March 2012 chemo
Comments
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Haven't had the chance to post much since the start of tx--you gals move quick!--but did want to share that today was my LAST CHEMO INFUSION (hopefully forever).
The whole experience was much easier than I imagined, with fatigue and hair loss being the only side fx of note. I think I was very lucky. Now, on to Tamoxifen...and back to my running.
Hope all my sisters here are doing well--or at least as well as can be expected.
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Indigo: love your words.
I start back to chemo on may 8, one week today. They wanted me to be eating more regularly before I started, and I am still on small portions and slowly adding more regular foods in...re: positivity, I am learning that I can't predict the future and I feel much much better if I don't try! Living in the moment and either enjoying it if it's good, or knowing it will pass if it's no good...but those little things, like the taste of ice cream, spring sun finally warming my body, watching my kids (on a good day), music I love...fleeting moments. -
Tc- couldn't agree more. Just have to do what we can to reduce the exposure to one of these. I throw my shampoo out and got paraben free Burt's bee. Decided I will do yoga after chemo to keep my stress levels down. Let's see how long these resolutions hold.
Indigo- love your words too.
Michelle- good luk with your port appointment
KCB- glad things are slowly moving back on track
Sissydi- yeah, on to Taxol
Kadia- great to hear your done.
Continuing on funny- not sure if you guys have seen the thread 'you know you have cancer when' on Stage III forum. Hilarious... Here us one that cracked me up.... 'you know you have cancer when your boobs have been photographed more often than Pamela Anderson'
Along that note- I had Tram reconstruction along with BMX in Feb right before chemo. My PS like others takes lots of pictures of his "art work". One time the intern said something funny and I smiled just as the camera clicked. While my PS makes it clear that the camera is only focused in his art work, I was so shocked/embarrassed that I smiled for the camera while posing nearly naked!!! -
Kadia - woohoo to last chemo - did you ring that bell?
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I don't know what I would do with out all of you. You somehow always seem to know what's on my mind. I'm once again coming out of my "dark days". I really just try to hide on these days. It's not the prognosis I think of, my MO on my first meeting said "we can beat this" and I'm taking his word on it. Actually I haven't given it any other option in my mind. I think of when this is over and I'm free again! My DH is supportive of me and somehow that makes me cry. I think of how unfair I'm being to him having to put up with this crap. Better days are ahead!
Kadia Yippie for being done!
KCB so glad things are moving forward for you!
Michelle-good luck with the port.
Kltb try to stay positive through this. I know it's hard.
Everyone else have a good day with minimal SE's.
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Whew, finally read through all the posts since I was here last.
First and foremost to Nicole (nsmolen) - don't you dare give up, girl! Lean on us when you need to and we'll help you get through this. And, here's another survivor story to inspire you: my next door neighbor spotted my bald head the other day and came over to tell me that she is a 12 YEAR SURVIVOR of STAGE IV BREAST CANCER. I haven't had a chance to talk with her since our short visit but I will. Nicole, you can do this! Sending you lots of love.
Also, in reading what we post, I've decided BC is a crapshoot. Whether we eat healthy (or not), whether we smoke or drink (or not), whether we're overweight (or not), whether we have children (or not), BC strikes women...period. I'm not going to overly blame myself for unhealthy eating, needing to lose weight, or drinking or smoking. I have the gene mutation (BRCA1) so my destiny was determined long ago. I hope researchers continue to explore these mutations and find a "fix."
There are so many posts I want to respond to but know that I'll miss someone. I thank you ladies for your courage, your humor and your kick a$$ attitudes. I truly don't know what I would do without all of you!
I finished A/C last Wednesday (yayyy!!) and will now move forward to Taxol on the 9th. Foot infection has cleared up but now, thanks to the antibiotics, have a friggin' yeast infection. And I wondered how I would deal with hairloss...that's been tons easier than everything else that goes along with this journey. Our new normal...
Love to all
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I"m hungry and just want something that has flavor! Not cardboard or dough!!!!
Sorry all I had to let it out.
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Hi ladies! Just popping back in from the 2011 March Chemo Lounge. One year ago this week I finished chemo. Life is good. I feel good! I ran 8 miles yesterday. There is life after chemo!!!! Take it one day at a time...you will get through this and enjoy life again. Hugs!!!! Be well.....
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thanks for stopping in MDG and giving us and update! 8miles! impressive!
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Hi ladies! It's been several days since I have been to the forum. Hope everyone is doing well. I was in the hospital over the weekend (blood counts tanked), so had to have a transfusion. Then I've been crazy swamped at work yesterday and today. I have my last AC Thursday. Ugh...I am so dreading it but ready to get it over with. Then we'll see what Taxol has in store for me.
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Me too Lana.....dreaded my last A/C on Monday, but soo thankful its over. You will be too! Don't know what Taxol holds either, but was assured its a bit easier.
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Sissy - I must be the exception to the rule with Taxol. AC was bad, but nothing could touch what i experienced yesterday with Taxol. Granted, not all get the muscle and bone pain (I wish it on no one!). Things are better today, but my body feels like it went through the wringer....sore and very tired. I believe less than 50% get these pains, and maybe a small percentage of those get it to the degree I did, but was I shocked since my MO never mentioned a thing.
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My heart is breaking tonight. Just found out my friend who is stage 4 with non hodgekins (SP?) lymphoma is in the hospital on a respirator and not expected to make it. I just talked to her last week and she was fighting and I thought turning a corner. Sorry to be a downer.
CANCER SUCKS
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I'm so sorry Kim
. That totally sucks.
