Any April/May 2012 rad girls out there?

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  • MizMarie
    MizMarie Member Posts: 332
    edited May 2012

    I started using the vitamin E cream from the very first day.  I was unsure of how much I should use, so I globbed it on when I probably didn't need to use so much in the beginning.  With 6 boosts remaining, I am medium well done, but not particularly painful.  I have some itching, and a couple of areas that are starting to feel a bit leathery; I suppose the skin there will eventually peel. 

  • mamglam
    mamglam Member Posts: 178
    edited May 2012

    Joanne_53,

    The instructions I was given for slathering the cream was, nothing on the skin 2 hours before and after treatment.  My skin is burnt and was seen by the RO today even though I finished my last treatment yesterday.  She has recommended to put some hydrocortisone on the unbroken skin and some dressings on the broken parts.  The name Nature's Aid was also mentioned by someone at the hospital - not sure how this cream works.  I was also recommended taking some Advil for pain and to watch out for fever as that will indicate a full fledge infection.  

  • Andimom03
    Andimom03 Member Posts: 162
    edited May 2012

    Fredntan, I have the TEs too, and they feel like boulders!  Very annoying and they better be worth it!  I had a double, but the cancer side is the one that gets tight and obviously having the rads. 

    I was told to start lotions day 1, using calendula. It is very mild and cooling. I am not having any reaction yet, of course, but it still feels good.  Can't put it on 4 hours before but can after treatment as I dress. Then again at night.

    Anyone feel nauseous after treatments?  I have for the 2 tx so far, and don't know if it is me being anxious or actual nausea.  I don't feel that anxious right now, but do feel weepy alot! Anyone in the same boat?

    Andi 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    Back home from # 17- the itchy rash is yeast!! onco told me to get some anti fungal and cortizone.. feels better already.

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited May 2012

    Lory, what does your rash look like -- I don't have one but have a bunch of little "pimple" things between my breasts - I figure it is because it is not dry there --

  • Maghery721
    Maghery721 Member Posts: 68
    edited May 2012

    Hi all,



    Nurse gave me hydrocortisone today after rad techs saw me go to scratch my itchy red area. It's definitely calmed down the itch but it's a bit greasy. My back dries out quickly after putting aloe on it. It hurts when I scratch it. Still out of work, waiting to hear when I can go back but actually glad that it happened because the fatigue is kicking my butt now! I have 6 more tx and I will be done!!



    Hope everyone is hanging in!



    Cathy

  • Cindyl
    Cindyl Member Posts: 1,194
    edited May 2012

    I am feeling a lot less fatigued.  Dr. recommended benadryl at bed time.  I don't actually notice that I'm sleeping better, but I must be.

  • momof3boys
    momof3boys Member Posts: 896
    edited May 2012

    Andi- I was feeling nauseous in the beginning too. My RO said to eat a little but more than usual. He said that our bodies are constantly trying to keep up with repairing during the radiation tx. I felt nauseous mid to late afternoon, and lots 2.5 lbs the first two weeks.. I've been having a snack in the afternoon, and eating a but more (healthy snacks), and it has helped.

  • momof3boys
    momof3boys Member Posts: 896
    edited May 2012
  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited May 2012

    Cindyl - Benadryl is on the drug interaction list with Tamoxefin --- not sure if you have started it yet.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    Joanne, it looks like little pimples.. as well as itchy.

  • Cindyl
    Cindyl Member Posts: 1,194
    edited May 2012

    Thanks, by not a problem Joanne.  My MO doesn't like to start Tamoxefin until rads are done if possible.  One set of SE at a time.  I have an appt. with him for the day I finish rads.  blech.  And in some ways I dread the meds more than any other part of this.

    Frown

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited May 2012

    I agree -- I was so nervous too but I am doing good -- no problem that I can see from the drugs --- don't be afraid --

  • Cindyl
    Cindyl Member Posts: 1,194
    edited May 2012

    Glad things are going well!  I should stay out of the "Tamoxofin is the devil" threads.  I suspect they give me more to worry about than I need right now.

  • Califgirl12
    Califgirl12 Member Posts: 92
    edited May 2012

    How about this one ladies....I too was dizzy and nauseated the first 5 treatments. The Lady RO that I saw last week....because my regular RO was out, said "it's all in your head....". She was a piece of work. I walked out on her after she proceeded to continue offending me. Anyways, the dizzy sick feeling left after the first week. I feel ok right now. I am hoping I don't get too slammed by fatigue. I don't work right now, but my DH works a lot of hours and Don't want all heck to break loose on the home front. When mom is down, nothing gets done.

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited May 2012

    I agree - is there really a thread called that .... I went in open minded because I have to take it regardless --- and I remind myself that some of the s/e are also symptoms of menopause .. I was already have hot flashes and having trouble with insomnia -- that actually got worse after my diagnosis but getting better now that I am almost finished with my rads.  As for any other s/e ... cannot see them. 

  • Califgirl12
    Califgirl12 Member Posts: 92
    edited May 2012

    Hi JanetM

    I like your comment about dinner. Before I had some high standards for what I made for dinner. Now, I have been reduced to the wonderfully delicious and inexpensive roasted chicken from Cost Co. I could write a cook book on the many ways to make a good dinner with those little guys.



