Starting chemo January 2009?

Phyllis--What chemo are you doing? Thinking of you and hope you see good results quick.

Phylis - I hope you are doing OK.

Is everyone experiencing an early spring?  My Sping Bulbs are seriously springing out of the ground already!  

We just finished a super crazy week,  DS had Russian math class on Wednsday night, as usual.  On Thursday he had his first math competiion - a standarized test given to kids on the same day all over the world.  Then a friend took him out for dinner and bowling.  Then Friday we had three families from DS's Sunday school over for a Shabbat dinner.  Then Saturday DS had Tennis and then a playdate and then the kid who hosted the playdate came over with his Mom for dinner.  Then this morning was Sunday school, followed by theater class, followed by going to see a community production of Joseph and the Technicolor Dream coat that DS dropped out of because the rehersal schedule was too much.  Looking forward to a much quieter week.

We are finally painting our foyer after living with plaster board for 3 yrs. That what happens when your diagnosised with BC 4 months after moving into your new home. (new for us the house is over 100 years old).  DH had his heart set on having a red wall in the house somewere so we are trying to find the right bright but not primary colorish red.  And the other wall, that goes up the stairs we are trying a rich pumpkln type color.  Having a heck of time getting the colors just right and making sure the go with each other but we really really love the life they add to the house.  Makes us happy and alert everytime we look at them, but as they are in the foyer the don't overwhelm or exhaust us with their energy because you don't stay in the room with them.  You walk through and glance over.  

 DH is also trying to buy a table saw off craigs list and going crazy deciding how much saw he needs/how much he wants to pay.  He does not plan to do alot of work but he wants a safe saw for what he does do.  

Where I work things are a bit crazy as in the past 3 months, my direct supervisor has transfered without warning to another position, her supervisor decided to demote herself back down to my position and the director of the whole department resigned to go home to Ohio.  And all this while we are trying to roll out a whole new computer system which is supposed to change the way we all do our jobs and the way the public interacts with us.  It maybe that roll out that made these people deside to leave their positions.  But all I can do is keep plugging along trying to do the best I can and provide support to others where I can without overdoing it.  

I am back to working out using our Wii.  I am doing a golds gym cardiowork out which I assume is working as I am sweaty and out of breath when I finish and sore the next day.  Weight loss is slow though.  

Thats the low down over here in Massachusetts.

Renrel

 Hi Ladies. Sorry I haven't been in touch. My chemo treatment was Mar. 13th. It wasn't too bad.I was really nauseus the next day.I think I'm on Taxotere again but not sure. I'll find out next treatment. I'm also on chemo pills, called xeloda. I'm on them for 14 days, 1 week off  then start them again when I get my iv chemo. The side effects are terrible. My body aches (reminds me when I had to get the neulasta shots), headaches, dizziness and fatigue. Starting to lose my appetite but not the taste. I have to be careful of mouth sores. My mouth was sore for a couple of days but its gone now. I have to wash my hands after handling the pills and the nurse gave me udder cream that i have to use after. My hands could crack and turn red, but they haven't so far. I have neuropathy again. It never went away in my toes, but its back in my fingers. My next treatment is Apr. 3rd. I'll let you all know how that goes. I hope everyone is doing well.

That is annoying Renrel

Phyllis, hugs, I was so hoping the chemo wouldn't be so bad.  I'm so sorry you're going through this. I hope it starts helping the breathing go easier

  hi ladies.  I'm not feeling too bad. Still get the headaches and dizzy spells. I haven't used my oxygen in over a week but i still have shortness of breath when I go up the steps or overdo things. well i woke u this morning and Im losing some hair. I found it first down under if you know wat I mean so I thought I would comb my hair and sure enough, a few strands came out. I was told not all women would lose their hair. Hopefully it won't all fall out. I will let you all know how my treatment goes next week. Have a good week

  Hi ladies. no treatment this week. my blood counts were too low. i go tomorrow for blood work because i have a dentist appt. Mon. but if the counts are too low, can't get my teeth cleaned. I'm scheduled for my next treatment next Tues.

Phyllis--hope you're feeling better this weekend and your bloodcounts go up for treatment. That xeoda is strong stufI and worked great for my sister-in-laws sister. Hope it does for you too.