Day 2 here. Took kids to school, went back to bed, went for nuelasta, went back to bed. Now trying to make it through a band concert. I just have to sit here but that is about all I can do. -
kltb thanks, impressed you are at the band concert. hope tomorrow is a better day!
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So sorry to hear about your friend Kim.
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Kim, so sorry about your friend. ((((((Kim)))))))
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Kim--- saying prayers for you and your friend. So sad and have no words that will ever give you enough comfort. Gentle hugs to you. and yours
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Kim- very sorry.
Lostinmo-I found this last go around that I could taste warm lettuce. Yummm. Did you get your washer?
Okay I have a new SE. I am dumb. I am sitting here trying to peck this out, really want to respond to people but I have the memory of a gnat. It seems like every go round has been a bit different, but this one just feels like I had a brain transplant. In all it's not bad though, kind of funny. and I can totally rewatch anything on tv!
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Thanks you guys, I'm just down and cant stop crying. Going to log off for the night. Hugs to everyone who needs one and good luck to anyone having treatment tomorrow!
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Kim-sorry it's one of those days for you. Sending you a great big hug my friend.
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Kim - so sad for you and your friend. I HATE CANCER!
Kam - sorry you're having a rough time with Taxol. I start next week and am dreading it. I hope your SEs pass quickly.
Corky - you crack me up!
Lana - sending you strength to get through your last A/C.
Good story for today - yesterday I had an appointment with NP at MO's office. She told me of her very dear friend who was diagnosed with Stage IV Breast Cancer 21 years ago!!
WE CAN and WILL DO THIS!
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Kim
I'm so sorry to hear about your friend, how devastasting. F'ing cancer!! I wish I could say more to comfort you but there are no words,
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Kim- so sorry about your friend. I have no words to say just sending hugs your way.
tellie- now I'm confused, did I say I was looking for a washer? I sold the one I had, it doesn't fit in the rv and I'm still planning on hitting the road to travel again as soon as I'm done with all this. But I can relate to the brain thing, I have to keep scrolling back up to see what I'm answering. lol The warm lettuce didn't sound very good until I started thinking of wilted lettuce. Fresh lettuce covered in hot bacon grease and onions. Probably not the healthest way to eat lettuce.
Lisa- thank you for sharing!
I have decided today will be a good day, even if it doesn't want to be! I will chose.
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lostinmo
Where do you think you'll head to first??
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Kim - so sorry about your friend. Sending prayers and ((((HUGS)))).
I'm with you on the memory thing, girls. I read through the posts and want to respond but then can't remember who said what when I start posting a reply.
Kam - sorry to hear about your experience with Taxol. I'm praying Taxol will go better than AC for me. AC has been BRUTAL.
I'm so dreading tomorrow but the sooner it gets here, the sooner it will be over.
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I think it was Indigo and it was a dishwasher.
Laying here feeling sorry for myself. Had to send my mom on a field trip with youngest DD. not that I really wanted to go but it's the principle of the matter. Hungry but can't think of anything to eat. And day after nuelasta shot soreness is starting. (((whine))) -
MLB-where we head to will depend on when I'm through with treatments. If we can we would like to head back to CA to run a pumpkin patch and Christmas tree lot. Yes we are true gypsies! LOL We were all set to work right outside Yellowstone National Park for the summer when I got my DX. I still have that on my list as well. And many, many more places I haven't been to yet.
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kltb and everyone else with the post-treatment yuck - hoping today goes by quickly and that you find something good to eat/think about! I still haven't started shopping for a dishwasher for real - surfed a few sites like Home Depot, Lowe's and Sears - geez, who would want to pay a thousand bucks for a dishwasher unless you were running a catering service?
I am holding onto my plans for us to run away to Vegas to celebrate our anniversary - our 30th is 5/29 (I got married at 21 - where did all the time go???). Obviously we can't do it in the middle of chemo - so at this point, I am making whatever plans I can to do it later this year or when chemo is done. (Not sure yet when rads has to start - but there WILL be a way to do it). The men who run the shop where I bought my wigs are in the entertainment business also and have another store in Vegas, and when I told them my story, they said when we make our Vegas trip to let them know and they'd hook us up with some fun stuff - like show tickets. I just want to dress up in my gorgeous purple film noir pinup style dress, DH can wear whatever he pleases - and drive through one of those wedding chapels to renew our vows. And eat good food and shop. I'm not a big gambler (I'd rather shop!), but I'll play a few slots with DH.
I have lived in the western U.S. for 30 years now - but never yet been to Yellowstone, can you believe it? We used to talk about going with the boys when they were younger, but never managed to do it. Most of our vacations have been to visit family who live in other states.
I have been to Rapid City on business twice over the last couple of years, and managed to visit Mount Rushmore and Crazy Horse on our last day. And Wall Drug... world's best tourist trap ever.
The chemo brain thing - I'm already on the ding-y side and have to write stuff down. I can just see what's coming. Oh, well.
and.... today my hair has finally started coming out. I tugged on a lock of it and it came off in my hand... cried just a little and sucked it up. I'll keep an eye on it today and tomorrow, but I don't want to shed all over the place - already constantly cleaning up hair from our two dogs - so most likely this will get buzzed before the weekend. It's weird, though - it's mostly coming out on the right side. Hmmm.
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Indigo-you have to put Yellowstone on the list of places to go. There is no place like it and if it wasn't for all that darn snow they get in the winter, I believe I could live there. Last summer we worked outside the Badlands National Park in SD. Yes Wall Drug is a tourist trap, but they have really good pizza.
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