No time. However, the surgeon talked to the RO. I think there may be some trouble as the excision might be too close to he surface. This would be a great disapointment to me if I have to go the 5 week route. Everything depends on the path anyway.
I am seriously thinking of mastectomy. No rads, no hormones, no chemo, and no rad damage to lungs and heart and maybe providing a climate for new tumors.
After the operration I got only ice and water, no cofee or tea. Out the door. No post surgery bra. Left my zip up sports bra at home but I have it on now. Perfect solution. Would recommend Penneys. Get a size larger. You need a little extra room.
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Glad you are posting so soon and came out unscathed (well as much as we all do, LOL).
You make valid points about a mastectomy and it's a route I considered, but wait till you get the final results from the pathology report and also the consultation with the RO. But it's always good to have a Plan B in place. I certainly did and I'm sure we all did.
So glad you are doing ok!!!!
Cheri
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You are younger, Cherly and working so I understand. That recon sounds awful but the DIEP sounds like it may be worth the trouble. At least it is your own living tissue.
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Home again. Had the test to see if the baloon was properly seated for the seeding and it is not. It is too close to the surface so Mammosite is a no go.
New choices: Partial breast radiation, like a mammosite from the outside taking three weeks.
Whole breast radiation for 5 weeks, both of these once a day, 5 days a seek.
Mastectomy
And I am thinking, not the doctors suggestion, doing nothing based on the pathology report on Friday. After all, it is DCIS stage 0, grade 1.
Had the spacer balloon and catheter taken out today which is a relief in itself. I had my first sponge bath today, doable but cold. Don't have to do that anymore.
Got to do more research. Wonder what no further treatment would mean. My poor left breast has been radiated all to hell starting with a needle biopsy 8 years ago to this seies maybe making more mutations.
Grrrrrr.
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Infobabe - no additional treatment is a reasonable option for someone your age with your stage of breast cancer. It is exactly what I would want my mother to do. I have a friend who's in her early 60's. She had a tiny DCIS which was removed during the biopsy. Her lumpectomy showed no additional cancer and she passed on radiation. She took Arimidex for about a year and developed cataracts, so now she is not taking any hormonals. Her surgeon and oncologist agree with this approach, based on the size of her DCIS.
By the way, someone mentioned that if you had brachytherapy and had a recurrence, you would not be able to have full breast radiation. I can attest that you can, and I did. Unfortunately I did have a recurrence in the area of my Mammotome biopsy scar, I went to Dana Farber, my doctor was the Chair of Radiation Oncology, and he found a way to give me a full course of radiation.
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Thanks for that information. It's what I am thinking. Did I say I am 76 and fair skinned?
Need pathology report and a chat with the oncologist. Hope they back me up or I will be in a quandry again.
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Info - sorry, I just am now seeing this and got your PM. We are on mandatory overtime at work and I'm so behind on so many things.
I agree with Luv that no treatment may be a very valid option since you caught it at such an early stage and non invasive. I am very fair skinned so I totally understand that part. See what the path report says, but you laid out very well your multiple options. And sometimes no treament IS the best option.
You are still in my prayers......you will know what the right decision is once you have all the facts.
Cheri
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Balloon is no longer on the table for me. Just got back from the surgeon and they did not get clear margins, but it is all DCIS, nothing worse. They did on all sides except for one. This is because the DCIS is located high on my chest where there is not much tissue to work with. I will have more surgery either lumpectomy or mastectomy.
These are my new options: Simple mastectomy with no rads but probable hormone. Three week partial breast rads. Five week whole breast rads, all with hormones later to be decided.
Pretty much a toss up but my husband who has not offered any opinion until now says if it were him, we would go for the 5 week rads. It is the most consevative and the longevity is the same for all.
I have a phone call into my RO to ask how do they protect my lungs and heart. That will be the deciding factor. I can always go back to the mastectomy which is very final.
No fun. But I am lucky that my life is not at risk. A speed bump on my way to a nice summer. I just don't know what my dog will think.
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I had Mammosite four months after my lumpectomy for 8 mm IDC, grade 2, ER/PR + HER neg, no nodal involvement. No problems, very easy and convenient. I had chosen this therapy not for the convenience but to get as little radiation as possible and to try to confine it to the lumpectomy cavity. Had a close to the surface area which became quite red and painful; used argan oil (Marin brand) and it worked well. I asked why this particular therapy is not used more and was told because it costs less (one third less) than the whole breast radiation.
