Pain under arm in the crease

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Jubby46
Jubby46 Member Posts: 16
edited June 2014 in Lymphedema

Hi all,

New to this forum. What a great place. I had lumpectomy Jan 31. So I guess I am still healing. Starting 6th week of radiation. Under arm is turning black. I read that can happen. In the crease it is still raw. My upper arm swells and part of my upper arm seems numb. My shoulder and back hurt too.

Asked doctor about sleeve and he said don't use. I am using corn starch and the moisturizer I am allowed to use. Wondering if there is anything else I can do. I can't sleep. Anti inflammatory helps for a while but who wants to live on them.

 Seems like a great place to ask for help.

thanks

Comments

  • Galsal
    Galsal Member Posts: 1,886
    edited April 2012

    Wish I'd something to tell you.  Others that know more on this will pipe in at some point.

  • ali68
    ali68 Member Posts: 1,383
    edited April 2012

    Omg, that sounds painfull can I ask did you have nodes removed? I'm asking as my lumpectomy is soon with node removal and I don't know what the pain will be like. I'm sure someone will give you advice but not heard anyone say about black under arm.

    I would go back to my doc and get more advice you shouldn't have to suffer.



  • kira66715
    kira66715 Member Posts: 4,681
    edited April 2012

    Jubby, it's very common to get raw and sore in the area under the arm during radiation. If it starts to break down, ask for burn cream--usually sulfasilvadene.

    Some women get a lot of pain with radiation and need stronger pain meds than anti-inflammatories, just for a while.

    The fact that you're swelling could just be in reaction to the inflammation of the radiation, but you'd benefit from meeting with a qualified lymphedema therapist---they'll be limited in what they can do right now, as a big part of treatment is massage, but they can help you

    http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm

    You really shouldn't wear a sleeve without hand protection, like a gauntlet, as you don't want to push fluid into the hand. Maybe your doctor doesn't want you to wear the sleeve as they think the top band may irritate your armpit area.

    We have things to do while waiting for an appointment, and a lot of the suggestions should help:

    http://www.stepup-speakout.org/How_You_Can_Cope_with_Lymphedema.htm#while%20waitingWhat to do While Waiting for Your First Appointment with a Qualified Lymphedema Therapist


    DO NOT try and treat this yourself!!! Proper professional treatment is essential to getting control of lymphedema and preventing its progression. Treatment can be expensive and inconvenient, but this condition is life long, potentially disfiguring, disabling and possibly life-threatening (if you get an infection known as cellulitis) so professional evaluation and treatment as soon as possible is essential.

    1) Get evaluated promptly by your doctor to rule out other causes for the swelling in your hand/arm, and get a referral to see a well-trained lymphedema therapist;


    2) Drink plenty of fluids -- staying well hydrated helps dilute lymph fluid and keep it moving freely;

    3) Elevate the swollen arm or hand as much as possible during the day and on pillows at night; support the arm well so that it doesn't tire;


    4) Several times a day pause and do some deep breathing -- this helps stimulate the largest lymph vessels in your body;

    5) Raise hands over head as high as is comfortable for you, three times a day, and pump fists 20 times;
    6) Call for medical help immediately if you have severe pain, redness, fever or feel ill;

    7) You can try mild compression gloves by either Sammons Preston or Isotoner® Fingerless Therapeutic Gloves if your hands and/or fingers are swollen until your appointment with your lymphedema therapist. Be sure to bring them along to your appointment;


    8) Do NOT use ACE wraps or any other wraps without the advice of your lymphedema therapist after your evaluation and your treatment plan is scheduled.

    Let us know how you're doing

    Kira

  • Jubby46
    Jubby46 Member Posts: 16
    edited April 2012

    I had a sentinel node procedure done to locate the sentinel node. I had 3 removed all clear. Skin turning black is a normal occurrence. Ask for pain pills you will need them for a while depending on your tolerance for pain. It will get better in time. Lost my nipple. It was right under it so couldn't be helped. I have low tolerance for pain but it has gotten better as time goes by. You can email me if you want to keep in touch.