    Tonight I made fast fish tacos thanks to Trader Joes. Corn tortillas, frozen pancake breaded tilapia, bagged shredded cabbage, a jar of green salsa and sour cream. Dinner in a bag....you gotta love it!

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited May 2012

    You have to admit that the roasted chickens are the best thing there is --- Can serve it with so many things --- hot or cold too ---- Anything that can make our lives easier but still healthy ...

  • Cindyl
    Cindyl Member Posts: 1,194
    edited May 2012

    Yeah.  I used to pride myself on home cooked 6 days out of 7.  It might be something in the crockpot or a warmed up leftover, but by golly it started out fresh and raw and I made it with my own two hands.  Now it's a "healthy choice" tv dinner or a frozen pizza or a preroasted chicken, or something from the deli.  And it's almost more than I want to do to warm the dinner in the oven.  I'm not sure I won't end up tossing a loaf of bread and a jar of peanut butter on the table and telling everyone to "help yourself" and make sure you load the dishwasher when your done...

  • akmom
    akmom Member Posts: 272
    edited May 2012

    Last rad treatment today, yay! The rad tech and the doctor told me that the coming week or two will be the worst time for skin side effects, and I'm to prepare for itching and peeling. But maybe I'll be lucky like I was with my diagnosis, and get off easy.

    Sandyland, I asked the doc about the swelling at the base of my throat and tightness across my upper chest that came on right after my treatment on Friday. She was adamant that it has nothing to do with the rads. Guess if it persists or gets worse I'll just ask my family doctor. If I can be bothered.  I'm just tired of worrying about every little thing that pops up and wondering whether I am imagining things. I need to get a grip, be grateful this was caught early and move on...

  • bethm
    bethm Member Posts: 45
    edited May 2012

    hi everyone. Just wanted to send some positive light on the subject of Tamo. I have been on it since the middle of Feb. and have had VERY little SE's. There is a great thread on here about how Tamo is not that bad. I have had 21 rads with 14 to go and can't wait to be done so I don't have to think about BC every day.

  • MOT
    MOT Member Posts: 130
    edited May 2012

    Yea! to everyone (mamglam, fredntan, akmom and others) who have finished rads or are finishing this week! Thanks for all your insight and yes, humor during this trying time. You've made it all easier for the rest of us.

  • MOT
    MOT Member Posts: 130
    edited May 2012

    joanne -- thanks for the info on the soft bra. I'm going to check out the first one you mentioned. I have traded my LX "amour bra" (Danskin zip front sports bra) for a very soft and stretchy sports bra also by Danskin at Walmart. But I would like to have a "regular bra."  ha ha whats "regular" about having rads?

    Janet -- love your dinner comment! My thoughts EXACTLY!

    Will get xray'd once week per my techs. I'm going to ask how much that rads machine cost. Saw another RO yesterday for weekly check, uneventful. He is not as nice as my RO.

    Saw my insurance claims for all the tests, appointments, treatments so far. Amazingly expensive for my small CA.

  • fredntan
    fredntan Member Posts: 1,821
    edited May 2012

    I have been nauseas slightly too. Just took something for it. I just havnt got my appetite back. Good news i am down 1 pants size. I have lost five lbs on rads or since end of chemo. Am really tired. Am less teary, but sometimes it hits me.



  • dechi
    dechi Member Posts: 173
    edited May 2012

    #31 today! 2 more to go after today!  Yeah!!

  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited May 2012

    MOT I love that bra -- I used to wear jockey underwire ones and some frilly ones to but I am going to buy a couple more of these and I might even try to dye one --- I now need a slight bit of padding because of the dint/dimple and this is actually just right.

    Congrats to those that are finishing this week -- keep us posted on how things go --

  • ang7894
    ang7894 Member Posts: 540
    edited May 2012

    OK girls is it ok to start using biotin for hair skin & nail growth now that chemo is done.?  All I have is 33 rads start rads on tuesday 5/8/12 and herceptin until march 2013 :(      And am I ready for nioxin shampoo & conditioner for hair growth. Really miss hair never knew how much I took it for granted until now.

  • ihatemyboobs
    ihatemyboobs Member Posts: 83
    edited May 2012

    Question: for those of us getting radiation after chemo, how long between the 2?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2012

    Ang- I am going on 4 months out from chemo and rads now 1/2 complete- I just lost my two big toenails.. my hair is growing without any help from nioxin or biotin. I think I will ask the question of my onco next week about adding biotin- sure want my toenails to grow quick for summer. don't mind the hair being short at this point.

    Sarah, I can't answer that one- I had surgery between the two.

  • momof3boys
    momof3boys Member Posts: 896
    edited May 2012

    Hi Sarah, for me, between chemo and rads, it was almost 4 weeks. I had wanted to start rads quicker, but, they do bloodwork beforehand and my WBC wasn't high enough, so we waited another 4-5 days and retested. It was higher then and we started.

    Today I had my 26th of 28 tx and my physical therapy session. Friday is my last day. All of my techs have been exceptionally kind, sweet, professional and I wanted to get them a gift to show that I appreciate them. I didn't want to get food or flowers. I ended up getting them a bunch of Willow Tree angels that I thought they could keep at the center. Who knows, maybe some other patients will add to their collection... I got them the: "courageous" angel, "hope" angel, "thank you" angel and one more I can't remember now, (chemo brain). The store wrapped all of them together in one big box. I hope they like them. They have really been outstanding and I will actually miss them.

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