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There has been quite a bit of controversy lately about the brachytherapy. (I did have it done last November). Here is the latest I have found
http://www.newswise.com/articles/asbd-statement-on-jama-study Thought some of you might be interested in reading it..
Vickie
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Vicks, I have seen that article and mentioned it to my surgeon. She said something about parammeters which I think is probably the case.
On this board someone said she was offfered it with Stage 2, which I think is very inappropriate. I think it should be just Stage 0. Anything infiltrating is getting too dicy.
But you need the expert guidance of your own doctor. After all, what do I know?
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I am going to start a new thread.
Everything You Know is Wrong. (Wierd Al)
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infobabe - thats what my RO said to me......but in his words he said "Not that it wouldnt "work" ... just that we havent done enough of them......"
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I'll let you know..start the rad in the morn..so far the cath hasn't been to uncomfortable..lumpectomy was a breeze..and getting the cath in was not a big deal either..Doris
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Infobabe wrote:
"On this board someone said she was offfered it with Stage 2, which I think is very inappropriate. I think it should be just Stage 0. Anything infiltrating is getting too dicy."
Although I agree that Stage 2 should be cautious, the preferred stage for use of mammosite or other Accelerated Partial Breast Irradiation (APBI) is T1 and not Stage 0.
The following article describes guidelines from the major professional society of radiation oncologists for APBI based on the data available.
http://www.sciencedirect.com/science/article/pii/S0360301609003137
Criteria for being "suitable" for APBI include patient age >= 60 years old, no BRCA 1/2 mutation, tumor size <= 2 cm., Stage T1, margins negative by at least 2 mm., no lymph-vascular space invasion, ER+, unicentric only, clinically unifocal with total size <= 2 cm., invasive ductal or other favorable histology, not pure DCIS, no extensive intraductal (i.e. DCIS) component, pathologically node negative, sentinel node biopsy or axillary lymph node dissection. The article goes on to loosen some of those criteria in defining a "cautionary" group for whom APBI may be considered, as well as a group of patients for whom APBI is "unsuitable".
Some radiation oncologists are more favorably inclined toward APBI than others and use of these guidelines, especially for the "cautionary" group will vary.
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Exactly right! This is why when I talked with my RO, he said he could not tell me for certain if I am a candidate for Brachy - UNTIL my pathology report comes back definitive for DCIS, stage 0. This is the criteria.
When I asked him about mammosite and the balloon catheter - he said the other 2 methods they use are much more efficient with less side effects . . . .
My radiation treatment in my sig line is TENTATIVE to what comes back on the path report.....
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Shayne, sounds like your mind is settleing down like mine has. The shock has worn off. There is a lot of waiting and we are wasting good time worrying about it. I am starting to learn there is always a plan B, C and D.
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Yes, someone else told me that too........then i tried to research what those plans would be or look like, and THAT sent me in to a tizzy.....
really need a robot to do some research for me, lol
but just trying to go with the flo....
today was a good day
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According to the guidelines the stage criteria for the preferred category is T1, a small well-defined IDC without much of any DCIS. Pure DCIS or IDC + DCIS would put you in the cautionary category. Still may be OK but not as favorable for APBI as T1.
Although DCIS is preferable to IDC if you could choose your diagnosis, it is not better in all respects. When considering partial breast irradiation, the doctor is looking for a small defined tumor. DCIS has a tendency to spread out in the breast and a larger area of the breast may need to be treated for DCIS than for very early stage IDC.
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I should probably start a new thread since balloon catheter is not on my agenda anymore. But all my pals are here.
Since I did not get a clear margin on all sides in the lumectomy, I am back to the operating room for a re-do, May 15. No wire this time and it is supposed to take only a short time but I will have a general anesthetic, which was OK last time. I am about all healed up from the last time, 10 days ago. Little bruising, no pain and it looks like a couple of scratches and no divot. My surgeon said, "you heal up good."
Then I wait first for the path report then I have to really heal up before they start rads. Rads could be for 5 weeks or shorter. I will probably see the oncologist sometime in the next week or so, now they have the first path.
I don't know what will happen if they still do not get a clear margin this time. I would think a mastectomy.
This is going to take all summer, I can see. I thought it would all be over by tomorrow. Wrong.
Everyting I know is wrong. (Wierd Al)
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Hoping for clear margins for you on the 15th! Im sure it will be!!
keep us posted......
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I just read the following article below a few minutes ago. I found it rather interesting....and want to share it with all of you..
Vickie
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thx for sharing!
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