 I saw my onc a couple weeks ago. She's going on maternity leave and I'll see another doc for my June visit. I'll be done with the bisphosphonates trial at that point. I think I'll need a bone scan to follow up. My onc asked if I wanted an mri of hip since I have so much pain at night. Funny she leaves it up to me. Anyone else with hip pain? I'm also getting another referral for LE Physical therapy. My elbow on that arm really hurts and onc thinks it's bursitis due to arimidex. Maybe I'll try to get accupuncture during spring break next week. I am really needing that break!!! Trying to figure out what the family should do for Easter tomorrow. HUGS to all!

MRI results next week.  Yikes!

Had my 1/4;ly check up last week.  Everything looks good.  I am having hip pain too.  Mostly in in the groin area if I stand or walk to long.  Last time we did a bone scan and it showed no issues.  This time he did pelvic xrays and is going to recommend a orthopedic doctor to diagonis and recommend a form of threapy.  I was on vacation the week before the visit which means I was up about about alot so I was hurting alot at my appointment.  Vacation was visiting my inlaws in Boca.  DS was running a fever on the plane ride down and was sick for the first few days then DH did not feel quite right the rest of vacation.  But we still got to Butterfly world and Seaquarium and the pool.  DH and DS got in some tennis. We ate out alot and DS watched way too much TV and played too much DS.  The worst part was sleeping in the pull out couch for 10 days.  I don't think we can do this for a week anymore.  We need to split the time with a hotel or sometime. 

Hey, sisters, how you be???

greetings all

hope all is well--I also had hip pain- which I swear is from the lupron/femara--- but did PT this fall because it was really sore when I exercised.... it seems to have resolved-- Onc meeting today--she said she is only concerned when things come on and get worse--something that comes and goes does not worry her.

had my annual MRI-- told her not to bother with the results until next week--- don't need to know over the holiday weekend... and I figure if something was wrong, she would have called me anyway.....

We did negotiate my going off lupron for the summer to see if I am in menopause--I am thrilled-I think this drug is causing many of my slight but really annoying SE's.... or at least I will know if it is the lupron or the femara.....

have a great weekend!

Hi everyone.  I hope all is well.  Hey, has anyone heard from Phyllis??'

HI Jewels.

 Well it's that time of the year again -- American Cancer Society Relay for Life. We have been fundraising up a storm and have raised over $16,000 so far. 

As I have for the last 4 years, I will carry the Jewels with me.  And I will trek mindfully and prayerfully for you, Phyllis. 

Here we are -- the best support group in the world!!

lisalisa brendafromflorida holtbolt renrel ddlatt

GriffinSong jrgolomb sjr585 BevR Sunflower45

Babyc Jas­_man bookgirl Misty auriga jillyG

mamasarah mimi07 AZStacey08 eadsla Hawaii808

Webwriter BerkleyKim sweeeetpam Butterfly2008

amyjane Snowbird ChrisBern Carol0371 Brenny lester63

rsben70 PinkLady Shavoners yrawleigh dpstarr REKoz

principessa kmmd bfb0123 susan13 mabels Kim25

newalex Yearof theHat marlenet carlajane ladyjane54

Alo123 marymoir Dpstarr aprilgirl1 living4today stitches

luvmyself silverlining KM47 susan13 carpediem bobcat

SallyJane blackmailtx Triciaski ChrysalisPa kimberlyjo

rmsilver shockedat39 Sister3 Horselover44 csbsk123

07rescue Lisa810 Misty123 PLUTZ Shannon7 knots Ninja

tyra PrincessKauai59 spooky EvaPerone JanetC826 cil326

LucyMichaels SusieQue momand2kids   and me kt57.

Take Care - stay strong

Kathy

I agree, Kim, thank you Kathy.

I had my six month and all is okay except I noticed my bilirubin was a bit high....onc said it looked okay........I never will understand what all this means!

Hi Jess! Hi Jewels! I'm waiting to hear results from bone scan that I did yesterday for end of bisphosphonates trial. Tech needed to do extra pictures due to slight uptake in neck. Then more of my sides that he didn't explain. I'm a wreck. Hoping for arthritis.

3 weeks relaxing at brother-in-laws house in Maui was great. Back to reality and worry. I guess my breast MRI early July was ok. Didn't get a letter this time so I called, and the receptionist just whispered "don't worry".

 Hope you all are having a great summer.