IV or injection. How do you get your herceptin?

cinnamonsmiles · March 2012

I am not her2 positive but wonder how you all get your herceptin treatments. Are they infusions by IV or do any of you get injections?

Thanks

sbidalia · March 2012

My daughter gets hers both IV for systemic treatment and intrathecal thru an Ommaya port for brain metastasis.

Jennt28 · March 2012

Herceptin is currently given via iv, however I know there is a new version that can be given via simple injection that is in clinical trials at the moment.

Jenn

marvass · May 2012

Do you know any place where one can get intrathecal herceptin, my wife needs it urgently.

Jennt28 · May 2012

You mean buyit outside of the medical system? Or the clinical trial, and if so what country?

Jenn

Jennt28 · May 2012

There are 2 trials either already open or opening soon:

http://clinicaltrials.gov/ct2/show/study/NCT01566721?term=subcutaneous+trastuzumab&rank=1&show_locs=Y#locn

http://clinicaltrials.gov/ct2/show/NCT01401166?term=subcutaneous+trastuzumab&rank=2

Jenn

marvass · May 2012

Anything will do except the two clinical trials that there are right now. We are in Europe by at the moment my wife is in NY NY. We have tried for the past 8 months to enter into one of these but did not succeed.

Mario

marvass · May 2012

The two trials you gave me are not intratechal for the brain and spinal cord. Intrathecal are given int the nervous system fluid by a lumbar pucnture or an omaya reservour.

Jennt28 · May 2012

Sorry - missed that part... I have no experience or knowledge of the availability of Herceptin direct to brain for brain mets I'm sorry.

I would suggest reposting your question in the Stage IV section as you may get more replies there. There is also a thread in there called Brain Mets Sisters where someone might be able to help you.

Jenn

marvass · May 2012

Great !

Will search for it, already started a new thread

Thanks very much Jenn

Regards

Mario

Alicethecat · June 2012

Hi everyone

I have had 4 x FEC and start Taxotere on June 8 x 4 with Herceptin starting in round two of Taxotere for a year.

No port so far - and no plans to have one. I feel free. After my infusion, my life goes back to normal or as normal as it can be. No probs re flushing a port, potential infection, pain where the port is.

Of course, it is a personal decision - and I am not of a litigious nature. My chemo nurse said there was a risk of doing Epirubicin without a port - brown lines on arm, chemcial leaking out into tissue - but said it depended on the skill of the nurse.

I have faith in the chemo nurses, am a risk taker and an optimist. After 4 x FEC, I still have no port and am very happy. Still have my own life and can forget about breast cancer for a lot of the time. Not so if I had a port...

Anyway, it's a personal decision for everyone.

Best wishes

Alice the Cat

IV or injection. How do you get your herceptin?

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