    The blackness doesn't hurt and the color will change back or stay. You can do research. It is from the radiation.  Radiation doesn't hurt. I did not have to go for chemo.

  • ali68
    ali68 Member Posts: 1,383
    edited April 2012

    Hey thanks for that I didn't know about the rads doing that to your body, you learn something every day.

    I have one more chemo to go then surgery & rads, I'm dreading it all but I'll get through it.



    Hope you feel better soon



    Alison

  • Jubby46
    Jubby46 Member Posts: 16
    edited April 2012

    wonderful advice thanks so much

    I will discuss with my oncologist after radiation. I have to make an appointment tomorrow.

    will do all the exercise you mentioned I tried the ice someone mentioned seemed to help. Took a walk. That was good.

    going to do the breathing too. will write everything down. I am so happy I found you guys. This is wonderful. 

  • Jubby46
    Jubby46 Member Posts: 16
    edited April 2012

    oh wow my plan was surgery first then if I needed it chemo and last is radiation. Oh and you will afater week 3 or 4 get tired. Also with radiation you will get instructions to care for your skin because towards the end it will be like sunburn. So if you treat it the way they tell you it will not get that bad. I was told I can use corn starch and I did that this weekend and it helped.

  • midnight1327
    midnight1327 Member Posts: 1,475
    edited April 2012

     Hi there, i was diagnosed last year and had a lumpectomy,with 5 weeks radiaiton, finishing in Dec, but still have alot of discomfit under the arm and in the breast, i asked the breast cancer nurse and she said, this quite normal after surgery, as long  as no infection, and this can last up to a year, i am due for my next mamogram, six month check and not looking forwad to it as the breast is tender and that thing sqaushes them down, OW.. my sister sent me aloevera for burning and that was soothing, i did not have inflammatory because of reflux disease, but yes i am feeling your discomfit, my hubby cuddles me and if he leans on that breast, i have to get him to change sides. i can't help much. but just to be empathetic really.

  • ali68
    ali68 Member Posts: 1,383
    edited April 2012

    When you have rads does it feel hot? I ask this because I have solar urticaria and I'm worried rads will have the same effect.

  • midnight1327
    midnight1327 Member Posts: 1,475
    edited April 2012

    Yes it did burn and feel hot, i put my creams in the fridge, to be cool when i  put them on and it itched too, and had to really try very hard not to scratch. the aloevera helped and took alot of the redness out, but it still was burning, also i am big in the boobs, so had break down and had to be bandaged up with a special singlet, skin on skin and hubby had to do everyday and the district nurse twice a week check it, but that came right quickly. i did not not have chemo, we were asked to move from our house as the landlord wanted to renovate it and if i had to have chemo, would of gone mad, we had to be out from16th Dec.  The doctors were ropable with him as he knew i had just been disnosed and the the day i came out of hospital, he rang to do an inspection, my mum told him to take a running jump. so it was quite stressful

  • Jubby46
    Jubby46 Member Posts: 16
    edited April 2012

    no you don't feel a thing and you get zapped for maybe 3 to 5 minutes each time

    Toward the end you get a sunburn like thing I have not gotten it so bad use the moisturizer they tell you walk aroundthe house without a top to give your skin a chance to breathe

  • midnight1327
    midnight1327 Member Posts: 1,475
    edited May 2012

    I am booked in for my first mamogram six months after rads on 18th of this month. They said it will tell them if everything is clear and that i am in remission. so i am praying for some good news. i am nervous in the way that the breast is  quite tender and that machine squashes them down. I know its only for a short time and  it will be worth knowing what standing i am in, whether the treatment worked or i am back in the treatment zone again. We have to shift house again as this one needs to be sold and i don't know how i will cope if the mamogram comes back with the news i don't wanna hear. I have no choice in the house moving or whatever the outcome of mamogram. so i am just praying for a good outcome of the mamogram. everytime moving house is mentioned, something in me just sinks. what ever will be will be.

  • kcshreve
    kcshreve Member Posts: 1,148
    edited May 2012

    Midnight - do you have to do a mammo, or do you have other options, like an MRI or an ultrasound?

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